Ese ufite icyuma gikabije mu mubiri wawe? Reka tuvuge kuri Hemochromatosis!

Ese hari igihe wumva unaniwe bidasanzwe nta mpamvu? Ese ingingo zawe, cyane cyane amavi n'amano, birababaza, uruhu rwawe rugasa n'imvi cyangwa umuhondo? Akenshi tubyirengagiza nka "uku ni ko bigenda iyo ugeze mu za bukuru." Ariko ibi bishobora kuba ibimenyetso by'indwara aho urugero rw'ubutare mu mubiri wacu rwiyongera mu buryo buteje akaga. Iyi ndwara yitwa Hemochromatosis mu buvuzi. Ibi nibyo tuvuga uyu munsi.

Mu magambo make, Hemochromatosis ni iki?

Hemochromatosis ni indwara aho umubiri wawe wirundanyiriza icyuma gikabije . Hari n'abantu babyita " ubwinshi bw'icyuma ."

Ubusanzwe, imibiri yacu ifata ingano y'icyuma dukeneye mu byo turya gusa. Ariko, ku bantu bafite hemochromatosis, umubiri ufata icyuma kinini kuruta icyo ukeneye. Ikibazo ni uko nta buryo bwo gukuramo icyuma gikabije mu mubiri.

None se umubiri ubibika he ubu butare burenze urugero? Bubikwa mu ngingo zawe, ndetse no mu ngingo z'ingenzi nka umwijima , umutima , uruhu, ingirabuzimafatizo ya pituitary, na pancreas . Uko igihe kigenda gihita, ubu butare bwiyongera butangira kwangiza izo ngingo. Iyo butavuwe, izi ngingo zishobora no guhagarika gukora.

Hari ubwoko bubiri bw'ingenzi bw'iyi ndwara.

Iki kibazo gishobora kugabanywamo ubwoko bubiri.

1. Hemochromatosis y'ibanze: Ubu ni bwo bwoko bukunze kugaragara cyane. Ni indwara ikomoka ku murage. Mu magambo make, kugira ngo uyikuremo, ugomba kuragwa gene ifite inenge iva kuri nyoko na so. Iyo uyirazwe n'umubyeyi umwe gusa, ntabwo uzayirwara, ariko ushobora kuba uri nyirabayazana w'iyi gene.

2. Hemochromatosis ya kabiri: Ibi bibaho bitewe n'izindi mpamvu. Urugero, iyi ndwara ishobora kugaragara ku muntu ukeneye guterwa amaraso kenshi bitewe n'indwara nko kubura amaraso cyane.

Ni iki gitera iki kibazo?

Reka turebe impamvu zibitera.

Impamvu zikomoka ku mfuruka (Hemochromatosis y'ibanze)

Imibiri yacu ifite gene yitwa `HFE`. Iyi ni yo igenzura ingano y'icyuma dukura mu biribwa turya. Impinduka ebyiri muri iyi gene ya `HFE`, ari zo `C282Y` na `H63D`, ni zo zitera abarwayi benshi ba hemochromatosis bavukanye.

Byongeye kandi, impinduka mu zindi ngirabuzimafatizo, nka `HJV` na `HAMP`, nabyo bishobora gutera iyi ndwara ku bantu bake (hafi 10%-15%). Abantu bakunze kwibasirwa n'izi ngirabuzimafatizo bagaragaza ibimenyetso bakiri bato.

Biterwa n'izindi ndwara (Hemochromatosis ya kabiri)

Ubu bwoko bukunze guterwa no guterwa amaraso kenshi bitewe n'indwara nko kubura amaraso cyane (nk'indwara yo kubura amaraso mu maraso) cyangwa kunanirwa k'umusemburo w'amagufwa. Uturemangingo dutukura dutangwa iyo utanze amaraso tuba dufite icyuma kinini. Kubera ko umubiri udafite uburyo bwo gukuraho ubu butare, dutangira kwirundanya.

Nanone, kwangirika k'umwijima, urugero, bitewe n'indwara y'umwijima irimo ibinure ( cirrhose ) cyangwa hepatite B cyangwa C idakira, bishobora gutuma icyuma cyiyongera mu mubiri.

Ni nde uri mu kaga gakomeye ko kurwara iyi ndwara?

Nubwo umuntu wese ashobora kurwara hemochromatosis, hari abantu bafite ibyago byinshi byo kurwara iyi ndwara.

Ese nawe ufite ibi bimenyetso?

Hafi kimwe cya kabiri cy'abantu bafite hemochromatosis nta bimenyetso bagaragaza. Abagabo bakunze kugaragaza ibimenyetso hagati y'imyaka 30 na 50, mu gihe abagore bakunze kugaragaza ibimenyetso nyuma y'imyaka 50 cyangwa nyuma yo gucura.

Ubibona ute, Muganga?

Kubera ko ibi bimenyetso bishobora kugaragara mu zindi ndwara, rimwe na rimwe bishobora kugorana kuzisuzuma. Muganga wawe azakubaza amateka y'ubuzima bw'umuryango wawe kandi azakora n'isuzuma ry'umubiri.

Byongeye kandi, ibi bizamini bishobora gukorwa:

• Ibizamini by'amaraso: Hano hakorerwa ibizamini bibiri by'ingenzi.
• Ubwinshi bwa Transferrin: Ibi bipima ingano y'ubutare bufatanye na poroteyine (transferrin) itwara ubutare mu maraso.
• Serum Ferritin: Iyi ipima ingano ya poroteyine (ferritin) ibika icyuma mu maraso.

Niba ibi bizamini byerekanye ko urugero rw'ubutare mu mubiri wawe ruri hejuru, muganga wawe ashobora no gukora ikizamini cy'uturemangingo kugira ngo arebe niba ufite gene itera hemochromatosis.

• Isuzuma ry'umwijima: Muganga afata agace gato k'umubiri mu mwijima akagasuzuma akoresheje mikorosikopi kugira ngo arebe niba nta cyangiritse ku mwijima.

• MRI scan: Ibi bishobora gufata amashusho meza y'ingingo zawe no kureba niba zifite icyuma gifunze.

Ni ubuhe buryo bwo kuvura?

Niba ufite Hemochromatosis y'ibanze, uburyo bwo kuyivura bworoshye cyane. Bikubiyemo gukura amaraso mu mubiri wawe ku gihe runaka. Ibi byitwa Phlebotomy.

Kuvura indwara ya phlebotomy

Ibi bisa no gutanga amaraso. Umuganga cyangwa umuforomo wabyigiye ashyira urushinge mu mutsi uri mu kuboko kwawe maze akarukuramo amaraso mu gafuka k'amaraso.

• Ubuvuzi bwa mbere: Ku ikubitiro, uzakenera kujya kwa muganga rimwe cyangwa kabiri mu cyumweru kugira ngo uvanwe amaraso kugeza igihe urugero rw'icyuma mu mubiri wawe ruzagarukira ku rugero rusanzwe. Ibi bishobora gufata amezi menshi cyangwa umwaka.
• Uburyo bwo kuvura indwara: Iyo urugero rw'icyuma rumaze gusubira ku rugero, inshuro zo guterwa amaraso ziragabanuka, akenshi zikagera kuri ebyiri cyangwa enye mu mwaka.

Kuvura hakoreshejwe imiti (Chelation Therapy)

Niba ufite hemochromatosis ya kabiri, cyangwa niba imitsi yawe idakomeye bihagije kugira ngo ishobore kwinjiza amaraso, muganga wawe ashobora kuguha umuti witwa `Chelation Therapy.` Muri ibi, uhabwa umuti ufasha umubiri wawe gukuramo icyuma gikabije mu nkari no mu mwanda wawe.

Ese iyi ndwara ishobora gukemurwa mu rugo?

Umuntu uvurwa phlebotomy ubusanzwe ntakenera guhindura byinshi mu mirire ye, kuko ubuvuzi ubwabwo bugenzura urugero rw'ubutare afite. Ariko, ushobora gukora ibi bikurikira kugira ngo ugabanye ibyago byo kugira ibibazo:

• Irinde inzoga burundu. Inzoga zangiza umwijima, bigatuma urwara iyi ndwara bigira akaga gakomeye.
• Irinde kurya amafi mabi cyangwa ifi zo mu bwoko bwa shellfish. Bagiteri ziri muri ibi zishobora gutera indwara zikomeye ku bantu bafite icyuma kinini.
• Irinde gufata inyongeramusaruro za vitamine C. Ariko, nta kibazo kiri mu kurya imbuto n'imboga birimo vitamine C.
• Irinde gufata ibinini bya fer cyangwa vitamine nyinshi zirimo fer.
• Irinde ibinyampeke bya mu gitondo bikungahaye ku butare.