Ngexesha elifanelekileyo ebomini bakho, xa usesikolweni, ekhampasini, usemsebenzini olungileyo, kwaye uphupha ngokuba nosapho, ngaba uhlala ufumana iintlungu zomqolo ezingapheliyo nezibuhlungu ezingavakaliyo? Mhlawumbi le ntlungu iqala esinqeni sakho ize ihambe kancinci kancinci iye phezulu emgogodleni wakho, icinezele intamo yakho? Oku kudla ngokuba sisiqalo semeko ebizwa ngokuba yi-Ankylosing Spondylitis (AS). Ichaphazela abantu abaninzi abaselula abasaqalayo ebomini. Kodwa kukho abo, endaweni yokuyeka ubomi ngenxa yale ntlungu, balwa nayo baze bafezekise amaphupha abo. Namhlanje siza kuthetha ngabantu abambalwa abanjalo.
'Ndiyazixabisa nezinto ezincinci ngoku' - ibali likaJake
UJake wayengumdlali obalaseleyo esikolweni nasekhampasini. Ngoko ke ekuqaleni wathi iintlungu zakhe eziqatha nezingapheliyo zibangelwa kukwenzakala kwezemidlalo. Kodwa ngenye imini, wayemamele i-podcast malunga nezifo zokuzikhusela komzimba.
“Iimpawu ezikhankanyiweyo ziyafana nezo bendisoloko ndinazo,” utshilo uJake.
Ngamafutshane , isifo sokuzikhusela komzimba sisifo apho inkqubo yomzimba yokuzikhusela, ekufanele ukuba ikhusele imizimba yethu, iqala ngempazamo ukuhlasela iiseli zomzimba wethu. I-Ankylosing Spondylitis yenye yezo zifo.
Emva kweeveki ezimbini, uJake wafunyaniswa ene-AS xa wabona ugqirha wezifo zamathambo. Kwakumnandi ukwazi ukuba yintoni ebangele ukubandezeleka kwakhe kangangeminyaka emininzi, kodwa intlungu yayisekhona. Ngezinye iintsuku, intlungu yayisiba mbi kangangokuba kwafuneka alaliswe esibhedlele izihlandlo ezihlanu okanye ezintandathu ngexesha lesemester yakhe yokuqala yesikolo somthetho.
Kodwa uJake akazange anikezele. Omnye umntu kwi-podcast uthe waziva ekhululekile xa watshintshela ekutyeni inyama kuphela. UJake wagqiba ekubeni azame.
"Ndilandele indlela yokutya ngokuchanekileyo. Nditye inyama namanzi kuphela. Okumangalisayo kukuba, emva kweveki, iintlungu endandiziva zazinciphile kakhulu. Ulusu lwam lwalubomvu ngenxa yokudumba, kwaye nalo lwaluphelile," utshilo uJake.
Kodwa nantsi into ebalulekileyo ekufuneka siyiqonde sonke. Olu hlobo lokutya alufanelekanga kuye wonke umntu. Akuyonto ilungileyo ukutsiba kwinto efana nale ngaphandle kokuthetha nogqirha wakho. Kuba ungagqibela uphulukene nomzimba wakho uninzi lwezondlo ozidingayo. Ngoko ke , qiniseka ukuba ubuza ugqirha wakho ngaphambi kokuba wenze nantoni na.
UJake wayenenye ingxaki. Iintlungu zakhe zanda xa ehleli esitulweni eklasini imini yonke. Ngoko ke wafumana isisombululo saloo nto. Yayiyindlela yokuzilolonga yemihla ngemihla awayezenzela yona.
- Ntsasa nganye, ndichitha imizuzu eli-15 edamini elibandayo elinamanzi abandayo afikelela entanyeni yam.
- Emva koko, wolula umsipha wakhe we-psoas, umsipha omde oqala emqolo wakhe ongezantsi ukuya ethangeni lakhe.
- Ndenza neyoga kunye nokuzilolonga ngokuphefumla kakhulu.
"Andikwazanga ukuphefumla kakuhle okwethutyana. Ndaqonda ukuba kuphela xa ndandikwazi ukolula izihlunu zam kancinci," utshilo uJake. "Kubuhlungu kakhulu xa ndisenza olu hlobo lokuzolula. Kodwa ukukhululeka endikuvayo emva koko kungaphezulu kakhulu kunokuba bekufanelekile."
UJake uthi ukuphila nentlungu akulula. Kodwa emva kokuba eyoyisile loo ngxaki, ngoku ucinga ngobomi ngendlela eyahlukileyo. "Ngoku ndiyayixabisa kwanexesha elincinci endinokulichitha nosapho lwam ngaphandle kwentlungu. Andisathathi nto njengento elula."
'Kufuneka ndiqhubeke ndisiya phambili' - ibali likaJess
UJess libhinqa eliselula elivela eCanada. Wayeneminyaka eli-18 ubudala xa waqala ukuva iintlungu esinqeni sakhe sasekunene nasempundu ngelixa wayekuhambo nabahlobo bakhe. Ekuqaleni, wayecinga ukuba kungenxa yokuba wayehleli evenini ixesha elide. Kodwa emva kweentsuku ezimbalwa, iintlungu zaba nzima kangangokuba wayengasakwazi nokuvuka ebhedini.
Kwathabatha oogqirha iminyaka emine ukufumanisa ukuba yintoni kanye kanye le yayinayo uJess. Ngenxa yokuba le meko ayixhaphakanga kangako kubafazi, ngamanye amaxesha inokuba kukufunyanwa kade. UJess wayexinezelekile kakhulu ngelixa wayezama ukuqonda ukuba yintoni na. Kodwa xa wafumanisa ukuba yintoni na, uJess waziva ekhululekile kakhulu.
Namhlanje, uJess usebenzisa amayeza anikwe ngugqirha ukulawula ukudumba kwakhe, athintela iproteni ebizwa ngokuba yi-interleukin-17 (IL-17), ebangela ukudumba emzimbeni.
"Elo yeza liyamangalisa ngokwenene. Ndiva iintlungu kuphela ngoku kwiveki ngaphambi kwenaliti yam elandelayo," utshilo.
UJess uye waqonda ukuba eyona ndlela ilungileyo yokuphila nale ntlungu kukuzilolonga.
"Ndilahlekelwe yiminyaka emine yobomi bam ndiselula ngenxa yeentlungu nokungakwazi ukuhamba. Ngoko ke ndazithembisa ukuba nangona ndisakwazi ukushukuma, ndiza kuyisebenzisa kakuhle loo nto," utshilo uJess.
Ujoyine inkqubo yokuzilolonga kunye nabezonyango zomzimba esibhedlele kwaye ngoku uyakwazi ukuzilolonga eyedwa.
- Uzilolonga yonke imihla ukuze aqinise umqolo wakhe ongezantsi kunye nemisipha engaphakathi.
- Ukwenza imithambo yeyoga efana 'nendlela yomntwana yokuma', eyolula umqolo.
- Ukuzama ukugcina ukuma okufanelekileyo.
Ugqibe kwelokuba atye ukutya okunciphisa ukudumba (imifuno, iziqhamo, iintlanzi, amandongomane), aphephe ukuba phakathi kwabantu abatshayayo, aze ayeke ukusela utywala ngokupheleleyo.
"Ndiyazi ukuba ngenye imini umqolo wam usenokudibana ngokupheleleyo, kwaye amayeza am asenokuyeka ukusebenza. Kodwa ndihlala ndizibuza, 'Yintoni enye endinokuyenza?' Ndizixelela ukuba kufuneka ndiqhubeke ndisiya phambili, ngokoqobo, rhoqo ndisiya phambili."
Zeziphi iindlela aba bantu abazisebenzisileyo ukulawula iintlungu?
UJake noJess basebenzise iindlela ezahlukeneyo zokulawula iintlungu zabo. Makhe sijonge ezinye zazo kwitheyibhile.
| Indlela/Icebo | Inceda njani loo nto? | Ngubani oyisebenzise? |
|---|---|---|
| Amayeza abhalwe ngugqirha | Ilawula iinkqubo zeekhemikhali emzimbeni ezibangela ukudumba kunye nentlungu. | UJess |
| Ukuzilolonga kunye nokuZolula | Inciphisa ukuqina kwamalungu kunye nemisipha, yonyusa ukuguquguquka, kwaye yakha amandla. | UJake noJess |
| Unyango Lomkhuhlane | Inciphisa okwethutyana ukudumba kwemisipha kunye nentlungu. | UJake |
| Utshintsho kwindlela yokutya | Kwabanye, iimpawu zinokulawulwa ngokunciphisa ukutya okubangela ukudumba ( kuphela emva kwengcebiso kagqirha ). | UJake noJess |
| Utshintsho kwindlela yokuphila | Ukuphepha izinto ezinokubangela ukuba esi sifo sibe sibi ngakumbi, njengokutshaya notywala. | UJess |
Izinto onokuzenza
Ukuba unezi mpawu, into yokuqala omawuyenze kukungabi naloyiko uze ubone ugqirha ofanelekileyo.Kungangcono ukuba ungabonana nogqirha ogxile kwizifo zamathambo namalungu (i-rheumatologist).
- Ukuxilongwa ngokuchanekileyo: Eyona nto ibalulekileyo kukufumanisa kuqala ukuba imeko injani kanye kanye.
- Unyango lwezonyango: Ugqirha wakho uza kukunika amayeza okudambisa iintlungu, amayeza okulwa nokuvuvukala, okanye amayeza ebhayoloji afanelekileyo kuwe.
- Unyango lweFiziyoloji: Funda ukuba zeziphi izithambo kunye nokolula umzimba okufanelekileyo kuwe ngengcebiso yengcali yefiziyoloji.
- Soloko uthetha nogqirha wakho: Ngaphambi kokuba uqale umthambo omtsha, ukutya okunempilo, okanye nantoni na, thetha nogqirha wakho ukuqinisekisa ukuba ikulungele. Asikuko konke okubonayo kwi-intanethi okunokuba kulungile kuwe.
I-Ankylosing Spondylitis ngumceli mngeni. Kodwa ayisosiphelo sobomi. Ngonyango olufanelekileyo, umthambo, kunye nesimo sengqondo esihle, nawe ungayilawula le ntlungu kwaye ufezekise amaphupha akho.
Umyalezo Wokuya Ekhaya
- I-Ankylosing Spondylitis (AS) yimeko yokwenyani echaphazela umqolo kunye namalungu eselula. Asinto ubuyicinga.
- Ukuba unentlungu engapheliyo emqolo engachazekiyo, ingakumbi ukuba uziva ngathi umqolo wakho uqinile xa uvuka kusasa, bonana nogqirha ngokukhawuleza.
- Ukufumana uxilongo oluchanekileyo linyathelo lokuqala nelibaluleke kakhulu kunyango.
- Ukulawula iintlungu asinto inye. Yindibaniselwano yamayeza, unyango lomzimba, umthambo, kunye notshintsho kwindlela yokuphila.
- Ukuzilolonga kubalulekile ukuze uphile nesi sifo, kodwa qiniseka ukuba uthetha nogqirha wakho ngaphambi kokuba uqale inkqubo entsha yokuzilolonga.
- Awuwedwa. Baninzi abantu abaphila ngempumelelo nangolonwabo nale meko. Ngoko ke hlala uqinile.
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