Ungave wakaona kuti musoro wemwana wako wakakura zvishoma kupfuura vamwe vacheche vezera rake, handiti? Pamwe ngowani nemabhandi emusoro zvinopfekwa nemwana wako zvidiki zvekuti zvakaoma kuwana saizi yakakodzera zera rake. Izvi zvinongoitikawo here, kana kuti chimwe chinhu chatinofanira kunetseka nacho? Nhasi tiri kutaura nezvechirwere chinonzi ``Megalencephaly'', chinozivikanwawo se``Macrencephaly'', chingave chakakosha kwauri panguva yakaita seiyi.
Saka chii chinonzi "Megalencephaly" iyi?
Zvichitaurwa zviri nyore, ``Megalencephaly`` chirwere chinoita kuti uropi hwemwana wako hukure zvisingawanzoitiki . Izvi zvinowanzovapo pakuzvarwa. Chinoitika pano ndechekuti uropi pachahwo hunorema zvakanyanya. Kureva kuti, uropi hunorema kupfuura zvaitarisirwa zvichienderana nezera remwana nehukuru hwemuviri wake.
Chimwe chezviratidzo zvekutanga zveizvi chingave musoro wakakura zvisingawanzoitiki. Mwana wako angasakwanisa kupfeka ngowani kana mabhandi emusoro anoenderana nezera rake nekuti madiki zvakanyanya.
Kuva nepfungwa huru dzimwe nguva kunogona kukanganisa kukura kwemwana. Izvi zvinoreva kuti anogona kusangana nekunonoka kukura. Semuenzaniso, anogona kunonoka kupfuura zvaitarisirwa kutaura mazwi ake ekutanga, kukambaira, kana kufamba.
Kazhinji, chirwere ichi chinonzi ``Megalencephaly`` chinoitika pamwe chete nezvimwe zvirwere. Chikonzero chikuru cheizvi inyaya yekuchinja kwemajini.
Ndedzipi mhando huru dze `(Megalencephaly)`?
Kune mhando nhatu huru dzechirwere ichi:
1. Primary Megalencephaly: Izvi zvinozivikanwawo seBenign Familyal Megalencephaly kana Idiopathic Megalencephaly. Muchiitiko ichi, mwana ane uropi hwakakura, asi hapana zvimwe zviratidzo kana matambudziko etsinga. Kazhinji, mumwe wevabereki kana vese vanogonawo kuva nemusoro wakakura. Saizi yemusoro wemwana wako inogona kuwedzera zvishoma nezvishoma kusvika ava nemwedzi gumi nemisere, mushure mezvo inogona kugadzikana.
2. Megalencephaly yeMetabolic: Izvi zvinokonzerwa nekukanganisa kwekuberekwa nako mumetabolism, boka rezvirwere zvemajini zvinokanganisa mashandiro anoita miviri yedu chikafu.
3. Anatomic Megalencephaly: Rudzi urwu runokonzerwa nekuchinja kwemajini kunokanganisa kukura kwetsinga dzemwana. Izvi zvinoonekwa sechirwere chetsinga. Chirwere chinonzi Megalencephaly chinowanzoonekwa sechiratidzo chechirwere chiripo murudzi urwu.
Chiremba ari kurapa mwana wako angangosarudza rudzi rwe megalencephaly zvichienderana nekuti divi reuropi (hemisphere) rakakura kupfuura zvaitarisirwa:
- Megalencephaly yedivi rimwe chete (Hemimegalencephaly / Megalencephaly yedivi rimwe chete):Chinoitika apa ndechekuti divi rimwe chete reuropi rinokura kupfuura rimwe.
- Bilateral Megalencephaly: Izvi zvinokanganisa mativi ese europi. Bilateral zvinoreva "mativi ese."
Ndezvipi zviratidzo zvechirwere ichi?
Zviratidzo zve megalencephaly zvinogona kusiyana. Vamwe vana vanogona kunge vasina zviratidzo uye musoro wavo wakakura. Zvisinei, vamwe vana vanogona kuona zviratidzo zvakaita se:
- Kunonoka kukura: Kunonoka kwezvinhu zvakaita sekutaura nekufamba, sezvatatotaura.
- Pfari (`Kubatwa nepfari` / `Pfari`): Izvi zvinoreva mamiriro ezvinhu akafanana nepfari.
- Matambudziko etsinga: Kusashanda zvakanaka kweuropi nemusana.
Dzimwe nguva, megalencephaly inogona kuitika yoga pasina zviratidzo. Dzimwe nguva, inogona kuitika pamwe chete nemamwe matambudziko etsinga uye kuremara kwekuzvarwa. Muzviitiko izvi, megalencephaly inokonzerwa nechimwe chirwere kana mamiriro acho.
Zvimwe zviratidzo zvinogona kuonekwa ndeizvi:
- Musoro mukuru kana usina kuenzana.
- Kuremara kwepfungwa.
- Kuoma kwekufamba uye kuenzana.
- Kuomarara kwemhasuru kana kushaya simba.
- Kuchinja kwemaonero.
Saka, chii chinokonzera izvi?
Megalencephaly inokonzerwa nekusakwana kwemasero europi hwemwana wako. Zvinofungidzirwa kuti inokonzerwa nekusiyana kwemajini .
Maitiro anoitwa kuti ma neuron matsva, kana kuti masero etsinga, aumbwe mumiviri yedu anonzi `(Neuron proliferation)`. Kazhinji, muviri wedu unotonga maitiro aya, uchigadzira masero muhuwandu hwakakodzera, panguva chaiyo. Asi mumwana ane `(Megalencephaly)` masero aya anogadzirwa zvakanyanya, kana kuti haaende kunzvimbo dzakakodzera. Izvi zvinogona kuitika mwana achiri kukura mudumbu kana sechikamu cheimwe chirwere.
Ndezvipi zvimwe zvirwere zvinogona kuitika nechirwere ichi?
Megalencephaly inogona kuitika pamwe chete nezvimwe zvirwere zvakawanda uye syndromes, zvichienderana nerudzi rwayo uye kwakabva majini.
Zvirwere zvine chekuita neAnatomic Megalencephaly:
Rudzi urwu rwechirwere runowanzoonekwa sechiratidzo chezvirwere zvinotevera:
- `(Achondroplasia)`
- `(Bannayan-Riley-Ruvalcaba syndrome)`
- `(Greig cephalo-polysyndactyly syndrome)`
- `(Opitz–Kaveggia syndrome)`
- `(Pretzel syndrome)`
- `(Simpson-Golabi-Behmel syndrome)`
- `(Sotos syndrome)`
- `(Weaver syndrome)`
Zvirwere zvine chekuita neMegalencephaly yemasero:
Mwana wako anogona kunge aine chirwere chemegalencephaly pamwe nekukanganisa kwemuviri wake pakugadzirwa kwezvokudya. Aya matambudziko emuviri anopwanya chikafu uye anoshandisa simba. Izvi zvinogona kusanganisira zvirwere zvakaita se:
- Kusarongeka kwema organic acids (`Organic acidurias`).
- Kurwara kwemasero eropa, zvakaita sechirwere cheCanavan nechirwere cheAlexander.
- Zvirwere zvekuchengetwa kwezvirimwa zveLysosomal, zvakaita sechirwere cheTay-Sachs nechirwere cheSandhoff.
Ndiani ari panjodzi huru yeizvi?
Chirwere chinonzi ``Megalencephaly'' chinogona kubata chero mwana. Asi chinowanzoitika muvakomana . Mune zvimwe zviitiko, chinogona kutorwa kubva kumhuri yako, kana kuti chinogona kuitika "nguva nenguva" pasina chikonzero chakajeka.
Chirwere ichi chinoonekwa sei? (`Kuongororwa`)
Chiremba wemwana wenyu anogona kufungira kuti ane chirwere chemegalencephaly mushure mekumuongorora uye kumuita bvunzo shoma. Pakumuongorora, chiremba achayera denderedzwa remusoro wemwana wenyu netepi yekuyera. Zvadaro, vachaenzanisa chiyero ichocho nehukuru hwemwana hwezera rake, murume kana mukadzi, uye kureba.
Pamusoro pezvo, chiremba anogonawo kuraira kuti vaongorore uropi hwemwana, zvakaita seMRI, kuti vaone kana paine zvinhu zvisina kumira zvakanaka.
Funga nezvazvo nenzira iyi: MRI yakafanana nekutora mufananidzo wemukati meuropi. Izvi zvinoita kuti chiremba akwanise kuona zvakajeka chimiro, saizi, uye chero shanduko dziri muuropi.
Kana chiremba wako achifungidzira kuti pane chimwe chirwere chiripo pamwe chete ne megalencephaly, angangoda kuita mimwe miedzo kuti asimbise chirwere chacho. Mimwe miedzo iyi inogona kusanganisira:
- Kuongororwa kweropa.
- Kuongororwa kweweti.
- Kuongororwa kwemajini.
Dambudziko iri rinowanzoonekwa riini?
Dzimwe nguva, vabereki navanachiremba vanoona kuti musoro wemwana wakakura, kungava mushure mekuzvarwa kana mukati memwedzi mishoma yekutanga. Chirwere ichi (megalencephaly) chinogonawo kukura mwana achikura, kazhinji panguva yehucheche nemwana achiri mudiki.
Dzimwe nguva, kunyangwe panguva yekuongorora ultrasound panguva yekuzvitakura, unilateral megalencephaly (kukura kwerutivi rumwe chete rweuropi) inogona kuonekwa.
Ndezvipi zvinorapwa izvi?
Parizvino hapana mushonga we megalencephaly. Zvisinei, kune mishonga inogona kubatsira mwana wako kugadzirisa zviratidzo zvake. Zvichienderana nezviratidzo zvemwana wako, chiremba wako anogona kukurudzira zvinotevera:
- Kana paine pfari, mishonga yekudzivirira pfari inopiwa kana, kana zvichidikanwa , kuvhiyiwa kwepfari kunoitwa.
- Kutora chikamu mukurapa kwakadai sekurapa nekuona, kurapa nemuviri, kurapwa nebasa, kana kurapa nekutaura.
- Kunyoresa muzvirongwa zvekupindira nekukurumidza kana makosi edzidzo yakakosha kuchikoro.
Ndiani achave muchikwata chekuchengeta mwana wako?
Chikwata chakasimba chekuchengeta mwana chichavepo kuti chibatsire mwana wako kubata zviratidzo zve megalencephaly. Chikwata ichi chinogona kusanganisira:
- Vanachiremba vevana.
- Vanachiremba vetsinga.
- Vanachiremba vepfungwa.
- Nyanzvi dzebudiriro.
- Varapi vekutaura, vemabasa uye vemuviri.
Ramangwana remwana richava rakaita sei nemamiriro ezvinhu aya?
Maonero emwana wako anoenderana nezvinhu zvakawanda. Semuenzaniso, kuti zviratidzo zvacho zvakakomba sei uye kuti chii chinokonzera. Mwana wako angasava nezvimwe zviratidzo kunze kwekunge musoro wake wakura zvishoma. Kana kuti, zviratidzo zvacho zvinogona kukanganisa kukura kwemwana wako. Semuenzaniso, angada rubatsiro rwakawedzerwa pamabasa ezuva nezuva kana kuti angada rubatsiro pakudzidza kuchikoro.
Chinhu chinonyanya kukosha ndechekuti mwana wese akasiyana. Saka, chiremba anorapa mwana wako chete ndiye anogona kukupa ruzivo rwakanyatsojeka nezvemamiriro emwana wako uye remangwana rake.
Ndeipi nguva yekurarama ne `(Megalencephaly)`?
Kana chirwere chacho chisina kunyanya kuipa, kureva kuti, kana chiri chidiki, chingasave nemhedzisiro yakakura pahupenyu hwemwana. Zvisinei, zvichienderana nechikonzero chacho, semuenzaniso, kana chirwere chacho chikaperekedzwa nechimwe chirwere chakakomba, hupenyu hwemwana hunogona kupfupika zvishoma. Zviratidzo zvakakomba, zvakaita sepfari, zvinogonawo kukanganisa ramangwana remwana. Chiremba wako anogona kukupa ruzivo nezvemamiriro emwana wako uye zvekutarisira sezvaanokura.
Pane nzira yekudzivirira mamiriro ezvinhu aya here?
Parizvino hapana nzira inozivikanwa yekudzivirira megalencephaly. Zvisinei, kana uchiziva kuti mumwe munhu mumhuri yako ane chirwere ichi kana kuti une fungidziro ine musoro, unogona kutaura nenyanzvi yezvemajini. Vanogona kukubatsira kuongorora njodzi yako yekuva nemwana ane megalencephaly.
Unofanira kuona chiremba rini?
Kana mwana wako aine zviratidzo zvitsva kana kuti zviri kuipa zve megalencephaly, udza chiremba wemwana wako. Zvakakoshawo kuchengeta chinyorwa chekukura kwemwana wako uye kuzivisa chiremba wako kana mwana wako asiri kuzadzisa matanho ekukura (semuenzaniso, kugara pasi asina rubatsiro, kutaura mashoko ekutanga) zvichienderana nezera rake.
Kana mwana wako akabatwa nepfari kekutanga, fonera vanopa rubatsiro rwekukurumidzira nekukasika.
Musiyano uripo pakati pe `(Macrocephaly)` ne `(Megalencephaly)` chii?
`(Macrocephaly)` inonziwo `(Megacephaly)` kana `(Megalocephaly)`, nekuti saizi yemusoro yakakura. Mu`(Macrocephaly)`, mwana anogona kunge aine musoro mukuru, asi hazvifanirwe kunge paine dambudziko nemaumbirwo ehuropi.
`(Megalencephaly)` (uropi hukuru) hunogona kukonzera `(Macrocephaly)` (musoro mukuru). Zvisinei, `(Macrocephaly)` inogonawo kukonzerwa ne `(hydrocephalus)` kana `(hydrocephalus)`. Zvichitaurwa zviri nyore, `(Megalencephaly)` inongova imwe chete inokonzera `(Macrocephaly)`.
Chii ichi chinonzi `(Megalencephaly-capillary malformation - MCAP)`?
Kukuvara kweganda, mitsipa yeropa, nhengo dzemuviri, uye nhengo dzeuropi (MCAP) idambudziko risingawanzoitika apo ganda, tsinga dzeropa, nhengo dzemuviri, uye nhengo dzeuropi dzinokura zvakanyanya.
Vanachiremba vanowanzo ongorora chirwere che `(MCAP)` pakuzvarwa. Vana vanozvarwa vaine `(MCAP)` vane zviratidzo izvi:
- Uropi hwakakura (`Megalencephaly`).
- Musoro mukuru (`Macrocephaly`).
- Kukanganisika kwetsinga dzeropa - Izvi zvisakarurama mutsinga diki dzeropa.
Chii ichi chinonzi `(Megalencephaly-polymicrogyria-polydactyly-hydrocephalus - MPPH)`?
Megalencephaly-polymicrogyria-polydactyly-hydrocephalus (MPPH) chirwere chinokanganisa kukura kweuropi hwemwana wako. Vanogona kunge vaine uropi hukuru (megalencephaly), uye hunogona kukura nekukurumidza mumakore maviri ekutanga ehupenyu. Izvi zvinogona kukanganisa kukura, kufamba, uye njere dzemwana.
Chekupedzisira, chinhu chinonyanya kukosha! (Mharidzo Yekuenda Kumba)
Kana musoro wemwana wako wakakura kupfuura muviri wake wese, zvakajairika kunetseka. Zvinogona kutora nguva kuti mwana wako amire ega kana kuti awane simba rekugara zvakanaka. Chikwata chekuchengeta mwana wako chichaita bvunzo kuti chione kuti sei uropi hwemwana wako hwakakura kupfuura zvaitarisirwa.
Yeuka, musoro mukuru hausi dambudziko guru nguva dzose. Mune zvimwe zviitiko, megalencephaly haina kuoma uye hapana chekunetseka nezvayo. Kune rumwe rutivi, vamwe vana vangada rubatsiro rwehupenyu hwavo hwese uye rutsigiro kuti vagadzirise zviratidzo zvavo. Chirwere ichi hachikanganisi mwana wese nenzira imwechete. Dzidza zvakawanda nezvekuongororwa kwemwana wako uye zvekutarisira mune ramangwana.Ruzivo rwakarurama rwaungawana runobva kuna chiremba ari kurapa mwana wako. Usatya kuvabvunza mibvunzo uye kutaura zvese zviri mupfungwa dzako.
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Megalencephaly , Macrencephaly, musoro mukuru, musoro wemwana mukuru, kukura kweuropi, zvirwere zvevana, zvirwere zvemajini, kunonoka kukura kwemwana.
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