Ehara i te mea he tohu noa iho tō mamae tuara? Me ako atu tātou mō te AS (Ankylosing Spondylitis)!

"Kei te mamae anō tō tuara? Whakatakotoria he urunga ki runga, ka takoto...". He maha ngā wā ka rongo koe i ngā kōrero pēnei? Ina koa mēnā kua roa te mamae o tō tuara, ā, kei te haere mai, kei te haere atu, ka whakaaro pea te whānau me ngā hoa he mamae tuara noa iho. Engari i ētahi wā he kōrero hohonu rawa atu. I tēnei rā kei te kōrero tātou mō te Ankylosing Spondylitis, te AS rānei, he rite ki te mamae tuara noa iho, engari he tino rerekē te āhua.

He aha rawa te AS (Ankylosing Spondylitis)?

Ki te whakarapopoto, he momo mate rumatiki te AS. Engari he pānga motuhake ki tō tuaiwi. He wheua iti (vertebrae) te mea hanga o tō tātou tuaiwi e hono ana tetahi ki tetahi. I roto i te tangata whai AS, ka tīmata te pūnaha ārai mate o te tinana ki te whakaeke i ēnei hononga o te tuaiwi. Ka kiia tēnei he mumura .

Whakaarohia me te mea kei te pakanga tō tinana ki tō tuaiwi. Ka mamae, ka pakari hoki tō tuara i tēnei mumura. I roto i te wā, i te wa e ora ana te mumura, ka tīmata te hanga wheua hou. Ko te mutunga iho, ka honoa ngā tuaiwi o tō tuaiwi, ā, kāore e taea te piko i tō tuaiwi. Ko te tikanga o te kupu 'ankylosing' ko te "hononga tahi" "ka pakari rānei." Ko te 'Spondylitis' he mumura o te tuaiwi. Inaianei kua kite koe, ehara tēnei i te tuaiwi kua whāwhā noa iho, tika?

He aha te rerekētanga o tēnei i te mamae tuara noa?

Koinei te mea tino nui. Mena he AS tōu, he rerekē rawa tō mamae i te mamae tuara "pūkaha" e puta mai ana i te hapaitanga o tētahi mea, i te piko hē rānei. Koinei hoki te wāhanga uaua rawa atu o te whakamārama i tēnei rerekētanga ki ētahi atu.

Tirohia te ripanga i raro nei, ā, ka mārama koe ki tēnei rerekētanga.

Ehara i te mate e pā ana ki te tuaiwi anake!

Ko tētahi atu raruraru o te AS, ehara i te mea ko te tuaiwi anake e pāngia ana. Ka pā anō hoki tēnei mumura ki ētahi atu wāhanga o te tinana.

• Ētahi atu hononga: Tērā pea ka mamae, ka pupuhi hoki ngā hononga nunui pērā i te hope, te pakihiwi, me ngā turi.
• Te mate pūkahukahu: He āhuatanga motuhake tēnei. E pā ana ki te mumura e piri ai ō tātou uaua me ngā hononga ki ō tātou wheua. Hei tauira, ka pāngia pea koe e te mamae o te rekereke.
• Kanohi: Kei ētahi tāngata te mumura o te kanohi, e kiia nei ko te Uveitis.Ka puta pea ngā tohu pēnei i te whero, te mamae, me te aro ki te mārama i tēnei āhuatanga. Ki te kore e rongoatia wawetia, ka taea e ia te arahi ki te ngaro o te tirohanga.
• Ngenge: Ehara i te ngenge noa iho tēnei. He ngenge nui e ngoikore ai koe, e kore ai e taea te mahi i tetahi mea, ahakoa te nui o te moe.
• Ngā pūkahukahu me te ngākau: Ahakoa he onge, ka uaua te manawa i te kikī o te pakitara o te uma, ā, ka pā ki te mahi a te ngākau.

Me pēhea e whakamārama ai koe i te AS ki ētahi atu?

He tino taumaha te kore e taea te kōrero ki ētahi atu mō tō mate me te mamae e pā ana ki a koe. He uaua ki te whakarongo ki ngā kupu pēnei i te, "Koinei tonu te āhua," "Me whakakorikori tinana koe," "Mehemea he raruraru hinengaro." Nā, me pēhea tā tātou kōrero tika mō tēnei mea?

1. Mea atu, "Ehara tēnei i te mamae tuara noa iho, he mumura e puta mai ana i roto i te tinana."

Ka taea e koe te whakamārama noa iho, "Kei te whakaeke hē te pūnaha parepare o tōku tinana i tōku tuara. Koia te take e tino mamae ai, e mārō ai hoki i te ata." Me whakanui ehara tēnei i te whāwhātanga o te uaua, engari he raruraru pūnaha i roto i te tinana.

2. Homai ngā tauira mō te āhua o tō rā.

Tuhia ō ake wheako, pērā i te kī, "Whakaarohia, e 15 meneti pea te roa o te ara ake i te moenga i te ata nā te mea he pakari tō tuara, pērā i te papa. Ka māmā ake te mahi ina hikoi koe, ina mahi hoki." Ina kōrero koe mō te kore e taea e koe te moe i te pō nā te mamae, mō te uaua rānei ki te noho i runga i te tūru i te rā katoa, ka māmā ake te whakaaro o ētahi atu ki tō āhua.

3. Whakamahia he whakaahua māmā.

Mā te kupu whakarite māmā pēnei i te, "Pērā i te pou pūangi, e ngana mārire ana ngā hononga o taku tuaiwi ki te hono tetahi ki tetahi. Koia ahau ka piko ngāwari ai, ka uaua hoki ki te tahuri" ka āwhina i a rātou ki te mārama ki te kino o te āhuatanga.

4. Tohaina ngā mōhiohio hauora pono.

Tohaina ki a rātou ngā kōrero a tō tākuta, arā, he tuhinga hauora pono pēnei i tēnei. He nui ake te whai hua i te tautohetohe.

Ko te mea nui kia maumahara koe kāore koe i te mokemoke. He tokomaha ngā tāngata e noho tahi ana me ēnei mate. Ā, he tino pai ngā maimoatanga hei whakahaere i tēnei mate ināianei. He mea nui kia noho whakapā atu koe ki tō tākuta , kia whai i ana tohutohu, ā, kia tika te mahi i ngā mahi whakapakari tinana.

Ki te pā mai ēnei tohu ki a koe, kaua e warewaretia, me te whakaaro, "He mamae tuara noa iho." Me toro atu ki tō tākuta mō ētahi tohutohu. Ko te wawe o te tautuhi i te mate, ko te pai ake o ngā hua o te maimoatanga.