Me pokanga puku anō hoki koe nā te mate a Crohn? Kia mōhio tātou ki ngā taipitopito!

Mena kei a koe te mate a Crohn, e mōhio ana pea koe ka taea te whakahaere i ō tohu mā te rongoā me ētahi whakarerekētanga kai. Heoi, tata ki te 80% o te hunga e pangia ana e te mate ka hiahia ki te pokanga i te mutunga. Nō reira, ko te momo pokanga e hiahiatia ana e koe ka whakawhirinaki ki ō tohu.

Āhea te wā e hiahiatia ai te pokanga mō te mate a Crohn?

Tērā pea ka tūtohu tō tākuta kia pokangahia koe mō te mate a Crohn mēnā ka pāngia koe e ngā raruraru, mēnā rānei kāore i te tino whai hua ngā maimoatanga kore-pokanga.

Ko ngā take matua mō te pokanga mō te mate a Crohn ko:

• Ngā uauatanga o te puku: He whakawhāititanga tēnei o ō whekau. Koinei te take matua e pokangahia ai te nuinga o te hunga e pāngia ana e te mate a Crohn.
• Ngā fistula me ngā whewhe puku: He pūwhera rerekē ngā fistula i waenganui i ngā wāhanga e rua o te tinana. Ko ngā whewhe he kohinga waikura e puta ana i roto i te puku.
• Te mate pūmau: Ko te tikanga ka hoki mai ngā tohu i muri i te maimoatanga o mua.

Tērā atu anō ētahi take kāore i te tino kitea, engari me mahi pokanga pea:

• Te toto o te puku (GI).
• Ngā pūwhara o te puku.
• Peritonitis: He mumura tēnei o te kiriuhi e kapi ana i te taha o roto o tō puku.
• Ngā whara matepukupuku, ngā whara o mua i te matepukupuku. Nā te mea he take mōrearea te mate a Crohn mō te whakawhanake i te matepukupuku koroni.
• Megacolon paitini: Koinei te wā ka pakaru te hanganga o tō koroni nā te mumura.

He tino mamae te mate a Crohn. I ētahi wā ka puta ngā tohu, kātahi ka memeha haere, kāore he take e kitea ana. Ka taea e te koretake te taumaha i ētahi wā. Heoi, ahakoa kāore e taea e te pokanga te whakaora katoa i te mate a Crohn, ka taea e ia te āwhina ki te whakaiti i ō tohu mamae, ā, ka taea e koe te mahi tonu i ngā mea e arohaina ana e koe.

He aha ngā momo pokanga e mahia ana mō te mate a Crohn?

He maha ngā momo pokanga matua mō te mate a Crohn. Me titiro tātou ki ēnei momo pokanga.

Te rerenga wai o te puku

Ka mahia tēnei hei tango i te pupuhi i puta mai i te mate i roto i te puku.

Te tango i te puku

Ko tēnei pokanga he tango i tētahi wāhanga o tō whekau iti, o tō koroni rānei. Tērā pea ka tonoa koe kia mahi i tēnei pokanga mēnā he nui ō kiko whara i roto i ō whekau, mēnā rānei ka kite tō tākuta i ngā pūtau matepukupuku, ngā pūtau matepukupuku rānei.

Te tango/te whakatika i te fistula

He pūwhera rerekē te fistula i waenganui i ngā wāhanga e rua o te tinana. Ka raru pea tēnei. Nō reira, ko te tikanga o tēnei pokanga ko te tango, te whakatika rānei i te pūwhera.

Pokanga ostomy

Ka hangaia he kōhao (stoma) i roto i tō puku i tēnei pokanga. Ko te tikanga, kaua tō paru e puta mā te nono, ka hangaia he ara hou hei putanga mai mā te kōhao (stoma). Ko ngā pokanga ostomy tino noa ko te colostomy me te ileostomy.

Te tango i te pūmua

Ka tangohia e tēnei pokanga mate a Crohn tētahi wāhanga, te katoa rānei o tō koroni me te pūkahukahu.

Te whakapūmau i te uaua

Ka mahia tēnei pokanga hei whakawhānui i ngā wāhi kua whaiti, kua whakawhāitihia hoki nā te whara, kia māmā ake ai te haere o te paru.

Kia pēhea te roa o te pokanga a Crohn?

Kei te momo pokanga e mahia ana e koe, te kaha o tō āhua, me ngā wāhanga o tō pūnaha nakunaku e pāngia ana. Mā tō tākuta koe e kī atu ki ngā mea hei tumanako atu māu i runga i tō āhua.

He aha ngā painga o te pokanga mō te mate a Crohn?

I te nuinga o te wā, ka taea te mahi pokanga mō te mate a Crohn mā te laparoscopy, mā te robot rānei. Ko te tikanga he iti ake ngā tapahi, he iti ake ngā tuitui, ā, he iti ake te mamae i muri i te pokanga.

Hei tāpiri, ka puta pea i te pokanga mate a Crohn:

• Te whakaiti i te mamae o te wahi gastrointestinal.
• Te whakaiti i ngā tohu. (Ko ngā tohu noa o te mate a Crohn ko te ngenge, te korere, me te ruaki.)
• Te whakaiti i te hiahia mō te rongoā.
• Te pikinga o te hiahia kai.
• Te kaha tinana kua piki ake.
• Ka taea te haere ki waho ki te mahi anō.
• Te whakapai ake i te kounga o te oranga.

Engari kotahi te mea hei maumahara: Kāore te pokanga mō te mate a Crohn e kī taurangi kāore e hoki mai ngā tohu. Tata ki te 20% o te hunga kua pokangahia, me hiahia pea ki tētahi atu pokanga i roto i ngā tau e rima i muri i tā rātou pokanga tuatahi.

He tūponotanga kei roto i te pokanga a Crohn?

Pērā i ngā pokanga katoa, he mōrearea ētahi o ngā pokanga mō te mate a Crohn. Ko ngā raruraru pea ko:

• Te turuturu o te puku (Ka tupu pea tēnei mēnā kāore e hono tika ngā wāhanga e rua o tō whekau.)
• Ngā mate pāwera huakita.
• Te aukati i te puku.
• Te toto nui rawa.
• Ngā raruraru ki tō stoma (hei tauira, kāore tō putea ostomy e tau tika ana).
• Te whara. Ka taea e tēnei te whakawhāiti i ngā pakitara o tō puku.
• Te korenga o te huaora B12. (Ka tupu pea tēnei mēnā me tango e tō taote pokanga tētahi wāhanga o tō whekau hei mimiti i te huaora B12.)

Mena ka pā mai ētahi raruraru i muri i te pokanga mō te mate a Crohn, ka āwhina tō tākuta i a koe ki te whakawhanake i tētahi mahere maimoatanga. Kei roto pea i tēnei ko te rongoā, ngā maimoatanga kore-pokanga, tae atu ki tētahi atu pokanga.

Kia pēhea te roa o te wā e ora ai i muri i te pokanga mō te mate a Crohn?

E whā ki te tekau mā rua (4-12) wiki pea te roa hei whakaora katoa. E ono wiki pea te roa ka taea e te nuinga o te tangata te hoki ki te mahi.

Ko te roa o te wā e ora ai koe, e whakawhirinaki ana ki ētahi atu āhuatanga. Ko ēnei:

• Te momo pokanga i mahia ki a koe.
• E hia ngā pokanga kua mahia e koe i mua?
• E hia te nui o tō whekau i tangohia.
• Te kaha o tō tinana ki te whakaora i ngā patunga.
• tō tau.
• Ētahi atu mate hauora kei a koe kē.

Kei reira tonu tō tākuta hei āwhina i a koe. Mena he pātai āu mō tō maimoatanga, mō te wā whakaora rānei, kōrero ki a ia.

Kia pēhea te roa o taku noho ki te hōhipera?

Ko te nuinga o te hunga e pokangahia ana mō te mate a Crohn ka noho ki te hōhipera mō te wiki pea. (Ko ētahi ka haere wawe, ko ētahi ka noho roa ake.)

I muri i tō pokanga, ka mahia e tō tīma hauora ngā mahi e whai ake nei:

• Aroturukihia te ora o ō patunga.
• Ki te kore e taea e koe te kai, te inu rānei, ka hoatu he wai tote ki a koe (he wai IV) mā roto i tētahi uaua i tō ringa.
• I te wā tika, ka tīmata koe ki te kai wai mārama.
• Kia rite koe, ka hurihia koe ki tētahi kai ngohengohe.

Mena kua tangohia he ostomy i a koe, ka whakaaturia e te tākuta, e te nēhi rānei ki a koe te whakamahi me te horoi i tō putea ostomy hou. Ka whakarite rātou kia pai tō whakamahi i mua i tō wehenga atu i te hōhipera.

Ka taea te rongoā i te mate a Crohn mā te pokanga?

Kāo, kāore e taea e te pokanga te whakaora katoa i te mate a Crohn. Ahakoa i muri i te pokanga, ka hoki mai pea ō tohu.

Heoi, ka taea e te maimoatanga te whakahaere, te whakaiti rānei i ō tohumate. I roto i te nuinga o ngā wā, ka taea e ia te whakapai ake i te kounga o tō oranga.

Ka mahi tahi tō tākuta me koe i ia taahiraa o te huarahi. Ina kino haere ō tohumate, ka kōrero tahi rātou me koe mō ngā kōwhiringa maimoatanga, ā, ka waihanga i tētahi mahere e tika ana māu.

Mena kāore e taea e te pokanga te rongoā i te mate a Crohn, he aha ahau me pokanga ai?

Mena kei a koe te mate a Crohn, tera pea kei te whakaaro koe ki ēnei pātai. He rerekē ngā mōrearea o te kore pokanga i runga i tō āhua. Heoi, ki te kore e rongoatia te mate a Crohn, ka arahi pea ki:

• Mamae puku.
• Te ngaronga o te hiahia kai me te ngaronga o te taumaha kāore i te mārama.
• Te mate toto iti.
• Te kounga rawakore o te oranga.
• Te kino haere o ngā tohu.
• Ngā huringa o mua i te matepukupuku, matepukupuku rānei ki tō puku.
• Te pikinga ake o te mōrearea o ngā pānga taha o te rongoā.
• Me mahi te pokanga ohorere.

Kāore ētahi tāngata e hiahia ki te pokanga mō te mate a Crohn. Inaa, he iti ake te hunga e hiahia ana ki te pokanga i ēnei rā i ērā i ngā tau rua tekau kua pahure. Tērā pea nā ngā rongoā hou, kua whakapaitia, me ngā whakamātautau e āwhina ana ki te kite wawe i te mate.

I tēnei wā, tata ki te 1 i roto i te 5 tāngata ka hiahia ki te pokanga i roto i ngā tau tuatahi e rima i muri i te tautuhi mate. Ko tō tākuta anake ka taea te kī atu ki a koe he aha te mea tika māu.

Āhea ahau me haere ki te tākuta i muri i te pokanga?

I muri i te pokanga mō te mate a Crohn, me kōrero koe ki tō tākuta mēnā ka puta tētahi o ēnei e whai ake nei:

• Ki te kore koe e rere i te puku mō ētahi rā i muri i te putanga mai i te hōhipera.
• Mena ka pāngia koe e te whakapairuaki me te ruaki.
• Mena kei te kino haere te mamae.
• Ki te kite koe i te toto, i te pango rānei i roto i tō tūtae, me waiho kia paru.
• Mena ka puta ngā tohu o te toto totoka (hei tauira, te mamae, te pupuhi rānei o ngā waewae).

Mena kua pokaia tō puku, me kōrero ki tō tākuta mēnā kāore anō kia neke atu i te 24 hāora te nekenga o te puku mai i tō puku. Tērā pea he aukati kei roto.

Tērā pea kua kitea kētia tō mate a Crohn. Tērā pea kua roa koe e pāngia ana e tēnei mate. Heoi anō, he mea whakamataku pea te whakaaro ki te pokanga - ina koa mēnā kua pāngia koe e tēnei mate i mua. Mā te kōrero ki ētahi atu he rite tonu te mate ki a koe ka taea te āwhina i a koe. Whakaarohia te kimi i tētahi rōpū tautoko, i te rohe, i te ipurangi rānei, me te whakapuaki i ō wheako ki ngā miriona tāngata e noho tahi ana me te mate a Crohn i ia rā.

Nā, he aha ngā mea hei maumahara mā tātou i tēnei pūrākau?

Kāore e taea e te pokanga mō te mate a Crohn te whakaora katoa i tō āhua. Heoi, he maha ngā wā ka taea e ia te whakaiti i ngā tohu pēnei i te mamae, te whakapairuaki, me te ngenge, me te whakapai ake i te kounga o tō oranga. Ma tō tākuta koe e āwhina ki te whakatau ko tēhea te mea pai mō tō āhua. Kaua e wehi ki te kōrero ki tō tākuta mō ō pātai katoa.

` Te mate a Crohn, te pokanga puku, te pokanga whekau, Te mate a Crohn, te pūnaha nakunaku, te pokanga, Ngā tohu a Crohn