Kua kite koe i te paku pūwero o te rae o tāu tamaiti , ā, he nui? I ētahi wā, he mea noa ki ngā mātua te āwangawanga me te manukanuka ina ahua nui ake te rae o ō rātou tukemata, me te taha whakarunga hoki, i ō ētahi atu tamariki. I roto i te rongoā, ka kiia tēnei āhuatanga ko te Frontal Bossing . Ehara tēnei i te mate, engari i ētahi wā he tohu pea nō tētahi atu raruraru hauora kei roto i tō tātou tinana. Nō reira, me kōrero tātou mō tēnei i roto i tētahi huarahi māmā kia ngaro ai ngā pātai katoa i roto i ō tātou hinengaro.
He aha ngā tino take o te Frontal Bossing?
Ko te tikanga, ka puta mai tēnei mate i ngā mate hauora tino onge. Tērā pea he raruraru homoni, he mate ira, he mate tuku iho rānei. Me titiro tātou ki ngā tino take.
1. Ngā raruraru e pā ana ki te homoni
Ko tētahi tino take o te mate pukupuku o mua ko te acromegaly, he mate homoni e kiia nei ko te acromegaly . Nā te nui rawa o te homoni tipu e tukuna ana e te repe pituitary i roto i te roro. Ka nui haere ngā wheua o te mata, te angaanga, te kauae, ngā ringa me ngā waewae.
2. Ngā Āhuatanga Ira
He maha ngā āhuatanga ira onge ka puta ai te rae i tēnei ara. Anei ētahi o aua āhuatanga. Nā te mea he uaua ēnei āhuatanga, ka whakamāramahia e au mā te whakamahi i tētahi ripanga.
| Mate (Te Kupu Ingarihi) | Hei whakarāpopototanga... |
|---|---|
| Te mate nevus pūtau basal (te mate a Gorlin) | Ka taea e tēnei te arahi ki ngā āhua rerekē o te angaanga, ngā whēwhe wheua, me ngā mate pukupuku kiri. |
| Te mate Crouzon | Ka puta tēnei āhuatanga ina honoa ngā wheua o te angaanga o te tamaiti i mua i te whanaketanga (hononga wawe). |
| Te dysostosis Cleidocranial (CCD) | Ka pā tēnei mate ki ngā niho, ki ngā wheua kaki, ki te tuaiwi, ki te angaanga, me ngā waewae. He tino pakarukaru ngā wheua, ā, i ētahi wā ka whānau mai ngā tamariki kāore he mea pēnei i ngā wheua kaki. |
| Te mate Hurler | He maha ngā raruraru ka pā mai, pērā i te ngoikore o te angaanga, te mate ngakau, me ngā raruraru manawa. |
| Te mate Pfeiffer | I tēnei wā, ka whanake wawe hoki ngā wheua o te angaanga. He nui rawa atu anō hoki te koromatua me te māhunga, he tawhiti rawa atu. |
| Te mate Rubinstein-Taybi | Ka whakaroa te tipu, ka nui rawa ngā māhunga o ngā waewae, ka hauā te hinengaro, me ngā uauatanga ki te kai. |
| Te mate Russell-Silver | He iti te tipu o ēnei tamariki i roto i te kōpū me muri i te whānautanga. He nui te upoko o rātou, he rae e tū mai ana, ā, he mata tapatoru. |
3. Ētahi atu take
- Te mate pūkahukahu whānau: Mena he mate pūkahukahu te whaea i te wā e hapu ana, ka taea te hora ki tana pēpi. Ka pā mai pea he maha ngā raruraru hauora mō te pēpi, ā, ko te piko o mua tētahi o ōna tohu.
- Ētahi rongoā: Ko te whakamahinga o tētahi momo rongoā pēnei i te "Trimethadione", e whakamahia ana mō ngā haurangi i te wā e hapu ana, ka waiho hei take mō tēnei.
- Te mate riki: He mate tēnei ka puta i muri i te whānautanga o te tamaiti. Ko te mate riki ka puta mai i te korenga o te huaora D. Haunga te rae e kokiri ana, ka puhoi te tipu o te tamaiti, ā, ka ngawari ngā wheua o te angaanga.
Me pēhea te kitenga a te tākuta i tēnei?
Mena he āwangawanga, he āwangawanga rānei āu mō te rae o tāu tamaiti, ko te mea pai ko te kawe i tāu tamaiti ki tētahi tākuta whai tohu i te wā e taea ai. Ka tirohia e te tākuta mēnā he tohu tēnei mate nō tētahi atu mate.
Ko te tikanga o te tātaritanga penei:
1. Whakamātautau tinana : Ka āta tirohia te tamaiti e te tākuta.
2. Hītori hauora whānau:Ka pātai atu mātou ki a koe mō ngā mate ira katoa kei roto i tō whānau me te whānau o tō hoa rangatira.
3. Te pātai: Nōnahea koe i kite tuatahi ai i tēnei huringa, ā, mēnā he tohu kē atu anō kei te tamaiti i tua atu i te rae e pupū ake ana (hei tauira, he uaua ki te kai, he ngoikore te tipu).
4. Ngā whakamātautau: He maha ngā whakamātautau ka taea te whakahaere hei whakaū i te mate .
- Ngā Whakamātautau Whakaahua: Tērā pea ka whakahaerehia he matawai X-ray , MRI rānei (Magnetic Resonance Imaging) hei tirotiro mō ngā āhua rerekē, ngā tipu rerekē rānei o te angaanga.
- Ngā whakamātautau toto: Ka āwhina ngā whakamātautau toto ki te tirotiro i ngā taumata homoni me ngā āhuatanga ira.
Ko te mea nui kia kaua e mataku, kia whai i ngā tohutohu a te tākuta . Ehara i te mea ko ngā puku katoa i te rae he tohu mō tētahi mea morearea.
He rongoā kei reira mō tēnei?
He mea nui tēnei me mārama tātou ki konei. Kāore he rongoā mō te mamae o te kanohi, engari ko tōna āhua anake. Nā te mea ehara i te mate, engari he tohu.
Ki te kī māmā noa iho, kāore mātou e rongoā i te rahi o te rae, engari ko te mate hauora i puta ai. Kia oti te tātaritanga a te tākuta i te mate, ā, kia kitea te take, ka whakamāramahia e ia te mahere maimoatanga mō taua mate ki a koe.
I ētahi wā, ka kiia pea te pokanga whakapaipai he take e pā ana ki te āhua. Heoi, kāore anō kia whai aratohu motuhake mō tēnei. Nō reira, he mea nui kia kōrero roa koe ki tō tākuta i mua i te whakatau.
Ka taea te ārai i tēnei āhuatanga?
Ahakoa kāore he huarahi tino tika hei ārai i tēnei, he maha ngā mahi ārai ka taea te mahi i te wā e whakamahere ana kia whānau he tamaiti, me te wā e hapu ana.
- Te Tohutohu Ira: Ka āwhina tēnei i ngā tāne me ngā wāhine e hapu ana ki te aromatawai i te mōrearea o te tuku iho i ngā mate ira e ahu mai ana i roto i ō rātou whānau ki tā rātou tamaiti.
- Whakamātautau Ira:
- Whakamātautau kawe mate: Ka taea te whakamahi i tētahi tauira toto, i tētahi tauira ūkui paparinga rānei hei whakamātautau mēnā he kawe mate ira ngā mātua.
- Whakamātautau i mua i te whānautanga: Ka taea te whakamātautau i te pēpi i roto i te kōpū mō ngā mate ira.
- Ngā Whakamātautau Hapūtanga: He mea nui kia whakamātauria koe mō ngā mate pēnei i te syphilis i te wā e hapū ana. Mena kei a koe tētahi mate pēnei, mā te maimoatanga wawe ka ārai i te tukunga atu ki tō pēpi.
- Te tiaki i ngā rongoā:Mena kei te hapu koe, kei te whakaaro rānei koe kia hapu, kōrero ki tō tākuta mō ngā rongoā katoa e tangohia ana e koe (ina koa ko ērā mō ngā mate haurangi). Tērā pea ka taea e koe te huri ki tētahi atu rongoā kāore e pā ki te pēpi.
Karere Tangohia ki te Kāinga
- Ehara te 'Frontal Bossing' i te mate, engari he tohu noa iho nō tētahi atu mate hauora.
- Mena he āwangawanga āu mō te āhua o te rae o tāu tamaiti, kaua e mataku nui, me toro atu ki tētahi tākuta whai tohu i te wā e taea ai.
- Kāore te maimoatanga e arotahi ana ki te āhua o te rae, engari ki te whakahaere i te mate hauora taketake i puta ai.
- He mea tino nui te tohutohu ira me te whakamātautau hauora tika i te wā e hapu ana ina hapu ana, hei āwhina i te tautuhi me te whakahaere i ētahi o ngā raruraru ka arahi wawe ki ēnei āhuatanga.
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