Kei te āwangawanga koe mō te whanaketanga o te roro o tāu pēpi? Me kōrero tātou mō te mate Dandy-Walker Syndrome

He ahua nui te māhunga o tāu tamaiti? Kāore rānei koe i te whakaaro kua roa rawa koe ki te mahi i ngā mea mō tōna tau? He mea noa i ētahi wā te mataku ina kite koe i ngā mea pēnei. I tēnei rā ka kōrero tātou mō tētahi āhuatanga ka pā kino ki ngā mātua, engari ka taea te whakahaere mēnā e mōhio ana koe. Ko te mate Dandy-Walker tēnā. Kaua e manukanuka, ka kōrerohia e tātou i roto i ngā taipitopito me ngā kōrero māmā.

He aha te mate Dandy-Walker?

He whakarāpopototanga noa iho, ko te Dandy-Walker Syndrome he mate e puta mai ana i te whānautanga o tētahi pēpi me te panoni o te whanaketanga o tōna roro . I ētahi wā ka kiia tēnei ko te Dandy-Walker Malformation. Ka puta tēnei i te wā kei roto tonu te pēpi i te kōpū, i te wā e whanake ana te roro. Ko te tikanga he mate whānau mai .

Ko te nuinga o tēnei ka pā ki te cerebellum, te roro iti kei muri o tō tātou roro, i roto i te take roro , me te wāhi e karapoti ana i a ia. I mōhio koe ko tēnei wāhanga e kiia nei ko te cerebellum te wāhanga tino nui o tō tātou Pūnaha Io Matua . Koinei te mea e whakarite ana i ngā nekehanga o ō tātou tinana. Ehara i te mea koinā anake, engari he maha atu anō hoki ngā mea e āwhina ana. Tirohia:

• Ka whakahaere i te taurite , te taunga o te tinana, me te tū tika .
• He āwhina anō hoki mō ngā take e pā ana ki te tirohanga .
• E pā ana hoki tō tātou kaha ki te whakaaro (hinengaro) ki ngā mea pēnei i te mārama me te maumahara ki tētahi mea.
• Ko ngā pūkenga nekeneke he mea pērā i te whakahaere i ngā waewae me ngā waewae.
• Ka whai wāhi atu hoki ki te whakahaere whanonga .

Ka huaina tēnei ko Dandy-Walker hei whakanui i ngā taote pokanga roro e rua, a Walter Dandy, MD, rāua ko Arthur Walker, MD, nā rāua i whakaahua te mate i te tau 1900.

He aha te mea ka pā ki te roro o te tangata whai Dandy-Walker?

Āe, he aha te mea ka pā ki te roro o te tangata e pangia ana e te mate Dandy-Walker? Anei ētahi mea ka pā:

• Ka nui haere te whā o ngā ventricle o te roro. Koinei te wāhi e karapoti ana i te cerebellum. Koinei te mea e āwhina ana i te rere o te wai cerebrospinal (CSF) i waenga i ngā wāhanga o runga me raro o te roro me te taurakira .
• Ko ngā taha e rua o te roro iti, arā, te wāhanga waenga e hono ana i ngā taha e rua, e kiia ana ko te cerebellar vermis , ā, ka ngaro katoa, ka ngaro wāhanga rānei.
• Ka puta he pūkahukahu , he rite ki te mirumiru wai te āhua, tata ki te ventricle tuawhā.
• Ka nui haere te turanga o te angaanga, arā, te fossa o muri.
• I ētahi wā, ka nui haere te wai cerebrospinal (CSF), ka piki ake te pēhanga i roto i te angaanga, ka pupuhi. Koinei te mea e kiia nei e tātou ko te hydrocephalus .

He pēhea te noa o te mate Dandy-Walker Syndrome?

E ai ki ngā raraunga mai i te Hononga o Amerika, tata ki te kotahi i roto i te 25,000 ki te 35,000 pēpi ka pāngia e te Dandy-Walker Malformation. He nui ake te kitea o ngā kōtiro i ngā tama.

He aha te take o te mate Dandy-Walker?

Ka puta tēnei āhuatanga ina he raruraru kei te whanaketanga o te roro iti o te pēpi i roto i te kōpū . I ētahi wā, ka puta pea tēnei āhuatanga i te whakarerekētanga ira .

Tērā pea he mate ira kei ētahi tāngata e pāngia ana e te mate Dandy-Walker. Ko te tikanga tēnei kua ngaro ētahi wāhanga o ngā ira, kua tāpirihia rānei. Kei te mōhio koe, he rite ngā ira ki ngā kete e kawe ana i ō tātou ira. Tērā pea ko te Mate Dandy-Walker he wāhanga o tētahi mate ira e puta tahi ana me ētahi atu hapa whānau.

He maha atu anō ngā take pea:

• Ka taea te tuku i ētahi momo huaketo mai i te whaea ki te pēpi i te wā e hapu ana.
• Te pānga ki ētahi paitini, ki ētahi rongoā rānei i te wā e hapu ana.
• He mate huka tōku whaea.

Āhea ka tīmata ngā tohumate o Dandy-Walker?

I ētahi wā, ka puta ohorere mai ngā tohu, ā, ka mārama hoki . I ētahi wā anō, ka pāngia pea ngā mātua e ngā tohu, engari kāore rātou i te mōhio kei te hē tetahi mea.

I te nuinga o te wā, ka puta ngā tohu i roto i ngā marama tuatahi o te oranga o te pēpi , engari ko ētahi tamariki kāore pea e tautuhia kia tae rā anō ki te 3, ki te 4 rānei tau te pakeke .

He aha ngā tohu o te mate Dandy-Walker?

Ko ngā tohu ka kitea i roto i ngā pēpi:

• Ko ngā whakaroa whanaketanga he whakaroa ki te tutuki i ngā taumata whanaketanga e tika ana mō te tau . Hei tauira, he whakaroa ki te noho, ki te ngokingoki, me te hikoi.
• He nui ake te angaanga i te mea noa.
• Hypotonia , arā, he ngoikore noa iho te tinana.
• Ko te tikanga o te spasticity ka pakari ngā uaua o te tinana, ka uaua hoki te piko.

Ngā tohu e kitea ana i roto i ngā tamariki pakeke:

• Te ruaki, te haurangi, me te pukuriri – he tohu ēnei o te pikinga o te pēhanga i roto i te roro.
• Te ngaronga o te taunga o te uaua, te haere wiri, me ngā nekehanga rerekē pērā i te kimokimo o ngā kanohi – he tohu ēnei o ngā raruraru ki te roro iti.

Tērā pea ētahi atu tohu:

• He pupuhi, he puku rānei kei muri o te angaanga.
• Ngā raruraru ki ngā io e whakahaere ana i te kaki, te mata, me ngā kanohi.
• Ngā āhuatanga rerekē o ngā tauira manawa .
• Ngā hopuhopu .
• Ngā Hauātanga Hinengaro .
• Ngā tohu o te Hydrocephalus .

He aha te rerekētanga i waenga i te Dandy-Walker Complex me te Dandy-Walker Syndrome?

Ahakoa te ahua uaua o tēnei, ka māmā noa iho. Ko te Dandy-Walker Complex he rōpū mate e rite ana ngā tohu. Ko te Dandy-Walker Syndrome tētahi o aua mate.

Tērā atu anō ngā āhuatanga e pā ana ki te Dandy-Walker Complex:

• Te Hypoplasia Cerebellar Vermis Motuhake, te Momo Dandy-Walker rānei : I tēnei āhuatanga, he iti te cerebellar vermis, kāore rānei i tino whanake. Heoi, kāore e kitea ngā huringa hanganga kē atu o te roro o ngā tamariki e pāngia ana e te Dandy-Walker Syndrome. Ko te nuinga o ngā tamariki kua tāpaetia ki tēnei āhuatanga ka whanake noa.
• Mega Cisterna Magna : I tēnei āhua, ka nui haere te fossa o muri i te tuara o te angaanga, engari he noa te roro iti. Ko te Mega Cisterna Magna kāore e puta he raruraru hauora.
• Te Pūnaha Arachnoid o Muri : He pūnaha tēnei e puta mai ana i roto i te pūnaha o muri. He tino onge te kitea o ngā tohu e ngā tamariki ahakoa kei a rātou tēnei momo pūnaha.

He aha atu ngā āhuatanga e pā ana ki te mate Dandy-Walker?

Tērā pea ka pāngia ngā tamariki e te mate Dandy-Walker e ngā raruraru ki ētahi atu wāhanga o te pūnaha io matua. Hei tauira:

• He mate onge, whānau mai anō hoki te ngaro o te Corpus Callosum (ACC) .
• Ngā raruraru ki te hanganga o ngā mea pēnei i te waewae, te mata, te ngākau, me ngā maihao.

Ka pāngia taku tamaiti e te hauātanga hinengaro?

He iti iho i te haurua o ngā tamariki e pāngia ana e te Dandy-Walker he hauātanga hinengaro . Ko te hauātanga hinengaro te mea tino kitea i waenga i ngā tamariki e pāngia ana e te Dandy-Walker, ā, kei a rātou ēnei āhuatanga e whai ake nei:

• Te hydrocephalus kino.
• Ngā Āhuatanga o te Ira Tangata .
• Ētahi atu mate whānautanga .

Kia maumahara, he rerekē ia tamaiti, ia tamaiti, nō reira, kāore e rite te wheako o tētahi tamaiti ki tētahi atu.

Me pēhea te tautuhi i te mate Dandy-Walker Syndrome?

I ētahi wā, ka kite pea ngā tākuta, ngā mātua rānei he nui rawa te upoko o te tamaiti . Tērā pea ka kite rātou kāore te tamaiti e tutuki ana i ngā taumata whanaketanga . Ka tono pea ngā tākuta i ngā whakamātautau whakaahua roro hei tautuhi i te mate o Dandy-Walker. Kei roto i ēnei whakamātautau:

• Whakamātautau ultrasound .
• Matawai CT .
• Matawai MRI .

I ētahi wā, ka kitea tēnei āhuatanga i te wā o te tirotiro ultrasound i mua i te whānautanga o te pēpi, i te tirotiro MRI rānei i te fetal .

Mena he mate Dandy-Walker tō taku tamaiti, me whai whakamātautau ira te whānau?

Mena he mate Dandy-Walker Malformation tāu tamaiti, he mea nui kia kōrero koe ki tō tākuta mō te tohutohu ira . Tērā pea he iti noa te ōrau o te hunga e pāngia ana e tēnei mate, he mema whānau anō hoki tō rātou e pāngia ana e tēnei mate. Nā te mea he āhuatanga ira pea kei roto, he maha ngā tākuta e kī ana kia whakamātauria he ira .

He aha ngā maimoatanga mō te mate Dandy-Walker Syndrome?

Ko te maimoatanga e whakawhirinaki ana ki ngā tohu o te mate Dandy-Walker. He mea nui kia tirotirohia e te tākuta i mua i te tīmatanga o te maimoatanga. Hei tauira, ka tūtohu pea ngā tākuta i ēnei e whai ake nei:

• Ventriculoperitoneal (VP) Shunt : Ka whakauruhia e ngā taote pokanga he taputapu iti e kiia nei ko te VP shunt hei tango i te wai nui mai i te roro. Ka taea e tēnei shunt te whakaiti i te pēhanga ki te roro me te whakapai ake i ngā tohu.
• Ngā Rongoā : Tērā pea ka tohua e te tākuta o tāu tamaiti he rongoā hei whakahaere i ngā haurangi.
• Whakaora : Mā te whakaora tinana me te whakaora mahi ka āwhina i ngā tamariki ki te pupuri i te kaha o ngā uaua. Ka taea hoki e ngā kaiwhakaora te whakaako i ngā tamariki ki ngā huarahi hou ki te mahi i ngā mahi o ia rā. Ka āwhina te whakaora kōrero ki te whanaketanga o te reo me te kōrero.
• Mātauranga Motuhake : Mā te taiao ako kua whakaritea paitia ngā tamariki e āwhina ki te whakatutuki i ā rātou whāinga mātauranga me ā rātou whāinga pāpori.

He aha te heke mai o ngā tamariki e pāngia ana e te mate Dandy-Walker?

Ko te heke mai me te roanga o te oranga o tāu tamaiti ka whakatauhia e tōna āhua.Kei te kaha o te mate , me ētahi atu mate whānau anō hoki kei a ia.

He maha ngā momo wheako ka pā ki te hunga whai mate nei. He ngawari noa ngā tohu o ētahi. He nui ngā hauātanga o ētahi. Ka taea e ētahi tamariki te whakatutuki i ngā pūkenga hinengaro noa me te whai mahere maimoatanga tika. Mō ētahi atu, ahakoa ka tere te tātaritanga me te rongoā a tā rātou tīma hauora i te mate, kāore pea e taea e rātou te eke ki taua taumata.

Ka taea te ārai i te mate Dandy-Walker Syndrome?

Kāore anō kia mōhiotia he huarahi hei ārai i te mate Dandy-Walker. Heoi, mā te tiaki tonu i te wā hapūtanga ka nui ake te tūponotanga kia hauora tō hāputanga. Whāia ngā tohutohu a tō tākuta kia noho hauora ai koe i a koe e hapū ana.

Me pēhea taku tiaki i taku tamaiti me te Dandy-Walker?

Mā te wawaotanga wawe ka taea e tāu tamaiti te whai wāhi pai ki te maimoatanga angitu. Ki te kite koe kāore tāu tamaiti e tutuki ana i ngā taumata whanaketanga pēnei i te noho, te hikoi, te kōrero rānei i te wā tika, me toro atu ki tō tākuta. Kātahi ka taea e rātou te whakatau tika i te mate me te whakarato i te mahere maimoatanga tino whai hua mō tāu tamaiti.

Tērā pea kei roto i te tīma tiaki Dandy-Walker a tāu tamaiti:

• Tākuta tamariki .
• Ngā Tohunga Whakawhanake .
• Ngā Kaiwhakaora Kōrero, Ngā Kaiwhakaora Mahi me Ngā Kaiwhakaora Tinana .
• Ngā Tohunga Mātauranga Motuhake .

He aha ngā mea me pātai atu ki taku tākuta mō te mate Dandy-Walker?

Mena kua tāpaetia tāu tamaiti ki te mate Dandy-Walker, pātai atu ki tō tākuta mō ēnei mea e whai ake nei:

• Me hiahia taku tamaiti ki tētahi pokanga irahiko ?
• He aha atu ngā mate hauora kei taku tamaiti?
• He aha te āhua o te heke mai (te tirohanga) o taku tamaiti?
• Me pēhea tā mātou e whakapai ake ai i ngā tohumate o taku tamaiti?
• Me mahi tātou i ngā whakamātautau ira ?

Hei whakamutunga, kia mahara ki tēnei.

Ko te Dandy-Walker Syndrome, e mōhiotia ana ko te Dandy-Walker Malformation, he mate roro e puta ana i mua i te whānautanga o te pēpi. He maha ngā wā ka tae ngā pēpi whai Dandy-Walker ki ngā taumata whanaketanga i muri mai. Me whai pokanga ētahi tamariki hei tango i te wai nui mai i te roro. Ka taea e ngā maimoatanga te āwhina i ngā tamariki ki te whakahaere i ngā mahi o ia rā, te angitu i te kura, me te ora i ngā oranga whai hua. Ki te kite koe he nui rawa te upoko o tāu tamaiti, kāore rānei ia e noho ana, e hikoi ana, e kōrero ana rānei e ai ki te tumanako, kōrero ki tō tākuta. He mea nui te mōhio wawe me te maimoatanga tika. Kaua e manukanuka, ka taea te whakahaere i tēnei mate mā te tohutohu hauora.

Te Mate Dandy-Walker, Ngā Pūkenga Roro, Ngā Pūkenga Whānau, Te Roroiti o te Tinana, Te Waikura o te Tinana, Ngā Whakaroa o te Whanaketanga, Te Hauora o te Tamaiti