He mea noa te toto ka totoka, ka mutu te toto ina whara tātou. He tikanga tiaki tēnei o te tinana. Heoi, ki te mea he maha ngā totoka e puta ana i roto i ngā uaua o te tinana, kāore he take, he mea e āwangawanga ai. Ina koa mēnā ka pāngia tonu koe e te materoto i te wā e hapu ana, ko te take pea ko tēnei mate e kiia nei ko te Antiphospholipid Syndrome (APS), ka kōrerohia e tātou i tēnei rā.
He aha noa iho te APS?
Ki te whakarapopototanga, ko te Antiphospholipid Syndrome (APS) he āhuatanga e nui ake ai te tūponotanga o te hanga toto totoka i tō tinana i te mea noa. I ētahi wā ka kiia tēnei e ngā tākuta ko te Antiphospholipid antibody syndrome.
Ka taea e ēnei toto totoka te whakararu i ngā raruraru kino, tae atu ki te mate, pērā i te whiu . Ka whakanui ake hoki te mate i te mōrearea o ngā mate whānau me ētahi atu raruraru i te wā e hapu ana.
He mate ārai mate te APS. Whakaarohia, he pūnaha ārai mate kei roto i tō tātou tinana, pērā i te ope taua. Ka kiia e tātou ko te pūnaha ārai mate. Ko tāna mahi he tiaki i a tātou mai i ngā iroriki me ngā mate e puta ai te mate. Engari i roto i tēnei mate ārai mate, ko te mea ka tupu ko te tīmatanga hē o tā tātou ake pūnaha ārai mate ki te whakaeke i ngā pūtau pai o roto i tō tātou ake tinana.
He aha ngā tohu o tēnei mate?
Tērā pea ka puta he ira pango ki te kiri o ētahi tāngata whai APS, he rite ki te kupenga. E kiia ana tēnei e te rongoā ko te livedo reticulitis . Heoi, ko te nuinga o te hunga whai APS kāore he tohu tae noa ki te puta he toto totoka, he raruraru rānei i te wā e hapu ana.
Koinei ngā tohu ka puta mai mēnā ka puta he toto totoka. Me tino tupato koe ki ēnei.
| Tohu | Whakaahuatanga |
|---|---|
| Mamae o te uma | Ka puta pea tēnei i te toto totoka i roto i te ngākau, i ngā pukahukahu rānei. |
| Te uaua ki te manawa (dyspnea) | Tērā pea ka puta mai i te toto totoka i roto i ngā pukahukahu (embolism pūkahukahu). |
| Ngā mamae o te upoko | Tērā pea he raruraru kei ngā oko toto e anga atu ana ki te roro. |
| Mamae ohorere | Te mamae ohorere i ngā ringa, i ngā waewae, i te tuara, i te kaki, i te kauae rānei. |
| Te pupuhi, te whero rānei | Ka puta pea i te toto totoka, inā koa i roto i te ringa, i te waewae rānei. |
| Mamae puku | Ka puta pea tēnei i ngā toto totoka i roto i ngā oko toto e tuku toto ana ki ngā whekau puku. |
Ko te mea nui: He āhuatanga ohorere e morearea ana te toto totoka. Mena kei te whakapae koe he toto totoka tōu, haere tonu ki te tari ohorere o te hōhipera tata (ETU).
Haunga ēnei tohu, ka taea hoki e te APS te whakaputa i ētahi tohu kāore e kitea, e rangona rānei.
- Te whakaiti i ngā taumata pereti toto.
- Te mate toto iti.
- Ngā āhuatanga rerekē o te takirere o te ngākau.
He aha tēnei e tupu nei?
Ka puta te mate ārai-phospholipid ina tīmata hē tō pūnaha ārai mate ki te hanga i tētahi momo paturopi rerekē. I te nuinga o te wā, he pūmua motuhake ngā paturopi e rapu ana, e whakangaro ana hoki i ngā iroriki me ngā mate pāwera e uru mai ana ki roto i ō tātou tinana. He rite rātou ki ngā karetao tiaki.
Engari i roto i te tangata whai APS, ka whakaekea e ēnei paturopi, e hangaia ana e te pūnaha ārai mate, ngā pūmua e piri ana ki ngā phospholipids (he momo ngako) i roto i ō tātou ake pūtau. Ka pakaru ngā phospholipids i tēnei whakaeke, ka nui ake te tūponotanga ka piri tahi rātou, ka hanga toto totoka.
E toru ngā momo matua o ngā paturopi ka taea te whakaputa i te APS:
- Te rongoā ārai mate Lupus
- Ārai-kākā
- Ko te glycoprotein ārai-B2 1
Tērā pea ka kotahi, ka rua, ka toru rānei o ēnei paturopi kei te tangata whai APS. Engari ko te mea miharo ake, tera pea kei ētahi tāngata ēnei paturopi engari kāore e puta he tohu o te APS. Kāore anō kia mōhiotia e ngā tohunga he aha te mea e whakaoho ana i tā tātou pūnaha ārai mate ki te hanga i ēnei paturopi hapa.
Ko wai te mea tino mōrearea ki tēnei mate?
Ka taea e te tangata katoa te pāngia e te APS. Heoi, tera pea he nui ake tō mōrearea mēnā:
- Mena he wahine koe.
- Mena kei waenganui i te 30 me te 40 tau tō pakeke.
- Mena kei a koe ētahi atu mate pūnaha ārai mate, pērā i te lupus, te rumatiki rheumatoid rānei.
- Mena kei tētahi o ō whānau tata (ngā mātua, ngā tūpuna) he APS.
He aha ngā raruraru ka puta mai i te APS?
Ka taea e te mate ārai-phospholipid te whakararuraru i ngā raruraru kino, ā, i ētahi wā ka mate. Ko ngā raruraru tino kino ka puta mai ina puta he toto totoka ka aukati i ngā uaua e tuku toto ana ki ngā whekau nui o tō tinana.
- Roro: ngā whiu
- Manawa: Te whakaekenga o te manawa (thrombosis)
- Ngā Pūkahukahu: Te aukati i ngā oko toto i roto i ngā pūkahukahu (te embolism pūkahukahu)
- Ngā whatukuhu: Te kino o te whatukuhu
Mena kei te hapu koe, ka taea e te toto totoka e aukati ana i te tuku matūkai ki te whenua whānau te whakawhanau. Ka piki ake hoki te mōrearea o te preeclampsia, he āhuatanga e puta ai te toto toto tiketike i te wā e hapu ana.
He raruraru onge engari he kino te mate urutā antiphospholipid (CAPS) o te APS. He āhuatanga tēnei e puta ai ngā toto totoka i roto i ngā whekau maha o te tinana i roto i ngā rā. Tata ki te haurua o te hunga e pāngia ana e tēnei āhuatanga ka mate. Heoi, ka puta te CAPS i roto i te iti iho i te 1% o te hunga whai APS.
Kāore te APS e pā ki tō roanga o te ora. Heoi, ki te pakaru tetahi okana nui i te toto totoka, inā koa i roto i te āhuatanga pēnei i te CAPS, ka mate pea.
Me pēhea te tātaritanga tika a te tākuta i tēnei mate?
He maha ngā wā ka kitea te APS i muri i te hanganga o te toto totoka, i muri rānei i ngā whānautanga maha. Tērā pea he paturopi antiphospholipid kei ētahi tāngata engari kāore e puta he tohu.
Mā ngā whakamātautau toto ka whakaū te tākuta mēnā kei a koe te APS. Ka tangohia e rātou he tauira o tō toto, ā, ka tirohia mēnā kei roto i ngā momo paturopi e toru kua whakahuatia ake nei. Hei whakaū i te mate, me puta he pai i te iti rawa i te kotahi whakamātautau toto i ngā wā e rua, neke atu i te toru marama te wehenga.
He aha ngā maimoatanga mō tēnei?
Ka tūtohu tō tākuta i ngā maimoatanga hei whakaiti i te mōrearea o te toto totoka. Ko ngā maimoatanga tino noa ko ngā rongoā whakaiti toto, arā, ngā rongoā ārai toto .
| Momo rongoā | Me pēhea te whakamahi me te mahi |
|---|---|
| Te maimoatanga whānui | |
| Heparin | He rongoā werohanga-ā-uaua (IV) tēnei e āwhina ana ki te whakarewa i te toto totoka mēnā kei te hōhipera koe. |
| Warfarin | He pire tēnei ka tangohia mā te waha. Ka whakangawari i te toto, ā, ka ārai i te hanganga o ngā toto toto hou. |
| Āpipirini | Ka tūtohu pea tō tākuta kia tangohia he iti te horopeta o te aspirin hei ārai i te hanganga o ngā toto totoka i roto i ō uaua. |
| Ngā maimoatanga e whakamahia ana i te wā e hapu ana | |
| Enoxaparin | He werohanga tēnei e tukuna ana i raro i te kiri. He maha ngā wā ka tūtohutia kia haere tahi me te aspirin iti te horopeta hei ārai i te whānautanga tahanga. |
| Immunoglobulin ā-roto-uaua (IVIG) | Mā tēnei maimoatanga, e tukuna mā roto i te uaua, ka whakahaere i te mahi a te pūnaha ārai mate, ā, ka whakaiti i te mōrearea o te whānautanga tamariki. |
| Ngā corticosteroids | Ka whakaitihia e ēnei rongoā te mumura i roto i te tinana, ka whakahaere hoki i te mahi nui rawa o te pūnaha ārai mate. |
Mena kei te hapu koe, he haumaru tēnei maimoatanga mōu me tō pēpi, nō reira kāore he take e manukanuka ai koe.
Kia tūpato hoki tātou ki ngā pānga taha o ngā rongoā whakaiti toto.
Ina tango koe i ngā rongoā whakaiti toto, ka nui ake te tūponotanga ka toto tō tinana. Nō reira me tino tupato koe ki ēnei tohu. Mena kei a koe tētahi o ēnei , kōrero tonu ki tō tākuta.
- Te toto e puta mai ana i ngā kapia, i te ihu rānei, kāore he take .
- Te toto nui atu i te mea noa i te wā o te paheketanga.
- He ruaki whero mārama, he rite rānei ki te paura kawhe .
- He toto whero kanapa i roto i te tūtae, he tūtae pango, kawa rānei .
- Te mamae nui o te puku, te ānini nui rānei .
- Ngā panonitanga ohorere o te tirohanga .
- Te ngaronga ohorere o te rongo i ngā ringa, i ngā waewae rānei .
Ngā mea hei whakaaroaro māu ina noho tahi me te APS
Ko te mea tino nui i te wā e noho tahi ana me te APS ko te ārai i te toto totoka. Hei whakatutuki i tēnei, he mea nui kia tangohia tika ngā rongoā whakaheke toto.
Hei tāpiritanga, he mea nui kia whakahaerea ētahi atu āhuatanga hauora e whakanui ana i te mōrearea o te toto totoka. Mena kei a koe tētahi o ēnei āhuatanga, kōrero ki tō tākuta kia whakahaerea:
- Mate huka
- toto toto tiketike
- Te cholesterol teitei
- Momonatanga
- Ētahi atu mate pūnaha ārai mate
Ka whakanui ake te kai paipa i te mōrearea o te toto totoka, inā koa mō te tangata whai mate pēnei i te APS.
Me tūpato koe ki te kai me te inu?
Ko te hunga whai APS, kāore e hiahiatia kia whai i tētahi kai motuhake. Heoi, ki te mea kei te tango koe i te rongoā Warfarin , me tūpato koe ki ngā kai e nui ana te huaora K (ngā huawhenua kakariki pouri pērā i te pīnihi). Mā te kai i te nui o ngā kai e nui ana te huaora K i te wā kotahi ka nui ake te tūponotanga o te toto totoka. Nō reira, pātai atu ki tō tākuta mō ētahi tohutohu.
Me pātai atu hoki ki tō tākuta mō te inu waipiro. Ka whakangawari te waipiro i te toto, nō reira, mā te whakamahi i te waipiro me ngā rongoā whakangawari toto ka nui ake te pānga.
Āhea ahau me toro atu ki te tākuta?
Mena kei te tango koe i ngā rongoā whakaiti toto, me toro atu koe ki tō tākuta i ia wā mō ngā whakamātautau toto kia mōhio ai kei roto i te awhe tika ngā taumata totoka.
Ki te mea kei te tumanako koe kia hapu, he mea tino nui kia kōrero koe ki tō tākuta i mua i te wā, kia whiwhi tohutohu ai hoki.
Āhea ahau me haere ki te Tari Ohotata (ETU)?
Haere tonu ki te Tari Whawhati Tata (ETU) o te hōhipera:
- Kei te whakapae ahau he toto totoka tōu.Ki te tupu.
- Mena ka puta mai ētahi tohu o te toto totoka.
- Mena kei te totohu koe me te kore e taea te whakahaere .
Karere Tangohia ki te Kāinga
- Ko te Antiphospholipid Syndrome (APS) he āhuatanga e whakanui ake ai i te mōrearea o ngā toto totoka nā te mea ka whakaekea tō tinana e tō ake pūnaha ārai mate.
- Kāore he mea hei wehi i tēnei, ā, ka taea te whakahaere pai mā te maimoatanga tika (ina koa ko ngā rongoā whakaiti toto).
- Ahakoa ka pā mai ngā mate pāwera me ētahi atu raruraru i te wā e hapu ana, ka taea tonu te whānau tamariki hauora i raro i te tirotiro tika a te taote.
- Ki te pāngia koe e ngā tohu o te toto totoka, pērā i te mamae o te uma, te uaua ki te manawa, te pupuhi rānei o te waewae, whakaarohia he āhuatanga ohorere tēnei, ā, haere tonu ki te hōhipera.
- He mea tino nui kia tino whai koe i ngā tohutohu a tō tākuta, me te tirotiro i tō hauora i ia wā.
💬 Comments (0)
Kaore ano kia tukuna he korero. Tāpirihia to korero ki konei mo te wa tuatahi.
Tāpirihia to korero