Kei te pōturi hoki tō manawa, kei te whewhe rānei koe ina whakapau kaha koe, ina piki arawhata, ina mahi rānei i ngā mahi noa? I ētahi wā ko te take o tēnei he toto toto tawhito kua roa e noho ana i roto i ō pukahukahu. Ahakoa ka ngana koe ki te whakahaere i tēnei āhuatanga mā te rongoā, ki te kore e mahi, ka tukuna koe e ngā tākuta ki tētahi pokanga motuhake hei whakaora i tō ora. I tēnei rā kei te kōrero tātou mō taua pokanga uaua, engari he tino nui, arā, te PTE.
He aha tēnei pokanga PTE?
Ki te whakarapopoto, ko te PTE he whakarāpopototanga mō te Pulmonary Thromboendarterectomy . He tikanga pokanga tēnei e tango ana i ngā toto toto tawhito me ngā kiko whara kua piri ki roto i ngā oko toto matua (ngā uaua pūkahukahu) i roto i ō pukahukahu. He tikanga uaua tēnei e hiahia ana ki te mātauranga motuhake. Engari ka taea e ia te whakaora katoa i ētahi tūroro.
He aha ngā āhuatanga e rongoatia ana e te pokanga PTE?
Ko te mahi matua o tēnei pokanga he rongoā i tētahi mate e kiia nei ko te CTEPH (Chronic Thromboembolic Pulmonary Hypertension) . Tērā pea ka whakaaro koe, 'He ingoa roa rawa tēnā,' tika? Kia māmā noa iho.
Whakaarohia, he toto totoka kei roto i ngā pukahukahu o tētahi. Ka kiia e mātou ko te "Pulmonary Embolism (PE)". I te nuinga o te wā, ka memeha ēnei totoka ina hoatu he rongoā whakangawari toto. Engari he tino onge, i roto i ētahi tāngata, kāore ēnei totoka e memeha katoa, engari ka piri ki ngā pakitara o ngā oko toto i roto i ngā pukahukahu, ā, i roto i te wā, ka huri hei kiko whara.
Ina āraia ngā oko toto i roto i ngā pukahukahu e ngā toto toto tawhito me ngā kiko whara, ka tino teitei te toto i roto i aua oko toto. Koinei te mea e kiia nei e mātou ko te CTEPH.
Nā tēnei ka kaha ake te mahi a te taha matau o te ngākau ki te pupuhi toto ki ngā pukahukahu. I roto i te wā, ka arahi pea tēnei ki ngā āhuatanga kino pēnei i te ngoikore o te ngākau me te kino o ngā pukahukahu. Ko te pokanga PTE anake te maimoatanga ka taea te whakaora i te CTEPH.
Ko wai e hiahia ana ki tēnei pokanga? Ka taea e te katoa te mahi?
Mena kei a koe te CTEPH, he maha ngā āhuatanga ka whakatau mēnā ka taea e koe te mahi pokanga PTE.
| Whakaaroaro | Whakaahuatanga |
|---|---|
| Te kaha o ngā tohu | Te kaha o ō tohumate, pērā i te poto o te manawa me te wheezing. |
| Te wāhi o ngā toto totoka | Ko te meka kei ngā wāhi e taea ai te tango haumaru i ngā toto totoka me ngā kiko koha. |
| Tō hauora whānui | He mea nui anō hoki tō tau, tō ngākau me tō pūkahukahu, me te mea kei a koe ētahi atu mate hauora. |
Kāore e taea e ngā tūroro CTEPH katoa te whakamahi i tēnei pokanga. Tata ki te 40% o ngā tūroro kāore e taea te whakamahi i tēnei pokanga. Ko te take o tēnei he tino uaua te pokanga.
He aha i tino uaua ai te pokanga?
Whakaarohia i te wā e pokanga ana, ka whakanohoia tō ngākau me ō pūkahukahu ki runga i tētahi mīhini karo manawa hei āwhina i ētahi o ngā mahi. Kātahi, kia taea ai e te taote pokanga te kite i roto i ō pūkahukahu, ka whakahekehia te pāmahana o tō tinana ki te 18 nekehanga Celsius (65°F), ā, ka mutu te rere o tō toto mō tētahi wā poto. Ka kiia tēnei ko te 'whakamutu toto hohonu i te werawera'. Kaua e manukanuka, mā tēnei tikanga ka taea e te taote pokanga te tango i ngā toto totoka me ngā kiko whara kia ma, me te tiaki i tō roro mai i ngā kino.
Me pēhea te whakarite mō te pokanga?
Ka hoatu e tō tākuta ngā tohutohu katoa e hiahiatia ana e koe i mua i te pokanga. I te nuinga o te wā ka kī atu rātou kia aro koe ki ēnei mea:
- Ngā Rongoā: Ka tonoa koe kia mutu te tango i ngā rongoā whakaiti toto (pēnei i te aspirin me te warfarin) me ētahi rongoā whakamamae mamae (NSAID) i ētahi rā i mua i te pokanga, nā te mea ka piki ake te mōrearea o te toto i te wā o te pokanga.
- Kai me te Inu: Ka tonoa koe kia nohopuku (kaua e kai, kaua e inu) mō ētahi hāora i mua i te pokanga. He pai ake te noho puku kau i te wā e tukuna ana te rongoā whakamoe.
- Te kai hikareti me te waipiro: Ki te whakamahia e koe ngā mea e rua, he mea tino nui kia mutu rawa te whakamahi i mua i te pokanga, nā te mea ka whakaroa i te tukanga whakaora, ka piki ake hoki te tūponotanga o ngā raruraru.
He aha ngā mea ka tupu i muri i te pokanga?
I muri i te pokanga, ka whakaurua koe ki te wāhanga tiaki nui (ICU). Ka noho koe ki reira i taua pō. I te ata i muri mai, ka tirohia mēnā ka taea e koe te manawa ko koe anake, kātahi ka tangohia te mīhini manawa.
I te nuinga o te wā ka noho koe ki te hōhipera mō ngā rā e whitu ki te tekau. I tēnei wā, ka tīmata haere koe ki te hikoi. Ka whai whakamātautau anō hoki koe hei tirotiro mēnā e hiahiatia ana te hāora i mua i tō hokinga ki te kāinga. He rite tonu tēnei ki te wheako whakaora i te pokanga ngākau tuwhera.
He aha ngā painga me ngā mōrearea?
Pērā i ngā pokanga katoa, he painga, he mōrearea hoki tō te PTE.
| Ngā Painga | Ngā Tūponotanga |
|---|---|
| Te āheinga o te ora katoa mai i te CTEPH. | Ko te mōrearea o te mate i te wā e pokangahia ana (he iti iho i te 1%) ināianei. |
| He whakapainga nui ki te manawa me te kaha ki te whakakori tinana. | Te mōrearea o te whiu (1%-2%). |
| Te whakaora i te kino o te taha matau o te ngākau. | Ka noho tonu te toto toto tiketike (PH) ki tētahi taumata ahakoa i muri i te pokanga. |
| Te kaha ki te ora roa, ki te ora hauora hoki i muri i te pokanga. | Te kohikohinga o te wai e karapoti ana i te ngākau (te rerenga wai i roto i te ngākau). |
Āhua ohorere!
Ki te pāngia koe e te mamae ohorere, te mamae nui o te uma, te poto o te manawa, te hemo rānei i muri i te pokanga, haere tonu ki te Tari Ohotata (ETU) o te hōhipera tata. Waihoki, ki te puta mai ngā tohu pēnei i te pupuhi, te whero, te pupuhi, te kirika rānei i te wāhi i pokangahia, toro atu ki tō tākuta tonu.
He pēhea te wā whakaora?
E toru marama pea te roa hei whakaora katoa.
- Ngā wiki tuatahi e 6: Kaua e taraiwa, kaua e haere ki te mahi, kaua hoki e hiki i te taumaha neke atu i te 4.5 kg (10 lbs).
- Wiki 7 ki te 12: Ka taea te hapai i te 11 kg (25 lbs).
- I muri i ngā wiki 12: Kāore he here i te nuinga o te wā.
Tērā pea ka pai haere tō kaha ki te manawa me te whakakori tinana tae noa ki te 4 tau i muri i te pokanga.
Karere Tangohia ki te Kāinga
- Ahakoa he pokanga uaua te PTE hei tango i ngā toto toto tawhito i roto i ngā pukahukahu, ka taea e ia te whakaora katoa i te mate e kīia nei ko te CTEPH.
- Ehara tēnei pokanga i te mea mā te katoa. Mā tō tākuta me te rōpū tohunga e whakatau mēnā he tika mōu.
- Ahakoa he roa ake te wā whakaora, ka tino pai ake te kounga o tō oranga, tō kaha manawa, me tō nekehanga i muri i te pokanga.
- I muri i te pokanga, me tango e koe ngā rongoā ārai toto mō te toenga o tō oranga hei ārai i te hanganga anō o ngā toto totoka.
- He mea nui kia kite i tō tākuta i te wā tika, kia whakamātauria hoki. Kaua e wehi ki te kōrero ki tō tākuta mō ngā mamae katoa e pāngia ana e koe.
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