Ese uzi indwara ya Down Syndrome? Reka tuvuge kuri aba bana beza.

Ese wigeze ubona umwana mwiza usa n'undi, ahora afite inseko ku maso? Ushobora kuba waribajije uti 'Kuki uyu mwana atandukanye n'abandi?' Down Syndrome ni indwara ifata benshi muri aba bana. Ikintu cya mbere ugomba gusobanukirwa ni uko iyi atari indwara. Ni indwara iterwa n'uturemangingo. Reka rero dukureho imyumvire mibi kuri ibi kandi tumenye byinshi kuri aba bana beza n'isi yabo.

Mu magambo make, Down Syndrome ni iki?

Kugira ngo tubisobanukirwe, tugomba kubanza kuvuga ku gice gito cyane mu mubiri wacu. Umubiri wacu ugizwe n'uturemangingo tubarirwa muri za miriyoni. Muri buri turemangingo, harimo "amabwiriza" agenzura buri kintu cyose kiri mu mubiri wacu, akagena buri kintu cyose kiranga umubiri wacu, nk'uburebure bwacu, ibara ry'amaso, n'ibara ry'umusatsi. Ibi tubyita chromosomes z'amabwiriza.

Ubusanzwe, umuntu muzima agira chromosomes 23 muri buri selile, zose hamwe zikaba chromosomes 46. Ariko, umwana ufite Down syndrome aba afite kopi y'inyongera ya chromosome 21 aho kuba ebyiri, ahubwo aba afite eshatu. Iyi chromosome y'inyongera itera itandukaniro mu mikurire y'umubiri n'iy'ubwenge bw'aba bana.

Nubwo ubushakashatsi bwagaragaje ko abana bavutse ku babyeyi barengeje imyaka 35 bafite amahirwe menshi yo kugira iyi ndwara, umubyeyi w’imyaka iyo ari yo yose ashobora kubyara umwana ufite indwara ya Down syndrome.

Ni ibihe bintu bisanzwe biranga aba bana?

Abana bose bafite Down syndrome si bamwe. Ariko hari ibintu bimwe na bimwe biboneka muri bo. Nta kintu na kimwe cyo gutinya iyo ubonye ibi, ibi ni bimwe mu bigize imico yabo.

Tumenye kandi ibibazo by'ubuzima bituruka kuri Down syndrome.

Aba bana bafite ibyago byinshi byo kurwara indwara zimwe na zimwe kurusha abandi. Ariko, si buri wese uzarwara izi ndwara zose. Icy'ingenzi ni ukumenya ibi, guhora ubonana na muganga w'umwana wawe, kandi ugahabwa ibizamini n'ubuvuzi bikenewe ku gihe.

• Ubusembwa bw'umutima bw'abana bavukanye: Hafi kimwe cya kabiri cy'abana bose bafite indwara ya Down syndrome bashobora kuba bafite ubusembwa bw'umutima bavukanye. Byinshi muri byo ubu bishobora kuvurwa neza binyuze mu kubagwa.
• Ibibazo byo mu igogora: Abana bamwe bashobora kugira ibibazo bimwe na bimwe mu buryo bwo mu igogora ryabo.
• Ibibazo byo kumva no kutabona: Hari amahirwe yo kutabona no kutumva neza. Kubwibyo, ni ngombwa kwisuzumisha buri gihe.
• Ibibazo bya tiroyide: Hari ibyago byo kurwara hypothyroidism, indwara ituma imikorere y'umubiri idakora neza.
• Indwara yo gucika intege mu gihe cyo gusinzira: Indwara yo guhumeka ihagarara akanya gato mu gihe cyo gusinzira.
• Kwandura indwara zikunze kugaragara: Bitewe n'intege nke zimwe na zimwe mu budahangarwa bw'umubiri, ibintu nk'ibicurane n'indwara zo mu matwi bishobora kubaho kenshi.

Ntugatinye iyo ubonye ibi bintu. Hari uburyo bwiza cyane bwo kuvura ibi byose muri siyansi y’ubuvuzi ya none. Icyo ukeneye gusa ni ukwitabwaho n’ababyeyi n’abarera abana no guhabwa ubuyobozi bukwiye mu buvuzi.

Twafasha dute aba bana?

Iki ni cyo gice cy'ingenzi cyane. Hari byinshi dushobora gukora kugira ngo dufashe umwana urwaye Down syndrome kubaho ubuzima bwiza kandi bushimishije.

1. Gutabara hakiri kare

Ibi bivuze gufasha umwana gukura akiri muto. Bitewe n'ibyo umwana akeneye,

• Ubuvuzi bw'umubiri: Bukomeza imitsi kandi bugufasha kugenda, kwiruka no gusimbuka.
• Ubuvuzi bwo mu Mitwe: Bugufasha kuvuga neza no kugaragaza ibitekerezo.
• Ubuvuzi bw'akazi: Bukwigisha uburyo bwo gukora imirimo ya buri munsi nko kurya no kwambara.

Ubinyujije muri ibi, ushobora kongera ubushobozi bw'umwana wawe. Baza muganga wawe ku bijyanye no gushaka ubufasha bw'abaganga babishoboye kuri ibi.

2. Uburezi n'amahirwe angana

Ni ikinyoma cyambaye ubusa ko abana bafite Down syndrome badashobora kwiga. Biga ku muvuduko wabo bwite. Uburezi buhuriweho, bubafasha kwiga mu mashuri asanzwe hamwe n'abandi bana, bubafasha guteza imbere ubumenyi bwabo mu mibanire. Benshi bashobora gusoma, kwandika, ndetse no gukora akazi gasanzwe.

3. Urukundo, kwemerwa no gushyigikirwa

Aba bana ntibakeneye impuhwe zacu. Bakeneye urukundo, kwihangana, kwemerwa no gushyigikirwa. Bishimire ndetse n'intsinzi ntoya bafite. Niba bibatwara igihe kinini kugira ngo bakore ikintu, ihangane kandi ubareke bagikore. Twebwe nk'umuryango tugomba kwiga kubakunda hamwe n'ibyo batandukaniyeho, ntitubaseke.

Tekereza ko hari umwana urwaye Down syndrome mu gace utuyemo. Ntukamuhe akato, ahubwo mufatanye gukina n'umwana wawe. Ba isoko y'imbaraga zo mu mutwe ku babyeyi b'uwo mwana. Impinduka zacu nto zishobora kuba imbaraga zikomeye kuri uwo muryango.

Muri iki gihe, bitewe n'ubuvuzi bwiza n'ubufasha mu mibereho myiza, impuzandengo y'imyaka yo kubaho y'abantu bafite Down syndrome yariyongereye ikagera ku myaka 55-60. Benshi muri bo babaho mu buryo bwihariye.