Kei te amuamu tāu tamaiti mō te pōuri ohorere o te tirohanga, te kore taurite o te hikoi, te ngoikore rānei o ōna ringa, o ōna waewae rānei? Ahakoa he maha ngā wā ka whakaarohia ēnei he take iti noa iho, tera pea he tohu o te MS , te Multiple Sclerosis rānei. Kaua e mataku ki te ingoa; ko te taahiraa nui ko te whiwhi mātauranga tika. I Nirogi Lanka, me tūhura tātou i te MS tamariki i roto i ngā kupu māmā, ngāwari ki te mārama.
He aha rawa te MS?
I roto i ngā kupu ngāwari, ko te MS i ngā tamariki he mate pūnaha ārai mate e whakaeke hē ai te pūnaha ārai mate o tāu tamaiti i tōna ake tinana . Ko te nuinga o te wā ka pā ki te pūnaha io matua o te tamaiti — inā koa te roro me te taurakira .
Whakaarohia te pūnaha ārai mate hei ope tiaki ā-roto o tō tinana, i hangaia hei tiaki i a koe mai i ngā whakaekenga pēnei i ngā iroriki me ngā huaketo. I roto i te tamaiti whai MS, ka hē nui tēnei ope tiaki, ka tautuhi i tētahi wāhanga nui o te tinana—te hipoki tiaki e karapoti ana i ngā io—hei tūmomo mōrearea, ā, ka whakaekea.
Ko te Myelin te ingoa o tēnei paparanga tiaki. He rite tonu ki te paninga kirihou e karapoti ana i te waea hiko, ka whakarite te myelin kia tere te haere o ngā nekehanga io, me te kore e pokanoa. Ina pakaru te myelin e te pūnaha ārai mate, ka pakaru ngā tohu mai i te roro ki te toenga o te tinana. Pērā i te 'poto o te ara iahiko' ina tangohia te whakamarumaru o te waea, ka arahi pea tēnei ki te ngoikore o te uaua , te ngenge, ngā raruraru mahara, te uaua ki te hikoi, me ngā panoni tirohanga.
Ko te mea nui, ahakoa kāore he rongoā tuturu mō te MS i tēnei wā, he tino whai hua ngā maimoatanga e wātea ana i ēnei rā hei whakahaere i ngā tohu me te āwhina i tāu tamaiti kia ora i tētahi oranga ora, oraora hoki.
He rerekē ngā momo MS o ngā tamariki?
Ae, kotahi te momo matua ka kitea i roto i ngā tamariki.
Tata ki te 98% o ngā tamariki kua tāpaetia he mate MS e hoki whakamuri ana . Ko te tohu o tēnei momo mate ko ngā wā ka puta ake ngā tohu, ā, muri iho ka puta ko ngā wā e marino ana, e memeha haere ana rānei ngā tohu.
Hei tauira, tera pea ka uaua te hikoi, ka ngenge rānei tō tamaiti mō ētahi wiki, ā, tera pea ka pai ake mā te maimoatanga. I muri i ētahi marama, tera pea ka raru tōna tirohanga. Ko tēnei huringa o te puta me te heke o ngā tohu te tohu o te haere whakamua o tēnei mate.
He tino onge ake te MS tuatahi e ahu whakamua ana i roto i ngā tamariki, ā, ka āta kino haere ngā tohu i te roanga o te wā.
He aha ngā tohu whakatūpato mō te wā wawe?
Ina whakapae te tākuta kei a koe te MS, me tirotiro wawe ētahi tohu mō te wā poto. He mea nui kia mōhio koe ki ēnei hei mātua.
| Tohu mō te wā tuatahi | Whakamārama Māmā |
|---|---|
| Te neuritis whatu | Te mamae o tētahi, o ngā kanohi e rua rānei, me te pōuri o te tirohanga, te ngaro rānei o te tirohanga mō te wā poto. Tērā pea ka uaua ki tāu tamaiti te wehewehe tika i ngā tae. |
| Te myelitis whakawhiti | Te mumura o te taurakira e arahi ana ki te ngoikore, te ngoikore, te ngaro katoa rānei o te rongo o ngā peka. |
Ētahi atu Tohu Noa
Hei tāpiri atu ki ngā tohu tuatahi, ko ētahi atu tohu ka uru atu ki:
- He kare o te ngenge, te pēhanga rānei o ngā ngira (Paresthesia)
- Pōuriuri
- Te ngaronga o te taurite, te tūtuki pinepine rānei i te wā e hikoi ana
- Ngenge tonu, kāore i te mārama te take (Te ngenge)
- ngoikore o te uaua
- Te wiri, te wiri rānei (Tremors)
- Te uaua ki te arotahi, te ngaro rānei o te mahara
- Te tirohanga takirua, te tirohanga pōuri rānei
Kia maumahara, ehara i te mea ka pāngia ia tamaiti e ngā tohu katoa. Ka rerekē rawa ēnei tohu i waenga i ngā tamariki, ā, ka rerekē pea ngā tohu i ia rā, i ia rā.
He aha ngā tamariki ka pāngia e te MS?
E ai ki tā tātou i kōrero ai, ko te tino take ko te demyelination — te pūnaha ārai mate e pakaru hē ana i te pūkahu myelin tiaki. Ka puta he 'mōka' iti i roto i ngā io nā tēnei kino, e kiia nei e ngā tākuta he whara , he papa rānei , e kitea pinepine ana i ngā matawai MRI.
Ahakoa kāore anō kia tautuhia e ngā kairangahau te pūtake tuturu o tēnei hapa e te pūnaha ārai mate, he maha ngā āhuatanga mōrearea kua honoa ki tēnei:
- Te korenga o te huaora D: He iti ngā taumata o te huaora D i roto i te whaea i te wā e hapu ana.
- Ngā Mate Huaketo: Ina koa ko te pānga ki te huaketo Epstein-Barr .
- Te pānga ki te kai hikareti: Te pānga ki te auahi tuarua i te wā e hapu ana.
- Momonatanga
He āhuatanga mōrearea noa iho ēnei; ki te whai ēnei āhuatanga, ehara i te mea ka pāngia te tamaiti e te MS.
Me pēhea te tautuhi a ngā tākuta i te MS?
He uaua te mahi tātaritanga o te MS, nā te mea ka taea e ēnei tohu te whakatauira i ngā āhuatanga maha atu. Nō reira, he maha ngā taahiraa e whaihia ana e te tākuta hei tātaritanga.
I te tīmatanga, ka whakahaerehia e te tākuta he whakamātautau tinana hōhonu, ā, ka pātai atu ki a koe me tāu tamaiti mō tētahi hītori taipitopito o ngā tohu. Muri iho, ka whakahaerehia e rātou he whakamātautau motuhake hei whakakore i ētahi atu mate me te whakaū i te tautuhi MS. Mēnā ka kite koe i ngā tohu ohorere, kino hoki, whakapā atu ki tō ratonga ohorere ā-rohe, toro atu rānei ki te hōhipera tata tonu atu.
| Whakamātautau | Whakamārama Māmā |
|---|---|
| Ngā Whakamātautau Toto me te Mimi | Ka āwhina ēnei ki te whakakore i ētahi atu mate urutā, i ngā āhuatanga hauora rānei ka puta ai ngā tohu rite ki te MS. |
| Matawai MRI | He taputapu tātaritanga tino nui tēnei. Mā tēnei ka taea e tātou te kite mārama i ngā pakaru o te myelin, i te aroaro rānei o ngā 'whara' i roto i te roro me te taurakira. |
| Werohanga o te Lumbar | I muri i te whakangāwari i tō tuara o raro, ka whakamahia he ngira angiangi hei kohi i tētahi tauira iti o te wai cerebrospinal. Ko ētahi pūmua kei roto i tēnei wai ka tohu pea i te MS. |
| Ngā Whakamātautau Pūmanawa Whakaoho (EP) | Ka inehia e tēnei whakamātautau te tere o ngā tohu hiko mā roto i ō io. Mā te pakaru o te pūkahu myelin ka puhoi haere ēnei tohu. |
Ka roa pea te tukanga tātaritanga, ā, ka tino pāngia koe me tāu tamaiti e te mamae o te ngākau. Heoi, he mea nui te whiwhi i te tātaritanga tika hei tīmata i te mahere maimoatanga tino whai hua kua whakaritea mō tāu tamaiti.
He aha ngā maimoatanga e wātea ana mō te MS?
Ahakoa kāore he rongoā mō te MS i tēnei wā, he tino whai hua ngā maimoatanga e wātea ana i ēnei rā hei āwhina i te whakahaere i te mate, hei whakaiti i te auau o ngā putanga mai o te mate, me te tautoko i tāu tamaiti kia ora i tētahi oranga noa, whai hua hoki.
- Ngā Maimoatanga Whakarerekē Mate (DMT): Ka mahi ēnei rongoā mā te whakaiti i te whakaekenga a te pūnaha ārai mate ki te myelin, ka āwhina ki te whakaroa i te haere whakamua o te mate. Mō ngā tamariki neke atu i te 10 tau te pakeke, ka taea te whakamahi i ngā rongoā kua whakaaetia e te FDA pēnei i a Fingolimod .
- Ngā Maimoatanga Tautoko: He mea nui ēnei hei whakahaere i ngā tohumate motuhake.
- Whakaora Mahi: Ka āwhina i tāu tamaiti ki te whakatere i ngā mahi o ia rā me te ngāwari.
- Whakaora Tinana: Arotahi ana ki te whakapakari i ngā uaua me te whakapai ake i ngā uauatanga nekenekehanga, hikoi rānei.
- Whakaora Kōrero: Ka aro atu ki ngā uauatanga o te kōrero, o te horomi rānei.
- Whakamātautau me te Whakaora Hinengaro: Ka tautoko mēnā ka pāngia tō tamaiti e ngā huringa o te mahara, o te arotahi rānei.
Ka pāngia te mahi a taku tamaiti e te MS i te kura?
Tērā pea ka pāngia ētahi tamariki whai MS e ngā wero ki te mahara, ki te ako, ki te arotahi rānei. He mea nui kia mau tonu te kōrero tuwhera ki ngā kaiako o tāu tamaiti. He tino whai hua te aromatawai hinengaro-pūnaha ki te tautuhi i ngā kaha me ngā uauatanga motuhake o tāu tamaiti, ā, ka taea e te kura te whakarato i ngā whakaritenga e tika ana.
Heoi anō, kia maumahara he maha ngā tamariki whai MS e takaro tonu ana, e ako ana, e tipu tahi ana me ō rātou hoa. He maha ngā wā ka taea e rātou te whai wāhi atu ki ngā mahi rite tonu ki ētahi atu tamariki, nō reira kaua e manukanuka rawa.
Āhea ahau me toro atu ki te tākuta?
Ki te kōrero tāu tamaiti mō te ngoikore, te mākūkū, te panoni o te tirohanga, tetahi atu tohu rānei e pā ana ki te MS, kaua e waiho hei raruraru iti noa iho. He mea nui kia toro atu koe ki te tākuta o tāu tamaiti i te wā e taea ai.
Mā te tautuhi wawe ka taea te maimoatanga tere, ka pai ake ngā hua me te ārai i ngā raruraru roa.
Ahakoa kua kitea ngā tohumate hou mō tāu tamaiti, me whakapā atu tonu ki tō tākuta i muri i te tātaritanga. Mēnā ka pāngia koe e te āhuatanga ohorere, whakapā atu ki te 911, ki te tari ohorere rānei o te hōhipera e tata ana ki a koe.
Karere Kawea ki te Kāinga mai i Nirogi Lanka
- He mate te MS nā te ārai mate; ehara i te mea hopuhopu, ā, e kore e taea e tāu tamaiti te hora atu ki ētahi atu.
- Ko te MS ka hoki whakamuri te momo tino kitea i roto i ngā tamariki.
- Ki te kōrero tāu tamaiti mō ngā panonitanga o te tirohanga, ngā uauatanga ki te hikoi, te ngoikore rānei o te ngākau, kaua rawa e warewaretia ēnei tohu—rapua wawetia he tohutohu hauora.
- Ahakoa kāore e taea te whakaora i te MS, he pai te whakahaere a ngā maimoatanga hou i te mate, ā, ka taea e ngā tamariki te noho ora hihiri me te harikoa.
- Ko te tautoko tahi a ngā mātua, ngā kaiako, me ngā kaiwhakarato hauora te tūāpapa o te haerenga a tāu tamaiti.
MS, Multiple Sclerosis, MS Tamariki, Ngā Mate Pūnaha Io, Myelin, Demyelination, Neuritis Optic, Nirogi Lanka, Ngā Mate Pūnaha Ārai Mate
