Kua kite pea koe i tēnei i roto i ngā kiriata, mō ngā māhanga e whānau mai ana me te hononga. Ka taea tēnei te tupu, engari he tino onge te mate hauora. Ki te kī ngāwari, ko ngā māhanga hono ko ngā māhanga e whānau mai ana me te hononga tinana tetahi ki tetahi. Ka taea e tēnei mate te whakararuraru i te wā e hapu ana, i te wā e whānau ana, me muri i te whānautanga. Ahakoa he kaupapa tairongo hei kōrero, he mea nui kia mōhio ki tēnei.
I ētahi wā ka taea te wehe angitu i ēnei pēpi mā te pokanga. Engari kāore e taea te wehe katoa i a rātou. Nā te hononga o ngā pēpi me ngā whekau o roto e tohaina ana e rātou tēnei. I mua i te whakatau mēnā ka taea te wehe haumaru, he maha ngā whakamātautau a ngā tohunga. Mā ngā whakamātautau pēnei i te matawai ultrasound, te matawai MRI, me te echocardiography fetal, e tango ana i te mahere o ngā ngākau o ngā pēpi, ka taea e tātou te mārama ake ki ngā whekau e tohaina ana e rātou.
He aha tēnei e tupu nei? He aha te take?
Kāore anō kia kitea e ngā kaipūtaiao tētahi take tuturu mō tēnei, engari e rua ngā ariā matua e whakamārama ana i tēnei.
1. Ariā Wehenga: E ai ki tēnei ariā, ka tīmata te wehenga o te kukune i ngā wāhanga tōmua kia rua. Ka hangaia ngā māhanga noa ( ngā māhanga ōrite ) ina wehea katoatia tēnei kukune kia rua. Engari ko te mea e tupu ana i konei, kāore te kukune e wehea katoatia kia rua, ā, ka wehea, engari ka tipu tonu i muri i te hononga i tētahi wā.
2. Ariā Hanumitanga: E ai ki tēnei ariā, ka wehea tuatahitia te hua manu kua whakatōkia kia rua, ka hanga he kukune ōrite e rua. Heoi, i ngā wāhanga tino tīmatanga o te whanaketanga kukune, ka hanumi anō ēnei kukune e rua.
He tino onge tēnei āhuatanga. E ai ki te pūrongo, kotahi i roto i te 50,000, 60,000 rānei ngā whānautanga ka puta. He mea nui hoki kia mōhiotia ko te 70% o ēnei tamariki he kōtiro. Heoi anō, he maha ngā tamariki i hapuhia i tēnei ara ka mate i roto i te kōpū, i muri tata rānei i te whānautanga.
Ko te mea nui, kāore tēnei āhuatanga e pāngia e te tau o te whaea, te iwi, me tētahi atu mea rānei. Waihoki, i muri i tēnei haputanga, kāore he arai mōu ki te hapu i tētahi atu tamaiti i te āhua noa.
He aha te pānga o tēnei āhuatanga ki te haputanga?
E kiia ana he tino mōrearea te haputanga o ngā māhanga hono, ā, me aroturukitia tata e ngā tākuta tohunga puta noa i tēnei wā.
Me pēhea koe e mōhio ai ki tēnei?
I te nuinga o te wā ka kitea tēnei āhuatanga e ngā tākuta i te wā e whakamahia ana te matawai ultrasound i te wā e hapū ana, i te nuinga o te wā i te toru marama tuatahi, tuarua rānei. I ētahi wā ka kitea wawe i te 7-12 wiki.
Mena ka whakaūtia tēnei e te matawai, ka tūtohu tō tākuta i ētahi atu whakamātautau:
- MRI (Whakaahua Āhua Aukume): Mā tēnei ka taea e tātou te kite mārama i te wāhi e hono ana ngā tamariki e rua me ngā okana e whakamahia tahitia ana e rāua.
- Echocardiogram: Mā tēnei ka tirohia te mahi a ngā ngākau e rua o te tamaiti, me te kite mēnā e hono ana rāua tetahi ki tetahi.
He aha ngā tohu?
Kāore e taea e te whaea hāpu te kī mēnā he māhanga hono tāna e whānau ana mā te whakamahi noa i ngā tohu . He rite tonu ngā tohu ki ērā e puta pinepine ana i te wā e hāpu ana he māhanga, engari he paku kaha ake.
- Te ngenge nui, te whakapairuaki, me te ruaki i te tīmatanga o te hapūtanga.
- Ka tere ake te tipu o te kōpū i tō te mea kotahi anake te pēpi.
Ko te whānautanga ka mahia mā te pokanga-c , hei haumaru mō te whaea me te tamaiti. I te wā e whānau ana , ka whakaritea he tīma hauora motuhake mō ia tamaiti.
He aha ngā momo hononga e hono ana ēnei tamariki?
Kāore ngā māhanga hono katoa e hono ana i te ara kotahi. Ka whakarōpūtia rātou i runga i te wāhi i hono ai rātou. Tirohia te ripanga i raro nei kia mārama ai koe ki ēnei kōrero.
| Momo | Te wāhi me te whakaahuatanga o te hononga |
|---|---|
| Mai i te uma (Thoracopagus) | Ko te momo tino noa. E hono ana rātou kanohi ki te kanohi i te uma. He maha ngā wā ka whakamahia e rātou te ngākau me te ate kotahi. |
| Mai i te puku (Omphalopagus) | Kei raro i te wheua uma, e tata ana ki te sternum. Tērā pea ka noho tahi te ate, te pūkahukahu, me ngā wāhanga o runga o te pūnaha nakunaku. |
| Mai i te tuara o raro (Pyopagus) | Ka toro atu i te tuara, ā, e hono ana ki te tuara o raro. Ka taea te whakamahi tahi i ngā ira tangata, te pūnaha mimi, me ngā wāhanga o raro o te pūnaha nakunaku. |
| Mai i te pelvis (Parapagus) | Ka honoa te hope ki ngā taha mā te hope. |
| Mai i te upoko (Craniopagus) | Kei te tihi te hononga o te angaanga. He maha ngā wā ka hono te roro, engari kāore i te katoa. |
| I te taha o te tuaiwi (Rachipagus) | He tino onge. I te taha o te tuara, ka hono tonu te tuaiwi katoa. |
Ka taea te wehe i ēnei tamariki mā te pokanga?
Koinei te raruraru nui rawa atu mō te katoa. Kāore e taea te wehe i ngā māhanga hono katoa. Ina koa mēnā he kotahi te okana nui e whakamahia ana e rāua, pērā i te ngākau kotahi, kāore pea e taea te pokanga.
I te nuinga o te wā ka tatari ngā tākuta i waenga i te 3 marama me te tau i muri i te whānautanga o te tamaiti i mua i te whakatau i te pokanga. Hei hoatu i te wā ki te tamaiti kia kaha ake ki te tu atu ki te pokanga. Ka hoatu hoki he whai wāhitanga ki ngā tākuta ki te ako pai ake i te hanganga o ō rātou tinana me te tohatoha o ō rātou okana.
Heoi, i ētahi wā ohorere , me mahi pea te pokanga ohorere . Hei tauira, ki te mate tētahi tamaiti, ki te pāngia rānei e tētahi mate e morearea ana ki te ora, me mahi pea te pokanga kia tere ai te whakaora i te ora o tētahi atu tamaiti.
He tino uaua ēnei pokanga. Me whai hōhipera me ngā mātauranga me ngā ratonga motuhake. Ahakoa i muri i te pokanga, me whai momo maimoatanga ngā tamariki, pērā i te whakaora tinana, mō te wā roa.
He aha ngā tūponotanga o te oranga?
Heoi anō, kāore i te tino teitei te ōrau oranga o ēnei tamariki.
- Neke atu i te 50% o ngā hāputanga māhanga hono ka mutu ki te materoto, ki te whānautanga mate rānei.
- Tata ki te 35% o ngā pēpi ka whānau mai ka mate i roto i ngā haora 24 nā te mea kāore e taea e ō rātou whekau te tautoko i ngā tinana e rua.
- He iti noa iho te tokomaha o ngā tamariki e ora tonu ana, arā, 25% pea, e tika ana kia tāmihia.
- Tata ki te 60% o ngā tamariki kua wehea mā te pokanga ka ora tonu.
Engari he rongo pai tēnei. Nā te hangarau matawai me ngā tikanga pokanga kua pai ake, he nui ake ngā māhanga hono e ora ana, e wehea angitu ana i ēnei rā i tō mua.
Karere Tangohia ki te Kāinga
- He momo māhanga tino onge ngā māhanga hono e whānau tahi mai ana i te whānautanga.
- Kāore anō kia tino whakatauhia te pūtake o tēnei āhuatanga, ā, ehara i te he o te whaea.
- He tino mōrearea tēnei momo hāputanga, ā, ka tautuhia mā roto i ngā matawai pērā i te ultrasound me te MRI.
- Ko te taea te wehe i ngā māhanga, kei te āhua o te hononga me ngā okana e whakamahia tahitia ana e rāua. He tukanga tino uaua tēnei.
- Mena he ruarua āu mō tēnei āhuatanga, he mea tino nui kia kōrero noa koe ki tō tākuta mō tēnei mea, kia whiwhi ai hoki koe i te tohutohu me te arataki tika.
💬 Comments (0)
Kaore ano kia tukuna he korero. Tāpirihia to korero ki konei mo te wa tuatahi.
Tāpirihia to korero