I mōhio koe ko te ate tētahi o ngā whekau nui rawa atu o tō tātou tinana? He rite ki tētahi wheketere i roto i tō tātou tinana. He nui āna mahi. Engari i ētahi wā, ka hē te pūnaha parepare o tō tātou tinana, ka tīmata ki te whakaeke i te ate tonu. I tēnei rā ka kōrero tātou mō tētahi mate onge, engari he mea nui kia mōhiotia. Ko tōna ingoa ko te Primary Biliary Cholangitis, ko te `(Primary Biliary Cholangitis - PBC)` rānei.
He aha te PBC?
He mate "autoimmune" tēnei. Tērā pea ka whakaaro koe he uaua rawa taua kupu, engari he tino māmā noa iho. Ko tōna tikanga, ko tā tātou pūnaha ārai mate, e tiaki ana i a tātou i te mate, ka whakaeke hē i ō tātou ake pūtau pai. I roto i te PBC, ka aro atu tēnei whakaeke ki ngā awaawa iti o te ate.
Whakaarohia pēnei: ko te au, he wai i hangaia e te ate, he rite ki te wai hopi e āwhina ana i ō tātou tinana ki te nakunaku kai. Ka haere tēnei au mai i te ate mā roto i ngā awaawa iti ki te pūnaha nakunaku. Ko te mea ka tupu i roto i te tangata whai PBC ko te whakaeke a te pūnaha ārai mate i ēnei awaawa au, ā, ka whakangaro haere i a rātou.
Ka aha rā?
1. Ka kohia te au: Ina pakaru ngā awaawa, kāore e taea e te au te rere tika, ā, ka tīmata te kohia ki roto i te ate.
2. Ka puta te mumura: Ka kino ngā pūtau ate i tēnei kohikohinga o te au, ā, ka puta te pupuhi, te mumura rānei.
3. Ka puta te koha (Fibrosis): Ina puta tēnei kino i roto i te wā, ka ngana te ate ki te whakatika i te kino mā te hanga kiko koha. Pērā i te wā e ora ai te patunga i runga i tō tātou kiri, ka puta he koha. Ka kiia tēnei ko te `(fibrosis)`.
4. Te mate ate: Ina nui rawa te nui o te kiko whara, ka ngaro ngā wāhanga hauora o te ate, ā, ka rite te ate ki te kōhatu. Koinei te mea e kiia nei e tātou ko te `(mate ate)`. Mēnā ka kino rawa tēnei āhuatanga, ka taea e te ate te ngoikore.
Ko te mea nui, ki te kitea wawetia tēnei mate, ā, ka tīmatahia te maimoatanga tika, ka taea te ārai i te horapa atu ki ēnei āhuatanga kino.
He aha ngā maimoatanga mō te PBC?
Ko te mea nui hei kī tuatahi, kāore anō kia kitea he rongoā mō te PBC . Kaua e manukanuka. Ehara tēnei i te kī kāore he mea e taea e tātou te mahi. He tino whai hua ngā maimoatanga e wātea ana i ēnei rā hei whakaroa i te haere whakamua o te mate, hei whakaiti nui i te kino o te ate, hei whakahaere hoki i ngā tohu.
E rua ngā whāinga matua o te maimoatanga:
- Te whakaroa i te tere o te kino o te ate i puta mai i te mate.
- Mā te whakahaere i ngā tohu pēnei i te mākati me te ngenge ka māmā ake tō oranga.
He maha ngā momo rongoā matua kua whakaaetia mō tēnei kaupapa. Mā tō tākuta e whakatau ko tēhea te mea pai rawa atu māu i runga i tō āhua.
| Ingoa Rongoā | He aha te mea hei mahi noa |
|---|---|
| Waikawa Ursodeoxycholic ( UDCA ) | Koinei te rongoā raina tuatahi tino noa. Ka āwhina i te whakahaere i te rere o te au mai i te ate, ā, ka tiaki i ngā pūtau ate mai i te au kino. |
| Waikawa obeticholic ( OCA ) | Ka hoatu tēnei rongoā me te UDCA, ka hoatu rānei mā te hunga kāore i te tino whai hua mā te UDCA anake. Ka whakahaere hoki tēnei i te whakaputanga me te rere o te au. |
| Seladelpar me Elafibranor | Koinei ngā rongoā hou kua whakaaetia mō te PBC. Ka whakaitihia e rātou te mumura o te ate me te kino i puta mai i te au. |
I te nuinga o te wā, ka tīmata te tākuta ki te "(UDCA)" i te tuatahi. Kātahi ka whakamātauhia e rātou te toto hei tirotiro i te urupare a tō tinana ki taua rongoā. Ki te kore e pai ngā hua, ka tāpirihia pea e rātou tētahi atu rongoā, ka huri rānei ki tētahi atu rongoā.
Kia ako tātou i ētahi atu kōrero mō te UDCA.
Ko tēnei `(UDCA)` he `(waikawa au)` e hangaia ana i roto i te tinana i roto i ngā rahinga iti. Ko te `UDCA`, e hoatu ana hei maimoatanga, ka whakakapi i ngā waikawa au kino kua kohia i roto i te ate ki tēnei waikawa au iti ake te kino. Mā tēnei ka whakaitihia te kino ki ngā pūtau ate. Ki te kī ngāwari, he rite ki te whakangungu tiaki mō te ate.
Ngā rangahau hou me ngā tūmanakohanga ā muri ake nei
Kei te haere tonu ngā rangahau mō te PBC puta noa i te ao. Kei te tirotirohia ngā rongoā e whakamahia ana mō ētahi atu mate, pērā i te Bezafibrate me te Fenofibrate, kia kitea ai mēnā ka whai hua anō hoki ēnei rongoā mō te hunga whai PBC. E whakaatu ana tēnei tera pea ka wātea mai he maimoatanga whai hua ake ā muri ake nei. He tino whai hua tēnei.
He mea nui kia kōrero koe ki tō tākuta!
I a koe e noho ana me tēnei mate mō te wā roa, ko tō tākuta tō hoa pai. Kaua e mangere ki te kōrero ki tō tākuta mō ngā pātai, ngā āwangawanga rānei kei a koe.
- Pātai atu me te āta mō te rongoā e hoatu ana ki a koe.
- Pātai atu he aha ngā pānga taha ka pā mai.
- Kōrerohia mā te mahorahora ngā tohu e pā ana ki a koe me te āhua o te pikinga, te hekenga rānei o aua tohu.
- Kaua e mutu te tango rongoā, kaua hoki e whakarerekē i te horopeta mō tētahi take me te kore kōrero ki tō tākuta.
Ka nui ake te mahi tahi a kōrua ko tō tākuta, ka nui ake te tūponotanga ki te whakahaere i tēnei mate me te noho hauora, ki te noho noa.
Karere Tangohia ki te Kāinga
- Ko te Primary Biliary Cholangitis (PBC) he mate roa e pakaru ai ngā awaawa o te ate i te pūnaha ārai mate.
- Ahakoa kāore e taea te whakaora katoa, he tino whai hua ngā maimoatanga hei whakahaere i te kino o te ate i puta mai i te mate, me te whakahaere i ngā tohumate.
- Ko te rongoā tuatahi e hoatu ana ki te tini o te tangata he rongoā e kiia nei ko (UDCA).
- He mea nui kia tangohia te rongoā i tohua e tō tākuta i runga i te whakahaunga, me te wā tika hoki.
- Ka taea e koe te noho angitu me tēnei mate mā te pupuri i te whakapā atu ki tō tākuta i ia wā, i ia wā, me te matapaki tuwhera i ō āwangawanga.
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