Kukho imihla apho, nokuba silala kangakanani na, nokuba siphumle kangakanani na, siziva ngathi asinawo amandla aseleyo kuthi. Kufana nokuba umntu ukhuphe onke amandla kuthi. Ukuba le meko ibiyinxalenye yobomi bakho kangangeenyanga, musa ukuyithatha njengento eqhelekileyo. Namhlanje, siza kuthetha ngokudinwa okuhlala ixesha elide okungapheliyo xa uphumla. Kwizonyango, sibiza oku ngokuba yiMyalgic Encephalomyelitis/Chronic Fatigue Syndrome, okanye (ME/CFS) ngamafutshane.
Kutheni le nto kunzima kangaka ukuxilonga esi sifo?
Enye yezona ngxaki zinkulu ngale meko kukuba akukho vavanyo lwegazi oluthile, i-X-ray, okanye iskeni ukuqinisekisa ukuba yiyo le. Kwakhona, iimpawu eziphambili zale meko, njengokudinwa kakhulu, ubunzima bokwenza izinto ezincinci, kunye neengxaki zokukhumbula nokunikela ingqalelo, nazo ziimpawu zezinye izifo ezininzi. Ke ngoko, kunzima nokuba ugqirha athi ngoko nangoko le yi-ME/CFS. Kuthatha ixesha, kuba kuqala kufuneka uqiniseke ukuba azikho ezinye izifo.
Ngamafutshane, i-ME/CFS sisifo esihlala sikhona emva kokuba yonke enye into isusiwe. Ngoko ke olu hambo lufuna umonde.
Into yokuqala omawuyenze: bonana nogqirha
Ukuba unesikrokro sokuba unokuba nezi mpawu, eyona nto ilungileyo onokuyenza kukubona ugqirha wosapho lwakho (GP) ngoko nangoko . Uphando lubonise ukuba xa esi sifo sifunyanwa kwangethuba kwaye sinyangwa, kokukhona iziphumo ziba ngcono.
Ugqirha uza kukubuza iinkcukacha ezininzi malunga nempilo yakho.
- Uqale nini ukuziva udiniwe kangaka?
- Iyanda nini?
- Zeziphi iintlobo zamayeza ozithathayo? (Kufuneka ukhankanye amayeza aqhelekileyo owathengayo kwikhemesti.)
- Ngaba kukho naziphi na iivithamini ezongezelelweyo okanye izongezo zemifuno ozithathayo?
Konke oku kubalulekile. Kuba ngamanye amaxesha ukudinwa kunokuba yimpembelelo embi yezinye iziyobisi ozisebenzisayo. Kwakhona, ezinye iimveliso zezityalo ocinga ukuba "zendalo" zinokuchaphazela umzimba wakho. Ugqirha wakho uya kukuxilonga kakuhle aze, ukuba kuyimfuneko, aqhube uvavanyo lwegazi, umchamo, kunye nezinye izinto. Konke oku kwenziwa ukuze kuqatshelwe ukuba unesinye isifo esinokunyangwa.
Ziziphi ezinye izifo ezineempawu ezifanayo?
Kukho ezinye iimeko ezininzi ezinokuba neempawu ezifanayo neze-ME/CFS. Ugqirha uya kuqala azame ukuthintela ezi meko.
- "I-Mono" (i-Mononucleosis): Le ikwayintsholongwane ebangela ukudinwa okukhulu.
- Isifo seLyme:Isifo esithwalwa ziincukuthu esibangela iintlungu nokudinwa kwamalungu.
- I-Lupus: Isifo esibangelwa yingxaki kwinkqubo yomzimba yokuzikhusela.
- I-Multiple Sclerosis: Isifo esichaphazela inkqubo yemithambo-luvo.
- I-Fibromyalgia: Imeko ebangela iintlungu nokudinwa emzimbeni wonke.
- Iingxaki zokungalali: Iimeko ezibangela ukungalali.
- Uxinzelelo: Uxinzelelo lunokubangela ukudinwa kakhulu emzimbeni.
Khawucinge nje, ukuba unesifo esinyangekayo kolu luhlu, ukudinwa kwakho kunokupheliswa ngokupheleleyo ngamayeza afanelekileyo. Yiyo loo nto kubalulekile kangaka ukungabandakanyi ezinye izifo ezifana nesi.
Ifunyaniswa njani i-ME/CFS?
Emva kokususa zonke ezinye iimeko, ugqirha wakho uza kujonga ngokusondeleyo iimpawu zakho. Ukuze kufunyaniswe ukuba une-ME/CFS, kufuneka uhlangabezane neempawu ezithile. Ukuze ukuncede uziqonde ngokucacileyo ezi, jonga itshathi engasezantsi.
| Udidi lweempawu | Inkcazo |
|---|---|
| Imfuneko ephambili | Ukudinwa kakhulu okuhlala ixesha elingaphezu kweenyanga ezi-6 , akuphucuki xa uphumla ebhedini, kwaye kunciphisa kakhulu imisebenzi yakho yemihla ngemihla (umsebenzi, imfundo, imisebenzi yoluntu). |
| Ukongeza, kufuneka kubekho ezi mpawu zintathu zilandelayo: | |
| 1. Ukungabi Namandla Emva Kokuxinezeleka | Iimpawu ziya zisiba mandundu emva kokusebenza nzima ngokomzimba okanye ngokwengqondo (umz., ukuya evenkileni, ukufunda incwadi). Le meko inokuhlala iiyure okanye iintsuku. |
| 2. Ukulala Okungaphumziyo | Nokuba ulele ixesha elingakanani na, uvuka kusasa uphumle kwaye uhlaziyekile. Kuvakala ngathi ubuvukile ubusuku bonke. |
| 3. Ukuncipha kwamandla okwenza imisebenzi yemihla ngemihla | Ukungakwazi ukwenza imisebenzi yemihla ngemihla (ukuya emsebenzini, ukwenza imisebenzi yasekhaya, ukufunda) kangangeenyanga ezingaphezu kwezi-6 ngenxa yokudinwa. |
| Ukongeza kuzo zonke ezi zinto zingentla, kufuneka kubekho ubuncinane enye yezi mpawu zimbini: | |
| 1. Iingxaki zokucinga kunye nenkumbulo (Ukuphazamiseka kwengqondo) | Ubunzima bokugxila, ubunzima bokukhumbula izinto, kunye nokuziva "unenkungu" kwiingcinga zakho (iBrain Fog). |
| 2. Ukunganyamezeli kwamalungu omzimba | Ukuba nesiyezi , ukuphelelwa lithemba, kunye nobuthathaka kunokwenzeka xa uphakama ngequbuliso uhleli okanye ulele. Umbono ofipheleyo okanye amabala angabonakaliyo nawo anokubakho. |
Kungathatha ixesha ukufumana uxilongo. Ngeli xesha, buza ugqirha wakho indlela yokulawula iimpawu zakho. Uza kukuqalisa unyango aze aqhubeke nokukubeka esweni ukuze abone ukuba ziyasebenza na.
Umyalezo Wokuya Ekhaya
- Ukudinwa okungaqhelekanga: Ukuba udinwe kakhulu okuhlala ixesha elingaphezu kweenyanga ezi-6 kwaye akuphumli xa uphumla, musa ukukutyeshela.
- Bona ugqirha ngoko nangoko: Kubalulekile ukufumana ingcebiso yezonyango ukuze ufumane uxilongo oluchanekileyo nokuqinisekisa ukuba akukho ezinye iimeko zempilo eziyingozi.
- Akukho vavanyo luthile: Akukho vavanyo luthile lokuxilonga i-ME/CFS, kwaye luxilongo olwenziwe emva kokususa ezinye izifo.
- Yiba nomonde: Inkqubo yokuxilonga ingathatha ixesha. Sebenzisana ngokusondeleyo nogqirha wakho ukulawula iimpawu zakho ngeli xesha.
- Awuwedwa: Le yimeko abantu abaninzi kwihlabathi liphela abajongene nayo. Ngolawulo olufanelekileyo nenkxaso, ubomi bunokuba ngcono.
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