Ngaba umntwana wakho unazo ezi mpawu? Masifunde ngeHypothalamic Hamartoma!

Ngaba umntwana wakho omncinci ngamanye amaxesha wenza izinto ngendlela engaqhelekanga, ngokungathi uhleka nje imizuzwana embalwa? Okanye ngaba ubonisa iimpawu zokufikisa ngaphambi kwexesha? Kuyaqondakala ukuba uzive usoyika xa ubona ezi zinto. Namhlanje siza kuthetha ngengxaki yobuchopho enokubangela ezi mpawu, engaqhelekanga, kodwa kubalulekile ukuba uyiqaphele.

Ngoko ke yintoni le hamartoma ye-hypothalamic?

Ngamafutshane, iHypothalamic Hamartoma (HH) sisimila esikhula kwi-hypothalamus, inxalenye yengqondo engaphakathi nzulu kwengqondo . Nangona kunjalo, asiyomhlaza, oko kuthetha ukuba ayinazo iiseli zomhlaza (ezingenamhlaza) . I-hypothalamus sisakhiwo esincinci esilingana ne-almond. Kodwa idlala indima ebaluleke kakhulu emzimbeni wethu. Isebenza njengomnxibelelanisi phakathi kwenkqubo yethu ye-endocrine kunye nenkqubo yemithambo-luvo , inceda ukugcina i-homeostasis (ibhalansi) emzimbeni.

Cinga ngale ndlela, i-hypothalamus ifana nephaneli yokulawula emzimbeni wethu. Ilawula ezi zinto:

• Ifuthe legazi
• Ubushushu bomzimba
• Uxinzelelo kunye noxinzelelo esiluvayo
• Indlala nonxano
• Ukukhululwa kwamahomoni kwi-pituitary gland
• Imijikelo yokulala nokuvuka

Le tumor, ebizwa ngokuba yi-hypothalamic hematoma , iqala ukwakheka ngelixa umntwana esesesibelekweni (`umntwana ongekazalwa`) . Emva koko ikhula kancinci kancinci njengoko ingqondo ikhula. Eyona nto ilungileyo kukuba ayisasazeki kwezinye iindawo zengqondo okanye kwezinye iindawo zomzimba . Rhoqo, kukho i-tumor enye kuphela, kodwa kunqabile ukuba kubekho ezininzi. Kukho unyango olufanelekileyo lokulawula iimpawu zale meko.

Ngoko ke zithini iimpawu zale meko ye-hypothalamic hematoma (HH)?

Iimpawu zesi sifo zingahluka kumntu nomntu, kodwa kukho iimpawu ezimbalwa eziphambili ezinokubonwa:

• Ukufikisa ngaphambi kwexesha
• Ukuxhuzula
• Iimpawu ze-neurological

Yintoni 'Ukufikisa Ngaphambi Kokuba Sebuncinaneni'?

Okwenzekayo koku kukuba ubuchopho bethu buqala ukukhupha iihomoni zesondo ngaphambi kwexesha lazo elifanelekileyo. Ngokwesiqhelo , amantombazana anokubonisa ezi mpawu ngaphambi kweminyaka esi-8 kunye nabafana ngaphambi kweminyaka esi-9 .

Iimpawu ezinokubonwa ngamantombazana :

• Uphuhliso lwebele
• Ukukhula kweenwele emakhwapheni nakwiindawo zabucala
• Ukuqala kokuya exesheni
• I-acne

Iimpawu ezinokuthi zibonwe ngabafana :

• Ukujula kwelizwi
• Ukukhula kweenwele ebusweni, emakhwapheni, nakwiindawo zabucala
• Ukwandiswa kwe-scrotum kunye nama-testicles
• I-acne

Khawuthelekelele indlela ekunokuba buhlungu ngayo kuwe nakwintombi yakho xa beqala ukubonisa olu tshintsho kwangethuba kakhulu kunabahlobo babo. Ngoko ke ukuba ubona into efana nale, kungcono ukubona ugqirha ngokukhawuleza.

Masifunde nangokuxhuzula.

Kuqhelekile kakhulu ukuba ukuxhuzula okubangelwa kukuxhuzula kwenzeka ngale meko. Enye yezona zixhaphakileyo kukuxhuzula okubangelwa kukuxhuzula okubangelwa kukuxhuzula . Oku kukuqhuma ngequbuliso, okungalawulekiyo ngaphandle kwesizathu esicacileyo . Kubangelwa kukungasebenzi kakuhle kombane engqondweni. Oku kunokuhlala imizuzwana embalwa, kodwa kunokubakho amaxesha amaninzi ngemini, okanye kwiimeko ezinzima, amaxesha amaninzi ngeyure.

Amaxesha amaninzi, olu hlobo lwesifo sokuwa luqala ngaphambi kokuba umntwana abe nonyaka omnye ubudala . Nangona kunjalo, emva kweminyaka eli-10 ubudala, ukuphindaphinda kwesi sifo kunokubonakala kuncipha.

Ukongeza kwesi sifo sokuwa, ezinye iintlobo zesifo sokuwa nazo zinokubonwa:

• Ukuxhuzula kwe-Atonic: Kule nto, kukho ukulahlekelwa ngequbuliso kolawulo lwemisipha, kwaye ungawa, ngokungathi kukho umntu okutyhalileyo.
• Ukuxhuzula ngequbuliso: Oku kukukhala ngequbuliso, okungalawulekiyo. Oku kwenzeka ngaphandle kwesizathu esicacileyo.
• Ukuxhuzula nge-Tonic-clonic: Oku yinto abantu abaninzi abayaziyo njenge-"fit." Kukho ukulahlekelwa zingqondo, kwaye umzimba uyashukuma kwaye uhamba ngokungalawulekiyo.

Zithini iimpawu ze-neurological?

Le meko, ebizwa ngokuba yi-hypothalamic hematoma (HH), inokuchaphazela nokuziphatha komntwana wakho, isimo sengqondo, kunye nokusebenza kwengqondo . Oku kuthetha:

• Ingxaki yokunqongophala kwengqwalasela/yokungasebenzi kakuhle (ADHD)
• Ingxaki yokuziphatha
• Ukukhubazeka kwengqondo
• Ukutshintshatshintsha kweemvakalelo, ukuhlala ngendlela efanayo ngamaxesha ahlukeneyo ('Ukuphazamiseka kweemvakalelo')
• Isifo sokungavumelani nokuchasana (isifo sokungavumelani nokuchasana ...
• Iindlela zokuziphatha ezibangela ukusabela (umzekelo, ukucaphuka ngokukhawuleza, ukuba ndlongondlongo)
• Iingxaki ngememori yexesha elifutshane

Njengabazali, siyakhathazeka kakhulu xa umntwana ebonisa enye okanye ngaphezulu kwezi mpawu. Kodwa kubalulekile ukukhumbula ukuba kukho amayeza acetyiswayo ngugqirha kuzo zonke ezi mpawu.

Ziziphi iintlobo eziphambili ze-hypothalamic hematoma (HH)?

Kukho iintlobo ezimbini eziphambili ze-hypothalamic hematoma, ezahlulwe ngokwendawo yethumba kunye neempawu ezibangelayo :

1. Isilonda esingaphakathi kwe-hypothalamic: Kule meko, ithumba likufutshane nomva we-hypothalamus yakho. Oku kuphazamisa ukusebenza kombane kwengqondo, okunokubangela ukuxhuzula kunye nokuziphatha okungaqhelekanga.

2. Isilonda se-Parahypothalamic (Isilonda esithambileyo - `Isilonda se-Parahypothalamic`):Kule meko, ithumba likufutshane nomphambili we-hypothalamus. Olu hlobo ludla ngokunxulunyaniswa nokufikisa kwasekuqaleni.

Nangona kunjalo, ngamanye amaxesha zombini ezi ntlobo zinokubakho kumntu omnye ngaxeshanye.

Kutheni le nto le hematoma ye-hypothalamic (HH) yenzeka? Yintoni unobangela?

Enyanisweni, iingcali azikayazi kakuhle into ebangela i-HH. Kwaye akukho ndlela yokuyithintela. Uninzi lwexesha, le meko yenzeka 'ngokungacwangciswanga.' Oko kuthetha ukuba ayihambelani neentsapho . Ngoko ke amathuba okuba uyifumane njengelifa aphantsi kakhulu.

Nangona kunjalo, uphando lwakutshanje lufumanise uhlobo oluthile lwe-gene ebizwa ngokuba yi-GLI3 kwizicubu ze-tumor ezivela kwii-tumor ezisusiweyo. Ezinye iintlobo ze-genetic zifunyenwe kwezi tumor ezisusiweyo. Uphando olongezelelweyo luyaqhubeka kwezi gene.

Enye into kukuba kunokubakho unxibelelwano phakathi kwale hematoma ye-hypothalamic kunye nesifo semfuza esibizwa ngokuba yiPallister-Hall syndrome (PHS) . Esi simo se-PHS sibangelwa lutshintsho lwemfuza. Sinokubangela ukungaqheleki ekuphuhlisweni kwezandla, iinyawo, i-larynx (ibhokisi yelizwi), kunye ne-anus.

Ziziphi izinto ezibangela umngcipheko wale meko?

Le meko inokuchaphazela nabani na. Ixhaphake kancinci kumadoda . I-HH ichaphazela kakhulu abantwana kunye nabantu abadala abancinci. Nangona kunjalo, kwezinye iimeko, le meko isenokungaqatshelwa de kuvele iimpawu xa umntu emdala.

Ziziphi iingxaki ezinokubakho ze-hypothalamic hematoma (HH)?

Ukufikisa ngaphambi kwexesha kunokuchaphazela impilo yomzimba nengqondo yomntwana , ingakumbi xa imizimba yakhe itshintsha ngokukhawuleza kunabanye abantwana abaneminyaka yakhe. Umzekelo, banokuba nobude obufutshane . Ukongeza, umntwana usenokungakwazi ukuqonda olu tshintsho kakuhle. Oku kunokuchaphazela ukuzithemba kwakhe kunye nentlalo-ntle yakhe ngokweemvakalelo. Iqela lezonyango lomntwana wakho linokunceda ekulawuleni naziphi na iingxaki ezinokuvela.

Ifunyanwa njani le meko ye-hypothalamic hematoma (HH)?

Ugqirha wakho unokwenza iimvavanyo ezininzi zokuthatha imifanekiso ukuqinisekisa imeko ye-HH.

• I-MRI scan (MRI - Magnetic Resonance Imaging): Oku kungathatha imifanekiso ecacileyo neneenkcukacha zobuchopho bakho. Abantwana abancinci banokufuna ukunikwa i-laser light ukuze bahlale bezinzile ngexesha le-MRI. Oku kungenxa yokuba ukuba bayashukuma, imifanekiso isenokuba luzizi. Cinga ngayo njengefoto ethathwayo kwaye ukuba bayashukuma, imifanekiso iya kuba luzizi.

• Uvavanyo lwe-EEG (`EEG - Electroencephalogram`): Ukuba unesifo sokuwa, ugqirha wakho angayalela uvavanyo lwe-EEG. Oku kwenzelwa ukujonga umsebenzi wombane engqondweni yakho . Njenge-ECG yentliziyo yethu, oku kuvavanya umsebenzi wobuchopho.

• Uvavanyo lwe-neurological: Olu vavanyo lulinganisa ubungakanani beengxaki zengqondo, ezifana nokucinga, ukufunda, kunye nenkumbulo . Ugqirha wakho unokwenza uvavanyo lwegazi ukujonga amanqanaba eehomoni. Olu vavanyo lunokunceda ekucwangciseni unyango.

Ngamanye amaxesha, i-HH inokuba nzima ukuyixilonga kuba iimpawu zayo zinokufana nezezinye iimeko ze-neurological .

Kulungile, ngoko ke zeziphi iindlela zonyango zoku?

Iindaba ezimnandi zezokuba kukho unyango lwale meko, i-hypothalamic hematoma (HH). Kukho iindlela ezimbini eziphambili zonyango:

• Amayeza okulawula ukufikisa ngaphambi kwexesha: Oku kusebenzisa udidi lwamayeza abizwa ngokuba yi -'Gonadotropin-releasing hormone agonists' . La mayeza asebenza ngokulawula ukukhutshwa kweehomoni ngaphambi kwexesha, njengoko bekutshiwo ngaphambili.
• Utyando lokulawula ukuxhuzula: Makhe sithethe ngale nto ngokweenkcukacha ezithe vetshe.

Ukongeza, ugqirha womntwana wakho unokucebisa inkxaso yemfundo esikolweni, unyango, okanye amanye amayeza okunceda kwiimeko zengqondo, ukuziphatha, kunye neengxaki zengqondo.

Ziziphi iintlobo zotyando ezenziwayo kwi-hypothalamic hematoma (HH)?

Ukulawula ukuxhuzula, ugqirha unokucebisa utyando lwesifo sokuxhuzula okanye olunye utyando lokususa okanye ukutshabalalisa i-hematoma. Amayeza okuthintela ukuxhuzula awasoloko esebenza kwisifo sokuxhuzula esithambileyo . Nangona kunjalo, anokunceda ukulawula ezinye iintlobo zokuxhuzula.

Ngoku makhe sibone ukuba zeziphi ezi ntlobo zotyando:

• Utyando lweGamma Knife: Olu luhlobo lotyando, kodwa luhlobo lonyango lweradiation olwenziwa ngaphandle kokusikwa kwesikhumba . Ngokukodwa, lusebenzisa imisebe enamandla ukutshabalalisa ithumba.
• Ukususwa kwesihlunu (utyando lokususa): Kule meko, ugqirha otyandayo ususa isihlunu nokuba ngokuvula ukhakhayi (i-craniotomy) okanye ngokwenza umngxuma omncinci kukhakhayi aze afake isixhobo esincinci esibizwa ngokuba yi-endoscope kuso.
• Ukususwa kwe-stereotactic laser: Oku akungeni kakhulu emzimbeni.Indlela. Ithumba litshatyalaliswa kukukhanya kwelaser okuthunyelwa ngentambo ye-fiber optic.
• I-Stereotactic thermoablation: Olu luhlobo lonyango lwe-ablation. Lusebenzisa ubushushu ukunyanga i-hematoma . Ugqirha wotyando ufaka ii-probes ezincinci ngekhakayi kwindawo apho i-tumor ikhona khona. Emva koko ii-probes zifudunyezwa kusetyenziswa amaza erediyo ukutshabalalisa izicubu ze-tumor.

Nangona ezi nkqubo zotyando zisenokuvakala zinzima kancinci, oogqirha baza kukuchazela yonke into ngokweenkcukacha.

Ithini ingqikelelo yokuchacha kule meko?

Kwiimeko ezininzi , i-prognosis (okanye i-preview) ye-hypothalamic hematoma (HH) ilungile , njengoko kukho unyango olusebenzayo lokulawula iimpawu.

Utyando lunokunciphisa ukuxhaphaka kunye nobunzima bokuxhuzula. Abanye abantu bahlala bengenaso kwaphela isithuthwane emva kotyando . Kwezinye iimeko, ukuba i-hematoma inokususwa ngokukhuselekileyo nangokupheleleyo, imeko inokunyangeka. Nangona kunjalo, kukho umngcipheko wokuba isithuthwane sibuye kwakhona.

Njengoko bekutshiwo ngaphambili, ukugonywa rhoqo ngenyanga ngamayeza athintela ukukhululwa kweehomoni ezithile kunokunceda ukulawula iimpawu zokufikisa ngaphambi kwexesha. Xa umntwana wakho efikelela kwiminyaka apho ukufikisa ngokuqhelekileyo kwenzeka khona, ugqirha angayeka la mayeza. Uninzi lwabantwana kunye nabantu abancinci baya kudlula ekufikiseni nasekukhuleni ngokwesondo njengoko kulindelekile ngeli xesha .

Ngokuxhomekeke kwimeko yomntwana wakho, ugqirha wakhe unokukunika ulwazi olungcono.

Kuthekani ngesantya sokusinda?

Amandla okuphila nale meko ('ubude bobomi') anokwahluka kumntu nomntu. Kuxhomekeke kwizinto ezahlukeneyo:

• Ubungakanani kunye nohlobo lwe-hematoma tumor
• Indlela eziqatha nezixhaphake ngayo izigulo zokuxhuzula
• Luphumelele kangakanani unyango?

Ugqirha wakho uza kukuchazela oku emva kokuqwalasela zonke ezi zinto.

Nangona kunjalo, kukho umngcipheko wokufa ngequbuliso kwisifo sokuwa (i-SUDEP) kunye nale hematoma ye-hypothalamic. Ke ngoko, ugqirha wakho uza kukunceda uzigcine ukhuselekile kwaye enze isicwangciso sonyango sokulawula isifo sakho sokuwa.

Ukuba umntwana wam unezi mpawu, ndifanele ndimbone nini ugqirha?

Ukuba uneengxaki ngomntwana wakho, nguwe omaziyo ngcono . Ngoko ke ungathandabuzi ukubona ugqirha, nokuba yinto encinci. Qaphela ezi mpawu:

• Ukuxhuzula (ukuhleka, ukuxhuzula, ukuwa)
• Ukufikisa kwangethuba (umz., ukukhula kweenwele kwangethuba, ukujula kwelizwi)
• Utshintsho kwingqalelo, inkumbulo, okanye ubuchule bokufunda
• Utshintsho kwindlela yokuziphatha (umz., ukucaphuka ngezinto ezincinci, ukucaphuka)
• Ukungalingani kwamahomoni (umz., ukoma kakhulu, utshintsho ekutyeni, utshintsho olukhulu lweemvakalelo)

Ukuba umntwana wam une-hypothalamic hematoma (HH), yeyiphi imibuzo endifanele ndiyibuze ugqirha?

Wakuba ufumanise ukuba umntwana wakho une-HH, ungambuza ugqirha imibuzo efana nale:

• Luhlobo luni lonyango olucetyiswayo?
• Angakanani amathuba okuba kuya kufuneka enziwe unyango okanye utyando oluninzi?
• Zithini iziphumo ebezingalindelekanga zonyango?
• Olu nyango luza kuyichaphazela njani imisebenzi yemihla ngemihla yomntwana wam, umsebenzi wesikolo, kunye nemisebenzi eqhelekileyo?

Kuqhelekile ukuziva usoyika kwaye wothukile xa uxelelwa ukuba unethumba lobuchopho, xa unesithuthwane, okanye xa ufumana utshintsho emzimbeni wakho ungekagugi. Kodwa eyona nto ilungileyo kukuba kukho unyango olusebenzayo lokulawula iimpawu ze-hypothalamic hematoma . Kuya kufuneka uhlale unxibelelana neqela lakho lezonyango. Baza kuqinisekisa ukuba iimpawu zakho aziphazamisi impilo yakho yomzimba okanye yengqondo. Utyando lunokunciphisa ukuphindaphindeka kunye nobunzima beempawu zakho, ngoko ke thetha nogqirha wakho malunga nokuba ungumntu ofanelekileyo na.

Ngoko ke, zeziphi izinto ezibalulekileyo ekufuneka sizikhumbule kwizinto esithethe ngazo? (Umyalezo Wokubuyela Ekhaya)

I-Hypothalamic hematoma (HH) ligama eloyikisayo kancinci, kodwa kubaluleke kakhulu ukuliqaphela.

Khumbula, lo asingomhlaza. Kwaye le yimeko eyenzeka xa kuzalwa umntwana.

• Iimpawu eziphambili: Ukufikisa ngaphambi kwexesha, iintlobo ezahlukeneyo zokuxhuzula (ingakumbi 'ukuxhuzula kweGelastic'), kunye neengxaki zokuziphatha/zokufunda zezona ziphambili.
• Isizathu esichanekileyo asaziwa: uninzi lwexesha, oku kwenzeka ngequbuliso. Akunqabile ukuba kube yinto yelifa.
• Kukho unyango olufanelekileyo: Kukho unyango olusebenzayo, olufana namayeza notyando, ukulawula iimpawu, ingakumbi isifo sokuwa kunye nokufikisa ngaphambi kwexesha.
• Ukuqaphela umntwana wakho kwangethuba kubalulekile: Ukuba ukrokrela ukuba umntwana wakho unezinye zezi mpawu, bona ugqirha ngoko nangoko. Okukhona unyango luqala ngokukhawuleza, kokukhona iziphumo ziba ngcono.
• Awuwedwa: Oku kunokuba nzima ngokweemvakalelo kuwe nakumntwana wakho. Inkxaso evela koogqirha, abacebisi kunye nosapho ibaluleke kakhulu.

Ndiyathemba ukuba olu lwazi luza kukunceda. Nokuba kwenzeka ntoni na, kungcono ukuthetha nogqirha kwaye ufumane iingcebiso ngaphandle koloyiko.

I- Hypothalamic hematoma, ithumba lobuchopho, ukufikisa kobuntwana, isifo sokuwa, isifo sokuwa esibangelwa yi-gelatinous, iingxaki zehomoni, utyando lobuchopho