He maha ngā wā ka pāngia koe e te mamae o tō tuara me ō hope? Ina koa ka ara ake koe i te ata, ka pēpeke koe, ā, ka uaua ki te piko me te neke haere? He tokomaha e whakaaro ana he mamae tuara noa tēnei, engari i ētahi wā he rerekē te take. I tēnei rā ka kōrero tātou mō tētahi momo mate rumatiki motuhake e pā ana ki ngā hononga me ngā wheua o te tuaiwi. Koinei te ingoa o ngā tākuta ko te Ankylosing Spondylitis (AS) .
He kupu ngāwari noa iho, he aha te āhua o tēnei mate?
Ko te Ankylosing Spondylitis (AS) he mate mumura o te tuaiwi. He momo mate rumatiki o te tuaiwi tēnei. He maha ngā momo mate rumatiki o te tuaiwi. Ko te ingoa noa mō ēnei katoa ko te Axial Spondyloarthritis (axSpA) .
Whakaarohia te axSpA hei whānuitanga o te mate kotahi me ngā taumata kaha rerekē. I runga i te wāhi e pā ana koe ki tēnei whānuitanga, ka rerekē pea te mamae e pā ana ki a koe me tōna pānga ki tō oranga o ia rā. Mō te tini o te tangata, ko te mamae o te tuara te tohu matua. Engari mō ētahi , ka pāngia hoki te kaki, te hope, te papa, ngā ringa, tae noa ki ngā waewae .
Me tautuhi tātou i ngā take matua e rua o tēnei mate.
E rua ngā momo matua o te Axial Spondyloarthritis (axSpA). Mā tō tākuta e whakatau ko tēhea momo kei a koe mā te whakarongo ki ō tohumate, mā te tirotiro tinana, kātahi ka mahi i ngā whakamātautau pēnei i te X-ray, te MRI rānei. He mea nui anō hoki tō hītori whānau me ngā mōhiohio ira.
Hei mārama ake ki ēnei āhuatanga e rua, tirohia te ripanga i raro nei.
| Ingoa o te mate | He whakamārama māmā |
|---|---|
| Te mate pūkahukahu axial kore-irahiko (nr-axSpA) | Koinei te wāhanga tōmua, te wāhanga iti rawa rānei o te mate. Ko te tikanga o te "kore-irahiko" he uaua ki te kite i te hihi-X . Ahakoa he mamae tō tuara, kāore pea te hihi-X e whakaatu i ngā huringa nui i roto i ō hononga sacroiliac, arā, ngā hononga e hono ana i tō tuaiwi me ō wheua hope. Heoi, mā te whakamātautau tairongo ake, pērā i te MRI, ka taea te kite i tētahi mumura kei roto i tēnei wāhanga. |
| Te whakaahua X-ray o te axial spondyloarthritis (AS) | Koinei te mea e kiia nei e tātou ko te Ankylosing Spondylitis (AS). Ko te mea e tupu ana i konei ko te haere haere o te mate nr-axSpA kua whakahuatia ake nei, ā, ka pā ki ngā hononga o te tuaiwi me te hope. I tēnei wā, ahakoa he tirotiro hihi-X, ka kitea tonutia e te tākuta ngā huringa o ēnei hononga . |
Ko te mea nui, ki te pā mai ēnei tohu ki a koe, me toro atu koe ki te tākuta, me rapu tohutohu, me te kore e ngana ki te tātaritanga i a koe anō.
A, ki te kino haere te mate? He aha te "Bamboo Spine"?
Mō ētahi tāngata whai AS, ka kaha ake te kino o te mate i roto i te wā. Ka taea e tēnei te hono ngā wheua tuarā (ngā hononga) o te tuaiwi. E mōhiotia ana tēnei tukanga i roto i te rongoā ko te "ankylosis".
Mā tēnei, ka pēhia te tuaiwi, ka ngaro tōna ngāwari, ka tika haere pērā i te rākau kotahi. Pērā i te rākau pūangi. Ka kiia tēnei he "tuara pūangi" . I tēnei wā, ka pāngia pea koe e te mamae nui o te tuara, te pakari, me te heke o te ngāwari. Ka uaua pea te mahi i ngā mahi o ia rā pērā i te piko me te noho.
Kaua e mataku i tēnei. Ko te mea nui, ehara i te mea ka pāngia te katoa e te nr-axSpA e te AS . Ā, ehara i te mea ka pāngia te katoa e te AS e te tuaiwi bamboo. Ka taea e te nuinga o te tangata te whakahaere pai i ō rātou tohu me te noho i te oranga noa me te maimoatanga tika me ngā huringa momo noho.
He aha ngā maimoatanga mō tēnei?
Mō ia mate, he maimoatanga hei whakahaere i ngā tohu me te whakapai ake i te kounga o te oranga. Ko te nuinga o tēnei ka mahia mā te whakamahi i te huinga o ētahi maimoatanga.
- Whakaora tinana: He mea tino nui ngā mahi whakakori tinana me ngā maimoatanga e mahia ana i raro i te aratohu a ngā tohunga hei pupuri i te ngāwari o te tuaiwi me ngā hononga, hei whakaiti hoki i te mamae.
- Korikori tinana me te kai: Mā te korikori tinana o ia rā ka āwhina i te whakaiti i te pakari o te tinana. Waihoki, mā te kai taurite ka āwhina i te whakaiti i te mumura o te tinana.
- Rongoā: Ka tohua e tō tākuta ngā momo rongoā hei whakaiti i te mamae me te mumura. He mea tino nui kia whai i aua tohutohu.
- Pokanga: Tērā pea ka whai hua te pokanga ki ētahi tāngata he tino kino te mate, inā koa ko te hunga he kino rawa te whara o te hope, o te tuaiwi rānei. Heoi, kāore tēnei e tika ana mō te katoa.
Karere Tangohia ki te Kāinga
- Ehara i te mea he mate tuara noa te Ankylosing Spondylitis (AS), engari he mate mumura e pā ana ki te tuaiwi.
- E rua ngā momo o tēnei mate: te wāhanga tōmua (nr-axSpA), e kore e taea te kite mā te hihi-X, me te wāhanga kua piki haere (AS), ka taea te kite mā te hihi-X.
- Ehara i te mea ko te hunga katoa e pāngia ana e te mate ka pāngia e ngā mate kino pērā i te "tuarā bamboo." Kāore he take e mataku ai.
- Ka taea te whakahaere pai i ngā tohu mā te tautuhi wawe i te mate, te whakamahi i te whakaora tinana, te whakakori tinana tika, me te tango i ngā rongoā i tohua e tō tākuta .
- Mena he roa te mamae o tō tuara, inā koa ko te pakari o te ata, me kōrero koe ki tō tākuta.
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