Ki te kitea e koe he mate huka tētahi o tō whānau, inā koa he tamaiti nohinohi, ka nui tō mataku me tō ohorere, kāore? Me werowero koe i te insulin i ia rā, me whakahaere i tō kai, me te tirotiro tonu i tō huka toto... E mōhio ana tātou katoa ki te uaua o te noho me ēnei momo mate. Engari, mō te Mate Huka Momo 1, kei reira tētahi maimoatanga hou ka taea te whakaroa i te tīmatanga o ngā tohu mō ētahi tau, arā, te whakaroa i te tīmatanga o ngā tohu, ka whakapono koe? Ae, i tēnei rā kei te kōrero tātou mō taua tumanako hou.
Tuatahi, kia tirohia tātou, he aha te mate huka momo 1?
Mō te mate huka, e mōhio ana te nuinga o te iwi o tō tātou whenua ki te mate huka momo 2. He maha ngā wā ka puta mai i te hunga kaumātua me te āhua noho kino. Engari he rerekē te mate huka momo 1.
He whakarāpopototanga noa iho, he okana tō tātou tinana e kiia nei ko te repeure. Ko ngā pūtau motuhake o tēnei repeure e whakaputa ana i te homoni nui o te insulin . Ko te mahi a te insulin he āwhina i ngā pūtau o te tinana ki te tango i te huka (glucose) e tāpirihia ana ki te toto mai i te kai e kainga ana e tātou, ā, ka whakamahia hei hanga pūngao. He rite ki te whakatuwhera i tētahi tatau ki te kī.
I roto i te mate huka momo 1, ka whakangaromia e te pūnaha ārai mate o tō tātou tinana ngā pūtau pai e hanga ana i te insulin. Kātahi ka kore te tinana e whakaputa i te insulin e hiahiatia ana e ia. Nō reira, ka piki haere te taumata huka toto me te kore e taea te whakahaere. Ka kiia tēnei he mate huka momo 1. He mate tēnei e kore e taea te whakaora, ā, me werohia te insulin i ia rā mō te oranga katoa.
He aha tēnei ka tupu ai? Te huarahi e whakaora ai te tinana i a ia anō
Whakaarohia te whakangaromanga ka puta mai mēnā ka whakaekea hētia e te ope taua o tō tātou whenua ngā tāngata harakore o tō tātou ake whenua. Koinei te mea ka tupu me te mate huka momo 1. Ko te "ope" e tiaki ana i tō tātou tinana mai i ngā mate, arā, te pūnaha ārai mate , ka pōrearea mō tētahi take, ka tīmata ki te whakangaro i ngā pūtau whakaputa insulin i roto i tō tātou ake repe taiaki, me te whakaaro he "hoariri" rātou. Ka kiia ēnei mate e whakaekehia ana e te tinana i a ia anō he mate ārai mate .
Kāore tēnei e puta katoa i te wā kotahi. Ka āta haere tēnei whakangaromanga, i roto i ētahi wāhanga. I te nuinga o te wā, i te wā e puta mai ai ngā tohu, kua ngaro kē te nuinga o ngā pūtau e whakaputa ana i te insulin.
Ngā wāhanga e toru o te mate (Ngā Wāhanga o te T1D)
Ka taea te wehewehe mārama i te whanaketanga o te mate huka momo 1 kia toru ngā wāhanga. Ka māmā ake te mārama ki tēnei mēnā ka tirohia e koe tētahi ripanga.
| Atamira | He aha te mea ka tupu | Ngā tohu me ngā taumata huka toto |
|---|---|---|
| Wāhanga 1 | Ka tīmata te pūnaha ārai mate ki te whakaeke i ngā pūtau e hanga ana i te insulin, engari kei te nui tonu te insulin e whakaputaina ana. | Kāore he tohu. He noa ngā taumata huka toto. |
| Wāhanga 2 | I te haere tonu o te whakangaromanga o ngā pūtau, ka heke te hanga o te insulin, ka uaua ake ai te whakahaere a te tinana i ngā taumata huka toto. | Kāore anō kia kitea ngā tohu. Engari kua teitei te taumata huka toto (he rerekē). Ka taea tēnei te kite mā roto i ngā whakamātautau motuhake. |
| Wāhanga 3 | Ka whakangaromia te nuinga o ngā pūtau e whakaputa ana i te insulin, ā, kāore e taea e te tinana te whakahaere i ōna taumata huka. | Ka kitea ngā tohu. Ka kitea te mimi pinepine, te matewai nui, te hiakai, te hekenga taumaha, me te tino ngenge. I tēnei wā ka kitea te mate. |
Te tumanako hou: Te rongoā Teplizumab (Tzield)
Ka taea te hoatu i tēnei maimoatanga hou i kōrerotia i mua ake nei ki te hunga kei te wāhanga 2, arā, i mua i te putanga mai o ngā tohu, engari he tiketike te huka toto. Ko te ingoa o tēnei rongoā ko Teplizumab (Tzield) .
Ka ahatia tēnei rongoā?
He rite tēnei ki te kaiwhakahou rongo. Ka pā tēnei rongoā ki tō tātou pūnaha ārai mate. Ka ngoikore ngā "hōia" e whanonga kino ana, e ngana ana ki te whakangaro i ngā pūtau e whakaputa ana i te insulin. Kātahi ka iti ake te kaha o aua pūtau ki te kino i te repeure. Nō reira, ka tiakina ngā pūtau pai e toe ana mō tētahi wā roa, ā, ka haere tonu ki te whakaputa i te insulin e hiahiatia ana e te tinana.
Kia pēhea te roa ka taea te whakaroa i te mate?
E ai ki ngā whakamātautau hauora, kua taea e tēnei maimoatanga te whakaroa i te haere whakamua ki te wāhanga 3, te wāhanga e puta ai ngā tohu, mā te toharite o te rua tau . Mō ētahi tāngata, ka taea te whakaroa roa atu.
He aha te tino hua o te whakaroa i te mate?
Tērā pea ka whakaaro koe, "E rua noa iho ngā tau, he aha te hiranga?" Engari he mea utu nui taua wā, inā koa i roto i te oranga o te tamaiti.
- Te herekore i te taumahatanga o ia rā: Ka taea e koe te noho noa mō ētahi atu tau e rua, me te kore e werohia te insulin i ia rā, e werohia tō maihao hei tirotiro i tō huka toto, e manukanuka rānei mō te kai.
- Oranga hinengaro: Mō te tamaiti, mō te rangatahi rānei, he mea tino nui tēnei wā kia noho wātea rātou me ō rātou hoa, me te kore e pāngia e te ahotea o te kī "He mate huka tōku".
- Te whanaketanga tinana: I tēnei wā karekau he tohu, ka puta noa te whanaketanga tinana me te hinengaro o te tamaiti i te āhua noa, kāore he whakararuraru.
- Te wā ki te whakarite: Ahakoa kāore e taea te karo i te mate, he wā tō te whānau ki te aro atu ki tēnei mate, ki te ako mōna, me te whakarite hinengaro me te mahi.
- Te whakaroa i ngā raruraru: Ka whakaroa hoki tēnei i te tīmatanga o ngā raruraru roa (te kino o te kanohi, te whatukuhu, me te io) ka puta mai i te mate huka.
Mā wai tēnei maimoatanga e tika ana, ā, he aha ngā mea hei mōhio māu?
Ehara tēnei i te rongoā e taea te hoatu ki te katoa. Kua whakaaetia tēnei rongoā mō:
- Mō te hunga neke atu i te 8 tau te pakeke .
- Mō te hunga kei te wāhanga 2 o te mate huka momo 1.
Kāore tēnei e whakaora katoa i te mate. Ka whakaroa noa i te tīmatanga o ngā tohu. Hei tāpiri, kia whiwhi ai i tēnei maimoatanga, me whakaū te tangata mā roto i ngā whakamātautau toto motuhake mēnā kei roto ia i te rōpū mōrearea, kei te wāhanga 2 rānei.
Ki te whakaaro koe kei te mōrearea koe, tāu tamaiti rānei ki te mate huka momo 1 (hei tauira, mēnā he mate huka momo 1 tō tētahi o tō whānau), he pai ake te kōrero ki tō tākuta mō tēnei. Ka taea e ia te mahi i ngā whakamātautau e tika ana, me te whakatau mēnā he tika tēnei momo maimoatanga māu. He taahiraa whakamua anō tēnei i roto i te ao hangarau.
Karere Tangohia ki te Kāinga
- Ko te mate huka momo 1 he āhuatanga e whakangaro ai te pūnaha ārai mate o te tinana i ōna ake pūtau e whakaputa ana i te insulin.
- Kāore tēnei mate e puta katoa i te wā kotahi; ka whanake i roto i ētahi wāhanga. Ka puta ngā tohu i te wāhanga tuatoru.
- Ka taea e tētahi rongoā hou e kīia nei ko Teplizumab (Tzield) te whakaroa i te tīmatanga o ngā tohu mō te rua tau pea i roto i te hunga whai mate wāhanga 2.
- Mā tēnei wā ka hoatu he "wā wātea" nui ki te tūroro, ā-hinengaro, ā-tinana hoki.
- Ki te whakapae koe kei te mōrearea koe, tetahi rānei o tō whānau ki te mate huka momo 1, he mea tino nui kia kōrero koe ki tō tākuta mō tēnei mea.
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