He nui rawa te piko o tō tinana? He mamae ō hononga? Me ako tātou mō te Joint Hypermobility Syndrome.

Kua kite pea koe i ētahi tāngata e piko ana ō rātou maihao ki muri i tētahi ara rerekē, e piko ana rānei ō rātou turi ki muri rawa kia hoki whakamuri rawa. Ka kiia hoki tēnei e ētahi he 'hononga takirua'. Inaa, i te nuinga o te wā ehara tēnei i te raruraru nui. Engari ki te mea kei a koe anō tēnei momo ngāwari o te hononga, me te mamae me ngā whara hononga maha, tera pea he mate kei a koe e kiia nei ko te Joint Hypermobility Syndrome. Me kōrero ngāwari tātou mō tēnei, i tētahi ara e mārama ai koe.

He aha te tikanga o te Joint Hypermobility Syndrome?

He paparanga matotoru o te kiko e honoa ana ō tātou hononga. Ka karangatia ēnei hononga ko ngā hononga . He rite ki ngā here rapa e pupuri ana i ō tātou hononga kia kaua e neke nui rawa. Mō te tangata e pāngia ana e te Mate Hononga Nekenekehanga, he ngoikore, he wetewete rānei ēnei hononga. He rite ki te here rapa kua totorohia i te whakamahinga. Nō reira, ka taea e ō rātou hononga te piko nui atu i te tikanga. Ina haere tahi mai tēnei ngāwari nui me te mamae, ka karangatia tēnei āhuatanga ko te Mate Hononga Nekenekehanga. Ka whakarōpūtia hei mate kiko hono .

He aha te rerekētanga i waenga i te 'pupuhi' me te 'syndrome'?

Koinei te wāhi e pōhēhē ai te tini o te tangata. He mea noa te kore nekeneke o ngā hononga, arā, te kaha ki te piko rawa i ngā hononga, i roto i te hapori. Ki te taea e koe te piko i ngā hononga pēnei i ō tuke, ō ringaringa, ō maihao, me ō turi ki tua atu i tō rātou awhe noa, ka kiia tēnā he kore nekeneke.

Engari mō te nuinga o te tangata, kāore tēnei e pāngia e te mamae, e ngā raruraru hauora rānei. Engari mō ētahi, ko tēnei ngāwari nui ka pāngia e te maha o ngā tohu pērā i te mamae o ngā hononga, ngā whara pinepine o ngā hononga me ngā hononga, te ngenge, me ngā raruraru ki te pūnaha whekau me te mimi . Koinā te wā e kiia ai ko te Joint Hypermobility Syndrome . Ki te kī noa, ko te ngāwari nui + ngā tohu = syndrome.

Ko tēnei mate te mea tino kitea i roto i ngā tamariki me ngā taiohi. He paku noa ake hoki te kitea i roto i ngā wāhine me ngā tāngata nō Āhia me Āwherika-Karipiana. Engari ko te rongo pai ko te heke haere o te mate i te pakeketanga.

He tohu pea tēnei nō tētahi atu mate kino?

Ae, i ētahi wā, ko te kore nekenekehanga o ngā hononga he tohu pea nō tētahi mate ira kino ake. Ka kiia ēnei ko ngā Mate Tuku Iho o te Tio Hononga (HDCT). Anei ētahi o ngā mate onge ka pā pea ki te Mate Nekenekehanga Hononga:

• Te Mate Ehlers-Danlos: He rōpū mate tēnei e pā ana ki ō tātou wheua, ngā wheua, te ngako, me te toto. Ko ō tātou kiko honohono, e homai ana te kaha me te ngāwari,Ko te take o tēnei āhuatanga he hapa kei roto i te pūmua collagen.
• Te Mate Marfan: He mate anō hoki tēnei e pā ana ki te kiko honohono. Ka puta mai i te hapa o te ira e hanga ana i ngā muka fibrillin me ngā muka rapa, arā, he wāhanga nui o ō tātou kiko honohono.
• Te Mate Puku: He āhuatanga ira tēnei e pā ana ki te whanaketanga o tō tātou roro me te tinana. Ka whānau mai te hunga whai Mate Puku me tētahi ira-kōroma tāpiri.

Kei a koe ēnei tohu anō hoki? Tirohia...

Ko te tohu matua me te tohu tino kitea o te Joint Hypermobility Syndrome ko te mamae i ngā hononga me ngā uaua. Hei tāpiri, tirohia mēnā kei a koe ēnei āhuatanga:

• Ngā whara maha ki ngā hononga me ngā hononga here: Hei tauira, he mea noa te hē o te pakihiwi, te hē o te turi, me te whāwhā.
• Te pakari o ngā hononga me ngā uaua: Te pakari o te tinana, i te oho ake i te ata, i muri rānei i te tū mo tetahi wā.
• Ngenge: Te ngenge tonu, ahakoa kāore he take.
• Te kore taurite o te tinana: Te āhua kei te hinga tonu koe, kei te ngaro tō taurite.
• Ngā raruraru mimi me te paru: Ka pāngia pea ētahi tāngata e te mamae o te puku me te pupuhi i tēnei mate.
• Pōuriuri me te ngoikore: Ka pōuriuri, ka māuiui te mahunga, me te mea kua tū ake koe i te ara.
• He kiri angiangi, he kiri totoro: Tērā pea he kiri totoro ake te kiri o ētahi tāngata i te mea noa.

He aha i puta ai tēnei mea?

Kāore anō kia kitea te tino pūtake o tēnei mate. Heoi, e whakaponohia ana ka tukuna iho i tētahi whakatipuranga ki tētahi whakatipuranga . Ko te tikanga tēnei, mēnā kei tō whaea, tō pāpā, tō whanaunga tata rānei tēnei mate, ka nui ake te tūponotanga ka pāngia koe e tēnei mate.

E whakapono ana ngā kaipūtaiao nā te huringa o ngā ira e hanga ana i te pūmua e kiia nei ko te collagen i roto i ō tātou tinana tēnei. E ai ki tā mātou i kōrero ai i mua ake nei, ko te collagen te mea e homai ana ki ō tātou hononga, ki ō tātou hononga, me ō tātou uaua te kaha me te ngāwari. Ko te hunga whai Joint Hypermobility Syndrome he mate kei a rātou tēnei hapa o te collagen, e ngoikore ai ō rātou hononga. Ina ngoikore ngā hononga, ka wetekina ngā hononga, ka tīmata te piko nui atu i te mea e tika ana.

Me pēhea e kitea ai tēnei e koe, e Tākuta?

Ina haere koe ki te tākuta, ko te mea tuatahi ka mahia e ia ko te tirotiro i te whānuitanga o te nekehanga o ō hononga. Tērā pea ka whakahaerehia hoki e ia he whakamātautau toto hei tirotiro i ētahi atu āhuatanga ira i kōrerohia e tātou i mua ake nei.

Hei tāpiritanga, he maha ngā tikanga motuhake e whakamahia ana hei ine i te ngāwari o ō hononga.

Kaute a Beighton

He tauine 9-ira tēnei. Ka ine tēnei whakamātautau i tō ngāwari. Ki te taea e koe te mahi i ngā mea e whai ake nei, ka whiwhi koe i te kotahi tohu mō ia mea.

Pātaitai pātai-rima

Waihoki, ka pātai atu pea te tākuta ki a koe i ēnei pātai e rima:

1. Kua taea e koe te whakatakoto i ō ringaringa ki runga i te papa me te kore e piko ō turi?

2. Kua taea e koe te piko i tō koromatua me te mirimiri ki te taha raro o tō ringa?

3. I a koe e tamariki ana, i whakangahau koe i ō hoa mā te piko i tō tinana i ngā huarahi rerekē? I taea rānei e koe te mahi wehewehe tinana?

4. I a koe e tamariki ana, e taiohi ana rānei, i neke atu i te kotahi te wā i motumotu ai tō pakihiwi, tō turi rānei?

5. E whakaaro ana koe he 'hononga takirua' koe?

Ki te "āe" tāu whakautu ki ētahi pātai e rua, neke atu rānei , he "Joint Hypermobility Syndrome" pea tōu.

He aha ngā maimoatanga mō tēnei?

Kāore anō kia kitea he rongoā mō tēnei mate. Engari ka taea e koe te whakahaere i ō tohumate me te noho i te oranga noa. Ko ngā whāinga matua o te maimoatanga he tiaki i ō hononga me te whakahaere i tō mamae.

Mā te whakapakari i ngā uaua e karapoti ana i ō hononga ka āwhina i te whakanui ake i te tautoko e whakawhiwhia ana ki a rātou, me te tiaki hoki i a rātou. Anei ētahi mea ka taea e koe te mahi hei āwhina:

• Kia mau ki te tū tika: I a koe e tū ana, piko mārire ō turi. Kaua e piko ō turi ki tua atu i ō rātou rohe.
• Mauria he hū tautoko pai: Whakamahia he orthotics motuhake, ina koa he papatahi ō waewae.
• Tirohia he Kaiwhakaora Tinana: He mea tino nui te rapu awhina i tetahi kaiwhakaora tinana hei whakaiti i te mamae, hei whakanui ake i te kaha o ngā uaua, hei whakapai ake i te tū me te taurite o te tinana.

Mō te mamae, ka tūtohu pea tō tākuta i ngā rongoā mamae ka taea te hoko kore rongoā pērā i te acetaminophen , i te ibuprofen rānei. Engari kaua rawa e rongoā i a koe anō me te kore he tohutohu hauora. Mena he kino te mamae, kōrero ki tō tākuta mō ngā kōwhiringa maimoatanga e tika ana.

He pānga tō te kai me te inu ki tēnei?

Kua kitea e ngā rangahau he hononga pea i waenga i te Hononga Hypermobility Syndrome me ngā mate puku, inā koa ko te Irritable Bowel Syndrome (IBS) . He mea noa ngā tohu IBS (mamae puku, pupuhi, mate korere, mate puku rānei) i waenga i te hunga whai mate nei.

Nō reira, ka tono pea tō tākuta kia whakamātau koe i ētahi kai mō tētahi wā. Ka kiia tēnei he kai whakakore . Mā tēnei ka āwhina i a koe ki te kimi mēnā he ātete kai tōu. Ko ngā rōpū kai e whakamatautauria ana i tēnei ara ko:

• Kai kore-kutene: Te karo i ngā kai kei roto te kutene, he pūmua e kitea ana i roto i ngā witi pēnei i te witi me te parei.
• Kai kore-lactose: Te karo i ngā kai kei roto te lactose, he momo huka e kitea ana i roto i te miraka me ngā hua miraka.
• Kai iti-FODMAP: Te whakawhāiti i ngā kai kei roto ngā huka ngāwari te whakapūkara (lactose, fructose, fructans, galactans, polyols) e kitea ana i roto i ētahi kai.