Kodi pali aliyense m'banja mwanu kapena munthu amene mumamudziwa amene ali ndi SMA, kapena Spinal Muscular Atrophy ? Mwina mukudabwa, ndipo mwina mukuopa, momwe izi zidzasinthire pakapita nthawi, komanso momwe zizindikirozo zidzakulirakulira. Ndipotu, momwe matendawa amapitira patsogolo zimasiyana kwambiri kuchokera kwa munthu ndi munthu. Zimatengera mtundu uti mwa mitundu inayi ya SMA yomwe muli nayo, nthawi yomwe zizindikirozo zinayamba, komanso kukula kwanu kwakuthupi komwe munafika panthawiyo. Tiyeni tikambirane izi momveka bwino komanso momveka bwino lero.
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Kodi matenda a SMA amakula bwanji?
Matendawa amakhudza makamaka minofu yapakati pa thupi, monga kumbuyo ndi chiuno. Izi zimaonekera kwambiri kuposa minofu yomwe ili kutali ndi pakati pa thupi (monga zala ndi zala zakumapazi).
Taganizirani izi motere, minofu ya m'ntchafu zanu, yomwe imakuthandizani kuyimirira, imakhala yofooka kuposa minofu ya m'miyendo yanu. Komanso, kufooka kwa miyendo yanu kumaonekera kwambiri pamaso pa manja anu.
Anthu ena amathanso kutaya mphamvu pang'onopang'ono m'manja mwawo. Komabe, nthawi zambiri manja ndi omwe amakhalabe ndi mphamvu zambiri pakapita nthawi. Ngakhale manjawo atakhala ofooka, amathabe kuchita ntchito za tsiku ndi tsiku , monga kugwiritsa ntchito kompyuta.
Vuto lina lalikulu lomwe limabwera ndi SMA ndi msana wopindika , womwe madokotala amati scoliosis . Ana ambiri omwe ali ndi SMA amadwala matendawa ali aang'ono. Izi zimachitika chifukwa minofu yomwe imathandizira msana imafooka pang'onopang'ono.
Popeza scoliosis ingayambitse mavuto opuma, ndikofunikira kwambiri kulankhula ndi dokotala wanu za izi nthawi zonse ndikutsatira malangizo ofunikira.
Munthu amene ali ndi scoliosis angakumane ndi zizindikiro zotsatirazi:
- Mapewa ndi chiuno sizili pamlingo womwewo.
- Phewa limodzi ndi lalikulu kapena limatuluka patsogolo kuposa linzake.
- Chiuno chimodzi chili chokwera kuposa china.
Kupindika kwa msana kumeneku kungayambitse kusasangalala ndi kupweteka. Ngati kupindikako kuli kwakukulu, kumatha kufinya mapapo ndikukhudza kupuma. Madokotala nthawi zambiri amayesa kuthana ndi vutoli pogwiritsa ntchito chogwirira chapadera popanda opaleshoni mpaka mwanayo atakula bwino. Komabe, chifukwa kupindika kwa msana kumatha kuipiraipira pakapita nthawi, dokotala wanu adzasamala kwambiri ndi mavuto aliwonse opuma kapena kuyenda omwe amachitika pankhaniyi.
Chomwe chidzachitike pambuyo pake chimadalira mtundu wa SMA womwe muli nawo.
Mitundu ya SMA ndi mtundu wawo
SMA imagawidwa m'magulu anayi akuluakulu. Izi zimagawidwa kutengera zaka zomwe zizindikiro zimayambira komanso kuchuluka kwa zochita zolimbitsa thupi zomwe wodwalayo amachita. Tiyeni tiwone mtundu uliwonse padera.
| Mtundu wa SMA | Zaka zoyambira zizindikiro | Zinthu zofunika kwambiri ndi zomwe zikubwera mtsogolo |
|---|---|---|
| Mtundu 1 (Matenda a Werdnig-Hoffmann) | Pobadwa kapena miyezi 6 isanakwane | Kuopsa kwambiri. Popanda chithandizo, zimakhala zovuta kukhala pansi kapena kulamulira mutu. N'zovuta kuyamwa mkaka kapena kumeza chakudya. Zimakhala ngati munthu akupuma m'mimba. Matenda oopsa a kupuma amatha kuchitika pafupipafupi. |
| Mtundu Wachiwiri | Pakati pa miyezi 6 ndi 18 | Amatha kukhala tsonga, koma sangayende popanda thandizo. Akamakula, angafunike thandizo ngakhale kuti akhale tsonga. Kunjenjemera kungaoneke. |
| Mtundu 3 (Kugelberg-Welander syndrome) | Pambuyo pa miyezi 18 kapena ali wamng'ono | Ndimatha kuyenda. Koma pakapita nthawi, nthawi zambiri ndimagwa, zimakhala zovuta kukwera ndi kutsika masitepe. Zimakhala zovuta kudzukanso nditagona pansi. |
| Mtundu 4 | Ali ndi zaka za m'ma 20-30 (akuluakulu) | Zosowa. Zizindikiro zimakula pang'onopang'ono. Akuluakulu amatha kuyenda, koma kufooka kwa minofu kumachitika akamakula. |
Zambiri zokhudza Mtundu 1
Uwu ndi mtundu woopsa kwambiri wa SMA. Umatchedwanso matenda a Werdnig-Hoffmann . Umazindikirika munthu akangobadwa kapena mkati mwa miyezi 6 yoyambirira. Kufooka kwa minofu kumakula mofulumira kwambiri. Popanda chithandizo, mwanayo sangathe kukhala kapena kuyimirira.
Mwanayo akhoza kukhala ndi vuto la kudya chifukwa chovutika kuyamwa ndi kumeza. Ana ena amaoneka ngati akupuma kuchokera m'mimba mwawo . Izi zili choncho chifukwa minofu yopumira pachifuwa sikugwira ntchito bwino, choncho amapuma pogwiritsa ntchito diaphragm yokha. Izi zingayambitse mavuto opuma komanso matenda opatsirana pafupipafupi, nthawi zina omwe amaika moyo pachiswe.
Zambiri zokhudza Mtundu Wachiwiri
Mtundu uwu umapezeka pakati pa miyezi 6 ndi 18. Kuchuluka kwa matendawa kumasiyana kwambiri kuchokera kwa mwana mmodzi kupita kwa wina. Ana omwe ali ndi matenda a mtundu wa 2 amatha kukhala pansi popanda thandizo akangoyamba kumene. Komabe, akafika zaka zaunyamata, zimakhala zovuta kukhala pansi popanda thandizo.
Komanso, ana awa sangayende mapazi angapo popanda thandizo. Nthawi zambiri, zala zawo zimayamba kunjenjemera ). Ngakhale tendon reflex ingatayike dokotala akagunda bondo ndi nyundo yaying'ono.
Zambiri zokhudza Mtundu 3
Izi zimatchedwanso matenda a Kugelberg-Welander . Nthawi zambiri amapezeka ali ndi miyezi 18, koma nthawi zina zizindikiro zimatha kuyamba ali mwana.
Kupita patsogolo kwa mtundu uwu wa SMA kumadalira kuchuluka kwa kayendedwe komwe mwana amaphunzira. Ana awa amatha kuphunzira kuyenda. Koma pakapita nthawi, amayamba kugwa pafupipafupi, amavutika kukwera masitepe, komanso amavutika kudzuka atagona. Monga momwe zilili ndi mitundu ina ya SMA, amakhala pachiwopsezo chachikulu cha matenda opumira pamene minofu yawo imafooka.
Zambiri zokhudza Mtundu 4
Uwu ndi mtundu wosowa kwambiri wa SMA. Umapezeka mwa anthu azaka za m'ma 20 kapena 30. Matendawa amakula pang'onopang'ono. Anthu omwe ali ndi matendawa amatha kuyenda akakula, koma kufooka kwa minofu kumatha kuwonjezeka pang'onopang'ono akamakula.
Uthenga Wopita Nawo Kunyumba
- Kufooka kwa Minofu Yam'msana (SMA) ndi matenda omwe amafooketsa minofu pakapita nthawi. Komabe, sizimakhudza ubongo. Luntha ndi mphamvu za wodwalayo zimakhalabe bwino.
- Mtundu wa SMA womwe inu kapena mwana wanu muli nawo umatsimikiza momwe matendawa adzakhalire mwachangu komanso moopsa.
- Mavuto opuma ndi scoliosis ndi matenda ofala omwe amagwirizanitsidwa ndi SMA. Izi zimafuna chisamaliro chapadera ndi kuyang'aniridwa ndi dokotala.
- Ndikofunikira kwambiri kugwira ntchito limodzi ndi dokotala wanu kuti muthane ndi matendawa, kupita kuzipatala pa nthawi yake, komanso kutsatira malangizo omwe aperekedwa.
- Mankhwala amakono athandiza kwambiri moyo wa odwala a SMA kukhala wabwino komanso moyo wawo wonse, choncho musataye mtima.
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