I ētahi wā, he tino uaua ētahi o ngā mate e pāngia ana e ā tātou tamariki. Ā, he motuhake anō hoki ngā rongoā e hoatu ana ki a rātou. I tēnei rā ka kōrero tātou mō tētahi rongoā motuhake. Ko te ingoa o tēnei rongoā ko Odevixibat, e hoatu ana ki ētahi tamariki hei rongoā i te mākati kiri e kore e taea te manawanui nā te mate ate onge. Mena kua tohua tēnei rongoā e te tākuta ki tāu tamaiti, he mea tino nui tēnei tuhinga māu.
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He aha te momo rongoā ko Odevixibat?
He kupu ngāwari noa iho, he rongoā te Odevixibat hei whakahaere i te mākūkū nui i puta mai i te raruraru o te ate o tāu tamaiti. E mōhiotia ana ko Bylvay te ingoa mākete.
I roto i te kōrero hauora, nō roto tēnei i tētahi momo rongoā e kiia nei ko ngā aukati kawe waikawa bile ileal (IBAT) . Ko te tikanga o tēnei, ka whakahaere tēnei rongoā i te mimiti anō o ngā waikawa bile i roto i ō tātou whekau ki roto i te tinana.
Ko te nuinga o te wā ka whakamahia tēnei rongoā hei whakahaere i te mākati i roto i ngā tūroro e pāngia ana e te mate e kiia nei ko te Progressive Familial Intrahepatic Cholestasis (PFIC) . He mate ira onge te PFIC e whakararuraru ana i te rere o te au mai i ngā pūtau ate. Ka puta te au i roto i te tinana, ka puta te mākati e kore e taea te manawanui. Ko te mahi a Odevixibat mā te whakahaere i te pūtake o te mākati.
Ngā mea me kōrero e koe ki tō tākuta i mua i te tīmatanga o te rongoā
I mua i te whakamahinga o tēnei rongoā, he mea nui kia hoatu e koe he whakamārama katoa ki tō tākuta mō tō hauora, mō te hauora rānei o tāu tamaiti. Kia mahara kia whakahuatia ngā mea e whai ake nei:
- Te korenga o ngā huaora: Mena kua kī atu te tākuta he iti ngā taumata o ngā huaora A, D, E, K rānei i roto i ō toto, me kī atu ki a ia.
- Te Hapūtanga: Mena kei te hapu koe, kei te whakamahere rānei koe kia whānau he pēpi a meake nei, me kōrero koe ki tō tākuta.
- Mena he whaea whāngai u koe: Mena he whaea whāngai u koe, me whakamōhio atu ki te nēhi.
He mea tino nui te kōrero ki te tākuta, me te kore e huna i ēnei momo kōrero, mō te haumaru o koe me tāu tamaiti.
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Check Availability →Te huarahi tika hei whakamahi i te rongoā
Hei whiwhi i ngā hua tino pai o tēnei rongoā, he mea tino nui kia whakamahia tika. Tangohia te horopeta tika, i te wā tika, e ai ki te whakahau a tō tākuta.
| Tohutohu | Me pēhea te mahi |
|---|---|
| Te tango rongoā | Tangohia i te wā kotahi i ia rā, me te inu i tētahi karāhe wai. He pai ake te tango tahi me te kai. |
| Te horomi i te kāpūru | Horomia te kāpū katoa . Kaua e whatiwhati, e kuru, e ngaungau rānei mō tetahi take. |
| Mena he uaua ki te horomi | Ki te uaua ki te horomi i te kāpū, whakatuwheratia mārire, whakaranua te paura ki roto me ngā punetēpu e rua o te kai matotoru pērā i te miraka kawa, te aporo rānei, ka horomia wawetia, kaua e ngaungau. Kaua rawa e whakaranua tēnei rongoā ki ngā wai , miraka, wai hua). |
| Me ētahi atu rongoā | Mena kei te tango koe i ngā rongoā whakaheke cholesterol (ngā kapia here waikawa bile) pērā i te Cholestyramine, Colesevelam, Colestipol rānei, me tango i ngā haora 4 i mua atu, i ngā haora 4 rānei i muri i te tangohanga o te Odevixibat. |
Āhea te wā tika hei hoatu i tēnei rongoā ki ngā tamariki?
I ētahi wā, ka tūtohu ngā tākuta i tēnei rongoā mō ngā pēpi e toru marama te pakeke. Heoi anō, me tūpato ētahi mea. Nō reira, me whai i ngā tohutohu a te tākuta ina hoatu ana tēnei rongoā ki tāu tamaiti.
Me aha koe mēnā ka nui rawa te rongoā e tangohia ana e koe?
Ki te whakaaro koe kua nui rawa te rongoā i tangohia e koe, e tāu tamaiti rānei, kaua e whakaroa.
Waea atu tonu ki te Pokapū Mōhiohio Paitini ā-Motu i te Hōhipera ā-Motu o Colombo . Mēnā rānei, haere ki te Wāhanga Maimoatanga Ohotata (ETU) o te hōhipera tata.
A, mēnā ka ngaro i ahau tētahi horopeta rongoā?
Ki te wareware koe ki te tango i tētahi horopeta, me tango tonu i te wā e mahara ana koe. Heoi, ki te tata te wā mō tō horopeta e whai ake nei, pekehia te horopeta i ngaro, ka tango i te horopeta e whai ake nei i te wā kua whakaritea.Kaua rawa e tango i te horopeta takirua hei whakakapi mō te horopeta kua warewarehia.
Ētahi atu mea ka taunekeneke pea me tēnei rongoā
Ka taea e ētahi rongoā te taunekeneke me Odevixibat, inā koa, e ai ki tā mātou i kōrero ai i mua ake nei, me ngā rongoā o te akomanga kapia here waikawa au .
- Cholestyramine
- Korehewerama
- Koreretipol
Kāore i te oti tēnei rārangi. Nō reira, he mea tino nui kia kōrero koe ki tō tākuta mō ngā rongoā katoa e tangohia ana e koe (tae atu ki ngā rongoā mō ētahi atu mate, ngā huaora, me ngā otaota tuku iho).
Ngā mea hei tūpato i te wā e tango ana i te rongoā
- Ngā tirotiro auau: Kia mahara ki te haere ki ngā tirotiro kua whakaritea e tō tākuta māu, mā tāu tamaiti rānei. Kōrero ki tō tākuta mēnā kei te pai haere, kei te kino haere rānei ō tohumate.
- Ngā Huaora: He mea nui kia tino mohio kei te whiwhi koe i ngā huaora e hiahiatia ana e koe (ina koa ko ngā huaora wairewa-ngako A, D, E, me K) i a koe e tango ana i tēnei rongoā. Kōrero ki tō tākuta mō ngā kai e kainga ana e koe me ngā tāpiringa katoa e tangohia ana e koe.
- Ngā whakamātautau toto: I te wā e rongoatia ana, ka whakahau pea tō tākuta i ētahi whakamātautau toto hei tirotiro i ngā mea pēnei i te mahi a tō ate. Kaua e mahue.
He aha ngā pānga taha ka puta?
Pērā i ngā rongoā katoa, ka pā mai ētahi pānga taha o te Odevixibat. Ka pā kino pea ētahi o ēnei, nō reira he mea nui kia mōhio koe ki ēnei.
| Momo pānga taha | Ngā tohu |
|---|---|
| Ngā pānga taha me pūrongo tonu ki te tākuta | |
| Ngā uruparenga mate pāwera | He ponana kiri, he mākūkū kino, he pupuhi o te mata, o ngā ngutu, o te arero rānei. |
| Ngā tohu o te whara o te ate | He mimi kōwhai pouri, he parauri rānei, he ngoikore te ngenge, he kirika, he kore hiahia kai, he mamae i te taha matau o runga o te puku, me te kōwhai o ngā kanohi, o te kiri rānei (jaundice). |
| Korere | Te mate korere tonu. |
| Ngā mea hei kōrero ki tō tākuta mēnā ka mau tonu, ka whakararuraru rānei | |
| Mamae puku | Mamae puku whānui. |
| Ruaki | Te ruaki. |
Me pēhea te penapena i tō rongoā?
- Puritia kia kore e taea e ngā tamariki me ngā mōkai te toro atu .
- Penapena ki te pāmahana rūma (i waenga i te 20 me te 25 nekehanga Celsius) , ki te wāhi maroke.
- Kaua e whakamahia ngā rongoā kua pau te wā. Maka atu.
Me pēhea te whakakore i te rongoā kāore i whakamahia?
Ehara i te mea pai te maka i ngā rongoā kua pau te wā, kua kore rānei e hiahiatia ki roto i te para, ki roto rānei i te wharepaku. Pātai atu ki tō tākuta mō ētahi tohutohu. Ki te mea mai rātou he pai te maka i te rongoā ki roto i te para, tangohia te rongoā i roto i te pounamu, whakaranua ki tētahi mea pēnei i te rau tī kua whakamahia, te paura kawhe, te oneone rānei, ka maka ki roto i tētahi putea kua hiritia.
Karere Tangohia ki te Kāinga
- Ko te Odevixibat he rongoā e tohua ana mō te mākūkū i puta mai i tētahi mate ate e kiia nei ko te PFIC, ā, me whakamahi anake i runga i te taunakitanga a te tākuta.
- Horomia te kāpū katoa. Kaua e kuruhia, kaua hoki e ngaungau. Whakaranua ki te kai mārō mēnā he uaua ki te horomi.
- Kōrerotia ki tō tākuta ngā rongoā katoa e tangohia ana e koe me ō āhuatanga hauora.
- Ki te kite koe i ētahi pānga kino, pērā i ngā tohu mate pāwera, ngā tohu rānei o te kino o te ate (te kōwhai o ngā kanohi, te mimi pouri), whakamōhio atu ki tō tākuta tonu.
- Mena ka nui rawa te horopeta i tangohia e koe, haere tonu atu ki te National Poison Information Center, ki te ETU rānei.
- Mena he pātai āu mō tēnei rongoā, me kōrero ki tō tākuta.
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