Ngaba ngamanye amaxesha uvuka kusasa uziva ubuhlungu, uqinile, kwaye ubuhlungu emqolo nasemaqakaleni? Ngaba uziva udiniwe kakhulu kusasa, nokuba ulala kangakanani ebusuku? Ukuba ezi mpawu azikho nje enye okanye ezimbini, kodwa bezikukhathaza ixesha elide, kufanelekile ukuzikhathalela. Namhlanje sithetha ngomntu ophila namava anjalo kunye nesifo esibangela oko, i-Ankylosing Spondylitis (AS).
Yintoni kanye kanye i-Ankylosing Spondylitis (AS)?
Ngamafutshane, olu luhlobo lwesifo samathambo. Kodwa olu luchaphazela kakhulu umqolo wakho kunye namalungu ahambelana nawo . Ngenxa yempazamo ethile kwinkqubo yomzimba yethu yokuzikhusela, iqala ukuhlasela amalungu ethu, ingakumbi amalungu aphakathi kwamathambo omqolo kunye namalungu adibanisa ithambo lesinqe. Oku kubangela ukudumba , okuthetha ukudumba, ukuba bomvu, kunye nentlungu enzima.
Ekuhambeni kwexesha, oku kuvutha kubangela ukuba amalungu aqine okanye adibane. Igama elithi "ankylosing" lithetha "ukudibana." Le yeyona nto ibangela ukuqina kwasekuseni kunye nentlungu. Le meko ixhaphake kakhulu kumadoda kwaye idla ngokuqala ebancinci, phakathi kweminyaka engama-20 ukuya kwengama-40.
Ngoku makhe sibone ukuba amava omntu ophila nale meko anjani. Eli bali liza kukunceda uyiqonde ngcono le meko.
Ukuqala usuku nge-AS ngumceli mngeni yonke imihla.
Umntu obalisa eli bali waqala ukuba nezi mpawu xa wayeneminyaka engamashumi amabini ubudala. Waqala ukuziva engenamandla, iintlungu, kunye nokudinwa okunganyamezelekiyo. Kwada kwaba malunga nonyaka emva koko apho ekugqibeleni wafunyaniswa ukuba unesifo.
Ndingumntu okhawulezayo nocebayo engqondweni yam, kodwa umzimba wam awundivumeli. Kufana nomntu wohlobo A obanjwe emzimbeni wohlobo Z.
Uthi yonke intsasa inzima ukuqala. Nokuba ulala kangakanani na ngobusuku bangaphambi kokuba alale, uvuka enomzimba obuhlungu kunye nokudinwa okukhulu. "Kuvakala ngathi ugijime i-marathon kwaye umntu ukubethe ngeentonga," utshilo.
Into yokuqala endiyenzayo xa ndivuka kukusela amayeza am. Emva koko ndisela ikofu. Kuphela emva koko, ukuba ndinamandla aseleyo, bhala, phuma uye kwenza umsebenzi, okanye upheke.
"Ukuba ne-AS kufana nokuba ne-remote control emzimbeni wakho. Bangandicima ngeqhosha lokudinwa nanini na xa befuna. Bangaphakamisa iqhosha lentlungu liye phezulu. Bangathulisa izinto endifuna ukuzenza."
Isicwangciso sayo yonke into - indlela yokwenza ubomi bube lula
Xa uphila nomceli mngeni onje, isisombululo kuphela kukucwangcisa yonke into. Ukususela ekuthengeni, ekuphekeni, ekudibaneni nabantu, ukuya emsebenzini, ukuya ekulaleni, kufuneka ube nesicwangciso. Kwakhona, kufuneka uqiniseke ukuba uzibekela ixesha lokuphumla emva kokwenza into ethile.
Umzekelo, makhe sicinge ngokupheka. Akunakwenzeka ukwenza konke oku ngosuku olunye, ukusebenza iiyure ezisi-8, ukupheka ebusuku, ukuhlamba impahla, nokuya evenkileni. Ngoko ke into ayenzayo kukulungisa imifuno kunye neesosi azidingayo kwisidlo kwiintsuku ezimbini okanye ezintathu kwangaphambili. "Upheka ngobuninzi" kanye okanye kabini ngenyanga. Oko kuthetha ukuba upheka into efana nenkukhu, enze irayisi, aze ayigcine efrijini. Ngaleyo ndlela, unokulungisa ukutya ngokulula ngosuku aziva edakumbile.
Konke kuxhomekeke ekulungiseleleni. Ngaphambi kokuba wenze nantoni na, kufuneka uyicwangcise. Emva koko ngokuqinisekileyo kufuneka uphumle.
Idabi lokulwa nokulala - umngeni 'wePainsomnia'
Kudla ngokuba semini apho uziva ungcono khona. Nangona ungasebenza ngelo xesha, kunzima ukugqiba ukuba uza kuyeka nini kwaye uphumle nini. Kwakhona, ukulala ne-AS akulula.
Ubiza oku ngokuthi 'yintlungu yokungalali' . Kuthetha ukungalali okubangelwa yintlungu. Xa umzimba wakho ubuhlungu, ukufumana indawo efanelekileyo yokulala kunokuba ngumceli mngeni. Ngamanye amaxesha, ngenxa yoxinzelelo okanye ukungakhululeki emzimbeni, kufuneka uhlale uphaphile kude kuse.
Ngobusuku obunye ndifumana 'iintlungu ezibuhlungu' . "Kufana nentlungu ebukhali egqobhoza amathambo. Nangona ndineminyaka eli-18 ndinesi sifo, sisandothusa xa sifika, kuba sibi kakhulu."
Ngoko ke, njengayo yonke enye into, unecebo lokulala.
| Isenzo | Inkcazo |
|---|---|
| Ukulungiselela ukulala | Malunga neyure ngaphambi kokuba ulale, yenza ikomityi yeti engenacaffeine uze uyisele. Ivumba layo liza kuvakala kwigumbi, linike umzimba wakho umqondiso wokulungiselela ukulala. |
| Ukuphelisa iintlungu | Emva koko, ndijonga apho intlungu iphezulu khona emzimbeni wam ndize ndifake ikhrimu yokunciphisa iintlungu okanye i-heating pad kwezo ndawo. Ngamanye amaxesha ndenza umthambo wokuzolula. |
| Ukuzenza uzive ukhululekile | Emva koko ndanxiba iimpahla ezikhululekileyo, ndazigquma ngeengubo ezininzi, ndaza ndalala. |
| Ukuba uvuka ebusuku | Ukuba uvuka ezinzulwini zobusuku, wolula kancinci okanye uthambise ikrimu uze uzame ukubuyela ebuthongweni. Ukuba awulali kakuhle, ukongeza ekudinweni ngosuku olulandelayo, uya kuba neentlungu ezingaphezulu kunesiqhelo. |
Awuwedwa - inkxaso yoluntu
Xa uphila nesifo esinganyangekiyo esifana ne-AS, kuyanceda ukwazi ukuba awuwedwa. Kule mihla, kuye kwasekwa uluntu oluqinileyo lwabantu abagulayo kwi-intanethi. Akunyanzelekanga nokuba uphume endlwini yakho ukuze ubafumane.
Umntu obalisa eli bali uhlala enxibelelana noogqirha, abaphandi, kunye nabantu abanesi sifo esifanayo kwi-intanethi. Ukholelwa ukuba kwenza umahluko omkhulu. Abanye abantu bade bathi kuye, "Undisindisele ubomi."
Ngoko ke, ukuba unezi mpawu, okanye ufunyaniswe unale meko, eyona nto ingcono onokuyenza kukubona ugqirha onamava (ngakumbi iRheumatologist) ukuze ufumane iingcebiso ezifanelekileyo kunye nonyango . Kwakhona, ukujoyina amaqela enkxaso apho unokwabelana ngamava anje kuya kuba kukukhuthaza kakhulu amandla akho engqondo.
Umyalezo Wokuya Ekhaya
- I-Ankylosing Spondylitis (AS) yimeko yokuvuvukala okungapheliyo echaphazela umqolo kunye namalungu. Ukuqina kwasekuseni kunye nentlungu zezona mpawu ziphambili.
- Xa uphila nale meko, kubaluleke kakhulu ukucwangcisa imisebenzi yakho yemihla ngemihla kwangaphambili kwaye ubeke ixesha lokuphumla.
- Ukungalali kakuhle okubangelwa ziintlungu (i-painsomnia) kuqhelekile. Le meko inokulawulwa ngokuseka inkqubo yokulala.
- Ukuba uneempawu ezinje okanye ufunyaniswe unesifo, qiniseka ukuba ubona ugqirha wakho kwaye ufumane unyango olufanelekileyo kunye neengcebiso.
- Awuwedwa. Ukufumana amaqela enkxaso apho unokunxibelelana nabanye abaye badlula kumava afanayo kunokuba ngumthombo omkhulu wamandla engqondo.
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