Mwana wenyu anowanzo nyunyuta kuti gumbo rake, ruoko, kana musana zvinorwadza here? Dzimwe nguva tinofunga kuti ingori nyaya yekungomhanya-mhanya kana "kurwadziwa kuri kukura." Asi kana kurwadziwa uku kukagara kwemazuva kana mavhiki, kwopera mushure memazuva mashoma, kwozodzoka, tinofanira kunetseka zvishoma. Nhasi tichataura nezvechirwere chisingawanzoitiki asi chakakosha chinogona kukonzera kurwadziwa kwemapfupa kunoramba kuchiitika.
Zvichitaurwa zviri nyore, chii chinonzi CRMO?
Chirwere cheChronic Recurrent Multifocal Osteomyelitis, chinozivikanwawo seCRMO, chirwere chinokonzerwa ne autoimmune . Iye zvino ungave uchishamisika kuti chii. Funga nezve immune system yemuviri wedu seuto rinodzivirira nyika. Basa reuto iri nderekutidzivirira kubva kuzvirwere nekurwisa vavengi vekune dzimwe nyika, senge mavhairasi nemabhakitiriya.
Asi muchirwere che autoimmune, masoja edu ekudzivirira muviri anoita chikanganiso uye anorwisa nhengo dzine hutano dzemuviri wedu pachinzvimbo chevanopinda nechisimba kubva kune dzimwe nyika. MuCRMO, "kurwisa kusina kururama" uku kunonangidzirwa pamapfupa edu. Masoja ekudzivirira muviri, pasina chikonzero chakajeka, anorwisa pfupa rimwe kana kupfuura mumuviri, zvichikonzera kuzvimba, uko kuri kuzvimba nekurwadziwa.
Chinhu chakakosha ndechekuti chirwere ichi hachikonzerwi nehutachiona hwebhakitiriya. Ndosaka chichinziwo Chronic Nonbacterial Osteomyelitis (CNO) . CRMO imhando yeCNO yakanyanya kuoma.
Pane chikonzero chaicho chekuumbwa kweCRMO here?
Kutaura zvazviri, vanachiremba havasati vaziva kuti chii chinokonzera CRMO. Haikonzerwi nehutachiona hwebhakitiriya kana hwehutachiona. Ingori masoja emuviri ari kushanda pasina chikonzero chakajeka.
Zvisinei, pane fungidziro yekuti panogona kunge paine hukama hwemajini neizvi. Dzimwe nguva, nhengo dzinoverengeka dzemhuri imwe chete dzakataurwa kuti dzine chirwere ichi. Zvisinei, kutsvagurudza kwakawanda kunodiwa pane izvi.
Sevabereki, chimwe chezvinonyanya kutyisa chamungave nacho ndechekuti zviratidzo izvi zvine chekuita nekenza here. CRMO haisi kenza . Zvisinei, inogona kuva nezviratidzo zvakafanana nezvimwe kenza yemapfupa, saka zvakakosha kuona chiremba kuti aonekwe nemazvo.
Ndiani ane mukana mukuru wekuwana chirwere ichi?
CRMO inonyanya kuonekwa muvana nevechidiki.Chirwere ichi chinowanzoonekwa pazera remakore ari pakati pe9-10. Chirwere ichi chinowanzoitika zvishoma kuvasikana kupfuura vakomana.
Ichi hachisi chirwere chinowanzoitika, asi sezvo vanachiremba neveruzhinji vava kuziva nezvechirwere ichi, huwandu hwevanhu vari kuonekwa vaine chirwere ichi hwawedzera zvishoma.
Ndezvipi zviratidzo zvikuru zveCRMO?
CRMO inogona kukanganisa chero pfupa mumuviri. Asi inowanzo kanganisa mapfupa marefu emakumbo evana, mahudyu, nemusana . Zviratidzo zvinogona kungoerekana zvabuda, zvopera mushure memazuva mashoma, zvozodzoka. Izvi zvinonzi kuputika uye kuregerera.
Ngatitarisei zviratidzo zvikuru zvakaita seizvi.
| Chiratidzo | Tsananguro Iri Nyore |
|---|---|
| Marwadzo | Ichi ndicho chiratidzo chikuru uye chinowanzoonekwa. Marwadzo anoitika mumapfupa akakanganiswa kana munzvimbo yakapoteredza. |
| Kuzvimba kwemajoini | Mapfundo ari pedyo nepfupa rakakanganiswa anozvimba uye anorwadza, zvakafanana nearthritis. |
| Kuremara kwemapfupa | Chirwere ichi chinogona kukanganisa ma "growth plates" emwana. Ma "growth plates" ndiwo nzvimbo dzinokura mapfupa mwana paanokura. Kana akakuvara, mapfupa anogona kukura zvisina kujairika (semuenzaniso, gumbo rimwe rinogona kuva pfupi pane rimwe). |
| Kukura kwakanonoka | Dzimwe nguva, kunyangwe pasina kurwadziwa, kukura kwemwana kunogona kusakurumidza sezvaitarisirwa. |
| Kuneta kakawanda | Munguva dzekuwedzerwa kwezviratidzo, mwana anogona kugara achingonzwa kuneta uye kuneta. |
| Kuwanda kwenjodzi yekutyoka kweganda | Mapfupa asina simba nekuda kwekuzvimba anogona kutyoka kunyangwe kana paine kukuvara kudiki, kunyanya kana musana wacho wakanganiswa. |
Nzira yekuongorora chirwere cheCRMO nemazvo sei?
Nekuti ichi chirwere chisingawanzoitiki, dzimwe nguva kuongororwa kwacho kunogona kuoma. Chiremba achaongorora mwana wako zvakakwana uye achakubvunza nezvezviratidzo zvako. Zvinogona kutora mwedzi yakati wandei kana kutopfuura gore kuti chirwere chionekwe.
Kuongororwa kwakawanda kunoitwa kuti kusimbiswe kuti chirwere chacho chawanikwa here.
- Miedzo yekufungidzira: Miedzo yakaita seX-rays uye MRI scans inogona kuratidza zvakajeka kuzvimba nedzimwe shanduko mumapfupa.
- Kuongororwa kweropa: Izvi zvinobatsira kuona huwandu hwekuzvimba mumuviri (senge ESR, CRP) uye kuona kuti hapana zvimwe zvirwere kana hutachiona.
- Kuongororwa kwemajini: Mune zvimwe zviitiko, bvunzo idzi dzingadiwawo kuti pasave nezvimwe zvirwere zvemajini.
Ndeapi marapirwo eCRMO?
Panguva ino, hapana mushonga weCRMO . Asi musazvidya mwoyo. Mishonga iripo inogona kudzora zviratidzo, kuderedza kuzvimba, uye kubatsira mwana wenyu kurarama hupenyu hwakajairika .
Chiremba anogona kukurudzira nzira dzinotevera dzekurapa:
- Mishonga isingashandisi masteroidal inorwisa kuzvimba (NSAIDs): Iyi ndiyo mishonga inoderedza marwadzo uye inorwisa kuzvimba yatinoziva tese, seIbuprofen. Iyi ndiyo nzira yekutanga yekurapa. Vana vanosvika 50% vanopindura zvakanaka kune iyi mishonga. Zvisinei, kana ukatora mishonga iyi kwenguva yakareba, chiremba wako anogara achiongorora mashandiro eitsvo nechiropa chako.
- Mishonga inogadzirisa chirwere (DMARDs): Kana mishonga yeNSAIDs yoga isingadzore chirwere ichi, boka iri remishonga ndiro boka rinotevera remishonga rinoshandiswa. Mishonga iyi inoshanda nekudzvinyirira masoja emuviri kusvika pamwero wakati, zvichibatsira kumisa kurwiswa kusiri iko kunokonzera chirwere ichi. Usati watanga mishonga iyi, chiremba wako achakutsanangurira zvese zvakanakira nezvakaipira.
- Kuchinja kwemararamiro:Munguva yekurwadziwa, mwana wako angangoda kuderedza mabasa ake ekumhanya nekusvetuka. Nyanzvi yezvekurovedza muviri kana nyanzvi yezvemabasa inogona kukubatsira kudzidza maitiro ekuita mabasa ezuva nezuva nekurwadziwa, kusanganisira maekisesaizi.
Pane zvimwe zvirwere zvinogona kuitika pamwe chete neCRMO here?
Ehe, vana vane CRMO vari panjodzi yekuve nezvimwe zvirwere zvakasiyana-siyana zve autoimmune.
- Chirwere cheInflammatory Bowel Disease (IBD): Ichi chirwere chinokonzerwawo nemasoja emuviri anorwisa masisitimu ekugaya chikafu.
- Psoriasis: Ichi chirwere chinokanganisa ganda.
- Marwadzo emapfupa nemapfupa akawedzera: Ichi chirwere chakaoma zvishoma. Kunyangwe kana CRMO yapera, panogona kunge paine marwadzo emhasuru anoramba aripo nekuda kwechikonzero chisingatsananguriki. Marwadzo aya haabviswi nemishonga inorapa marwadzo.
Chii chinonzi fungidziro yechirwere ichi?
Mashoko akanaka ndeekuti varwere vanosvika 40% vanowana zororo mukati megore rimwe kusvika mashanu ekutanga ekurapwa. Izvi zvinoreva kuti marwadzo nezvimwe zviratidzo zvinopera zvachose, pasina kuzvimba kana kusashanda zvakanaka kwemasoja emuviri. Mwana anogona kurarama hupenyu hwakajairika, hune simba.
Zvisinei, kunyangwe chirwere chacho chikarapwa zvachose, kutarisirwa nachiremba nguva dzose kwakakosha zvikuru. Uchafanira kuramba uchienda kukiriniki uchitarisirwa nachiremba wemapfupa. Ungangodawo kuita bvunzo dzakadai seMRI scans kuti uone kana chirwere chacho chadzokazve. Izvi zvinodaro nekuti vanhu vanosvika 50% vanodzokera shure mumakore maviri ekutanga mushure mekumira kurapwa. Kana izvozvo zvikaitika, uchafanirwa kutanga kurapwa zvakare.
Mharidzo Yekuenda Nayo Kumba
- CRMO chirwere apo masoja emuviri anorwisa mapfupa emuviri zvisiri izvo. Hachisi chirwere chebhakitiriya kana kenza.
- Kana mwana achirwadziwa mapfupa ake nguva nenguva, kunyanya mumakumbo, muhudyu, kana kumusana, usazvifuratira se "zvakajairika."
- Kunyange hazvo pasina mushonga wakakwana wechirwere ichi, kune mishonga inoshanda zvikuru inogona kudzora zviratidzo uye kubvumira mwana kurarama hupenyu hwakajairika, hune simba.
- CRMO inogona kutora nguva kuti iongororwe, saka zvakakosha kuva nemoyo murefu uye kushanda pamwe chete nachiremba wako.
- Kana musina chokwadi nezvekurwadziwa kwemwana wenyu kana zvimwe zviratidzo, tsvagai rubatsiro rwechiremba nekukasika.
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