Dumbu remwana wenyu rakakwinya here? Idambudziko rePrune Belly Syndrome here? Ngatizivei izvi.

Paunotarisa mwana wako achangoberekwa, wakaona here kuti ganda riri padumbu rake rakakombama sechibage? Kana kuti dumbu rake rinoita serakakura zvisingawanzoitiki? Zvakajairika kuti chero amai kana baba vatye pavanoona zvinhu izvi. Asi izvi zvinogona kuva chiratidzo chechirwere chisingawanzoitiki chinonzi Prune Belly Syndrome. Usazvidya mwoyo, tichataura nezvese zvakajeka uye zviri nyore.

Chii chinonzi Prune Belly Syndrome?

Zvichitaurwa zviri nyore, chirwere chePrune Belly Syndrome chirwere chisingawanzoitiki chinowanikwa pakuzvarwa (congenital). Zita iri rinobva pakuti ganda riri mudumbu revana ava rinoita serakakwenyana uye rinoita seprune. Izvi zvinokonzerwa nezvinhu zvitatu zvikuru.

1. Tsandanyama dzemudumbu dzisina simba kana kuti dzisiripo: Tsandanyama dzemudumbu dzemwana hadzisati dzanyatsokura, izvo zvinoita kuti ganda riri padumbu riite serakatetepa uye rakakwenya.

2. Machende asina kudzika: Muvakomana, machende haana kuburuka kubva mumuviri achienda mudumbu maanofanira kunge ari.

3. Matambudziko ehurongwa hweweti: Pane matambudziko nemaumbirwo ehurongwa hweweti hwemwana, kureva itsvo nedundira.

Kuwedzera kune matambudziko matatu aya makuru, chirwere ichi chinogonawo kukanganisa dzimwe nhengo dzemuviri wemwana. Semuenzaniso, moyo, mapapu, ura, uye mapfupa zvinogona kukanganiswa. Izvi zvinonziwo Triad Syndrome kana kuti Eagle-Barrett Syndrome.

Dambudziko iri rakajairika zvakadii?

Ichi chirwere chisingawanzoitiki. Chinobata mwana mumwe chete pavana vacheche 30,000 kusvika 40,000. Chinonyanya kushamisa ndechekuti 95% yezviitiko zvechirwere ichi zvinoshumwa muvakomana .

Ndezvipi zviratidzo zvikuru zvechirwere ichi?

Kune zviratidzo zvinopfuura makumi mashanu zvePrune Belly Syndrome. Zvisinei, zviratidzo izvi zvinogona kusiyana kubva pamwana kusvika pamwana. Chiremba wako achaongorora mwana wako uye oita bvunzo dzinodiwa kuti asimbise chirwere chacho.

Ngatitarisei zvimwe zvezvinhu zvikuru zvinowanzoonekwa.

Sei izvi zvichiitika? Chikonzero chacho ndechei?

Vaongorori havasati vawana chikonzero cheizvi, asi kune dzidziso dzakawanda dzinoratidza kuti zvinogona kunge zviri izvo zvinokonzera.

• Matambudziko edundira: Vamwe vanhu vanofunga kuti dambudziko iri rinokonzerwa nekusarongeka kwedundira kunoitika mwana achiri kukura mudumbu. Weti haigone kufamba zvakanaka uye inoungana, zvichiita kuti dundira, ureter, neitsvo zvizvimbe. Dundira parinokura, rinoisa kumanikidzwa pamhasuru dzemudumbu, zvichiita kuti dzisashande zvakanaka.
• Dambudziko rekukura kwetsandanyama: Vamwe vanotenda kuti chikonzero chikuru ndechekuti tsandanyama dzemudumbu remwana hadzisi kukura zvakanaka.
• Zvikonzero zveMajini: Zvinotendwa kuti chirwere ichi chinogona kunge chine simba remajini, sezvinoonekwa muhama nehanzvadzi. Prune Belly Syndrome inowanikwawo muvana vane zvirwere zvemajini zvakaita seTrisomy 18 (Edwards syndrome) uye Down syndrome (Trisomy 21).

Ndezvipi zvinetso zvinogona kuitika nekuda kwechirwere ichi?

Kune migumisiro yakawanda nematambudziko anokonzerwa nePrune Belly Syndrome. Inosiyana kubva pamucheche kuenda kumucheche. Aya ndiwo matambudziko makuru anogona kuonekwa.

• Kuzvimba: Kutadza kubuda tsvina nekuda kwekusasimba kwetsandanyama dzemudumbu.
• Kuremara kwemapfupa: zvinhu zvakaita sekubuda kwehudyu, kushaya maoko, zvigunwe, kana zvigunwe.
• Zvirwere zvemunzira yeweti: Kuwanikwa kwezvirwere zvemunzira yeweti kakawanda (UTIs).
• Kushaya mbereko kana kenza: Kukundikana kuburuka muchibereko kunogona kukonzera kusabereka kana njodzi yekenza mune ramangwana.
• Kuderera kwekukura kwemapapu: Mapapu haasi kukura zvakanaka (pulmonary hypoplasia).
• Kutadza kushanda zvakanaka kweitsvo nguva dzose: Iri ndiro dambudziko guru.

Nzira yekuongorora chirwere ichi sei?

Kazhinji, chirwere ichi chinogona kuonekwa nekukurumidza panguva yekuongororwa (fetal ultrasound) kwaunoita panguva yekuzvitakura. Kuongororwa uku kunobvumira chiremba kuona mwana:

• Kusagadzikana kwemapfupa kana tsandanyama
• Matambudziko emwoyo
• Kukura kwemapapu kwakaderera
• Matambudziko ekugaya chikafu
• Dundira rakazvimba.
• Itsvo dzakakura.

Mushure mekunge mwana azvarwa, chiremba anogona kufungidzira kuti mwana ane chirwere ichi nekungomutarisa chete. Kuti asimbise fungidziro iyoyo, bvunzo dzinoverengeka dzinogona kuitwa, dzakadai se:

• Kuongororwa kweropa
• Kuskena kweUltrasound
• X-ray
• Kuongororwa kweCT
• Kuongororwa kweMRI
• Kuvhiyiwa kwecystourethrogram (VCUG) - Izvi zvinosanganisira kubaya jekiseni remvura yakakosha mudundira uye kutora X-rays mwana achiri kuita weti kuti aone mashandiro ehurongwa hweweti.

Inorapwa sei?

Kurapwa kweizvi kunosiyana kubva pamwana mumwe kusvika mumwe. Chikwata chenyanzvi chichashanda pamwe chete kugadzira hurongwa hwakakodzera hwekurapa mwana. Izvi zvichatarisa zvinhu zvakawanda, zvinosanganisira zera remwana, hutano hwake, kuoma kwechirwere ichi, uye zvinodiwa nevabereki vake.

• Zvirwere zvisina kunyanya kuipa: Vamwe vana vane zviratidzo zvisina kunyanya kuipa vanogona kubatsirwa nemishonga inorwisa mabhakitiriya chete kudzivirira kana kurapa zvirwere zvemunzira yeweti.
• Kuvhiyiwa: Zvisinei, vana vazhinji vachada kuvhiyiwa kakawanda kuti vagadzirise madziro edumbu, nhengo dzesikarudzi, dundira, nedzimwe nzvimbo dzeweti.

Aya ndiwo mamwe emhando huru dzekuvhiyiwa dzinoitwa:

• Vesicostomy: Kaburi kadiki kanogadzirwa nedumbu kachipinda mudundira, zvichiita kuti weti ibude nepariri.
• Orchiopexy: Machende anodzikiswa kubva mumuviri woiswa mudumbu.
• Kubvisa mavanga etsinga:Kuvhiyiwa kwakaoma kunovakazve dundira zvachose.

Muzviitiko zvakakomba, mwana anogonawo kudiwa kuisirwa itsvo .

Ramangwana revana ava richave rakaita sei?

Nguva yekurarama kwevana ava inoenderana nekuoma kwechirwere ichi. Zvinosuwisa kuti pakati pe10% ne25% yevana vanoberekwa vaine chirwere ichi vanofira mudumbu kana kufa nezvirwere mukati memavhiki mashoma ekutanga ehupenyu hwavo.

Zvisinei, vana vanosvika 40% vane chirwere chePrune Belly Syndrome vane mashandiro akanaka eitsvo uye vanogona kurarama hupenyu hwakajairika.

Vamwe 30% vachada kuisirwa itsvo pane imwe nguva muhupenyu hwavo.

Ndeipi nguva dzakanakisa dzekuona chiremba?

Vana vane chirwere chePrune Belly Syndrome vari panjodzi huru yekutapukirwa nehutachiona hwemudumbu (UTIs), saka kana ukaona zviratidzo zvehutachiona hwemudumbu, fonera chiremba wako nekukasika.

Pamusoro pezvo, tsvaga rubatsiro rwechiremba kana mwana wako aine dambudziko rekuita weti kana kuratidza zvimwe zviratidzo zvisingawanzoitiki. Zvakakoshawo kuti mwana wako aendeswe kunoongororwa nachiremba kanenge kamwe chete pagore .

Kuchengeta mwana akazvarwa aine chirwere ichi kunogona kuoma. Asi yeuka kuti hausi wega. Kushanda nachiremba nechikwata chenyanzvi dzine ruzivo nezvechirwere ichi kunogona kukupa iwe nemwana wako simba nenhungamiro yavanoda.