Kodi mwana wanu ali ndi dothi lofiira/lofiirira pakhungu lake? Likhoza kukhala Port Wine Stain!

Kodi munayamba mwaonapo chilema cha pinki, chofiira, kapena chofiirira pakhungu la mwana wanu wakhanda kapena mwana wakhanda? Nthawi zina izi zimawonekera pankhope ndi pakhosi. Ndizachilendo kuti makolo ambiri azikhala ndi nkhawa pang'ono akaona chinthu chonga ichi. Chifukwa chake, lero tikambirana za mtundu uwu wa chizindikiro chobadwira. M'mawu azachipatala, ichi chimatchedwanso `(Port Wine Stain)` kapena `(Nevus Flammeus)`. Dzinalo lingamveke lachilendo pang'ono, koma tiyeni tifotokoze mwachidule.

Kodi '(Port Wine Stain)' iyi ndi chiyani? Kodi tingaifotokoze bwino lomwe?

Mwachidule, "Port Wine Stain" ndi chizindikiro chokhazikika cha kubadwa . Izi zikutanthauza kuti sichimatha chokha. Choyamba chimawonekera ngati banga lathyathyathya, losalala, la pinki, lofiira, kapena lofiirira pakhungu la mwana wakhanda. Komabe, pakapita nthawi, banga ili nthawi zina limakhala lakuda komanso lokwera pang'ono komanso lokhala ndi matuza .

Dzinali limachokera ku mfundo yakuti limawoneka ngati vinyo wofiira pang'ono watayidwa pakhungu. Tangoganizirani, nthawi zina malo awa akhoza kukhala aakulu mbali imodzi ya nkhope. Angaonekenso pa mkono, mwendo, kapena kwina kulikonse pathupi. Komabe, nthawi zambiri amapezeka pankhope, pakhosi, ndi pamutu.

Kodi vuto limeneli lotchedwa ``Port Wine Stain'' ndi lofala bwanji?

Izi si zachilendo kwenikweni. Pa avareji, pafupifupi ana atatu mwa ana 1,000 obadwa kumene angakhale ndi "Port Wine Stain". Zitha kuchitika mwa makanda amitundu yonse, mosasamala kanthu za jenda. Chifukwa chake, ngati mwana wanu ali ndi malo otere, musadandaule ndi kuganiza kuti, "Chifukwa chiyani mwana wanga yekha?" Simuli nokha.

Kodi zizindikiro zobadwa nazozi zimatha zokha?

Ili ndi vuto lomwe makolo ambiri ali nalo. Monga tanenera kale, ``Port Wine Stain`` ndi chizindikiro chokhazikika cha kubadwa. Izi zikutanthauza kuti sichidzatha chokha popanda chithandizo chilichonse. Ngakhale kuti zizindikiro zina zazing'ono za kubadwa zimatha kuchepa pang'ono pakapita nthawi, ``Port Wine Stain`` sizimachepa kawirikawiri.

Kodi malo awa amaipiraipira mukakula?

Inde, nthawi zina zimatha. Pakapita nthawi, madontho ambiri a `(Port Wine Stain)` amakhala akuda komanso okhuthala, akukwera pamwamba pa khungu. Ngakhale poyamba akhoza kukhala athyathyathya komanso osalala, pakapita nthawi khungu lomwe lili limatha kukhala ngati miyala yamtengo wapatali komanso lokhala ndi ziphuphu. Komanso, nthawi zina ngati kuvulala pang'ono kukuchitika m'malo amenewo, amatha kutuluka magazi kwambiri kuposa masiku onse ndipo kungakhale kovuta kuwongolera.

Kodi n’chiyani chimayambitsa mwana kukhala ndi ``Port Wine Stain''?

Choyambitsa chenicheni cha izi sichikudziwika. Komabe, asayansi amakhulupirira kuti chifukwa chachikulu ndi kukula kosazolowereka kwa mitsempha yamagazi , yomwe ndi mitsempha yaying'ono yamagazi yomwe ili pansi pa khungu lathu.Mitsempha yamagazi imeneyi imatambasuka, zomwe zikutanthauza kuti ndi yayikulu kuposa yachibadwa ndipo imawoneka ngati yatambasuka. Ichi ndichifukwa chake khungu limakhala ndi mtundu umenewo.

Kafukufuku akupitilirabe kuti adziwe chifukwa chake mitsempha yamagazi imeneyi imachita zinthu motere. Nthawi zina, mamembala angapo a m'banjamo angakhale ndi vutoli. Komabe, sizotheka nthawi zonse kunena kuti lili ndi ubale wa majini. Nthawi zina, limatha kuchitika popanda vuto lililonse la majini (genetic mutation).

Kodi chizindikiro ichi cha kubadwa cha "Port Wine Stain" chimawoneka bwanji?

Monga tanenera kale, "Port Wine Stain" ndi dothi lofiirira, lofiira, kapena lofiirira pakhungu. Lili ndi malire omveka bwino. Izi zikutanthauza kuti, tingathe kuzindikira bwino komwe dothi limayambira ndi kutha.

Ngakhale kuti zizindikiro zobadwa nazozi zimatha kuwoneka kulikonse pa thupi, nthawi zambiri zimawonekera pa:

• Pankhope
• Pakhosi
• Chigoba cha mutu (pamutu)

Mwa ana aang'ono, madontho awa a `(Port Wine Stain)` nthawi zambiri amakhala osalala. Pamene mwana akukula, chizindikiro ichi chimakulanso. Komabe, chimakula molingana ndi kukula kwa thupi. Monga tanenera kale, pakapita nthawi, madonthowa amatha kukhala akuda komanso okhuthala, kumva ngati miyala pansi pa khungu. Komanso, malowa amatha kutuluka magazi ngakhale patakhala kuvulala pang'ono.

Kodi Mabala a Vinyo a Port Ndi Oopsa?

Nthawi zambiri, madontho a `(Port Wine Stain)` si owopsa pa thanzi. Izi zikutanthauza kuti, samayambitsa ululu uliwonse kapena matenda ena akuluakulu. Komabe, kwa ana ena, makamaka akakhala ndi madonthowa pankhope, makamaka akakhala aakulu komanso amdima, amatha kukhala ndi nkhawa kwambiri. Kuganizira za mawonekedwe awo kungayambitse manyazi ndi mantha, zomwe zingayambitse kudziona ngati osafunika komanso kuchepa kwa chikhumbo chawo chocheza ndi ena.

Kawirikawiri, mawanga a "Port Wine Stain" amenewa amatha kugwirizanitsidwa ndi matenda ovuta monga "Klippel-Trenaunay syndrome" kapena "Sturge-Weber syndrome." Anthu obadwa ndi matendawa amakhala ndi vuto la mitsempha yamagazi m'matupi awo ena. Chifukwa chake, ayenera kufufuzidwa ndi dokotala kuti awone ngati pali zovuta zilizonse.

Komanso, ngati banga la vinyo wa port likukula ndikuwonekera kwambiri mtsogolo, likhoza kukhala chizindikiro cha vuto lina la thanzi kapena kuyambitsa mavuto ena. Mwachitsanzo, ngati bangalo lavulala, limatha kutuluka magazi mosavuta kuposa khungu lachibadwa. Komanso, anthu omwe ali ndi banga la vinyo wa port m'maso ali pachiwopsezo chachikulu chotenga matenda a maso otchedwa glaucoma.

Kodi mungadziwe bwanji ngati muli ndi ``Port Wine Stain''?

Dokotala nthawi zambiri amatha kudziwa ngati mwana ali ndi "Port Wine Stain" poyang'ana khungu la mwana. Nthawi zambiri, izi zimapezeka pobadwa.Dokotala adzakufunsaninso za mbiri ya matenda a m'banja mwanu.

Kawirikawiri, utoto wa vinyo wa port ndi vuto lokongoletsa lomwe limakhudza khungu. Komabe, dokotala wa mwana wanu adzamuyesa kuti adziwe ngati ndi chizindikiro cha matenda oopsa kwambiri, monga matenda a Sturge-Weber.

Ngati dokotala ali ndi kukayikira kulikonse, kapena akufuna kuchotsa vuto lina la matenda, angakulangizeni kuti muyesedwenso. Mwachitsanzo:

• Mayeso a maso omwe amayesa kuthamanga kwa maso
• Mayeso ojambula zithunzi monga X-ray, CT scans, kapena MRIs
• Kuyezetsa komwe kumaphatikizapo kutenga chidutswa chaching'ono cha khungu (Skin biopsy)

Kodi mankhwala a `(Port Wine Stain)` ndi otani?

Madontho a vinyo wa Port omwe sakhudzana ndi vuto lililonse la thanzi safunikira chithandizo chamankhwala. Komabe, anthu ena amasankha kufunafuna chithandizo. Pali zifukwa zingapo zomwe zimapangitsa izi:

• Kuopsa kwa kutuluka magazi ambiri komanso matenda opatsirana pakavulala.
• Pambuyo pake, khungu likhoza kukhala lokhuthala, lotupa, komanso losanduka mtundu.
• Zotsatira pa kudzidalira komanso ubale ndi anthu .

Chithandizo chofala komanso chogwira mtima kwambiri ndi laser therapy. Izi zimagwira ntchito pochepetsa mitsempha yamagazi yomwe yakula modabwitsa, kuchepetsa mtundu wa chizindikiro cha kubadwa. Chithandizochi chimakhala chothandiza kwambiri ngati chayamba ali aang'ono, pamene mitsempha yamagazi ikadali yaying'ono.

Nthawi zambiri chithandizo cha laser chimakhala chachifupi, chomwe chimatenga mphindi zochepa chabe. Anthu ambiri amafunika kubwereza chithandizochi miyezi ingapo iliyonse. Pambuyo pa chithandizo cha laser, khungu likhoza kufiira ndipo limakhala ngati latenthedwa ndi dzuwa. Ngati chithandizocho sichikusangalatsa, mutha kupempha dokotala wanu kuti akupatseni mankhwala opopera kapena kirimu. Ana aang'ono kwambiri nthawi zina amapatsidwa mankhwala oletsa ululu, kuti athe kugona panthawi ya chithandizocho.

Kodi Madontho a Port Wine angapewedwe?

Popeza asayansi sakudziwabe chomwe chimayambitsa "Port Wine Stains", palibe njira yopewera izi. Zizindikiro zobadwa nazo sizimayambitsidwa ndi chilichonse chomwe chimachitika panthawi ya mimba. Choncho musadandaule, mukudzifunsa kuti, "Kodi izi ndi chifukwa cha zomwe ndinachita?"

Ngati ndili ndi `(Nevus Flammeus)`, ndiyenera kuyembekezera chiyani?

Mabala a Port Wine satha okha. Ngati sathandizidwa, amatha kukula, kukhala akuda, okhuthala, komanso okhala ndi ziphuphu pakapita nthawi.

Kwa anthu ambiri, zizindikiro zoberekera izi ndi zokongoletsa chabe ndipo sizimayambitsa mavuto aakulu azaumoyo. Komabe, ngati inu kapena mwana wanu ali ndi "Port Wine Stain", ndi bwino kukayezetsa ndi dokotala nthawi ndi nthawi.

Ngakhale chithandizo cha laser chingachepetse mtundu wa zizindikiro zobadwa nazo, zotsatira zake zimatha kusiyana malinga ndi munthu. Ngakhale mutalandira chithandizo chabwino, nthawi zina patapita zaka zambiri, mawanga a `(Nevus Flammeus)` awa amatha kuwonekeranso kapena kukhala akuda.

Kodi ndingathandize bwanji mwana wanga kukhala ndi ``Port Wine Stain''?

"Dothi la Wine la Port", makamaka pankhope, lingapangitse mwana kumva manyazi komanso kudziona ngati wopanda pake. Anthu ena angalione modabwitsa ndikunena zinthu zopweteka. Yesani zinthu izi kuti muthandize mwana wanu kuthana ndi vutoli:

• Kambiranani momasuka ndi mwana wanu za chizindikiro ichi chobadwira m'njira yosavuta.
• Muuzeni kuti "Port Wine Stain" iyi ndi gawo la thupi lake, chinthu chapadera, chapadera, komanso chokongola kwa iye .
• Ngati mwana wanu akufuna, muthandizeni kugwiritsa ntchito mtundu wa zodzoladzola zobisa kuti malowo asawonekere bwino.
• Lankhulani ndi anthu omwe mwana wanu amacheza nawo (monga aphunzitsi, anzake) za chizindikiro cha kubadwa. Onetsetsani kuti sukuluyo ili ndi malo othandizira komwe mwana wanu angaphunzire ndikucheza ndi ena popanda kuzunzidwa kapena kuchotsedwa .
• Yesetsani kuyankha mafunso wina akakufunsani za nkhaniyi. Mwachitsanzo, yesani kunena mawu osavuta monga, “Ichi ndi chizindikiro changa chobadwira.”
• Phunzitsani mwana wanu kuti aziona chizindikiro ichi ngati chinthu china chachibadwa m'thupi lake , monga momwe maso ake amaonekera.

Kodi `(Port Wine Stain)` imafuna chisamaliro chapadera cha khungu?

Khungu nthawi zina limatha kuuma pamene pali "Port Wine Stain". Chifukwa chake, ndikofunikira kunyowetsa bwino malowo.

Ngati khungu lavulala (monga kukwapula, kudulidwa), likhoza kutuluka magazi kwambiri kuposa khungu lachibadwa. Choncho, sungani malo oyera powatsuka bwino ndi sopo ndi madzi. Kenako, ikani mphamvu pamalopo ndi bandeji yoyera.

Kodi ndi liti pamene muyenera kupeza upangiri wa dokotala wa `(Nevus Flammeus)`?

Ngati inu kapena mwana wanu muli ndi zizindikiro izi za "Port Wine Stain", pitani kwa dokotala nthawi yomweyo:

• Ngati mukutuluka magazi, makamaka ngati kutuluka magazi sikungatheke.
• Ngati ikuwoneka ngati yadwala (monga yofiira, yotupa, yodzaza ndi mafinya ).
• Ngati pali ululu.
• Ngati mukukanda.
• Ngati chinthu chonga madzi chikuyenda.

Pomaliza, zinthu zoti muzikumbukira (Uthenga Wopita Nawo Kunyumba)

`(Port Wine Stain)` kapena `(Nevus Flammeus)` ndi chilonda chokhazikika chomwe nthawi zambiri chimawonekera pankhope. Chimawoneka ngati banga lathyathyathya, pinki, lofiira kapena lofiirira pakhungu la mwana wakhanda, koma pakapita nthawi limatha kukula, kukhuthala, komanso lakuda. Ngakhale kuti nthawi zambiri silovulaza, silingagwirizane ndi matenda ena. Chifukwa chake, ngati inu kapena mwana wanu muli ndi chilonda chotere, ndibwino kupita kwa dokotala kuti akakupatseni upangiri. Chithandizo cha laser chingachepetse mawonekedwe awo. Ndikofunikiranso kuthandiza mwana kuthana ndi vutoli m'maganizo.