Ka rongo ohorere koe i te wiri o te uaua i te ringa, i te waewae, i te pakihiwi rānei? Kei te ahua pōturi rānei ō kupu ina kōrero koe, kei te ngoikore rānei ō peka? Ahakoa he mea noa ēnei, i ētahi wā koinei pea ngā tohu tuatahi o tētahi mate kino ake e pā ana ki te pūnaha io, pērā i te ALS ( Amyotrophic Lateral Sclerosis ) . Kaua e mataku ina rongo koe i tēnei ingoa. I tēnei rā ka kōrero tātou mō tēnei mate e kiia nei ko te ALS, he rite tonu ki te kōrero ki tētahi hoa.
BMI Calculator
Know your body mass index (BMI) and weight classification
He aha te ALS?
Whakaarohia, he rite tō tātou tinana ki tētahi mīhini uaua. Ka tukuna e tō tātou roro ngā karere ki ngā wāhanga o tēnei mīhini kia mahi. He momo pūtau io motuhake kei reira e kawe ana i ēnei karere ki ngā uaua. Ka kiia ēnei he neurons motuka . Ina hikoi koe, ina kai, ina kōrero, ina manawa koe, ka whakahaerehia ēnei katoa e ngā karere e puta mai ana i ēnei neurons motuka.
I roto i te ALS, mō tētahi take, ka ngoikore haere ēnei io nekeneke, ka kore e mahi, ka mate. Kātahi, ahakoa e hiahia ana te roro, kāore he huarahi hei tuku karere ki ngā uaua. Ina kore ngā karere e tae mai, ka mimiti haere ngā uaua, ka ngoikore haere. Ka kiia tēnei he atrophy .
He mate ahu whakamua te ALS, arā, ka kino haere ngā tohu i te roanga o te wā. Ko te tikanga o tēnei, ka uaua haere ngā mahi pēnei i te hikoi, te kōrero, te kai, me te manawa i te ngoikore haere o ngā uaua.
Ahakoa kāore e taea te whakakore i ngā kino i puta mai i tēnei mate, ka taea e ngā rongoā me ngā maimoatanga maha te whakahaere i te oranga o ia rā, me te whakahaere i te tere o te whanaketanga o te mate.
E rua ngā momo matua o te ALS.
E rua ngā wāhanga matua o te ALS:
1. ALS Tūpono: Koinei te momo tino noa. Tata ki te 95% o ngā tūroro ALS he momo tēnei. Ko te tikanga o te "Tūpono" ka puta noa mai, kāore he take mārama.
2. Te ALS Whānau (FALS): He momo tuku iho tēnei. Kei waenganui i te 5% me te 10% o ngā tūroro ALS tēnei momo. I konei, ka puta te mate i te hapa ira (te whakarerekētanga ira) ā, ka tukuna te ira hapa mai i ngā mātua ki ngā tamariki.
Magnesium Muscle and Joint Care
A natural magnesium treatment that relieves muscle spasms, frizz and sore muscles.
Check Availability →He aha te tino take o te ALS?
He pono, kei te ngana tonu ngā kairangahau ki te rapu i te pūtake o te ALS. Heoi, tera etahi mea e whakaarohia ana he whai wāhi ki tēnei:
- Ngā whakarerekētanga ira: Nā ngā panonitanga o ētahi iraKua kitea ka taea te pakaru i ngā pūtau io nekeneke .
- Te kore taurite o te glutamate: He matū (neurotransmitter) te glutamate e tuku karere ana i waenga i te roro me ngā io. E whakaponohia ana ka kohia tēnei glutamate huri noa i ngā pūtau io o ngā tūroro ALS, ā, ka taea e ia te kino i ngā io.
- Ngā raruraru o te pūnaha ārai mate: I ētahi wā ka taea e te pūnaha ārai mate o tō tātou tinana te whakaeke me te whakangaro i ngā pūtau io hauora.
- Te ahotea waikura : Ko ētahi o ngā hua taha kino (ngā rauropi kore utu) e puta mai ana i te wā e whakaputa pūngao ana ō tātou pūtau ka kino pea i ngā pūtau io.
- Ngā āhuatanga taiao: Kei te whakahaerehia hoki he rangahau hei tirotiro mēnā ko te pānga ki ētahi matū, ki ētahi huakita rānei tētahi o ngā take.
He aha ngā tohu o te ALS?
Ka rerekē ngā tohu o te ALS i ia tangata, i ia tangata, engari ko te nuinga o te wā, ko te tohu matua ko te ngaronga o te mana whakahaere uaua i roto i te wā.
| Te wāhanga o te mate | Ngā tohu noa |
|---|---|
| Ngā tohu tōmua |
|
| Ngā tohu e puta ana i te wā e kaha haere ana te mate |
Me pēhea te tautuhi i te ALS?
He uaua te tautuhi i te ALS, nā te mea he rite tonu ngā tohu ki ērā o ētahi atu mate. Nō reira, ka whakahaerehia e te tākuta ētahi whakamātautau hei whakarite kia kore he mate kē atu.
Ko te mea nui ko te toro atu ki te tākuta tonu mēnā kei a koe ēnei tohu, inā koa he tākuta roro.
| Whakamātautau | He aha tāna mahi? |
|---|---|
| Te Irahiko-miokaramu (EMG) | Ka whakauruhia he taputapu rite ki te ngira ki roto i te uaua, ā, ka inehia tōna ngohe hiko. Mena he ALS tōu, he rerekē te ngohe o te uaua. |
| Rangahau Whakahaere Io | Ka tirotirohia te huarahi e tukuna ai ngā karere i waenga i ngā io me ngā uaua. |
| Matawai MRI | Ka tangohia ngā whakaahua taipitopito o te roro me te taurakira hei tirotiro mēnā he pukupuku, he raruraru rānei. |
| Ngā whakamātautau toto me te mimi | Ka āwhina ēnei ki te whakakore i ētahi atu mate hauora. |
| Te Kohikohi Uaua | Ka tangohia he wahi iti o te uaua ka tirohia i raro i te karuārai. Mā tēnei ka āwhina ki te whakatau mēnā he mate uaua kē atu. |
He rerekē te ALS me te MS?
He tokomaha te hunga e whakapoauau ana i te ALS (Amyotrophic Lateral Sclerosis) me te MS (Multiple Sclerosis). Ahakoa e pāngia ana te pūnaha io e ngā mate e rua, he rerekē ngā mate e rua.
- Ko te MS (Multiple Sclerosis) he mate pūnaha ārai mate e pakaru ai te hipoki tiaki (myelin) e karapoti ana i ngā pūtau io.
- I roto i te ALS , ka whakangaromia tikatia ngā neuron motuka.
Te maimoatanga me te whakahaere i te ALS
Kāore anō kia kitea he rongoā mō te ALS i tēnei wā. Heoi, he maha ngā rongoā hei āwhina i te whakaroa i te whanaketanga o te mate, hei whakaroa i te oranga, hei whakangawari ake hoki i te oranga o ia rā. Hei tauira, kua whakaaetia a Riluzole me Edaravone mō tēnei kaupapa. Mā tō tākuta e tohu te rongoā tino tika māu.
Hei tāpiritanga, he maha ngā maimoatanga hei whakahaere i ngā tohumate.
- He rongoā mō ngā āhuatanga pēnei i te pupuhi, te mamae, te kōroke, me te ngenge.
- Whakaora Tinana: Ka āwhina ki te pupuri i te kaha me te nekeneke o ngā uaua mō te roa e taea ai.
- Whakaora Mahi: Ka ako koe ki ngā taputapu me ngā tikanga hei āwhina i a koe ki te mahi i ngā mahi o ia rā me te ngāwari ake.
- Whakaora Kōrero: He āwhina i ngā uauatanga ki te kōrero me te horomi.
- Whakaora Manawa: Ka tautoko i te wā e pā mai ana ngā uauatanga manawa.
Ngā mea hei mōhio māu ina noho tahi me te ALS
He wero nui te tautuhi i te mate ALS. Heoi anō, he huarahi hei ora pakari i roto i te mate.
- Tukua koe kia rongo i ō kare ā-roto: He mea noa te pōuri, te riri, te mataku rānei. Kaua e huna i aua kare ā-roto, kōrero ki tētahi e whakawhirinaki ana koe.
- Kia mōhio: Akohia tō āhua. Pātai atu ki tō tākuta.
- Hono atu ki ngā rōpū tautoko: He puna nui te kōrero ki ētahi atu e ora ana me tēnei mate pērā i a koe hei whakapakari hinengaro.
- Me hanga ngā huringa ki te kāinga: I te haere tonu o te mate, ka uaua ake pea te hikoi. Nō reira, whakaarohia ngā mea pēnei i te tango i ngā whāriki pahekeheke, te tāuta i ngā pae hopu i roto i te wharepaku, me te whakatikatika i ngā tatau kia māmā ake ai mō te tūru wīra.
- Tautokohia ō kaitiaki: He kawenga nui tēnei mō tō whānau me ō hoa e āwhina ana i a koe i tēnei haerenga. Āwhina i a rātou kia okioki, kia tiaki hoki i ō rātou hauora hinengaro.
Karere Tangohia ki te Kāinga
- He mate te ALS e whakangaro haere ana i ngā neuron nekeneke, e kawe ana i ngā karere mai i te roro ki ngā uaua.
- Ki te puta mai ngā tohu pēnei i te wiri o te uaua, te ngoikore o te uaua, te uaua rānei ki te kōrero, kaua e warewaretia , engari me toro atu ki te tākuta tonu.
- Ahakoa kāore e taea te whakaora katoa i tēnei mate, kei reira ngā maimoatanga whai hua hei whakahaere i te ahunga whakamua o te mate, hei whakangawari ake hoki i te oranga.
- Ka taea e ngā maimoatanga pēnei i te whakaora tinana, te whakaora mahi, me te whakaora kōrero te whakapai ake i te kounga o te oranga.
- Kāore koe i te mokemoke i tēnei haerenga. He mea tino nui te tautoko a tō whānau, a ō hoa, a te tīma hauora, me ngā rōpū tautoko.
No comments yet. Be the first to share your question or experience below.