Kei te mamae anō hoki ō hononga o muri? Me ako tātou mō te spondyloarthritis!

Kei te tīmata tō rā me te tuara pakari me te mamae ina oho ake koe i te ata? Kāore rānei koe i te rongo i ētahi wā kei te horapa tō mamae tuara ki ō papa? Tērā pea kāore koe i te pai ki ēnei tohu. Ehara pea tēnei mate i te mamae tuara noa iho. I tēnei rā ka kōrero tātou mō tētahi mate uaua engari he mārama te tikanga, ko te Spondyloarthritis .

He aha te spondyloarthritis? He māmā noa iho...

Ki te kī māmā noa, ko te spondyloarthritis he mate rumatiki e pā ana ki ngā hononga o tō tuaiwi . Ko te tikanga o "Spondyl-" he hononga ki te tuaiwi. Ko te tikanga o "Arthritis" he mamae me te pakari o ngā hononga. Ko te nuinga o tēnei mate ka pā ki ngā hononga e hono ana i tō tuaiwi. Arā, ko ngā hononga iti (ngā hononga taha) i waenganui i ngā vertebrae me ngā hononga sacroiliac e hono ana i tō tuaiwi ki ngā wheua hope. Koia te take he maha ngā wā ko te mamae o te tuara o raro te tohu matua . Heoi, kāore i te herea ki te tuaiwi anake. Ka pā pea ki ētahi atu hononga, ā, ka puta ake ētahi atu tohu.

Kia maumahara, ehara tēnei i te mate kotahi, engari he rōpū mate e rite ana ngā tohu. Ka tapaina hoki tēnei mate e ngā tākuta ko te spondyloarthropathy . Ko tōna tikanga he mate (`-pathy`) o ngā hononga o te tuaiwi (`arthro-`). Kua rongo pea koe i te osteoarthritis (nā te pakaru o ngā hononga) me te rheumatoid arthritis (RA) (nā te raruraru o te pūnaha ārai mate). He rerekē te Spondyloarthritis i ēnei e rua, engari ka pā anō hoki ki ngā hononga o te tuaiwi.

He aha ngā āhuatanga matua o tēnei mate? Kia tirohia tata atu tātou!

He maha ngā tohu motuhake e pā ana ki te spondyloarthritis:

• He mate rūmātiki tēnei: ​​Ko te Spondyloarthritis he momo mate rūmātiki e taka ana ki raro i te kāwai o ngā mate rūmātiki , he momo mate rūmātiki mumura . Ka puta te mamae me te pupuhi i ngā hononga i te mumura mau tonu. Ehara i te mea he āhuatanga e kino ai ngā hononga pērā i te osteoarthritis. Ko te mate rūmātiki mumura he mate pūnaha ārai mate . Ko te tikanga o tēnei ka whakaeke hē te pūnaha ārai mate o tō tinana i ō hononga ake, ka puta te mumura tonu. Ka pā tēnei mumura ki ngā hononga, tae atu ki ētahi atu wāhanga o te tinana.

• Ehara tēnei i te mate rumatiki (RA): Ahakoa he momo mate rumatiki te mate rumatiki, koinei te mate rumatiki (RA) e mōhiotia ana e tātou katoa.Kāo. E mōhio ana mātou ki tēnei nā te mea kāore ngā whakamātautau toto mō te hunga whai mate spondyloarthritis e whakaatu ana i te aroaro o tētahi paturopi e kiia nei ko te rheumatoid factor , he mea motuhake ki te RA. Koia te take e kiia ai tēnei mate e ngā tākuta he "seronegative spondyloarthropathy ." Ko te tikanga o te "Seronegative" he kino te whakamātautau toto mō te RA. Kāore anō kia kitea he paturopi motuhake mō te spondyloarthritis (SpA).

• Te mate pūkahukahu: Ko tētahi atu tohu nui o te spondyloarthritis ko te mumura (enthesitis) i roto i ō entheses . Ka rapua tēnei e ngā tākuta ina tātaritangahia te mate. He kiko honohono muka ngā entheses. Ina koa, ko ngā "hononga" ēnei e hono ai ō uaua me ō hononga ki ō wheua. Ka taea e te spondyloarthritis te whakararu i te mate pūkahukahu i ngā wāhanga rerekē o te tinana. Ko ngā rekereke me ngā turi ngā wāhi e kitea whānuitia ana tēnei mate.

• Ira HLA-B27: I waenganui i te 80% me te 95% o te hunga whai mate pukupuku spondyloarthritis o te uri o te Raki o Ūropi kei a rātou te ira HLA-B27 . He iti ake te kitea o tēnei ira i roto i te hunga whai mate i roto i ētahi atu iwi. Waihoki, ko te whai i tēnei ira ehara i te mea ka puta tonu te mate. Heoi, he mea noa iho, ā, ka taea e te tākuta te whakamātautau i tēnei ira hei āwhina i te tautuhi i te mate.

He pēhea te noa o tēnei mate?

Ahakoa he tokomaha te hunga kāore i te mōhio nui ki tēnei mate, ko te spondyloarthritis he mate e kitea nuitia ana i te rumatiki rheumatoid . E kiia ana tata ki te 0.5% ki te 2% o te taupori o te ao he momo spondyloarthropathy tō rātou.

He aha ngā momo matua o te spondyloarthritis?

He maha ngā mate motuhake e taka ana i raro i te taitara whānui o te spondyloarthritis. Ka wehea ēnei e ngā tākuta ki ngā wāhanga matua e rua: te axial spondyloarthritis me te peripheral spondyloarthritis .

Te Spondyloartritis Tua

Ko ngā hononga o tō angaanga tuaka te nuinga e pāngia ana, arā , te kaki, te uma, me te tuaiwi . I te haere whakamua o te mate, ka pāngia pea ētahi atu hononga, me ētahi atu okana pea.

He momo kino rawa te Ankylosing Spondylitis o te axial spondyloarthritis. Ka kitea ngā panonitanga mārama i roto i ngā wheua o te tuaiwi, e kiia nei ko te ankylosis.(pērā i te hononga o ngā wheua). Ko te tikanga whānui, koinei te momo spondyloarthritis tino noa.

Te Spondyloartritis ā-Ringa

Ka pā tuatahi tēnei momo ki ō hononga me ō uaua o waho . Arā, ko ngā hononga i waho o te angaanga tuaka (hei tauira, ko ngā hononga i roto i ngā peka). I te haere whakamua o te mate, ka pāngia pea te tuaiwi, ka whakangaromia rānei.

Ko te mate pukupuku ā-ringa ā-ringa he mumura anō hoki kei roto i ētahi atu okana. Ka pāngia ngā okana rerekē e ngā momo rerekē (pērā i ngā kanohi, te kiri, me ngā whekau). Heoi, he rite tonu ngā tohu. Ko ētahi o ngā momo matua ko:

• Te Mate Pūkahukahu Psoriatic: He mate pūkahukahu tēnei e puta tahi ana me te psoriasis , he mate kiri ā-tinana e puta ai he ponana kiri mumura. (I tō tātou wāhi o te ao, e kiia ana hoki tēnei ko te "kiri unahi"). He maha ngā wā ka pā ki ngā hononga iti o ngā ringa me ngā waewae, ka pupuhi me te mamae o ngā maihao.
• Matepukupuku Enteropathic: He matepukupuku tēnei e pā tahi ana me te Mate Puku Mumura (IBD) . Ko te tikanga o te "Enteropathic" ka pā ki ō whekau.
• Mate rumatiki tauhohe: He mate pūnaha ārai mate tēnei e puta ana i te mate urutā i roto i ō whekau, i tō ara mimi rānei. Ka pā pea ki ō kanohi, kiri, tō pūkahukahu, ira tangata, i ngā whekau rānei. He wā poto noa iho, engari ka roa pea ki te 12 marama. Mō ētahi tāngata, ka huri hei mate rumatiki mau tonu.

Te Spondyloartritis Kāore i Whakarerekētia

Koinei te tautuhi mate mēnā he rite ō tohu ki ō tohumate o te spondyloarthritis, engari kāore e tino ōrite ki tētahi momo mate.

Te Spondyloartritis Taiohi

He mate tēnei o te spondyloarthritis e pā mai ana i te tamarikitanga, i mua i te 16 tau te pakeke. Tērā pea ka pāngia ngā tamariki e tētahi momo motuhake, e tētahi huinga rānei o ngā momo rerekē.

He aha ngā tohu o te Spondyloarthritis?

He rite tonu ngā tohu o ngā momo spondyloarthritis rerekē. Ahakoa he motuhake ake ētahi tohu ki ētahi momo, ka kitea tetahi o ngā tohu i roto i tētahi momo.

Ko ngā tohu matua pea ko:

• Te mamae i te tuara o raro, i ētahi wā ka horapa ki te papa (sacroiliitis). Mō ētahi tāngata, ka rite pea tēnei ki te mamae e puta mai ana i roto i te wheua hope.
• Te pakari o ngā hononga i te ata, ka māmā ake ina neke haere koe. He rite ki te rakau te āhua o tō tinana ina ara ake koe i te ata, ā, ka wetekina ina neke haere koe.
• Te mamae o te tuara o waenganui me te tuara o runga, te mamae o ngā uaua o te uma, te mamae rānei o te kaki.
• Te piko haere o te tuaiwi (pērā i te scoliosis).
• Te mamae me te kōpiko o ngā hononga o ngā peka me ngā waewae – ngā hope, ngā pakihiwi, ngā turi, ngā tuke, ngā ringaringa, ngā ponapona.
• Te pupuhi nui o ngā maihao ("maihao hōtiti" te dactylitis rānei). Koinei te wā ka pupuhi katoa tetahi maihao, tetahi matimati rānei, ka rite ki te hōtiti.
• Ngā tohu o te pūnaha nakunaku, hei tauira, te mamae o te puku me te korere.
• Te mamae me te mumura o te ara mimi.
• He kiri mākūkū, he unahi hoki (psoriasis).
• He poka iti i roto i ngā whao (psoriasis whao).
• Te ngenge mau tonu.
• Kāore he reka o te kai.
• Te mumura o ngā kanohi (uveitis). Ka puta te whero, te mamae, me te aro ki te mārama.
• Ngā mate waha.
• Mamae rekereke (nā te enthesitis).
• Te hanganga o ngā wheua iti.

He mea nui, ko ngā tohu o te spondyloarthritis ka tīmata wawe te puta mai i ētahi atu momo rumatiki, i mua i te 45 tau te pakeke. Tērā pea ka tīmata mārire ēnei tohu, ā, ka kino haere. I te nuinga o te wā, ka mau tonu ēnei tohu.

He aha ngā take o te spondyloarthritis?

Ko ngā tohu o te spondyloarthritis ka puta mai i te mumura mau tonu i roto i ō hononga me ētahi atu kiko. Ka puta aunoa tēnei mumura i tō ake pūnaha ārai mate . Koinei te mea e kiia nei e tātou he mate pūnaha ārai mate .

Kāore anō kia tino mārama ngā kairangahau he aha i puta ai ēnei mate pūnaha ārai mate. Heoi, te āhua nei he maha ngā āhuatanga e whai wāhi ana. He maha ngā mate pūnaha ārai mate, tae atu ki te spondyloarthritis, te āhua nei he wāhanga ira kei a rātou.

Ko te whānau ira HLA (Human Leukocyte Antigen) e hono pinepine ana ki te mate rumatiki mumura. Ka whakamahia e te pūnaha ārai mate te pūmua i hangaia e ēnei ira hei wehewehe i waenga i ō ake pūtau me ngā pūtau ke. Ka taea e ētahi rerekētanga o ēnei ira te whakararu i te pūnaha ārai mate. Ka taea e tēnei te take e hē ai te tautuhi a te pūnaha ārai mate i ō ake pūtau, ā, ka whakaekea ō ake pūtau.

He aha ngā mea e whakaoho ana i te spondyloarthritis?

Ahakoa he pānga ira, ehara i te mea koinei anake te take o te mate. Ahakoa he maha ngā tāngata whai spondyloarthritis kei a rātou te ira HLA-B27 , ehara i te katoa he ira pērā ka pāngia e te spondyloarthritis.

Me whai tētahi atu mea hei whakaoho i tēnei tukanga. He rerekē ngā whakaaro o ngā kairangahau mō ngā mea e whakaoho ana i tēnei. Ko ētahi o ēnei ko ngā mate kino, ngā paitini taiao, te momi hikareti, me te inu waipiro.

Ko tētahi ariā e kī ana, tera pea ka hono te spondyloarthritis ki te kore taurite (dysbiosis) i roto i tō microbiome puku . He iti ake te kanorau o ngā moroiti puku o te hunga whai spondyloarthritis (SpA), ā, ka māmā ake te tupu o ngā moroiti kino. Mā tēnei kore taurite i roto i te puku ('gut dysbiosis') ka ngāwari ake koe ki te pangia e ngā mate, ka puta te mumura mau tonu i roto i te puku, ā, ka ngoikore hoki tō pūnaha ārai mate. Ko te ranunga o ō moroiti puku he mea tuku iho anō hoki i a koe i te whānautanga.

Me pēhea te tautuhi i te spondyloarthritis?

He uaua te tautuhi i te mate spondyloarthritis, ina koa mēnā kāore i te mārama ngā tohu. Ko ētahi tāngata he mamae me te pakari o ngā hononga, ā, he maha atu anō ngā take.

Ka pātai tuatahi te tākuta ki a koe mō ō tohumate, ā, ka tirohia anō hoki mēnā he tohumate kē atu kāore anō kia whakahuatia e koe engari he hononga pea. Ka pātai anō hoki rātou mō tō hītori hauora me te hītori hauora o tō whānau.

Kātahi ka tirotirohia tō tuaiwi, ētahi atu hononga rānei, kia kitea ai te tawhiti e taea ai e koe te neke. Ka tangohia he hihi-X hei rapu i ngā tohu o te mate rumatiki, te mate pūkahukahu rānei, engari kāore e kitea tonutia ēnei tohu i ngā whakaahua.

Ka taea hoki te whakahaere i ngā whakamātautau toto hei tirotiro i ngā tohu o te mumura, o te mate pūnaha ārai mate rānei. Ka taea hoki e rātou te whakamātautau mō te ira HLA-B27 . Ka taea e ēnei whakamātautau te wehewehe i te spondyloarthritis (SpA) mai i ētahi atu mate.

He aha ngā maimoatanga mō te spondyloarthritis?

Ka whakawhirinaki te maimoatanga ki ō tohumate. Ka whai ngā tākuta i tētahi huarahi maimoatanga taahiraa-i-te-taahiraa, ka tīmata ki te whakakori tinana me ngā rongoā mamae ka taea te hoko kore-tūtohu (ngā rongoā anti-inflammatory kore-steroidal / NSAID) .

Mena kāore ēnei e ranea hei whakahaere i tō mamae me tō mumura, ka tūtohu pea tō tākuta:

• Ka hoatuhia ngā werohanga cortisone i ia wā hei whakaiti i te mamae ā-rohe.
• Ngā DMARD tuku iho, ngā DMARD koiora rānei (Ngā Rongoā Ārai-Rūmātiki Whakarerekē Mate/DMARD). He rongoā ēnei e whakarerekē ana i te āhua o te mate.

Mō ētahi momo spondyloarthritis motuhake, pērā i te psoriatic arthritis me te enteropathic arthritis, kei reira ētahi atu maimoatanga e hāngai ana ki te mate taketake (psoriasis, te mate mumura rānei o te whekau (IBD)).

He pēhea te kino o tēnei āhuatanga? Me pēhea tātou e anga whakamua ai?

Mena ka kaha te mumura o te rumatiki, ā, ka roa te wā, ka puta ētahi raruraru nui. Heoi, ko ēnei raruraru ka pā ki tō kounga o te oranga , kaua ki tō roanga o te ora. Hei tauira, tera pea kua iti ake te nekenekehanga o ō hononga, ā, kua piki ake te mōrearea o te whati wheua. Heoi, ehara i te katoa ka pāngia e ngā tohu kino, ā, ka taea e te maimoatanga te āwhina ki te whakahaere i te haere whakamua o te mate.

He rerekē te tere o te whanaketanga o te spondyloarthritis i ia tangata, i ia tangata. Mō ētahi, ka puhoi te whanaketanga, ā, ka taea te whakahaere ngāwari mā te rongoā. Mō ētahi atu, ka taea te whanake hei ankylosing spondylitis, he āhuatanga e puta ai te hononga tuaiwi, i roto i ētahi tau.

Ka pā te kaha o tō mumura ki te tere o te whanaketanga o te spondyloarthritis. Mā te whai i tō maimoatanga tika ka āwhina i te whakahaere i te mumura me te ārai i ngā raruraru.

He aha ngā mea ka taea e koe te mahi ina noho tahi koe me te spondyloarthritis?

Mō te hunga e pāngia ana e te mate rumatiki, he mea nui te whakakori tinana auau kia mau tonu ai te nekenekehanga o ngā hononga. He maha ngā tākuta e kī ana he mea nui ake tēnei, he mea whai hua ake hoki i tētahi atu rongoā.

Ki te kore koe e tino mōhio he aha te momo whakakori tinana e tika ana māu, pātai atu ki tō tākuta. He maha ngā tākuta e taunaki ana i te whakaora tinana e aro ana ki ngā hononga motuhake, ki ngā wāhi raruraru rānei.

He rōpū mate e pā ana, engari he rerekē te spondyloarthritis. Ahakoa ka tautuhia e ngā tākuta mā ō rātou āhuatanga ōrite, he ahurei ia momo – me te mate o ia tangata.

Mō te tini o te tangata, he mate mō te wā roa te spondyloarthritis. Heoi, ka rerekē te nui o tōna pānga ki tō oranga. Ko tō tākuta te hoa pai rawa atu māu ki te whakahaere i ō tohumate me ngā mea ka taea e koe te tumanako.

Ngā mea tino nui hei maumahara māu

Āe, kua maha ā tātou kōrero mō te spondyloarthritis. Hei whakarāpopototanga, anei ētahi mea hei maumahara māu:

• Ko te spondyloarthritis he mate mumura e puta ana i ngā hononga o te tuaiwi.
• He mate pūnaha ārai mate tēnei; arā, ka whakaekea e tō ake pūnaha ārai mate ō hononga.
• Ko ngā tohu matua ko te mamae o te tuara (ka kino rawa atu i te ata), te pakari o ngā hononga, me te enthesitis (te mumura o ngā hononga e piri ana ngā uaua ki ngā wheua).
• Tērā pea ko te ira HLA-B27 te take, engari ehara i te mea koinei anake te take.
• He rerekē ngā momo, pērā i te Ankylosing Spondylitis me te Psoriatic Arthritis.
• Ka whakamahia ngā tohu, ngā whakamātautau, me ētahi whakamātautau ira hei tautuhi i te mate.
• Kei roto i te maimoatanga ko te whakakori tinana, ngā rongoā whakamamae mamae, me ētahi rongoā motuhake (DMARDs) .
• He mea tino nui te whakakori tinana auau me te whai i ngā tohutohu a te taote hei whakahaere i tēnei mate.

Ki te mea kei a koe ēnei tohu, kaua e wehi ki te toro atu ki te tākuta me te tiki tohutohu. Mā te tātaritanga wawe me te maimoatanga e āwhina nui ki te pupuri i te kounga o tō oranga.

` Te mate pūkahukahu, Te mate pūkahukahu, Te mate rumatiki tuara, Te mumura o ngā hononga, Te mamae tuara, Ngā mate pūnaha ārai mate, HLA-B27, Te mate pūkahukahu Ankylosing, Te mate pūkahukahu Psoriatic