Ingaba ukhathazekile kancinci ngendlela intloko yomntwana wakho emile ngayo? Masithethe ngeCraniosynostosis

Ngaba wakha wakhathazeka kancinci okanye wanomdla malunga nokuma kwentloko yomntwana wakho? Mhlawumbi intloko yakho ibukeka ingaqhelekanga, okanye elinye icala lithe tyaba, okanye ibunzi lakho liphumile? Kuqhelekile ukuba umama okanye utata azive esoyika kancinci xa ebona into enjalo. Namhlanje siza kuthetha ngemeko ekhethekileyo enokubangela utshintsho olunjalo kwimo yentloko. Leyo yimeko oogqirha abayibiza ngokuba yi-craniosynostosis . Ungakhathazeki, siza kuthetha ngale nto ngokulula nangendlela onokuyiqonda.

Yintoni iCraniosynostosis?

Ngamafutshane, i-craniosynostosis yimeko apho amalungu ekhanda lomntwana wakho, abizwa ngokuba yi-sutures, avala ngaphambi kwexesha aze adibane. Esi sisiphene sokuzalwa, oko kuthetha ukuba sibakho ekuzalweni.

Ngoku khawucinge nje ukuba intloko yosana olusandul’ ukuzalwa yenziwe ngamathambo aliqela ahlangana ndawonye njengeziqwenga zephazili. Kukho izikhewu ezincinci phakathi kwala mathambo. Kwizonyango, sibiza ezi zikhewu ngokuthi "ii-sutures." Ezi zi-sutures zibaluleke kakhulu. Kuba, njengoko ingqondo yomntwana ikhula, ezi zi-sutures zivumela intloko ukuba ikhule nayo. Usenokuba ukhe weva ngendawo ethambileyo phezulu kwentloko yomntwana ebizwa ngokuba yi-"fontanelle" (okanye indawo ethambileyo) . La mabala enziwa kuba la mathambo awazange adibane kakuhle. Ngokwesiqhelo, ezi zi-sutures zivala ngokupheleleyo xa eneminyaka emi-2 okanye emi-3 ubudala, kwaye amathambo entloko ayaqina.

Nangona kunjalo, kumntwana one-craniosynostosis, enye okanye ezingaphezulu kwezi suture zivala ngokukhawuleza kakhulu, zidibanisa amathambo kunye ngaphambi kokuba ingqondo ikhule ngokupheleleyo. Kwenzeka ntoni emva koko? Intloko iyayeka ukukhula kwiindawo apho ii-sutures zivala ngokukhawuleza kakhulu. Nangona kunjalo, intloko iyaqhubeka nokukhula kwiindawo apho ii-sutures zisavulekile. Yingakho abantwana abane-craniosynostosis benesimo sentloko esingaqhelekanga, bethatha iimilo ezahlukeneyo.

Ingxaki ephambili enokubakho koku kukwanda koxinzelelo lwengqondo. Khawuthelekelele, ingqondo yomntwana iyaqhubeka nokukhula, kodwa akukho ndawo yaneleyo entloko ukuba ikhule. Emva koko ingqondo iyatyhalelwa. Olu xinzelelo lukhulayo lunokuthintela ukukhula kwengqondo, lonakalise izicubu zengqondo, kwaye ngaloo ndlela luchaphazele ukukhula komntwana. Yiyo loo nto kubaluleke kakhulu ukunyanga le meko ngokukhawuleza.

Ziziphi iintlobo ze-craniosynostosis?

Kukho iintlobo ezahlukeneyo ze-craniosynostosis. Zichongwa kukuba loluphi ulusu oluvala ngokukhawuleza ekhayeni. Imilo yentloko yomntwana iyatshintsha ngokufanelekileyo.

• I-Sagittal craniosynostosis: Olu lolona hlobo luqhelekileyo.Oku kuchaphazela umthungo ophakathi phezulu entloko, oqala phambili uye ngasemva. Xa lo mthungo uvala ngokukhawuleza, intloko yomntwana iba yinde, incinci (`scaphocephaly`) . Ibunzi lisenokubonakala libanzi.
• I-Coronal craniosynostosis: Oku kuchaphazela enye yemithungo eqala ezindlebeni ukuya phezulu entloko (kwicala elinye okanye omabini). Kolu hlobo, ibunzi lomntwana linokuba lithe tyaba kwelinye icala kwaye intloko inokuba yimo ebanzi .
• I-Lambdoid craniosynostosis: Oku kuchaphazela umthungo ngasemva kwentloko. Kolu hlobo , umva wentloko yomntwana uba yimo ethe tyaba (plagiocephaly) .
• I-Metopic craniosynostosis: Oku kuchaphazela umthungo oqala phezulu kwempumlo ukuya phezulu kwebunzi. Kolu hlobo, intloko yomntwana inokuba nomfanekiso onxantathu . Isenokubonakala ngathi yinduli ephakamayo phakathi kwebunzi.

Ixhaphake kangakanani le meko?

I-craniosynostosis ayisiyonto ixhaphakileyo. Ngokwezibalo eMelika, le meko ichaphazela malunga nomnye kubantwana abayi-2,500 . Le meko ikwabonakala naseSri Lanka.

Ziziphi iimpawu zeCraniosynostosis?

Uphawu oluphambili nolucacileyo lwale meko kukumila okungaqhelekanga kwentloko yomntwana. Ngokwesiqhelo, iintloko zethu zingqukuva. Kule meko, ezinye iindawo zentloko yomntwana zinokubonakala ngolu hlobo:

• Ukwandiswa
• Ukuba ngunxantathu
• Ukuncitshiswa
• Ukuthambisa

Ukongeza, ezinye iimpawu zinokubonwa:

• Indawo ethambileyo yomntwana (i-fontanelle) ayikho okanye incinci kakhulu.
• Xa uchukumisa intloko yomntwana , ivakala ngathi yinduli eqinileyo, ephakanyisiweyo apho kukho khona izithungo.
• Ukulahlekelwa kukulingana kweempawu zobuso (umz., elinye iliso libekwe phezulu okanye ngaphantsi kwelinye).
• Ububanzi bentloko yomntwana buncinci kunesiqhelo ngokweminyaka yakhe.

Ngamanye amaxesha, i-craniosynostosis inokunxulunyaniswa nenye imeko yempilo engaphantsi. Kwimeko enjalo, unokufumana iimpawu ezifana nezi:

• Iimpawu zesifo sokuwa (`Ukuxhuzula`).
• Iingxaki zophuhliso lwengqondo.
• Ukukhubazeka kokubona okanye ubumfama.

Zithini izizathu ze-craniosynostosis?

Enyanisweni, abaphandi abakayazi kakuhle into ebangela oku. Ngamanye amaxesha kubangelwa lutshintsho olungaqhelekanga lwezakhi zofuzo (utshintsho lwezakhi zofuzo okanye utshintsho lwazo) . Amaxesha amaninzi, olu tshintsho lwezakhi zofuzo lunokunxulunyaniswa nembali yosapho.

Oogqirha bafumanise ukuba ezi zinto zinokuba negalelo ekuphuhlisweni kwe-craniosynostosis:

• Uxinzelelo oluvela ngaphandle kwekhakayi ngelixa umntwana esesibelekweni.
• Ukungaqheleki kophuhliso lwee-membrane ezijikeleze intloko kunye nesiseko sentloko.
• Ingxaki yemfuza engabonakaliyo.

Ziziphi iimeko zemfuza ezibangela i-craniosynostosis?

I-craniosynostosis inokwenzeka njengophawu lweemeko ezithile zemfuza. Eminye imizekelo yile:

• Isifo se-Apert
• Isifo seCarpenter
• Isifo sikaCrouzon
• Isifo sePfeiffer
• Isifo sikaSaethre-Chotzen

La magama ezonyango antsonkothile kancinci, kodwa ugqirha wakho uza kuwachaza ngokweenkcukacha.

Ngaba kukho naziphi na izinto ezinokubangela umngcipheko?

Uphando lufumanise ukuba oku kulandelayo kunokunyusa umngcipheko wokuba nomntwana one-craniosynostosis:

• Isifo se-thyroid: Koomama abafumana unyango lwesifo se-thyroid ngexesha lokukhulelwa.
• Amayeza athile: Koomama abasebenzisa amayeza okuzala afana ne -clomiphene citrate ngaphambi okanye ngexesha lokukhulelwa kwasekuqaleni.

Nokuba ukhulelwe okanye uceba ukukhulelwa, kubaluleke kakhulu ukuthetha nogqirha wakho malunga nendlela yokugcina impilo entle ngexesha lokukhulelwa.

Ziziphi iingxaki ezinokubakho zeCraniosynostosis?

Le meko inokubangela iingxaki ezithile, yiyo loo nto unyango olukhawulezileyo lubalulekile.

• Uxinzelelo oluphezulu ngaphakathi kwentloko yomntwana (uxinzelelo lwangaphakathi kwentloko).
• Ukulibaziseka kophuhliso okanye ukukhubazeka kwengqondo.
• Ubunzima bokuphefumla.

Abanye abantwana banokuba neengxaki zokuzihlonipha kunye nomfanekiso womzimba , nokuba banobume obungafaniyo bobuso okanye intloko yabo ifana neyabanye abantwana. Kwiimeko ezinjalo, amaqela enkxaso, iingcebiso, kunye nonyango lwengqondo lunokunceda umntwana ukuba abe nomfanekiso-ngqondweni olungileyo.

Oogqirha bayixilonga njani le nto? (Ukuxilongwa)

Emva kokuba umntwana wakho ezelwe, ugqirha uza kwenza uvavanyo lomzimba . Baza kujonga amabala athambileyo (iifontanelles) entlokweni yomntwana, kunye nawaphi na amaqhuma okanye amaqhuma apho imithungo ivalekileyo khona. Baza kulinganisa nomjikelezo wentloko yomntwana.

Ukuba kukho nakuphi na ukuthandabuza okuvela kwezi mvavanyo, kunokwenziwa i-X-ray okanye i-CT scan ukuqinisekisa ukuxilongwa.

Ukuba ayibonwanga xa umntwana ezalwa, ugqirha wakho angayifumana xa etyelela umntwana rhoqo njengoko umntwana wakho ekhula. Ungaphawula ukuba intloko yomntwana wakho ayikhuli ngokukhawuleza njengeminye imizimba yakhe, okanye ukuba akahlangabezani nemigangatho yokukhula ngokobudala bakhe.

Ukuba uneengxaki ngomntwana wakho, ungathandabuzi ukuzikhankanya xa usiya eofisini kagqirha. Ugqirha uza kwenza uvavanyo olufunekayo aze aqinisekise imeko echanekileyo.

Ziziphi iindlela zonyango lwe-craniosynostosis?

Iindlela zonyango zixhomekeke kuhlobo lwe-craniosynostosis, ubukhali bemeko, kunye neempawu ezichaphazela umntwana.

• Unyango lwentloko: Abanye abantwana abane-craniosynostosis engephi banokufakelwa isigcina-ntloko esikhethekileyo sezonyango . Esi sigcina-ntloko sifaka uxinzelelo oluthambileyo kwintloko, nto leyo enceda ukulungisa imo yentloko ngokuhamba kwexesha.
• Utyando: Kwiimeko ezininzi, unyango oluphambili lwale meko lutyando. Utyando lwenziwa ukuze kulungiswe imo yentloko yomntwana, kuncitshiswe uxinzelelo oluphezulu ngaphakathi kwentloko yomntwana, kwaye kuvunyelwe ukuba ingqondo yomntwana ikhule. Uhlobo lotyando kunye nexesha elifanelekileyo lokulwenza lumiselwa ngugqirha. Utyando lunokwenziwa kunyaka wokuqala womntwana .
• Unyango oluxhasayo: Unyango olongezelelweyo olufana nonyango lomzimba, unyango lomsebenzi, kunye nonyango lokuthetha lunokufuneka ukunceda umntwana afikelele kwinqanaba lokukhula elifanelekileyo ngokweminyaka yakhe.

Ngaba kukho naziphi na iziphumo ebezingalindelekanga zotyando?

Iziphumo ebezingalindelekanga ezivela kutyando aziqhelekanga. Nangona kunjalo, kwiimeko ezingaqhelekanga, oku kulandelayo kunokwenzeka:

• Ukuvaleka komoya (iqamza lomoya)
• Ukungalingani
• Ukopha igazi elivela enxebeni (`ukuphuma kwenxeba`), ukopha kakhulu (kusenokufuna utofelo-gazi)
• Ihlwili legazi
• Iziphene okanye ukungalungelelani kwamathambo
• Ukuvuza kolwelo lwe-cerebrospinal
• Ubushushu bomzimba obuphezulu (i-hyperthermia)
• Usulelo
• Imfuneko yotyando lwesibini
• Iimpawu zesifo sokuwa (`Ukuxhuzula`)

Nangona ezi ngxaki zinqabile kakhulu, ngamanye amaxesha zinokuba yingozi ebomini kwaye zikhokelele ekufeni kwangethuba.

Kuqhelekile ukuziva usoyika xa usiva ngomntwana omncinci, ingakumbi usana, otyandwayo. Kodwa khumbula, oogqirha bomntwana wakho basoloko bezama ukwenza okona kulungileyo kumntwana wakho. Iqela lezonyango, kuquka oogqirha botyando, baqeqeshwe kakhulu kwaye banamava kwezi ntlobo zotyando. Benza olu tyando ngononophelo olukhulu, benciphisa umngcipheko weengxaki.

Ndifanele ndimbone nini ugqirha?

Bona ugqirha ngokukhawuleza ukuba umntwana wakho ubonakalisa iimpawu ze-craniosynostosis:

• Ukuba intloko ayingqukuva, okanye inesimo esahlukileyo kuneso besilindelwe .
• Ukuba amanyathelo ophuhliso alibazisekile .
• Ukuba kukho imiqolo ephakamileyo entlokweni.

Ukuba umntwana wakho sele efunyenwe ene-craniosynostosis, ukuba ufumana iimpawu zesifo sokuwa (ukuxhuzula) okanye unengxaki yokuphefumla , fowunela ku-911 (1990 Suwaseriya eSri Lanka) ngoko nangoko okanye uye kwigumbi likaxakeka elikufutshane.

Ndimele ndibuze ntoni kugqirha wam?

Ungabuza ugqirha womntwana wakho imibuzo efana nale:

• Yintoni enokubangela esi sifo ekuthiwa yi-craniosynostosis?
• Ucebisa luphi unyango?
• Zithini iingozi zotyando?
• Kuza kwenzeka ntoni xa sigqiba ekubeni singatyandi?
• Ingaba ukuma kwentloko yomntwana wam kuyayichaphazela indlela esebenza ngayo ingqondo?
• Ukuba ndinomnye umntwana, mangakanani amathuba okuba loo mntwana naye abe nale meko?

Liyintoni ikamva laba bantwana? (Ingxelo yokuxela kwangaphambili)

Ingqikelelo yomntwana inokwahluka ngokuxhomekeke kwimpilo yomntwana iyonke kunye nokuba zingaphi ii-sutures ezivalekileyo ekhayeni. Uninzi lwabantwana lunokulindela ukuchacha okuhle ukuba lufunyaniswe kwaye lunyangwa kwangethuba. Unyango, ingakumbi kunyaka wokuqala womntwana, lunokunciphisa iingxaki zokukhula.

Ukuba i-craniosynostosis luphawu lwesifo esithile esibangelwa yimfuza, ikamva lomntwana lisenokuhluka kancinci. Ugqirha wakho angakunika ulwazi olungcono malunga noku.

Ingakanani iminyaka yobomi bomntu one-Craniosynostosis?

Uninzi lweentsana ezifunyaniswe zine-craniosynostosis zihlala ixesha eliqhelekileyo , ingakumbi ukuba oogqirha bayayibona baze bayinyange le meko kwiminyaka embalwa yokuqala yobomi. Nangona kunjalo, ixesha lokuphila lomntwana ngamnye linokwahluka ngokuxhomekeke kubukhali bemeko.

Ngaba i-Craniosynostosis ingathintelwa?

Okwangoku akukho ndlela eyaziwayo yokuthintela le meko. Uvavanyo oluthile lwemfuza ngaphambi kokukhulelwa olwenziwe ngexesha lokukhulelwa lunokuchonga utshintsho lwemfuza olunokukhokelela kule meko. Umcebisi wemfuza unokukufundisa ngeengozi zakho zemfuza ngaphambi kokuba ukhulelwe kunye neendlela zonyango ukuba umntwana wakho uzalwe enale meko.

Okokugqibela, izinto ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

Njengabazali abatsha, kuyinto eqhelekileyo ukuziva uxhalabile kwaye usoyika xa ufumanisa ukuba umntwana wakho unesifo sempilo esifana ne-craniosynostosis. Nangona kunjalo, iqela lezonyango lomntwana wakho liza kuyixilonga le meko kwaye lenze isicwangciso sonyango ukuthintela iingxaki ezinokuchaphazela uphuhliso lwengqondo yomntwana wakho. Ngonyango olukhawulezileyo, uninzi lweentsana ezine-craniosynostosis ziya kukhula ziphilile kwaye ziphilile. Ukuba unemibuzo malunga nendlela onokumnceda ngayo umntwana wakho, thetha nogqirha womntwana wakho. Awuwedwa, kwaye oogqirha, abahlengikazi, kwaye, ukuba kuyimfuneko, abacebisi bakhona ukukunceda.

I- Craniosynostosis, ukhakhayi, intloko yomntwana, imithungo, uphuhliso lobuchopho, utyando, iziphene zokuzalwa, imilo yokhakhayi, i-fontanelle