Kua rongo koe i te mea kei te awhi pūmau tetahi i a koe ki tō uma, ki tō puku rānei, pērā i te whitiki pūmau? Me te mea kei te awhi pūmau tetahi i a koe, engari ehara i te awhi aroha, whakamarie, engari he awhi mamae, he awhi whakawhāiti. Ka kiia tēnei ko te 'Awhi MS'. Ahakoa te āhua ataahua o te ingoa, he tohu mamae, he tohu whakamā tēnei o te Multiple Sclerosis (MS). Me kōrero tātou mō tēnei mea katoa i roto i te huarahi mārama, ngāwari hoki i tēnei rā.
He aha rawa tēnei MS Hug?
He whakarāpopototanga noa iho, ko te MS Hug he mamae, he mamae rānei e pā ana ki tō uma, ki tō rara, ki tō puku rānei. Kāore i rite ki te awhi hoa, engari he rite ki te mea kei te awhi pūmau koe e tetahi tino kaha. Ka rerekē pea i ia tangata, i ia tangata. I ētahi wā ka pā te mamae ki tō uma katoa, i ētahi wā ka pā ki te taha kotahi o tō tinana.
E mōhiotia ana tēnei āhuatanga i roto i te rongoā he tohu e taka ana ki raro i te wāhanga "Dysesthesia." Arā, he kare ā-roto rerekē, kāore i te whakamarie, me te mamae e puta mai ana nā te mea kāore tō tātou pūnaha io e mahi tika ana.
| Te āhua o te mamae | Whakaahuatanga |
|---|---|
| Mamae koi | He rite te mamae ki te werohanga a te maripi. |
| Te Kikī (Te Kikī) | He rite ki te whitiki piri e herea ana ki tō hope, e pupuri ana i a koe. |
| Ngokingoki/Ngokingoki | He mamae tauhou, korekore noa iho, me te mea he mea e ngokingoki ana i raro i te kiri. |
| Te tahunga | He kare ā-wera e rite ana ki te wera o te kiri. |
| Te pēhi | Me te mea kei te pēhia kaha tō uma e tetahi. |
| He rite ki ngā titi me ngā ngira | He rite ki te werowero, ki te ngau kino o te waewae. |
He aha te mea e tupu ana i roto i te tinana i tenei wa?
Whakaarohia tō tātou pūnaha io he pūnaha waea hiko. Ka haere ngā karere mai i te roro ki ngā wāhanga katoa o te tinana mā roto i ēnei io. I roto i te Multiple Sclerosis (MS), ka pakaru te hipoki tiaki e karapoti ana i ēnei muka io. He rite ki te pakaru o te hipoki kirihou i runga i te taura hiko. Ka kiia tēnei kino he '(demyelination)'.
Ina pāngia ngā io o tō tuaiwi e tēnei kino, ka whakakikitia ohoreretia ngā uaua iti i waenganui i ō rara (e kiia nei ēnei he "uaua intercostal"), ka whakakikitia rānei. Me te mea kei te tata te hinga o ō uaua. Ko tēnei whakakikitia ohorere, kāore i te whakahaeretia, te take o te mamae me te whakakikitanga e pā ana ki a koe me te mea kei roto koe i te 'awhi MS'.
Kia pēhea te roa o tēnei mamae?
He rerekē tēnei i ia tangata, i ia tangata. Mō ētahi, he torutoru hēkona, he meneti rānei te roa. Heoi, mō ētahi atu, ka roa pea tēnei mamae mō ngā hāora, tae noa ki ngā rā . Pērā i ētahi atu tohu o te MS, ka taea te haere mai, te haere atu, ā, ka taea te hoki mai anō ā muri ake nei.
Ngā Take me ngā Whakaoho o te MS Awhi
E ai ki te ingoa, ko te tino take o te MS Hug ko te Multiple Sclerosis (MS). He mate pūnaha ārai mate te MS, arā, ka whakaeke hē te pūnaha io o te tinana.
Heoi, kāore koe e hiahia kia pāngia e te MS kia rongo ai koe i tēnei momo kikī. Ka taea hoki e ētahi atu āhuatanga e puta ai te mumura o te taurakira, pērā i te Transverse Myelitis, te whakaputa i tēnei momo tohu.
Tērā ētahi mea ka taea te whakaoho i te MS Awhi. Ka kiia ēnei e mātou he 'Pūtake'. Ko ngā pūtake matua ko:
- Te ahotea nui
- Te ngenge me te ngenge tinana
- Ngā huringa ohorere o te pāmahana (ina koa ko te wera nui)
- Te mau i ngā kākahu piri ki te puku me te uma
- Te whakawhanake i tētahi mate pēnei i te kirika, i tētahi atu mate pāwera rānei
Kāore ēnei mea whakaohooho i te rite mō te katoa. Ko ngā mea e pā ana ki a koe, kāore pea e pā ki tētahi atu. Nō reira, he mea nui kia tautuhia ō mea whakaohooho motuhake.
Me pēhea te whakahaere i tēnei āhuatanga?
Kāore he otinga kotahi hei aukati katoa i te MS Hug. Heoi, he iti noa ngā mea ka taea e koe te whakamātau hei whakahaere me te whakaiti i tēnei mamae. Me whakamātau pea koe kia kitea rā anō te tikanga e pai ana māu.
| Tikanga | Me aha? |
|---|---|
| Te karo i ngā mea whakaoho | Kaua e kakahuria he kākahu piri, engari kaua he kākahu whāiti. Whakaitihia te ahotea. Moe pai. |
| Te neke i te tinana | Mahia ngā mahi pēnei i te hikoi āta, te totoro tinana, me ētahi atu. Tērā pea ka kitea he whakamarie mā te noho tika, te takoto rānei. |
| Parai wera, parai matao rānei | Tāpirihia he pounamu wai wera, he putea huka rānei ki te wāhi e mamae ana. Ka whakaorahia e ētahi te wera, ko ētahi ia ka whakaorahia e te makariri. |
| Ngā rongoā i runga i te tohutohu hauora | Ki te tino kino tō mamae, kōrero ki tō tākuta. Tērā pea ka tohua e ia he rongoā whakamamae mamae, he rongoā whakangāwari uaua, he rongoā motuhake rānei mō te mamae io. |
Āhea koe me toro atu ki te tākuta? (He mea tino nui tēnei!)
Koinei te wāhanga tino nui. Ko te mamae o te uma e pā ana ki a koe mai i te MS Hug ka rite ki ngā tohu o tētahi mate kino, pērā i te mate manawa .
Nō reira, ki te pāngia koe e te mamae o te uma, me te uaua ki te manawa, kāore he take mārama, kaua e whakaaro noa he MS Hug. Tērā pea he mate manawa, he mate pūkahukahu, he mate kino atu rānei. Tirohia te tākuta tonu, haere rānei ki te Tari Ohotata (ETU) o te hōhipera tata ki a koe.
Ka taea e te tākuta te tirotiro i a koe, me te whakatau i te tino take o tēnei mamae. Mā tēnei ka tiakina koe.
Karere Tangohia ki te Kāinga
- Ehara te awhi a MS i te awhi aroha, engari he kare mamae o te kikī i te uma, i te puku rānei i puta mai i te MS.
- Ka puta tēnei i te kōpeketanga ohorere o ngā uaua i waenganui i ngā rara nā te kino o te io.
- Ka taea e ngā āhuatanga pēnei i te ahotea, te kaha rawa o te tinana, ngā kākahu piripono, me ngā huringa pāmahana te whakararu i tēnei āhuatanga. Tāutuhia, ā, karohia ngā mea e pā ana ki a koe.
- Mā ngā mahi māmā pēnei i te mau kākahu koretake, te totoro mārire i tō tinana, me te tāpiri i ngā kōpeke wera/makariri ka āwhina.
- Ko te mea nui: Ki te pāngia koe e te mamae ohorere o te uma, kāore i te whakamāramatia, me te uaua ki te manawa, kaua e whakaaro he MS Hug tēnei , engari me haere tonu ki te Tari Ohotata (ETU) o te hōhipera . Tērā pea he mate kino tēnei, pērā i te mate manawa. Kōrero tonu ki tō tākuta mō tēnei.
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