He tīmatanga hou mō te oranga me te Ankylosing Spondylitis (AS)? E rua ngā kōrero pono

Kua pāngia koe e te mamae pinepine i tō tuara, i ō hope, me ētahi atu wāhi mai i ō tau 20, 30 rānei? Ina ara ake koe i te ata, ka ahua pakari, ka pakari tō tinana, ā, kāore e taea e koe te piko mō tētahi wā? Tērā pea ka whakaaro koe he mamae tuara noa iho tēnei, he mea ka puta ina he tō moe. Engari ki te mau tonu ēnei tohu, tera pea koinei te tīmatanga o tētahi mate e kiia nei ko te Ankylosing Spondylitis (AS). I tēnei rā, e kōrero ana tātou mō tēnei mate me ngā wheako o ētahi tāngata tūturu e rua kua whakarerekē i ō rātou oranga mā te noho tahi me tēnei mate.

He aha te Ankylosing Spondylitis (AS)?

He momo mate rumatiki anō hoki tēnei. Engari i tēnei wā, ko ngā hononga o te tuaiwi te nuinga e pāngia ana. He māmā noa iho, ka pupuhi ngā hononga i waenganui i ngā tuaiwi o te tuaiwi nā tēnei mate. I roto i te wā, ka puta he wheua hou i tēnei pupuhi, ā, ka honoa ngā tuaiwi. Ka taea e tēnei te whakaiti i te ngāwari o te tuaiwi, ka piko te tū. Kāore tēnei mamae e pā ki te tuaiwi anake, engari ka pā anō hoki ki ngā wāhi pērā i te hope, te pakihiwi, te rara, me te rekereke.

Nā te mate pūnaha ārai mate tēnei i hua mai, arā, ko te pūnaha ārai mate, e tika ana kia tiaki i tō tātou tinana, ka whakaeke hē i ō tātou ake pūtau hauora, arā, ko ngā hononga.

Āe, kia titiro tātou ki ngā kōrero a Lovaine rāua ko Deverell, i pāngia rāua e tēnei mate.

Te kōrero a Loven: Mai i te mamae ki tētahi mahi hou

I kitea a Loven i te 30 o ōna tau. Engari i tīmata wawe ngā tohu, whai muri i tana whānautanga i tana tamaiti tuatahi. I tīmata ia me te mamae o te tuara o raro, ā, ka haere tonu tana kore e taea te hikoi. Nō te mutunga, me whakamahi ia i te tokotoko hei hikoi.

I te 31 o ōna tau, i kitea tōna mate AS, whai muri i te horapa o te mamae ki tōna tuara o runga. I whakaatuhia hoki i roto i tana whakamātautau toto he ira pai (HLA-B27) . E kitea ana tēnei ira i roto i te nuinga o te hunga whai AS.

Engari kāore i mutu te kōrero i reira. I te tata ki te 30 o ōna tau, kua kore e taea te manawanui te mamae. Me tango e ia ngā rongoā whakamamae mamae nui, ā, me whakarērea e ia tana mahi. I tonoa ia e tana tākuta mate rumatika kia tirohia he hihi-X. I reira ka kitea e ia kua memeha te nuinga o te kiriuhi i tōna hope matau, ā, kua ngaro katoa te kiriuhi i tōna hope maui.

Pokanga whakarerekē ora

I te 39 o ōna tau, i meatia kia pokangahia tōna hope maui ki te whakakapinga hope. I kī tana taote pokanga koinei te mumura kino rawa atu kua kitea e ia.

"I taku oho ake i muri i te pokanga, ka puta he mea whakamiharo. Kua ngaro te mamae e kore e taea te manawanui . I whakarerekē i tōku ao. I pouri ahau mō ngā tau e 4-5. Engari i muri i te pokanga, kua rerekē ngā mea katoa."

Kāore i ngāwari te wā whakaora. Me ako anō ia ki te hikoi me te whakapakari i ōna uaua. E toru ngā rā o te wiki me mahi ia i te whakaora tinana mō ngā marama e whitu. I te tau i muri mai, me whakakapi tōna hononga hope matau.

I roto i te wā, ka mōhio ia he wahine ia e noho ana me ngā hope horihori e rua. Ka tīmata ia ki te pānui mō te whakahaere i te mamae me te noho tahi me te mate. I arotahi ia ki ngā mea ka taea e ia te whakahaere. Ko te tikanga o tēnā ko te kai, te whakakori tinana, me te whakaaro pai . I tēnei rā, he kaitohutohu hauora ia e āwhina ana i te hunga he rite tonu ngā mate.

Te Kōrero a Deverell: Te Mamae Kāore i Whakaponohia e ngā Tākuta

E 22 tau te pakeke o Deverell i te tīmatanga o ēnei tohu. Kāore i taea e ia te mahi i ngā mea ngāwari pēnei i te piki arawhata, te hapai rānei i tētahi kātene miraka. I tana kōrero ki tana tākuta mō te mamae nui me te mumura e puta mai ana i roto i tōna tinana, kāore te tākuta i aro nui ki tēnā.

I muri i ngā tau e rua, kāore he whakaoranga mai i tētahi rongoā, ka mea te tākuta ki a ia, "Kei roto katoa i tōu mahunga tēnei, kāore he mea e taea e au te mahi."

I kitea te mate, kāore i mutu te mahi

Engari kāore a Deverell i tuku i a ia anō. I kite ia i tētahi atu tākuta. I kite ia i ētahi tākuta he tohunga ki te mate pukupuku, te mate rumatiki, me ngā mate puku. I roto i ētahi whakamātautau i kitea he mate pēnei i te mate uaua, engari kāore i kitea he hua tuturu.

I tēnei wā, ka mutu rawa tana ao pāpori. I uru atu ia ki tētahi rōpū tautoko ipurangi, ā, i whakapuaki i ana wheako. I reira ka tohutohu tetahi kia whakamātauria ia (HLA-B27) .

I te putanga mai o te whakamātautau he pai i te tau 2010, nui atu te harikoa o Deverell. Kua kitea e ia te whakautu ki te pātai i raru ai ia mō ngā tau e whā. Engari he poto noa iho tōna harikoa. I kī atu tana tākuta kāore he rongoā , ā, he mate kino rawa atu.

Te whakarerekē i tō tirohanga ki te mamae

I muri i taua kōrero, ka whakatau a Deverell i tētahi whakatau ohorere. I hokona e ia āna mea katoa, ā, ka neke ki Cape Town, Āwherika ki te Tonga. I reira ka noho harikoa ia, ka titiro ki te moana, ki ngā maunga, me te mātakitaki i te ataata o te tangata. Engari i te whakaaro kei te mate ia, ka tīmata ia ki te whakaaro kei te hanumi tōna hinengaro me tōna tinana .

I reira ka tīmata anō ia ki te mahi i te Yoga Wera . Nā ngā mahi yoga i roto i te rūma wera i whakaiti i tōna mamae, ā, i whakapakari i tōna tuara. I mutu tana whakamahi i te kupu 'mamae'. Engari, i huaina e ia ko te 'whakamarie'.

"Kei runga koe i te whānuitanga o te mamae. Ka taea e koe te neke mai i te mamae ki te whakamarie."

I ēnei rā, he kaiako Yoga Wera a Deveral. Kāore ia e tango rongoā ana. Ko tana maimoatanga anake ko te yoga me te kai totika.

He aha tā tātou e ako ai i ēnei kōrero e rua?

Kōrero ki a koe anō mō ​​tō tinana.

E whakaatu ana te pūrākau mō Deverell, ahakoa ngā tākuta ka hē i ētahi wā. Ki te mea he whakapono tōu ki ngā kare ā-roto o tō tinana, kaua e wehi ki te kōrero mōna. Kaua e mutu te kōrero kia whiwhi rā anō koe i tētahi whakautu. Ko koe tō hoa pai rawa atu .

He mea kaha te hinengaro.

I whakarerekē a Loven rāua ko Deverell i tā rāua tirohanga ki te mamae. I kite rāua ehara te mamae i te mutunga o te ao, engari ka taea te noho tahi me te whakahaere. Ko te whakaaro pai he rite ki te wikitoria i te haurua o te pakanga.

Kāore he otinga kotahi e whai hua ana mō te katoa.

Nā te pokanga me te rongoā i āwhina a Loven. Nā te yoga me ngā huringa momo noho i āwhina a Deverell. Nō reira, ki te pāngia koe e tēnei mate, he mea nui kia kōrero koe ki tō tākuta kia kitea ai te maimoatanga me te momo noho e tika ana māu.

Kai me te whakakori tinana

I tiaki rāua i tā rāua kai. E ai ki a Lowen, mā te whakaiti i te huka, te paraoa, me ētahi momo mīti ka āwhina i te whakaiti i te mamae me te pupuhi. Waihoki, mā te mahi i ngā mahi whakakori tinana iti te pānga, pērā i te hikoi me te yoga, i ia rā, ka āwhina i te pupuri i te tuaiwi kia kaha, kia ngāwari hoki.

Ki te pā mai ētahi o ēnei tohu ki a koe, kaua e warewarehia. Tirohia tonutia he tākuta whai tohu mō te tātaritanga tika me te maimoatanga. Ko te wawe o te tīmatanga o te maimoatanga, ko te iti ake o te kino ki ō hononga ka taea e koe te whakahaere.