Kuwana chiremba akakunakira uye anokunzwisisa dzimwe nguva kunogona kuoma. Tese takasiyana, tine zvinodiwa zvakasiyana uye zvaunofarira zvakasiyana. Saka kana uine chirwere chisingawanzoitiki senge hATTR Amyloidosis , ungazviona zvakaoma zvikuru. Pakurapa chirwere chakadai, zvakakosha kuwana chiremba anonzwisisa chirwere zvakanaka uye achakupa rubatsiro rwaunoda. Kutaura zvazviri, kuti uwane kurapwa kwakanakisa, unofanirwa kutsvaga nyanzvi dzakasiyana siyana.
Vanachiremba verudzii vanorapa hATTR?
Zvichitaurwa zviri nyore, hATTR amyloidosis chirwere chisingawanzoitiki chinogona kukanganisa nhengo dzakawanda mumuviri wako panguva imwe chete. Izvi zvinoreva kuti hauzokwanisi kurapwa nenyanzvi imwe chete. Uchada rutsigiro rwechikwata chevanhu vane hunyanzvi hwakasiyana-siyana.
Semuenzaniso, kana mwoyo wako wakanganiswa nechirwere ichi, uchafanirwa kuona chiremba wemwoyo. Kune rumwe rutivi, kana uine dambudziko retsinga, senge kusanzwa kana kushaya simba mumakumbo ako, uchafanirwa kuona chiremba wetsinga. Saka, zviratidzo zvauri kuona, nhengo dzakakanganiswa, uye huwandu hwekukuvadzwa kunokonzerwa nechirwere ndizvo zvichasarudza kuti ndevapi nyanzvi dzaunofanira kuona.
Mutafura iri pazasi, tichaona kuti ndevapi nyanzvi dzinonyanya kudiwa muchirwere cheHATTR uye kuti ndeapi marudzi ezviratidzo zvavanorapa.
| Nyanzvi yezvekurapa | Zviratidzo/mamiriro ezvinhu akajairika avanobata |
|---|---|
| Chiremba wemwoyo | Kushanda kwemoyo kusina simba (Cardiomyopathy), kusagadzikana kwemutinhimira wemoyo, kuoma kwekufema. |
| Chiremba wetsinga | Kunzwa kusanzwa, kukwenya, kurwadziwa, uye kurasikirwa nemanzwiro mumakumbo (Peripheral Neuropathy). |
| Chiremba wezvematumbu | Kurwadziwa kwemudumbu, manyoka, kuzvimba, kudzikira kwehuremu, kuda kurutsa. |
| Chiremba wezvirwere zvetsinga | Kana itsvo dzakanganiswa (semuenzaniso mapuroteni ari muweti). |
| Chiremba wemaziso | Kana maziso akanganiswa (semuenzaniso kumanikidzwa kwemaziso kwakanyanya, kuona zvisipo). |
| Mupi wezano weMajini | Sezvo ichi chiri chirwere chinogarwa nhaka, mhuri dzinofanira kurayirwa nezvenjodzi uye kuongororwa kwemajini. |
Zviratidzo zvako zvinogona kutsamira pakuchinja kwejini reTransthyretin (TTR) kunokonzera chirwere ichi. Izvi ndizvo zvinosarudza kuti unoda vanachiremba verudzii. Ungangodawo kuona vamwe vanachiremba kana zviratidzo zvitsva zvikaitika nekufamba kwenguva sezvo chirwere ichi chichikura.
Ungawana sei nyanzvi ye hATTR muSri Lanka?
Pakurapa chirwere chisingawanzoitiki chakadai, zvakakosha zvikuru kuwana rubatsiro rwenyanzvi. MuSri Lanka, nzira yakanakisisa yekuita izvi ndeyekuenda kuchipatara chikuru uko nyanzvi dzakawanda dzinoshanda panzvimbo imwe chete.
Kazhinji, muzvipatara zvikuru zvehurumende zvakaita seTeaching Hospitals neNational Hospital yeSri Lanka, nyanzvi dzemhando dzakasiyana dzinoungana pamwe chete kuti dzirape varwere. Zvimwe zvipatara zvikuru zvepachivande zvinogonawo kuva nenzvimbo iyi.
Danho rako rekutanga parwendo urwu rinofanira kunge riri rekuona chiremba wemhuri yako (GP). Iye anogona kukutumira kuna chiremba akakodzera kana kuchipatara chine timu yenyanzvi, zvichienderana nezviratidzo zvako.
Chakanakira kuwana kurapwa panzvimbo yakaita seiyi ndechekuti varwere vako veseKuva nezvinyorwa zvekurapa panzvimbo imwe chete zvinoreva kuti vanachiremba vanogona kukurukura zviri nyore nezvedambudziko rako uye kugadzira hurongwa hwakanakisa hwekurapa. Unogonawo kudzidza nezvekurapa kutsva kana miedzo yekiriniki.
Ndichiri kuda chiremba wemhuri yangu here?
Ehe, zvechokwadi. Kunyangwe uine hATTR, chiremba wako wekutanga akakosha zvikuru. Ndiye musimboti wehutano hwako. Zvakakosha zvikuru kuva nekutaurirana kwakanaka pakati pechikwata chako chenyanzvi nachiremba wemhuri yako . Usakanganwa kuzivisa chiremba wemhuri yako nezve zvese zvawakaona, zvawakarapwa, zvawakaongororwa, nezvimwewo. Zvakare, ipa makopi emishumo yako yenyanzvi kuna chiremba wemhuri yako.
Ndingaronga sei kurapwa kwangu navanachiremba vakawanda?
Kunyange zvazvo izvi zvingaita sedambudziko, zviri nyore kwazvo kana ukaronga pachine nguva.
- Chengeta faira rako wega: Chengeta mishumo yako yese yekuongororwa, mishonga yekunyora, uye mirairo mufaira rimwe chete. Chengeta bhuku rekiriniki.
- Ramba uchiziva zvese: Udza chiremba wese waunoona nezvezviratidzo zvitsva zvaunotanga, kana kana chiratidzo chekare chikawedzera.
- Bvunza mibvunzo: Kana paine chausinganzwisisi, usatya kubvunza chiremba wako zvakare. Zvakakosha kuti unzwisise chirwere chako uye marapirwo acho zvakanaka.
Ndingasarudza sei chiremba akakodzera ini?
Unofanira kuva nehukama hwakanaka nachiremba ari kukurapa, nekuti rwendo urwu rurefu.
Ikodzero yako kusarudza chiremba anokuteerera, anokubata neruremekedzo, uye anonzwisisa zvauri kutaura.
Ungada chiremba ane zera rako. Kana kuti, ungada mumwe munhu anotsanangura zvinhu nenzira yaunogona kunzwisisa. Paunenge uchitarisana nedambudziko renhaka rakadai, zvakakosha kuona chiremba anogona kukutungamira kuti rinokanganisa sei vamwe vemhuri uye kuti vangada kuongororwa sei.
Kana usinganzwe wakasununguka nachiremba wekutanga waunoona, usazvidya mwoyo nazvo. Kune vamwe vanachiremba vakanaka vanokunakira uye vanonzwisisa zvaunoda. Tsvaga chiremba akakodzera iwe.
Mharidzo Yekuenda Nayo Kumba
- hATTR amyloidosis chirwere chinokanganisa nhengo dzakawanda mumuviri, saka uchada rutsigiro rwechikwata chevanachiremba vane hunyanzvi mumabasa akasiyana-siyana.
- Danho rekutanga murwendo rwako rinofanira kunge riri rekuona chiremba wemhuri yako (GP). Iye achakutumira kune nyanzvi dzakakodzera.
- Zvakakosha kuchengetedza kutaurirana kwakanaka pakati pevanachiremba vese vanokurapa. Chengeta zvinyorwa zvako zvese zvekurapa zviri mushe.
- Tora nguva yekutsvaga chiremba anokuteerera, anokuremekedza, uye anokutsanangurira zvinhu zviri nyore. Kutsvaga kurapwa nachiremba waunonzwa wakasununguka naye uye waunovimba naye kwakakoshawo pahutano hwepfungwa dzako.
- Yeuka kuti hausi wega uri parwendo urwu. Nekutungamirirwa nechikwata chevanachiremba chakakodzera, unogona kurarama nechirwere ichi zvinobudirira.
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