Kāore e taea te nakunaku i te kai? Mamae te puku? Tērā pea he EPI (Exocrine Pancreatic Insufficiency) tēnei.

He maha ngā wā ka kī tonu koe i muri i te kai, ka mamae tō puku, ā, he kakara kino, he hinuhinu hoki ō tūtae? Tērā pea ka ngaro tō taumaha, kāore he take. Ehara ēnei i te tohu hei wareware. I tēnei rā ka kōrero tātou mō tētahi āhuatanga e kiia nei ko te Exocrine Pancreatic Insufficiency, ko te EPI rānei te poto, ka puta ai ēnei tohu.

He aha te EPI?

Āe, me kī pēnei. Kei roto i tō tātou puku tētahi okana e kiia nei ko te repeure . Ko tana mahi matua he whakaputa i ngā whākōkī , he momo matū motuhake e āwhina ana i a tātou ki te nakunaku i te kai e kainga ana e tātou. Ka uru ēnei whākōkī ki roto i tō tātou whekau iti ka wawahi i te kai e kainga ana e tātou, inā koa ko ngā hinu me ngā ngako, kia taea ai e te tinana te mimiti.

Nā, ko te mea ka pā ki te tangata whai EPI, kāore te repe taiaki e whakaputa i ngā whākōkī e ranea ana. He aha te mea ka tupu? Kāore te kai e nakunaku tika. Kāore te tinana e mimiti i ngā matūkai e hiahiatia ana, inā koa ko te ngako me ngā huaora wairewa-ngako (pēnei i ngā huaora A, D, E, me te K). Ka puta ngā raruraru pēnei i te mamae o te puku me te ngaronga taumaha.

Kaua e manukanuka. He tino pai ngā maimoatanga mō tēnei ināianei. Ki te whiwhi koe i te maimoatanga tika, ka taea e koe te noho anō i te oranga noa.

He aha ngā take o te EPI?

Ko te tino take o te EPI he momo kino ki te repeure. He maha ngā take ka pā ki tēnei.

• Te mate pāwera auau: Ka kiia tēnei e ngā tākuta he mate pāwera mau tonu . Ko te mea e tupu ana i konei, ka tīmata te mahi a ngā whākōkī i hangaia i roto i te repe taiaki i roto i te repe taiaki i mua i te taenga ki te whekau iti. Ka kino te repe taiaki i tēnei. He nui ake tēnei mōrearea i roto i te hunga e inu nui ana i te waipiro. Waihoki, ko ngā āhuatanga pēnei i te nui o te ngako toto (Triglycerides) me te ngoikore o te pūnaha ārai mate ka pā ki tēnei.
• Pokanga: Ka puta pea tēnei āhuatanga i ētahi wā nā te pokanga i te repe taiaki, te puku, te whekau rānei.
• Ngā mate whānau: Ka taea hoki e ētahi mate tuku iho te whakaputa i te EPI.
• Te Pūngāwerewere Pūngāwerewere: Ka puta he hūpē matotoru, piri hoki i roto i te tinana o te hunga whai mate nei. Ka āraihia e tēnei hūpē ngā awaawa repeure, ka ārai i ngā whākōkī kei puta.
• Te Mate Shwachman-Diamond: He mate ira anō hoki tēnei. I roto i tēnei āhuatanga, ka ngaro ngā pūtau e whakaputa ana i ngā whākōkī i roto i te repeure.
• Ētahi atu mate: Ka tūpono hoki ētahi tāngata ki te whakawhanake i te EPI nā ētahi atu mate o te pūnaha nakunaku, pērā i te mate a Crohn me te mate Celiac.

Me pēhea koe e mōhio ai mēnā kei a koe te EPI? He aha ngā tohu?

I ngā wāhanga tōmua, kāore pea he tohu e kitea, engari i te pakaru o te repe taiaki, ā, i te hekenga o tōna kaha ki te mimiti i te ngako, ka tīmata mārire te puta mai o ngā tohu.

Kei te ripanga i raro nei ngā tohumate e tino kitea ana.

Me pēhea te tautuhi tika a te tākuta i tēnei mate?

Ina haere koe ki te kite i te tākuta, ka pātai atu ia ki a koe mō ō tohumate, kātahi ka whakahau i ētahi whakamātautau hei whakaū i te mate.

Ngā pātai hei pātai atu ki te tākuta

• He mamae tō puku o runga?
• He haunga kino, he hinuhinu rānei te tūtae? He uaua ki te horoi atu?
• Kei te pāngia koe e te mate korere, kei te pupuhi rānei tō puku?
• Kua ngaro tō taumaha i ngā wā tata nei?

Ngā whakamātautau ka tūtohutia pea

He maha ngā momo whakamātautau mō tēnei.

He aha ngā maimoatanga?

Ko te rongoā matua, me te rongoā tino whai hua mō te EPI ko te Whakaora Whakakapinga Whākōkī Pancreatic (PERT) . He māmā noa iho, ko te tango pire hei whakakapi i ngā whākōkī kāore e hangaia ana e tō pancreatic.

• Me pēhea te tango i ngā papa PERT: Me tango ēnei papa i te wā kai . Ki te tangohia i mua i te kai, kua wehe atu ngā whākōkī i te puku i mua i te taenga atu o te kai ki roto. Ki te tangohia i muri i te kai, kua tomuri rawa te taenga mai o ngā whākōkī i muri i te tīmatanga o te nakunaku o te kai. Nō reira, me tango ēnei papa me ngā kai matua me ngā kai paramanawa .
• Ngā rongoā hei whakaiti i te waikawa o te puku: I ētahi wā, ka taea e te waikawa puku teitei te whakangaro i ēnei pire whākōkī i mua i te mahi. Hei whakamutu i tēnei, ka tohua pea e tō tākuta he rongoā pēnei i te 'Proton pump inhibitors' (hei tauira, omeprazole) me ngā 'H2 blockers' (hei tauira, famotidine).
• Ngā rongoā whakamamae:Mena ka mamae koe, ka taea e koe te tango i tētahi rongoā mamae whānui pērā i te Paracetamol i runga i te tohutohu a tō tākuta. Mena he tino mamae, ka tohua pea he rongoā kaha ake. Heoi, ka taea e ēnei rongoā te whakawara, nō reira me tino tupato, me te whakamahi hoki i raro i te tohutohu a te tākuta.

Hei tāpiritanga, he mea tino nui anō hoki te rongoā i te mate pūtake (hei tauira, te mate Pancreatitis Mau tonu, te Cystic Fibrosis) i puta ai te mate EPI.

Me pēhea koe e tiaki ai i a koe anō?

Haunga ngā rongoā, he mea tino nui anō hoki tō āhua noho me ō tikanga kai hei whakahaere i tēnei mate.

• Kai i ngā kai iti maha: Engari kaua e kai i ngā kai nui e toru i te rā, engari me kai i ngā kai iti e ono ngā wā i te rā. Mā tēnei ka māmā ake te nakunaku.
• Āraia te waipiro me te kai hikareti: Ka uaua ake te mimiti ngako e te waipiro, ā, ka kino hoki te repe taiaki. He kino anō hoki te kai hikareti ki te repe taiaki.
• Tangohia ngā huaora: Nā te mea kāore e mimiti tika ana e te tinana, me tango e koe ngā huaora pēnei i te huaora A, D, E, me te K ki waho. Mō tēnei, ka tohua e tō tākuta ngā huaora me ngā horopeta e tika ana.
• Rapua he tohutohu mai i tētahi tohunga kai: He mea tino nui kia rapu tohutohu mai i tētahi tohunga kai hei whakarite i tētahi kai totika e tika ana māu.

Ehara te EPI i te mate hei āwangawanga. Mā te maimoatanga tika me te momo noho tika, ka taea e koe te whakahaere i tēnei mate, ā, ka ora i te oranga noa. Ko te mea nui ko te noho whakapā atu ki tō tākuta, me te whai i ana tohutohu.