He aha tonu te tino take o tō mamae tuara tonu? (Axial Spondyloarthritis) Kia ako tātou mō tēnei!

He mamae tō tuara, tō hope rānei, ā, kāore e memeha mō ngā marama? He pakari, he pakari hoki tō āhua, ina ara ake koe i te ata? He mamae tuara anō hoki tōu, ā, ka pai ake i ētahi wā mā te whakakori tinana, engari ka kino haere ina moe, ina okioki rānei koe i te pō? Ahakoa e whakaaro ana koe he mamae tuara noa iho ēnei, he whāwhā, he totoro rānei, tera pea he mea hohonu ake. I tēnei rā ka kōrero tātou mō te axial spondyloarthritis , (axSpA) rānei, he āhua uaua, engari ka taea te whakahaere mēnā ka tika te whakahaere.

He aha tonu te axial spondyloarthritis?

He māmā noa iho, ko te axial spondyloarthritis (axSpA) he momo mate rumatiki. Engari ehara i te mea he rite ki te mamae o ngā hononga e rangona ana e tātou i a tātou e pakeke haere ana. Ka pāngia rawatia tō tātou "angaanga axial". Arā, ko ngā wheua i waenganui o tō tātou tinana - ngā wāhanga matua pēnei i te uma, te tuaiwi, me ngā hope - ko rātou te hunga tino pāngia. Ko tēnei āhuatanga (axSpA) i puta mai i te huringa o te mahi a tō tātou pūnaha ārai mate . Hei whakamārama, ko te pūnaha ārai mate, e tika ana kia tiaki i tō tātou tinana, ka tīmata te whakaeke hē i ō tātou hononga me ngā kiko ngohengohe. Ka kiia tēnei e tātou ko te "mumura." Ko tēnei mumura te take o te pupuhi, te mamae, me te kino o ngā hononga i roto i te wā. Ko te (axSpA) he āhuatanga nō tētahi rōpū nui ake o ngā mate e kiia nei ko te spondyloarthritis . Ko tētahi āhuatanga ahurei o tēnei rōpū o ngā mate spondyloarthritis ko te mea ka pā ki ngā hononga, tae atu ki ētahi atu pūnaha o te tinana. Hei tauira, ki te mea kei a koe (axSpA), hei tāpiri atu ki te mamae o te tuara, tera pea ka pāngia koe e ngā tohu pēnei i te mumura o ngā kanohi (uveitis) me te mate korere . Ahakoa te āhua nei kāore ēnei e pā ana ki te mamae o te tuara i te tirohanga tuatahi, ka taea ēnei mea te puta me te (axSpA).

Ko wai te mea ka nui ake te tūponotanga ka pāngia e tēnei mate (axSpA)?

Ina hoki, ka taea e te tangata katoa te pāngia e te axSpA. Engari he mate tino onge tēnei. E kiia ana ko te 1% noa iho o te taupori o te ao he mate tēnei. He tino kitea tēnei mate i waenga i te hunga kei raro iho i te 40 tau te pakeke. He maha ngā wā ka tīmata te puta o ngā tohu i roto i ō taiohi, i te tīmatanga rānei o te 20 tau . Ka taea e ngā tāne me ngā wāhine te pāngia e tēnei mate.

He aha te pānga o te axial spondyloarthritis (axSpA) ki tōku tinana?

Ki te kore e rongoatia tika te axSpA, ka tīmata pea ngā wheua o te tuaiwi ki te hanumi tetahi ki tetahi i roto i te wā. Ko te ingoa hauora o tēnei hanumitanga o ngā wheua ko te ankylosis.Ka ngaro te ngāwari o te tuaiwi i tēnei, ā, ka uaua ki te pupuri i te tuaiwi kia tika. Waihoki, ka taea e tēnei āhuatanga te arahi ki te mate angiangi wheua e kiia nei ko te osteoporosis i roto i te tuaiwi. Ka taea e tēnei te ngoikore i ngā wheua o te tuaiwi, ka piki ake te tūponotanga o te whati o te tuaiwi. Whakaarohia, ahakoa he hinganga iti noa iho ka whati te wheua o te tuaiwi.

He aha ngā take o te axSpA?

Ahakoa kāore anō kia mōhiotia te pūtake tuturu o te axSpA, e whakaponohia ana ka puta mai i roto i ngā whānau . Kua kitea i roto i ngā whakamātautau ira o te tini o te hunga whai axSpA he ira kei a rātou ko te HLA-B27 . Heoi, ehara i te mea ka whanakehia te axSpA e te hunga katoa kei a rātou te ira HLA-B27. Waihoki, ko te hunga kāore i a rātou tēnei ira, me te hunga kāore he hītori whānau mō te mate, ka whanakehia te axSpA. Nō reira, he ahua uaua tēnei.

He aha ngā tohu o te (Axial Spondyloarthritis)?

Ko te tohu matua, me te tohu tino kitea o te axSpA, ko te mamae o te tuara . Engari ehara i te mamae tuara anake. He maha ngā āhuatanga motuhake o tēnei mamae:

• Pūmau: Ko te tikanga ka roa pea te mamae mō te neke atu i te toru marama.
• Kāore i puta mai i te whara, i te raruraru ā-tinana rānei: Hei tauira, ehara i te mamae i puta mai i te mea pērā i te paheke o te kōpae, i te kōpeketanga rānei o te uaua.

Mena kei a koe te axSpA, ka penei pea te ahua o tō mamae tuara:

• Ina whakakorikori tinana koe, ina nekehia hoki tō tinana, ka paku heke iho.
• Ka piki ake te mamae i te pō ina moe, ina okioki rānei.
• Ina oho ake ahau i te ata, ka mamae tōku tuara i te pakari .
• Ka horapa te mamae ki te hope, ki te papa rānei.

Kāore te mumura i puta mai i te axSpA i te mea ko te tuaiwi anake. Ka pā hoki ki ētahi atu pūnaha o te tinana. Hei tauira:

• Ngā raruraru nakunaku: Pērā i te mamae o te puku.
• Te ngenge .
• Enthesitis: Te pupuhi, ngā putunga konupūmā , me ngā wero wheua i ngā wāhi e piri ai ngā uaua me ngā hononga ki ngā wheua.
• Dactylitis: Te pupuhi katoa o ngā maihao me ngā matimati (pērā i ngā matimati hōtiti).
• He mate kiri te psoriasis .
• Te mumura o ngā kanohi, inā koa ko te uveitis .

Whakaarohia, he taitama ko Saman te ingoa, kua pāngia e te mamae o te tuara mai i tōna 22 tau pea. I tōna oho ake i te ata, kāore i taea e ia te piko i tōna tuara. I mahara ia kua whara tōna pona i a ia e takaro kirikiti ana. Engari i pahemo ngā marama, ā, kāore i ngaro te mamae. I muri mai, ka kite ia i tētahi tākuta, ā, ka mōhio ia mō tēnei (axSpA). I ​​kī anō ia, i tua atu i tōna mamae o te tuara, ka whero, ka mamae hoki ōna kanohi i ētahi wā.

Me pēhea te tautuhi i te Axial Spondyloarthritis?

Ina kite koe i te tākuta mō tō mamae tuara, ka tirohia tuatahitia e ia ō tohu ora , ā, ka whakahaerehia he whakamātautau tinana . Mā ēnei mea e rua ka taea e koe te whakaaro mō tō hauora whānui. Hei tāpiri, ka whakahaerehia pea e te tākuta ngā whakamātautau pēnei i:

• Ngā whakamātautau toto : Ka mahia ngā whakamātautau toto hei tirotiro i te aroaro o te ira HLA-B27 me te tirotiro i te taumata o te pūmua C-reactive, e tohu ana mēnā he mumura kei roto i te tinana.
• Ngā whakamātautau whakaahua: Ka āwhina ēnei whakamātautau ki te kite i te āhua o ngā wheua i roto i tō angaanga tuaka, pērā i tō tuaiwi me ō hope.
• X-ray: Ka taea e te X-ray o te tuaiwi te āwhina i te tautuhi i te axSpA, i ētahi atu raruraru wheua rānei.
• MRI: Ka taea e ēnei te tango pikitia tino mārama, taipitopito hoki. Ka taea e ngā MRI te kite i ngā mea pēnei i te mumura i roto i te tuaiwi i mua i te kitenga i runga i te hihi-X.

I ētahi wā, ka kitea pea ngā tohu o te axSpA (pēnei i te mamae o te tuara), engari kāore e kitea he mumura mārama i ngā whakamātautau whakaahua (X-ray, MRI rānei). Heoi, ka karanga pea ngā tākuta i a koe ko "axSpA kore-irahiko ." Ko te tikanga o te "kore-irahiko" kāore e kitea i ngā whakamātautau whakaahua. Ko ētahi tāngata whai "axSpA kore-irahiko" ka kino haere pea tō rātou āhua i roto i te wā, ā, ka kitea i muri mai i te X-ray, i te MRI rānei. Engari i te nuinga o te wā, kāore pea te āhua i te tino kino pērā i te āhua i runga i ngā whakamātautau whakaahua.

Me pēhea te rongoā i te Axial Spondyloartritis?

Engari, kāore he rongoā mō te axSpA. Heoi, mā te maimoatanga tika, ka taea te whakahaere i ngā tohu, ā, ka taea hoki te whakapai ake i te kounga o te oranga . Ko ētahi o ngā maimoatanga ka whiwhi pea koe ko:

• Ngā rongoā anti-mumura kore-steroidal (NSAID):He rongoā kore utu (OTC) ēnei ka taea te hoko mai i te whare rongoā, kāore he whakahaunga. Ka whakamamae i te mamae, ka whakaiti hoki i te mumura. Ko ngā rongoā e whakamahia whānuitia ana ko te aspirin, te ibuprofen, me te naproxen sodium .
• Whakaora tinana: Tērā pea ka tukuna koe e tō tākuta ki tētahi kaiwhakaora tinana, māna koe e ako ki ngā mahi whakakori tinana e hāngai ana ki ō hiahia. Ka taea e te whakaora tinana te āwhina i te whakaiti i te mamae me te whakanui ake i te ngāwari me te kaha.
• Werohanga steroid: He momo rongoā kaha ngā corticosteroids hei whawhai i te mamae me te mumura. Mena he mamae nui, he pupuhi rānei tōu i tētahi wāhi motuhake o tō tinana, mā te werohanga steroid ki taua wāhi ka whakaora.
• Ngā rongoā ārai-rūmātiki whakarerekē mate (DMARDs): Mena kāore ētahi atu maimoatanga e āwhina nui ana i a koe, ka taea te whakamahi i tētahi momo rongoā e kiia nei ko ngā rongoā ārai-rūmātiki whakarerekē mate (DMARDs). Ka whakaitihia e ēnei te mamae me te pupuhi o ngā hononga. Ka āwhina hoki rātou ki te ārai i te kino o ngā hononga a muri ake nei.
• Ngā rongoā koiora: He momo rongoā motuhake ēnei, nō roto hoki i te kāwai DMARD. Ka aro tika atu ki tō pūnaha ārai mate, ā, ka āwhina ki te whakahaere i te mumura. Ahakoa he tino whai hua ēnei rongoā koiora, ka pā mai hoki ētahi pānga taha, pērā i te pikinga ake o te mōrearea o ngā mate. Nō reira, me whakamahi noa i raro i te tohutohu a te taote.

Ka taea te ārai i tēnei mate (Axial Spondyloarthritis)?

Ki te pono, kāore anō kia mōhiotia he huarahi hei ārai i te axSpA. Ehara hoki i te mea nā ngā whara o te tuara i puta ai.

Me pēhea taku mōhio mēnā kei te mōrearea ahau ki te whakawhanake i tēnei?

Mena kei ō mātua, kei ō tuākana, tuāhine rānei te mate axSpA, he nui ake te tūponotanga ka pāngia koe e te mate. Heoi, kāore i te tino mōhiotia ka pāngia koe e te axSpA nā te mea kei tētahi o tō whānau tēnei mate, kei a ia rānei te ira HLA-B27.

He aha te āhua o te hunga e pāngia ana e te Axial Spondyloarthritis ā-ringa?

E ai ki te kōrero i mua ake nei, kāore e taea te whakaora katoa i te axSpA. Mēnā he axSpA tōu, ka puta mai, ka ngaro atu pea ō tohu i ētahi wā. Tērā pea ka mau tonu. Heoi, ki te whakahaeretia tika, ka taea e te hunga whai mate te ora roa, te harikoa. Ko te mea nui ko te mahi tahi me tō tākuta ki te whakahaere i ō tohu, me te noho hauora tonu.

Me pēhea taku tiaki i ahau anō?

He maha ngā mea ka taea e koe te mahi hei pupuri i tō hauora me te whakahaere i ō tohumate o te axSpA:

• Tirohia tō tākuta i ō wā whakarite. Mena kei roto i tō mahere maimoatanga he whakaora tinana, me haere koe ki reira.
• Whakamahia te rongoā kia rite ki te mea i tohua e te tākuta.
• Kaua e momi hikareti. Ki te momi hikareti koe, rapua he āwhina hei whakamutu. Ka taea e te momi hikareti te whakanui ake i te mumura me te kino ake i te axSpA, ka kino pea te hauora o te wheua.
• Me mahi korikori tinana māmā, pērā i te hikoi, i ngā wā katoa. Mā te korikori tinana ka ora ai ō wheua me ō hononga. Ka taea hoki e ia te āwhina ki te whakahaere i te whanaketanga o te axSpA me te whakanui ake i te ngāwari o tō tuaiwi.
• Kai i tētahi kai hauora e nui ana ngā hua me ngā huawhenua. Ka āwhina ēnei ki te whawhai i te mumura.

Āhea ahau me toro atu ki te tākuta?

Ki te pāngia koe e tētahi o ēnei tohu, me toro atu ki tō tākuta tonu:

• Mena ka puta mai ngā pānga taha kāore e hiahiatia i te maimoatanga e tangohia ana e koe.
• Mena kei te kino haere ō tohumate .
• Ki te mea kei te whakaaro koe kāore ngā maimoatanga o nāianei e āwhina ana .

He aha te rerekētanga i waenga i te (Axial Spondyloarthritis) me te (Ankylosing Spondylitis)?

Ko te ankylosing spondylitis he momo axial spondyloarthritis (axSpA) . Ko te ankylosing spondylitis te nuinga e pā ana ki ngā hononga sacroiliac , arā, ngā hononga e hono ana tō tuaiwi o raro ki ō hope. Heoi anō, ka pā pea te axSpA ki te uma, ki ētahi atu wāhanga rānei o tō tuaiwi. He maha atu anō ngā mate e taka ana ki te kāwai spondyloarthritis:

• Te mate pūkahukahu ā-roto: Ko te tikanga ka pā tēnei ki ngā hononga o ō ringaringa me ō waewae.
• Te rumatiki psoriatic: He mate rumatiki e pā ana ki te mate kiri psoriasis.
• Mate rumatiki tauhohe: He momo mate rumatiki onge e puta mai ana i te mate kitakita.
• Te mate puku mumura (IBD): Ka kitea whānuitia i roto i te hunga whai mate pēnei i te mate a Crohn, te mate puku ulcerative rānei.

Karere Tangohia ki te Kāinga

He uaua pea te noho me te ankylosing spondylitis (axSpA). Engari kia mahara, he maha ngā tāngata whai mate pēnei ka taea te whakahaere pai i tēnei mate, ā, ka roa te ora, ka ora hauora. Ka taea e koe te āwhina ki te whakahaere i tō mate mā te toro atu ki tō tākuta i ia wā, me te tiaki i tō hauora whānui. He mea āwhina hoki te whakauru atu ki ngā rōpū tautoko mō te hunga whai mate ankylosing spondylitis (axSpA) me te spondyloarthritis. Ka taea e ēnei rōpū te āwhina i a koe ki te kōrero ki te hunga e mārama ana ki ō kare ā-roto, e mōhio ana hoki ki ngā wero e pā ana ki a koe.

Nō reira, ki te pā mai ngā tohu pēnei i te mamae tuara tonu me te pakari o te ata, he pai ake te toro atu ki te tākuta kia kitea ai te take o te raruraru, kaua e wareware noa iho. Ki te kite wawe koe i te raruraru, ā, ka tīmata te maimoatanga, ka taea hoki e koe te noho noa.

Te mate pūkahukahu o te tuara, te mamae o te tuara, te mumura o ngā hononga, te HLA-B27, te mate rumatiki, te mate pūkahukahu o te tuara, te mate pūkahukahu ankylosing spondylitis