Kua mau tō tinana, engari kua wātea tō hinengaro? Me kōrero tātou mō te mate maukati (LiS)

Whakaarohia te āheinga ki te mārama me te whakarongo ki ngā mea katoa e hiahia ana koe, engari kāore e taea te kōrero, te neke rānei i tō tinana... me te mea kei roto koe i tō tinana. Kāore ianei e tino ngoikore te whakaaro ki tēnei? Koinei tonu te momo mate io pōuri, engari he tino onge ka kōrerohia e tātou i tēnei rā. Ko te ingoa o tēnei ko te Locked-in Syndrome, ko te `(LiS)` rānei.

He aha te Mate Maukati-ki-roto?

He māmā noa iho, ko te locked-in syndrome he mate pūnaha io onge e kore ai e mahi ō uaua katoa, engari ko ngā uaua e whakahaere ana i ngā nekehanga o ō kanohi. Ko te tikanga, kāore e taea e koe te mahi i tetahi mea e hiahia ana koe ki te mahi, pērā i te neke i ō ringa, i ō waewae rānei, te kōrero, te whakaatu rānei i ngā kare ā-roto ki tō kanohi.

Engari ko te mea whakamiharo, ko te tangata kei roto i tēnei āhua kei a ia ōna kare ā-roto, tōna mātauranga, me tōna mahara katoa. Ka taea e ia te whakarongo me te mārama ki ngā mea e pā ana ki a ia. Engari kāore he huarahi hei urupare atu ki tēnā. He rite ki tētahi kua mauheretia i roto i tōna ake tinana, kāore e taea te kōrero, te neke rānei.

Ko te tikanga, mā te neke ake, te neke iho rānei o ō rātou kanohi, ka taea e rātou te whakahaere i ēnei kōrero. I ētahi wā ka whakamahia e rātou he hangarau āwhina motuhake mō tēnei kaupapa.

Ko te tino take o tēnei āhuatanga ko te pakaru o tētahi wāhanga motuhake o te take roro e kiia nei ko ngā pons. Ka kōrerohia tēnei e tātou i muri mai.

He aha ngā momo matua o te mate maukati (LiS)?

E toru ngā momo matua o te mate maukati (LiS) kua tautuhia. Me titiro tātou ki ērā momo.

1. Aratau Matarohia

Koinei te momo tino noa. I tēnei wā, kāore e taea te nekeneke i te tinana katoa. Ko te tikanga, kāore e taea e rātou te mahi i tētahi nekehanga ā-ringa. Heoi, ka taea e rātou te neke ake, te neke iho rānei i ō rātou kanohi, me te kimo. Waihoki, kei te noho noa tonu ō rātou hinengaro me ō rātou mātauranga. Ka taea e rātou te rongo pai i ngā mea e tupu ana i tō rātou taha.

2. Puka kāore i oti

He rite tonu tēnei ki te momo matarohia. Ara, ahakoa kāore he ora o te tinana katoa, ka taea e ngā kanohi te neke ake, te neke iho rānei, te kimo. Heoi, i tēnei wā, i ētahi wā ka toe pea ētahi nekehanga me ngā kare ā-roto i ētahi wāhanga o te tinana. Koinei te rerekētanga iti i konei.

3. Aratau Ārai Katoa

Koinei te momo tino kino, tino onge hoki. I roto i tēnei, ka pararutiki katoa te tinana, ā, ka ngaro te kaha ki te neke i ngā kanohi. Engari, he mea miharo, he whakaaro noa me te mātauranga noa anō hoki tō ēnei tāngata. Ka whakaūhia tēnei e ngā tākuta mā te whakamātautau i te mahi a te roro matua (te mahi cortical) me ngā whakamātautau pēnei i te "electroencephalogram - EEG)", e ine ana i ngā ngaru roro.

Ko wai ka pāngia e te mate maukati-roto (LiS)?

Ina hoki, ka taea te pā mai o tēnei āhuatanga e kīia nei ko te locked-in syndrome (LiS) i ngā tau katoa. Heoi, kua whakaatuhia e ngā rangahau he nui ake te kitea i waenga i te hunga i waenga i te 30 me te 50 tau te pakeke .

He pēhea te noa o tēnei āhuatanga?

He tino onge te mate Locked-in syndrome (LiS). Nā te mea he hē te tātaritanga, he hē rānei te whakaaro he mate hauora, he uaua ki ngā kairangahau te kī tika e hia ngā tāngata e pāngia ana e ia i ia tau. Heoi, e whakaaetia whānuitia ana he tino onge.

He aha ngā tohu o te mate maukati (LiS)?

Tērā pea ka rerekē ngā pānga ki te tinana i runga i te momo mate maukati-ā-roto (LiS) kei a koe.

He maha ngā wā, ina kite tuatahi koe i tētahi tangata e pāngia ana e te mate pōuri, ka whakaaro koe kāore ia i te mōhio, arā, kei roto i te koma. Nā te mea kāore e taea e ia te urupare i tētahi ara. Nō muri mai ka mōhio koe kei te mōhio ia.

Ngā mea kāore e taea e te tini o te tangata te mahi:

• Te ngaungau kai
• Te horomitanga
• Te kōrero
• Ngā āhua o te kanohi (pēnei i te menemene, te pouri)
• Kāore he nekehanga o te tinana i raro i ngā kanohi

Ngā mea ka taea e te tini tāngata te mahi (i roto i ngā āhua matarohia me ngā āhua kāore i tino tika):

• Ka taea e koe te neke i ō kanohi ki runga, ki raro hoki (engari kaua ki te taha ki te taha, arā, ki te whakapae).
• Ka taea e koe te kimo.

Ngā mea ka taea e te katoa (i roto i ngā āhua katoa) te mahi:

• Ka rongo au i ngā mea e tupu ana i tōku taha, i ngā tāngata e kōrero ana.
• Ka taea e koe te mārama ina kōrero, ina pānui rānei tetahi i tetahi mea.
• Ka taea e koe te whakaaro me te whakaaroaro pērā i mua i te putanga mai o tēnei āhuatanga.
• He mea noa ngā huringa moe me te ara.

Kei te mamae koe i te mate locked-in syndrome (LiS)?

Ka whakawhirinaki anō hoki tēnei ki te momo o te Locked-In Syndrome (LiS) kei a koe.

• Ko te tangata kāore e taea te nekeneke, kāore ia e mamae tinana nā te mea kāore tōna tinana katoa e taea te nekeneke.
• Tērā pea ka pāngia te tangata kāore i oti te āhua e te mamae me ētahi atu kare ā-roto i ētahi wāhanga o te tinana.

He aha te take o te mate maukati (LiS)?

E ai ki tā mātou i kōrero ai i mua ake nei, ko te tino take o te locked-in syndrome (LiS) ko te pakaru o tētahi wāhanga motuhake o te take roro e kiia nei ko ngā pons.

Te pakaru o te wāhanga pons o te roro

He puranga muka io te pons, he āhua rite ki te hu hōiho. Kei waenganui i te medulla oblongata, te wāhanga o raro rawa o te kakau roro, me te cerebellum, e whakahaere ana i ngā nekehanga o te tinana, inā koa te taurite.

Ko te pons he wāhanga o te roro e kiia nei ko te cerebrum, kei roto i tēnei wāhanga he maha ngā ara io nui e hono ana i tō tātou cerebrum, te taurakira, me te cerebellum. I roto i te mate locked-in, ina pakaru te pons, ka āraia ngā tohu io katoa mai i te roro ki ngā uaua o te tinana. Koinei te take ka pararutiki te tinana katoa. Ka pāngia hoki ngā pokapū o te take roro e whakahaere ana i ngā āhua o te kanohi me te kōrero. Koinei te take kāore e taea e tātou te whakaatu i ngā kare ā-roto ki ō tātou kanohi, te ngaungau kai, te horomi, te kōrero rānei.

Ko te tino take o te kino ki ngā pons ko te whiu ischemic, te whiu hemorrhagic rānei, e pā ana ki ngā ara corticospinal, corticopontine, me te corticobulbar i roto i te kakau roro.

• Ko te whiu ischemic he aukati i te oko toto e tuku toto ana ki te roro, ka motuhia te rere o te toto ki te roro.
• Ko te whiu toto he wā ka tīmata whakarere te rere o te toto ki roto i te roro mai i tētahi uaua i roto i te roro.

Ētahi atu take o te kino ki ngā pons

Haunga te whiu, he maha atu anō ngā take onge ka pā kino ki ngā pons, ka hua ake te mate locked-in syndrome (LiS).

• Te pangia o ētahi wāhanga o te roro.
• He pukupuku, he puranga rānei i roto i te pons, i te take rānei o te roro.
• Ko te demyelination te ngaronga o te hipoki tiaki (myelin) e karapoti ana i ngā pūtau io.
• Ko ētahi āhuatanga hauora, hei tauira , te amyotrophic lateral sclerosis (ALS) me te Guillain-Barre syndrome .
• Te whara ki ngā pons.
• Te whakamahinga hē o ngā matū .

Me pēhea te mōhio ki te mate maukati-roto (LiS)?

Nā te mea kāore te hunga whai mate maukati (LiS) e aro ki ngā whakaoho mamae (arā, kāore he urupare nekeneke) e whakamahia ana e ngā tākuta hei tirotiro i te urupare, ka whakaaro hē pea ngā tākuta i te tīmatanga kāore rātou i te mōhio. Nō reira, he uaua, he roa hoki te wā e pau ana ki te tātaritanga (LiS).

Ko te mea nui rawa atu i roto i te tātaritanga o te mate locked-in syndrome (LiS) ko te whakakore i ētahi atu āhuatanga e puta ai ēnei tohu. Hei wāhanga hoki o te mahere tātaritanga me te maimoatanga, he mea nui kia kitea te take o te mate locked-in syndrome.

Ngā whakamātautau tātaritanga

He maha ngā whakamātautau ka whakamahia e ngā tākuta hei tātaritanga i te mate maukati-i-roto (LiS), hei kimi i te take, me te whakakore i ētahi atu mate.

• Matawai MRI (Atahanga Āhua-Mate - MRI) matawai CT (Tomography Rorohiko - CT) rānei: Ka taea e ēnei whakamātautau te kite mēnā he kino kei ō pons, kei ētahi atu wāhanga rānei o tō roro.
• Angiography roro: Ka taea e tēnei whakamātautau te kite mēnā he toto totoka kei roto i ngā uaua o te take roro, i tētahi atu wāhi rānei o te roro.
• Electroencephalogram (EEG): Mā tēnei ka ine i te ngohe hiko o te roro. Mā tēnei ka taea e ngā tākuta te kite mēnā he noa te mahi a tō roro me ngā huringa moe-ara. Ka taea e ia te āwhina ki te wehewehe i te LiS mai i ētahi atu āhuatanga.
• Ngā pūmanawa whakaoho: Ka ine ēnei i te ngohe hiko i roto i ngā wāhanga o te roro me te taurakira hei whakautu ki ngā mea pēnei i te mamae, te whakarongo, te tirohanga rānei. Ka whakamahia ēnei e ngā tākuta hei aromatawai i ngā urupare a te kakau roro kua pakaru me ngā urupare hauora o te roro.
• Te whakamātautau hiko-miomio: Ka ine tēnei i te pai o te mahi a ō uaua me ō io. Ka taea te whakamahi i tēnei whakamātautau hei whakakore i te kino o te uaua me te io.
• Ngā whakamātautau toto: Mā te whakamātautau pākia o te tinana, mā te tirotiro i te taumata konutai i roto i te toto, ka taea te whakatau mēnā ko te take he āhuatanga e kiia nei ko te pontine myelinolysis.
• Whakamātautau wai cerebrospinal (CSF): Ka āwhina tēnei ki te whakatau mēnā he mate pāwera, he mate pūnaha ārai mate rānei te take o ngā tohu.

Me pēhea te rongoā i te mate maukati-i-roto (LiS)?

Ki te pono, kāore he rongoā, he maimoatanga motuhake rānei mō te mate maukati (LiS). Ko te mea anake hei mahi, ki te taea, ko te rongoā i te pūtake o te mate me te ārai i ngā raruraru anō.

Ko te whakahaere i te mate maukati ko te whakaora tautoko me te whakangungu whakawhitiwhiti kōrero .

Te rongoā tautoko

He mea nui te tiaki tautoko mō te manawa me te whāngai, inā koa i ngā wāhanga tōmua. He maha ngā wā ka hiahiatia he tautoko manawa horihori mō te hunga whai LiS. Ka whakahaerehia hoki he tracheotomy (he ngongo ka whakaurua mā roto i tētahi kōhao iti i te kaki ki roto i te pūhā).

Nā te mea kāore i te haumaru te kai, te inu rānei mā te waha me te LiS, he maha ngā tāngata ka whakaurua he ngongo iti e kiia nei ko te ngongo gastrostomy (ngongo-G) ki roto i ō rātou puku. Koinei te wāhi e hoatu ai te kai me te wai.

Ko ētahi atu maimoatanga tāpiri ko:

• Te ārai i ngā raruraru ka puta mai i te kore e nekeneke. Hei tauira:Ngā mea pēnei i te niumōnia, ngā mate mimi (UTI), me ngā toto totoka (thrombosis).
• Te ārai i ngā whara pēhanga/ngā mate moenga .
• Whakaratohia he rongoā tinana hei ārai i te kōpeketanga o ngā peka, arā, te ngaronga o te whānuitanga o te nekehanga i puta mai i te pakari o ngā hononga, ngā uaua, ngā kiko ngohengohe rānei o ngā peka.
• Whakaratohia he whakaora tinana hei whakaora i ngā nekehanga iti e toe ana, e ora ana rānei (mēnā he mea kei te haere).

Whakangungu whakawhitiwhiti kōrero

Ka taea e ngā kaiwhakaora kōrero te āwhina i te hunga whai mate kōrero kua mau ki te mate kōrero (LiS) kia mārama ake te kōrero mā te nekehanga o ngā kanohi me te kimo. He ahurei tēnei momo kōrero mō ia tangata. Hei tauira, ko te titiro ake he "āe" te tikanga, ko te titiro ki raro he "kāo" (tērā pea). Waihoki, ina pānuihia he reta e tētahi atu, ka taea e rātou te tohu ki te reta e hiahia ana rātou ki te whakamahi hei hanga kupu me ngā rerenga kōrero.

Haunga ngā tohu nekehanga kanohi, kua taea e ngā taputapu whakawhitiwhiti kōrero hiko , pērā i ngā pūoko nekehanga kanohi whero-whero me ngā taputapu reo rorohiko, te hunga whai LiS ki te whakawhitiwhiti kōrero noa ake me te uru atu ki te Ipurangi.

Ka taea te ora katoa mai i te mate maukati (LiS)?

I runga i te pūtake o te mate maukati (LiS), ka hoki mai pea ētahi pūkenga nekeneke. Heoi, he onge te whakaoranga katoa. Ko ētahi tāngata whai LiS ka pāngia pea e ētahi nekehanga me ngā kare ā-roto i ētahi wāhanga o ō rātou tinana.

He tokomaha ngā tāngata kāore anō kia hoki mai anō te mahi io kua ngaro, engari ka taea e rātou te ako ki te kōrero mā roto i ngā nekehanga kanohi.

Ka taea te ārai i te mate maukati-roto (LiS)?

Engari, kāore e taea te ārai i te nuinga o ngā take o te locked-in syndrome (LiS). Heoi, ki te mea he nui tō tūponotanga ki te pāngia e te whiu, ka piki ake pea tō tūponotanga ki te whakawhanake i te LiS.

Kōrero ki tō tākuta mō te mōrearea o te whiu me ngā huarahi hei whakaiti i taua mōrearea.

He aha te tirohanga mō te tangata e pāngia ana e te mate maukati (LiS)?

Ko te matapae mō te hunga whai mate pōrearea (LiS) e whakawhirinaki ana ki te pūtake o te mate, te momo mate, me te taumata o te tautoko me te manaaki e whakawhiwhia ana ki a rātou.

I kitea i roto i tētahi rangahau tata nei, i kī te hunga whai LiS he nui ake ō rātou oranga harikoa me te whai tikanga, inā koa i te wā i whiwhi ai rātou i ngā ratonga pāpori pai me ngā hangarau urutau i āwhina i a rātou ki te whai tūranga noa i te kāinga me te hapori.

He tokomaha te hunga whai LiS ka taea te whakamahi i te tūru wīra miihini me te rorohiko whai hangarau urutau.

Kia pēhea te roa ka taea e koe te ora me te mate maukati-i-roto (LiS)?

Ko ētahi tāngata e pāngia ana e te mate maukati (LiS) kāore e ora i tua atu i ngā wāhanga tōmua o te mate, nā ngā raruraru hauora. Heoi, ko ētahi e ora ana mō te 10 ki te 20 tau, ā, e kī ana he pai te kounga o te oranga.

Me pēhea taku tiaki i ahau anō, i tētahi atu rānei he LiS tōna?

Mena kei a koe te mate maukati-ā-roto (LiS), he mea nui kia whakarite kia whiwhi koe i te tiaki hauora pai hei ārai i ngā raruraru pēnei i te niumōnia me ngā mate moenga i puta mai i te kore e nekeneke.

He mea nui anō hoki kia kitea he huarahi hei whakawhitiwhiti kōrero – ahakoa mā te nekehanga o ngā kanohi, mā te hangarau āwhina rānei pērā i te hangarau aroturuki kanohi. Whakaarohia te whakauru atu ki tētahi rōpū tautoko hei tūtaki ki ētahi atu kua pāngia e ngā wheako ōrite.

Mena kei te tiaki koe i tētahi tangata he `(LiS)` tōna mate, he mea nui kia tautoko koe i a rātou kia whiwhi rātou i te tiaki hauora pai rawa atu, kia whai wāhi atu hoki ki ngā hangarau hei āwhina i a rātou ki te kōrero me te noho motuhake.

Hei whakamutunga, ko te mea tino nui (Karere hei tango i te kāinga)

He mate onge, he mate kino hoki te mate Locked-in Syndrome (LiS). He tino taumaha te whiwhinga o tētahi mate pēnei. Engari kia maumahara, kei reira tō tīma hauora hei tautoko i a koe me ō whanaunga. He mea nui kia whiwhi tonu koe i te tiaki hauora pai, kia ako hoki i ngā huarahi hou hei whakawhitiwhiti kōrero i a koe e noho tahi ana me te LiS.

Nā te whanaketanga o te tiaki tautoko me ngā whanaketanga hangarau o ēnei rā, he tokomaha ngā tāngata e pāngia ana e te mate pōrearea (LiS) e ora ana i te oranga whai tikanga, whai tikanga hoki. Nō reira, kaua e mutu te tumanako. He otinga mō ngā raruraru katoa, he huarahi hei aro atu ki ngā wero katoa.

` Te Mate Pūmau, Pons, Mate Roro, Neurology, Paralysis, Whakawhitiwhiti Kōrero