Ese wumva unaniwe cyane ku buryo udashobora no kuva mu buriri cyangwa wumva ushaka kubyuka? Ese kwiyuhagira no gutegura amafunguro bisa nkaho ari akazi gakomeye? Iyo ubwiye umuntu ibi, ese arakwirengagiza akakubwira ati: "Ni ubunebwe bwawe gusa," "Fata agatotsi," cyangwa "Ni ikibazo cyo mu mutwe gusa?" Noneho ugomba gusoma iyi nkuru. Kuko uyu munsi turimo kuvuga ku ndwara itera ibimenyetso nk'ibi, ariko abantu benshi, haba mu muryango ndetse no mu rwego rw'ubuvuzi, ntibabizi neza.
Mu by'ukuri indwara ya Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) ni iki?
Muri make, ME/CFS ni indwara y’igihe kirekire, igoye kandi ikomeye ishobora guhungabanya burundu imirimo yawe ya buri munsi. Ikimenyetso nyamukuru ni umunaniro ukabije udashobora kwihanganira kandi udashobora gusobanurwa n’impamvu iyo ari yo yose. Ibi ntabwo ari nk’umunaniro usanzwe. Uyu munaniro ntushira nubwo waba umaze amasaha menshi usinziriye.
Tekereza uvuye mu rugendo rugufi, cyangwa ukora imirimo yo mu rugo. Hanyuma, mu minsi myinshi, wumva unaniwe cyane ku buryo udashobora kuva mu buriri. Ibi tubyita "Post-Exertional Malaise." Bisobanura ko ibimenyetso birushaho kwiyongera nyuma yo gukora imyitozo ngororamubiri cyangwa mu mutwe.
Abantu benshi babana n'iki kibazo bahura n'ibindi bibazo byinshi.
- Gusinzira nabi
- Ububabare bw'umubiri
- Kudashobora kwibanda ku kintu kimwe, kwibagirwa byose, imimerere nk'iy'ubwonko
- Kuzungera iyo uhagaze cyangwa wicaye
Ibi bimenyetso bituma biba inzozi gukora, kwitabira ibikorwa rusange, ndetse no gukora imirimo ya buri munsi.
Ese iyi ni indwara koko? Cyangwa urimo kutwirengagiza?
Iki ni cyo kibazo gikomeye abantu barwaye ME/CFS bahura na cyo. Si imiryango yabo, inshuti zabo, n'abayobozi babo gusa, ahubwo rimwe na rimwe n'abaganga ntibafata ibi bimenyetso nk'ibi nk'ibi. Ubushakashatsi buherutse gukorwa na CDC na WebMD muri Leta Zunze Ubumwe za Amerika bwagaragaje ko ubumenyi kuri iyi ndwara buri hasi cyane.
90% by'ababajijwe bavuze ko ibi bimenyetso byabateye kureka ibikorwa byo gusabana, imyidagaduro n'akazi. Ariko, kimwe cya gatatu gusa ni bo bari baganiriye na muganga kuri ibyo. Impamvu nyamukuru yabyo ni ubwoba bw'uko "umuganga atazatwizera."
Tekereza ukuntu bibabaje. Urwaye indwara, ariko nta muntu wo kukubwira, kandi nubwo waba uyirwaye, nta muntu ubyemera. Nk’uko ubushakashatsi bwabigaragaje, abantu 6 kuri 10 bagiye kwa muganga bumva ko batafashwe nk’ibikomeye.
- 64% babwiwe na muganga wabo "kuruhuka gato."
- 62% bavuze bati "Iki ni ikibazo cyo mu mutwe."
Ibi bitinza imyaka myinshi yo gusuzuma indwara. Hari abantu bafata imyaka irenga 5 kugira ngo bamenye neza indwara.
Kuki gusuzuma indwara bigoye cyane?
Hari impamvu nyinshi z'ingenzi zituma gusuzuma ME/CFS bishobora kugorana.
1. Nta kizamini cyihariye gitangwa: Kimwe no gusuzuma isukari mu maraso kugira ngo hamenyekane diyabete, nta kizamini cyihariye cy'amaraso cyangwa scan ishobora kwemeza ME/CFS.
2. Ibimenyetso biratandukanye: Uburyo ibimenyetso bigaragara bushobora gutandukana bitewe n'umuntu ku wundi. Byongeye kandi, ibi bimenyetso bigaragarira mu zindi ndwara nyinshi.
3. Ubujiji buke mu baganga: Amashuri menshi y’ubuganga ku isi ntashyiramo ME/CFS mu nteganyanyigisho zayo, bigatuma bamwe mu baganga bakeka ko ari ikibazo cyo mu mutwe.
Bityo rero, kugira ngo umenye iyi ndwara, ukeneye umuganga w’inzobere utega amatwi umurwayi witonze cyane kandi agasesengura ibimenyetso bye neza . Umuganga azagera kuri uyu mwanzuro amaze kumva byimbitse ibimenyetso byawe no gukuraho izindi ndwara.
| Ibipimo by'ibanze byo gusuzuma ME/CFS | |
|---|---|
| Ibimenyetso by'ingenzi (byose uko ari bitatu bigomba kuba bihari) | |
| 1. Umunaniro ukabije | Umunaniro mwinshi umara amezi 6 cyangwa arenga bigatuma bidashoboka gukora imirimo ya buri munsi. |
| 2. Malaise nyuma yo gucika intege | Ibimenyetso birakomera cyane ndetse no nyuma y'umuhati muto w'umubiri, uwo mu mutwe, cyangwa uwo mu byiyumvo. |
| 3. Gusinzira nabi | Nubwo wamaze amasaha menshi usinziriye, uracyarushye iyo ukangutse. |
| Ibimenyetso by'inyongera (nibura kimwe muri ibi kigomba kuba kirimo) | |
| 1. Ubumuga bwo mu mutwe | Bizwi nka "Brain Fug", kugorwa no kwibuka, kudashobora kwibanda ku kintu kimwe, no gufata igihe kirekire mu gutunganya amakuru. |
| 2. Kutabasha kwihanganira imitsi | Ibimenyetso nko kuzungera, gucika intege, cyangwa kutabona neza bibaho iyo wicaye cyangwa uhagaze kandi bikagabanuka iyo uryamye. |
Igihu cy'ubwonko ni iki?
Iki ni ikimenyetso kibabaza cyane. Nk’uko abarwayi babivuga, hari igihe bandika ubutumwa bw’ibaruwa bakabwohereza ku kazi, ariko mu kanya gato ntibibuka niba ubutumwa bwoherejwe cyangwa icyari kirimo. Bifata igihe kirekire gutekereza ku bintu byoroshye no gufata ibyemezo. Ibi bigira ingaruka zikomeye ku kazi kabo no ku buzima bwabo bwite.
Ingorane zo kubaho n'iki kibazo
Aba bantu bahura n'ihungabana ryo mu mutwe riruta ububabare bw'umubiri baterwa na ME/CFS. Agahinda n'irungu bumva iyo umuryango wabo utekereje uti "Urimo kwitwara," n'iyo inshuti zabo zibashinja ziti "Urimo kutwirinda ubu," biragoye cyane kwihanganira.
Hari ibintu wifuza gukora, ibintu wifuza gukora. Ariko umubiri wawe ntubikwemerera. Hanyuma umuntu akakubwira ati "Ugomba kuruhuka." Kubera ibintu nk'ibi, abantu barwaye ME/CFS bashobora kugira ibibazo byo mu mutwe nko kwiheba no guhangayika .**
Bityo rero, ni ingenzi cyane ko twese tumenya iyi ndwara. Niba ufite ibi bimenyetso, cyangwa niba hari umuntu uzi urwaye iyi ndwara, ubufasha bukomeye ushobora gukora ni ukumushyigikira no kumwumva.
Ubutumwa bwo kujyana mu rugo
- Indwara ya Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) ni indwara ikomeye kandi ikomeye . Si ubunebwe cyangwa ikintu cyo kwiyumvira gusa.
- Ibimenyetso by'ingenzi ni umunaniro ukabije, ibimenyetso birushaho kwiyongera ndetse no nyuma yo gukora imyitozo ngororamubiri mito, no gusinzira nabi.
- Gusuzuma indwara bishobora kugorana, bityo rero ni ngombwa kubonana na muganga uzagutega amatwi witonze ibimenyetso byawe .
- Mbere yo kujya kwa muganga, kwandika ibimenyetso byawe (urugero: iyo birushijeho gukomera, ibihe byo gusinzira, ibibazo byo kwibuka) bizagufasha kubona igisubizo nyacyo.
- Biragoye kunyura muri uru rugendo wenyine. Ariko ntucike intege. Uramutse usobanukiwe neza kandi ugaterwa inkunga, iki kibazo gishobora gukemurwa.
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