Kei te māuiui koe, kei te pōuri hoki? Tērā pea he mate Guillain-Barré!

Kei te ahua ohorere koe kei te ngaro tō tinana, kei te ngoikore rānei ō waewae? I ētahi wā he tohu pea tēnei mō tētahi mea kino. I tēnei rā ka kōrero tātou mō tētahi o aua mate. Ko te Guillain-Barré Syndrome, ko te GBS rānei te whakarapopototanga. Ahakoa he āhua onge tēnei mate, he mea nui kia mōhio koe ki tēnei.

He aha te mate Guillain-Barré?

He whakarāpopototanga noa iho, ko te Guillain-Barré Syndrome he mate onge e whakaekea ai tō pūnaha io e te pūnaha ārai mate o tō tinana . Ka pakaru ngā io ā-taha e rere ana ki ō peka me ētahi atu wāhanga o tō tinana. Whakaarohia ēnei io he waea i roto i tō tinana. Ina pakaru ēnei io, ka puta pea ngā tohu pēnei i te ngoikore, te ngoikore, tae noa ki te pararutiki. Engari he rongo pai tēnei. Mā te maimoatanga tika, ka taea e te nuinga o te tangata te ora katoa i tēnei mate.

He rerekē anō hoki te whakahua o tēnei ingoa. I te reo Pākehā, ka whakahuatia ko "ghee-AHN buh-RAY".

Ko wai te mea tino pea ka pāngia e te GBS?

Ka pāngia te tangata katoa o ngā tau katoa e te mate Guillain-Barré. Heoi, ko te nuinga o te wā ka pāngia te hunga i waenga i te 30 me te 50 tau te pakeke. Ko te tikanga o tēnei, kei te mōrearea hoki te hunga taitamariki me te hunga pakeke waenga.

He pēhea te noa o tēnei?

He mate tino onge te GBS. E 7.8 piriona te taupori o te ao, ā, e ai ki ngā pūrongo, tata ki te 100,000 noa iho ngā tāngata e pāngia ana e te mate i ia tau. Ko te tikanga, tata ki te kotahi i roto i te 78,000 ngā tāngata ka kitea houtia kua pāngia e te mate i ia tau. Nō reira, ehara tēnei i te mea tino noa.

He aha ngā tohu o te GBS?

Nā te mea ka pā te mate Guillain-Barré ki ō tātou io ā-taha, ka pā hoki ki ngā mea e whakahaerehia ana e aua io, pērā i te nekehanga o te uaua, te kite i te mamae, te pāmahana, me te pā .

Ko ngā tohu tuatahi o te GBS ko te ngoikore o te uaua me/ranei te korekore o te tinana (paresthesia) . Ka puta ohorere mai ēnei tohu. He maha ngā wā ka pā ki ngā taha e rua o te tinana . Waihoki, ka tīmata i ngā waewae me ngā waewae, ka horapa haere ki runga, ki ngā ringa me te mata. Ina ngoikore ngā uaua o ngā waewae, ka uaua pea te hikoi, te piki arawhata rānei. Whakaarohia tētahi tangata e mahi noa ana, ka ngaro whakarere ōna waewae e rua, ā, kāore e taea te hikoi.

Ka rerekē te kaha o te GBS i ia tangata, i ia tangata. Tērā pea ka pāngia ētahi e ngā tohu tino māmā, ā, ka ora ake. Tērā pea ka pāngia ētahi e ngā tohu kino rawa atu. I runga i te kaha o te mate, ko ētahi atu tohu ko:

• Te mamae o ngā uaua kikī o te tuara me/ranei ngā waewae .
• Te pararutiki o ngā uaua o ngā waewae, o ngā ringa, me/ranei o te mata . I ngā wā tino kino, ka pararutiki pea te tinana katoa.
• Te ngoikore o ngā uaua o te uma. Ka uaua pea te manawa. Ka pā tēnei āhuatanga ki te hautoru o te hunga whai GBS.
• Te uaua ki te kōrero me te horomi (dysphagia) .
• Te uaua ki te neke i ngā kanohi me te tirohanga pōuri .

Ka taea e ngā tohu o te GBS te whanake haere i roto i ngā hāora, ngā rā, ngā wiki rānei . Ko te nuinga o te tangata ka pāngia e te mate kino rawa atu i roto i ngā wiki tuatahi e rua i muri i te tīmatanga o ngā tohu. I te toru o ngā wiki, tata ki te 90% o te tangata kua tino ngoikore.

Ko te mea nui, ki te pāngia koe e te ngoikore o te uaua, ā, ka kino haere i roto i ētahi hāora, i ētahi rā rānei, me toro atu ki te tākuta tonu. He mea tino nui kia tīmata wawe te maimoatanga mō te GBS.

He aha ngā raruraru pea ka pā mai i te GBS?

Ka pāngia tō tātou pūnaha io ā-ringa e te GBS, ka pā mai pea ngā raruraru morearea ki te ora . Ko tā tātou pūnaha io ā-ringa te kaiwhakahaere o ngā tukanga nui kāore tātou e mōhio kei a tātou, pērā i te tere o te manawa, te toto toto, me te nakunaku. Ina hē te mahi a tēnei pūnaha, ka kiia ko te dysautonomia.

Ko te dysautonomia i puta mai i te GBS ka arahi pea ki ngā raruraru pēnei i:

• Ngā arrhythmias o te ngākau.
• Te kore pumau o te toto toto.
• Ngā raruraru nakunaku (te korenga o te kai e noho pūmau ana).
• He uaua ki te whakahaere i te mimi, hei tauira, te pupuri i te mimi.

He aha ngā take o te GBS?

Ko te mate Guillain-Barré he mate neuropathy i muri i te pangia, e pāngia ana e te ārai mate . Me whakamārama ake tēnei:

• I muri i te pangia: Ka puta tēnei āhuatanga i muri i te pangia e te mate. Tata ki te 70% o te hunga whai GBS ka puta ngā tohu i roto i te wiki ki te ono wiki i muri i te mate . Kāore anō kia mōhiotia e ngā kairangahau he aha tēnei ka pā ki ētahi tāngata, engari kāore ki ētahi.
• Ārai Mate: Ko te tikanga o tēnei, ko te mate i puta mai i tētahi urupare rerekē mai i tō tātou pūnaha ārai mate. Ina pāngia ētahi tāngata e te mate, ka tauhohe hē tā rātou pūnaha ārai mate, ā, ka whakaekea, ka pakaru hoki ō rātou ake io ā-taha. Koinei te take o te GBS. He momo mate ārai mate anō hoki. Heoi, kāore i rite ki te maha o ngā mate ārai mate, ehara te GBS i te mate mō te wā roa.
• Te mate pukupuku roro:Ko te Neuropathy he kupu whānui mō ngā mate e kino ai ngā io. I roto i te GBS, ka pā te kino ki ngā io ā-taha. Ka tere te whakaeke a tō tātou pūnaha ārai mate i ēnei io i roto i ētahi rā, ka whakangaro i te hipoki tiaki e kiia nei ko te myelin (he rite ki te whakamarumaru e karapoti ana i te waea hiko).

Kua tautuhia e ngā kairangahau ētahi mate pāwera me ētahi atu take e pā ana ki te pūnaha ārai mate ka arahi pea ki te GBS. Kei roto i ēnei:

• Te korere, te mate manawa rānei: Tata ki te rua hautoru o te hunga whai GBS ka pāngia e te korere, e te mate manawa rānei i ētahi wiki i mua i te tīmatanga o ngā tohu. Ko te tino take o te GBS ko te pangia e te huakita Campylobacter jejuni e hua ai te korere.
• Ngā mate huaketo: Ko ētahi o te hunga kua pāngia e te GBS kua pāngia e ngā mate huaketo pēnei i te rewharewha, te cytomegalovirus, te huaketo Epstein-Barr, me te huaketo Zika.
• Ngā Werohanga: He tino onge te pāngia o ētahi tāngata e te GBS i roto i ētahi rā, i ētahi wiki rānei i muri i te whiwhinga o ētahi werohanga. Engari he mea nui tēnei: ​​He nui ake ngā painga o te werohanga i ngā mōrearea. Kua whakaatuhia e ngā rangahau he nui ake te tūponotanga o te hunga e whiwhi ana i te werohanga rewharewha ki te pāngia e te GBS i te hunga e pāngia ana e te rewharewha.
• Pokanga: He tino onge te puta o te GBS i muri i tētahi pokanga.

Me pēhea te tautuhi i te `(GBS)`?

Ko te tikanga, ka tātaritatia e ngā tākuta te mate Guillain-Barré i runga i ō tohu me tō hītori hauora . Ka pātai atu tō tākuta ki a koe mō te tīmatanga me te wā i tīmata ai ō tohu, me te mea kua pāngia koe e ētahi mate tata nei. Ka tirotirohia hoki e rātou he whakamātautau tinana me te whakamātautau io hei tirotiro i te ngoikore o te uaua me te hekenga, te ngaro rānei o ngā urupare uaua hōhonu (hyporeflexia, areflexia rānei).

Heoi anō, he maha atu anō ngā mate pūnaha io e rite ana ngā tohu ki te GBS. Nō reira, ka tono pea tō tākuta i ētahi atu whakamātautau hei whakakore i ētahi atu mate. Kei roto pea i ēnei whakamātautau:

• Te whakamātautau hiko-miomio (EMG) me te whakahaere io: Ka aromatawaihia e ēnei whakamātautau te hauora me te mahi a ō uaua angaiwi (ngā uaua e piri ana ki ngā wheua) me ngā io e whakahaere ana i aua uaua.
• Te pokanga tuaiwi / te pokanga hope:I tēnei tikanga, ka werohia e tō tākuta he ngira ki roto i tō tuara o raro, ka tangohia he tauira o tō wai cerebrospinal (CSF). Ka tukuna te tauira ki tētahi taiwhanga hei whakamātautau i ōna ihirangi. Mō te 80% o te hunga whai GBS, he noa te maha o ngā toto toto mā i roto i te CSF, engari he teitei ake te taumata pūmua. Ko ētahi atu āhuatanga rerekē i roto i te CSF ka tohu pea i tētahi atu mate.
• Ngā whakamātautau whakaahua: Ka tūtohu pea tō tākuta i tētahi matawai MRI (whakaahua irahiko aukume) o te tuaiwi.

Me pēhea te rongoā mō te GBS?

Mena kei a koe te mate Guillain-Barré, me noho pea koe ki te Wāhanga Tiaki Kaha (ICU) o te hōhipera mō te maimoatanga. Ko te tikanga tēnei kia taea ai e te tīma hauora te aroturuki tata i a koe mō ngā raruraru pēnei i te uauatanga o te manawa me ngā huringa o te toto toto ka puta mai i te GBS.

Kāore he rongoā motuhake mō te mate Guillain-Barré. Heoi anō, kei reira ngā maimoatanga hei whakaiti i te kaha o te mate, hei whakapoto hoki i te wā whakaora. E rua ngā kōwhiringa maimoatanga matua mō te GBS:

• Whakawhiti plasma (plasmapheresis): I roto i tēnei maimoatanga, ka wehea e te mīhini te plasma mai i tō toto, ka rongoatia, kātahi ka whakahokia te plasma me te toto ki tō tinana. Ka tātarihia e te whakawhiti plasma ngā paturopi e whakaeke ana i ō io mai i tō plasma.
• Te rongoā immunoglobulin ā-uaua (IVIG): I roto i tēnei maimoatanga, ka tukuna mā te uaua (ki roto i te uaua) ngā pūmua e kiia nei ko ngā immunoglobulin, he mea kohi mai i te toto o ngā mano tini o ngā tāngata hauora. Ko ēnei immunoglobulin he pūmua e hangaia ana e tō tātou pūnaha ārai mate hei whakaeke i ngā rauropi ke. Ka taea e te IVIG te whakaiti i te roa o te wā e whakaeke ai tō pūnaha ārai mate i ō io.

Ki te tīmata te maimoatanga i roto i ngā wiki e rua i muri i te tīmatanga o ngā tohu GBS, me ēnei maimoatanga e rua, ka taea te whakapoto i te wā whakaora.

Te maimoatanga mō ngā raruraru

Ka puta pea ngā raruraru ina pāngia tō pūnaha io motuhake e te GBS, ā, ka pararutiki tō tinana. Ka aro turukihia tō manawa, tō tere o te ngakau, me te toto toto e tō tīma hauora. Ka tere tā rātou mahi mēnā ka puta he raruraru. Ko ētahi tauira o ngā maimoatanga mō ngā raruraru ko:

• Te tiaki manawa: Mena ka pāngia ō uaua manawa e te GBS, me whakamahi pea koe i te pūnaha manawa ā-ringa. Tata ki te 30% o te hunga whai GBS ka uaua ki te manawa.
• Te ārai i ngā toto totoka:Ina kore rawa koe e mōhio, ā, i roto i te moenga hōhipera mō te wā roa, ka hoatu pea e tō tākuta he rongoā ki a koe pērā i te heparin (he rongoā ārai toto) hei ārai i te toto e pupuhi ana i roto i ō uaua hohonu (thrombosis uaua hohonu).
• Ngā wai i roto i te uaua me te whāngai i roto i te ngongo: Mena he uaua te horomi, me whāngai pea mā te ngongo nasogastric hei ārai i te matewai, me te whāngai mā te ngongo nasogastric hei ārai i te kore kai pai. Ka āwhina hoki tēnei ki te ārai i te kai, i ngā wai rānei kei uru ki roto i te puku o te manawa, ā, ka puta te niumōnia manawa.

Whakaoraora

I te pai haere o tō āhua, ka taea e tō tīma hauora te kawe i a koe ki tētahi pokapū whakaora. I reira, ka taea e koe te mahi tahi me ngā kaiwhakaora tinana me ētahi atu kaiwhakaora ki te whakahoki mai i tō kaha me te tīmata i ngā mahi whakakori tinana hei āwhina i a koe ki te hoki ki ō mahi o ia rā. Kei roto pea i ēnei maimoatanga:

• Whakaora tinana: Ka āwhina tēnei i te whakapai ake i te nekehanga o tō tinana. Ka taea e te kaiwhakaora tinana te āwhina i a koe ki te whakahaere i ngā tohu pēnei i te mamae, te pakari, me te kore whakamarie. Ka taea hoki e rātou te āwhina i a koe ki te mahi i ngā mahi whakakori tinana hei whakahoki mai i te kaha o te uaua.
• Whakaora mahi: Mā tēnei maimoatanga ka āwhina mārire koe ki te whakapai ake i tō kaha ki te mahi i ngā mahi o ia rā. Ka akona koe e te kaiwhakaora mahi ki te tū, ki te noho, ki te neke, ki te whakamahi rānei i ngā taputapu maha hei mahi haumaru i tāu mahi.
• Whakaora kōrero: Mena kua pāngia ngā uaua o tō waha, o tō korokoro rānei e te GBS, ka taea e te tohunga reo kōrero te āwhina i a koe kia hoki mai tō kaha ki te horomi me te kōrero.
• Āwhina nekeneke: Ka taea e ngā taputapu pēnei i te tokotoko, te tautoko, te hikoi, me te tūru wīra te whakapai ake i tō nekenekehanga me te ārai i te hinganga. Ka taea hoki e ēnei te āwhina ki te whakaiti i te ngenge.

Ka taea te ārai i te GBS?

I te nuinga o te wā, kāore e taea te ārai i te mate Guillain-Barré. Kāore anō kia mōhiotia e ngā kairangahau he aha ētahi tāngata ka pāngia e te GBS i muri i te mate, ā, ko ētahi kāore. Heoi, ko tētahi mea ka taea e koe te mahi hei whakaiti i tō tupono ki te pāngia e te GBS ko te noho hauora tonu. Ka taea e ēnei mahi te āwhina:

• Horoia ō ringaringa i ngā wā katoa.
• Me noho tawhiti atu i te hunga e pāngia ana e te rewharewha puku, e ētahi atu mate pāwera rānei.
• Whakakahangia tō pūnaha ārai mate mā te kai i ngā kai hauora me te whakakori tinana i ngā wā katoa.
• Kia ma, kia horoia hoki ngā mata e pā pinepinetia ana pērā i ngā tēpu, ngā taonga tākaro, ngā kakau tatau, ngā waea me ngā taputapu kaukau.
• Me whiwhi i ō werohanga katoa i te wā tika.

He aha te āhua o te mate mō te tangata whai GBS?

Ka rerekē pea te matapae mō te tangata e pāngia ana e te mate Guillain-Barré. Ko te nuinga o te hunga e pāngia ana e te GBS ka ora nui i roto i ētahi marama. Heoi, tata ki te 30% o ngā pakeke – me te maha atu o ngā tamariki – ka mau tonu pea te ngoikore o te uaua i ētahi wā e toru tau i muri i te tātaritanga.

Ka taea te rongoā katoa i te mate Guillain-Barré?

I te nuinga o te wā, ka tino pai ake ngā tohu o te mate Guillain-Barré i te roanga o te wā me te maimoatanga. Ka tīmata te nuinga o te tangata ki te ora i roto i ngā wiki e rua ki te toru i muri i te tīmatanga o ngā tohu. Ko te wā e pau ana ki te tino ora ka rerekē mai i ētahi marama ki te tau, neke atu rānei, i runga i te kaha o te mate.

Te mate Guillain-Barré me te roanga o te ora

He rite tonu te roa o te oranga o te hunga e ora ana i te mate Guillain-Barré. E 2% te hunga e mate ana i te GBS i te wā o te mate urutā. Ko ngā take noa o te mate e pā ana ki te GBS ko:

• Pūngāwerewere.
• Sepsis (paitini toto).
• Te mate manawa whakapeka (ARDS).
• Te toto totoka i roto i ngā pukahukahu (embolism pūkahukahu).
• Te hopukanga o te ngākau.

Me pēhea taku tiaki i ahau anō mēnā kei a au te GBS?

Ka puhoi pea te tukanga whakaora mai i te mate Guillain-Barré mō ētahi tāngata. Kaua e mangere ki te rapu tautoko tinana, ā-hinengaro hoki mai i ō whanaunga. Kei reira tō tīma hauora hei tautoko i a koe.

Ka tino pāngia koe e te ngaronga ohorere o te māramatanga, te hauātanga rānei. Mena kei te pāngia koe e te ahotea mō te GBS, kōrero ki tētahi tohunga hauora hinengaro , pērā i tētahi tohunga hinengaro. Ka taea hoki e tētahi rōpū tautoko te āwhina i a koe ki te hono atu ki ētahi atu he rite ō rātou wheako me ō rātou kare ā-roto.

He mate kino te mate Guillain-Barré (GBS) ka taea te whakarerekē ohorere i tō hauora. Ko te rongo pai ko te nuinga o te hunga whai GBS ka ora pai mā te maimoatanga. Heoi, ka roa pea te wā. Ka uaua, ka hoha hoki te tukanga whakaora. Kia mahara, kei a koe tō tīma hauora i ia taahiraa o te ara. Kaua hoki e wareware ki te tiki tautoko mai i ō whanaunga.

Kia maumahara tātou ki ngā mea tino nui (Karere hei kawe ki te kāinga)

• He mate onge te mate Guillain-Barré e whakaekea ai e tō tātou ake pūnaha ārai mate ō tātou ake io.
• Ka puta tēnei i muri i tētahi mate pāwera pērā i te kirika, te makariri, te mate korere rānei.
• Ko ngā tohu matua ko te ngoikore ohorere o ngā uaua me te ngoikore o te tinana, ka tīmata i ngā waewae ka horapa ki te taha whakarunga o te tinana.
• Tērā pea ka pā mai ngā uauatanga ki te manawa, te uauatanga ki te horomi, me te ngoikore o te mahi a ngā uaua o te mata.
• Ki te pāngia koe e ēnei tohu, me toro atu ki te tākuta tonu.He mea tino nui te maimoatanga tere.
• Ka taea e ngā maimoatanga pēnei i te plasmapheresis me te IVIG te whakahaere i te mate me te tere ake te whakaora.
• Ka roa pea te wā e ora ai, ā, me whai maimoatanga whakaora anō pea pēnei i te whakaora tinana.
• Ahakoa ka ora katoa te nuinga o te iwi, tera pea ka noho tonu ētahi ngoikoretanga.
• Ahakoa he uaua tēnei ki te ārai, ka taea e koe te whakaiti i tō mōrearea mā te noho hauora.

Mena he pātai anō āu mō tēnei, kaua e mangere ki te pātai atu ki tō tākuta. Kia ora tonu koe!

Te mate Guillain-Barré, ngā mate pūnaha io, te pūnaha ārai mate, te ngoikore o te uaua, te ngoikore o te ngākau, te GBS, ngā mate pūnaha ārai mate