Kua kite koe i ētahi tāngata he roa ake, he angiangi ake ō rātou maihao i te mea noa? He rite tonu ki ngā waewae o te pūngāwerewere. Tērā pea he pērā anō ōu maihao. I roto i te rongoā, ka karangatia tēnei mate ko te Arachnodactyly. Kaua e mataku ina rongo koe i tēnei ingoa. I te nuinga o te wā, ehara tēnei i te mate, engari he āhuatanga tinana noa iho e ahu mai ana i te tukunga iho. Heoi, i roto i ngā wā tino onge, he tohu pea tēnei o tētahi atu mate kei roto i tō tātou tinana. Nō reira, i tēnei rā, me kōrero noa tātou mō tēnei.
He aha te Arachnodactyly?
Ki te kī māmā noa, ko te arachnodactyly te kupu e whakamahia ana e ngā tākuta mō ngā "matimati pungawerewere." Arā, he maihao roa, angiangi e rite ana ki ngā waewae o te pungawerewere.
He tohu pea ēnei panonitanga o te āhua o ō tātou ringaringa mō ngā mate ira. Engari ehara i te mea koinei tonu te āhua. Tērā pea he roa, he angiangi ōu maihao tūturu, kāore he mate huna. He rite ki te mea kua riro mai i ētahi tāngata te makawe roa me ngā kanohi kikorangi.
He aha i roa ai ngā maihao? He aha ngā take?
Ko te tae o ō tātou makawe, te tae kiri, te teitei, tae noa ki te roa me te whānui o ō tātou maihao, ka whakatauhia e ngā ira i riro mai i ō tātou mātua. I te nuinga o te wā, ko ēnei āhuatanga tinana he hua noa iho o taua tukunga ira.
Heoi, he tino onge te rerekētanga o ēnei ira ka puta he huringa nui ki te whanaketanga o ō tātou tinana. I ētahi wā, ko te arachnodactyly te hua o taua rerekētanga ira.
Ko te nuinga o ngā mate ira ka pā mai ai ngā 'matihao pungawerewere' i tēnei ara, kei roto i te kāwai o ngā mate kiko honohono .
He aha tēnei kiko honohono?
Whakaarohia tō tātou tinana he whare i hangaia ki te pereki. Ko ēnei pereki (arā, ko ō tātou whekau me ō tātou uaua) e herea ana ki te moata, e homai ana te kaha me te āhua o te whare. Waihoki, ko te momo kiko e hono ana i ngā wāhanga rerekē o tō tātou tinana, e homai ana te tautoko me te āhua ki a rātou, ko te mea e kiia nei e tātou ko te kiko honohono . Hei tauira, ko ō tātou wheua, kiri, kiripaka, uaua, me ngā hononga kei roto i tēnei rōpū.
Nō reira, ina pāngia koe e tēnei mate hononga, kāore tēnei kiko e whanake tika. Kāore e pā ki te āhua o te tinana anake, engari ki te mahi hoki o tēnei kiko.
He aha ngā mate ka taea te hono atu ki tēnei āhuatanga?
He maha ngā mate nui o te kiko honohono e puta mai ana me te tohu 'ngā matihao pungawerewere'. He mea nui kia mōhio koe ki ēnei, nā te mea ki te whai tohu kē atu koe me te Arachnodactyly, he mea whakaaro nui kia toro atu ki te tākuta mō ētahi tohutohu.
| Mate ira | Ngā Āhuatanga Matua |
|---|---|
| Te mate Marfan | Tino roa, kikokore te tinana. He roa rawa ngā ringa, ngā waewae, me ngā maihao. He tino ngāwari ngā hononga. Tērā pea ka pā te scoliosis, ngā rerekētanga o te uma (pectus carinatum, pectus excavatum rānei), ngā raruraru tirohanga, me te mate manawa. |
| Te mate Beals | He roa, he angiangi ngā peka me ngā maihao i te whānautanga. Kāore i te pai te whanaketanga o ngā uaua. He maha ngā hononga e pakari ana i te whānautanga (ka pāngia ngā hononga e te mamae). |
| Te mate Ehlers-Danlos | Ka wetekina ngā hononga, ā, ka ngāwari te whāwhā. He tino totoro te kiri, ā, ka ngāwari te maru me te haehae. Tērā pea ka mamae ngā hononga me ngā uaua. Ka kitea te arachnodactyly i roto i ētahi momo kuri. |
| Homocystinuria | Ngā waewae me ngā maihao roa. Te korenga e piki tika te taumaha o ngā tamariki nohinohi. Ngā raruraru tirohanga (ngā katarata), ngā turi piko, me ngā āhua rerekē o te uma. |
| Te mate Loeys-Dietz | Ka pā ki te ngākau me te pūnaha tohanga toto, tae atu ki te pūnaha angaanga. Ko ngā rerekētanga o te uma, ngā āhua o te tuaiwi, te arachnodactyly rānei ētahi o ngā tohu. |
| Te mate Shprintzen-Goldberg | Ko te nuinga o te wā ka pā ki te whanaketanga o te angaanga. Tērā pea ka puta he rerekētanga o te kanohi, he raruraru rānei ki te nekehanga o ngā kanohi. Ka pā anō hoki ki te pūnaha angaanga me ngā maihao. |
Me pēhea te rongoā a te tākuta i tēnei?
Ko te mea tuatahi kia maumahara , ehara te Arachnodactyly i te mate e hiahia ana ki te rongoā. E kore e raru koe mēnā he roa, he rite ki te pūngāwerewere ōu maihao.
Heoi, ki te kite te tākuta kei te pēnei te āhua o ōu maihao, o ōu maihao rānei o tāu tamaiti, ka hiahia pea ia ki te tirotiro mō ētahi atu tohu o ngā āhuatanga ira kua whakahuatia ake nei, nā te mea he maha ngā tohu e mōhiotia ana i roto i ēnei āhuatanga.
Tērā pea ka pātai atu tō tākuta ki a koe i ēnei mea:
- Nōnahea koe i kite tuatahi ai i te āhua o ēnei maihao?
- He mate hononga-pūnaha tō tetahi o tō whānau (hei tauira, te Marfan syndrome)?
- He tohu anō kei a koe pērā i te mamae o ngā hononga, te uaua ki te manawa, te raruraru tirohanga rānei?
Mena kei te whakapaetia he mate ira, ka tūtohu pea te tākuta kia whakahaerehia he whakamātautau ira hei whakaū i tēnā.
Ko te mea nui, he maha o ēnei mate ira kāore e taea te whakaora katoa. Heoi, he tino whai hua ngā maimoatanga e wātea ana i ēnei rā hei whakahaere i ōna pānga, hei noho hauora, hei noho noa. Nō reira, he mea tino nui kia tautuhia wawetia te mate, kia tīmata ai te maimoatanga.
Me aha ahau mēnā kei te whakapae ahau he mate Arachnodactyly tōku?
Nā te mea he roa, he kikokore ō maihao, tera pea koe e whakaaro ana, 'Kei a au anō tēnei? He mate tēnei?' Mena he ruarua, he mataku rānei ōu, ko te mea pai ko te toro atu ki tō tākuta whānau me te kōrero mō tēnei.
I te nuinga o te wā, ki te pāngia koe, tāu tamaiti rānei e te mate hononga, ka kite koe i ētahi atu tohu i tua atu i te roa haere o ngā maihao. I ētahi wā, he tino ngawari ēnei tohu, he roa rānei te wā ka puta mai i te wā pēpi. Ki te kite koe i ētahi huringa i roto i tō tinana, i te tinana rānei o tāu tamaiti, inā koa i roto i te pūnaha angaanga, kaua e mangere ki te kōrero ki te tākuta mō tēnei mea.
Karere Tangohia ki te Kāinga
- Ko te arachnodactyly, ko ngā 'matihao pūngāwerewere' rānei, e pā ana ki ngā matihao roa, angiangi rawa.
- I te nuinga o te wā, he āhuatanga tinana tuku iho noa iho tēnei, kāore he mate.
- He onge noa iho, ka taea te waiho hei tohu mō tētahi mate ira e pā ana ki te kiko honohono, pērā i te Marfan syndrome.
- Mena he roa ōu maihao, he piko rawa ngā hononga, he raruraru tirohanga, he rerekē te tuara, te uma rānei, he hītori whānau rānei nō ēnei āhuatanga, he mea tino nui kia rapu tohutohu hauora koe.
- Kāore e hiahiatia he rongoā mō ngā 'matimati pungawerewere'. Ka aro te rongoā ki te mate pūtake e puta ai te mate.
- Kaua e mataku noa mā te tātaritanga i a koe anō i runga ipurangi. Mō ngā raruraru hauora katoa, he pai ake, he haumaru hoki te rapu tohutohu a tō tākuta.
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