Xa ugqirha wakho ekuxelela okanye umntu omthandayo ukuba une-cystic fibrosis (CF), mhlawumbi unemibuzo emininzi malunga namayeza aza kuwanika. Ekubeni sisimo esinzima, kubalulekile ukuba nolwazi olupheleleyo malunga namayeza aza kuwanika. Namhlanje siza kuthetha ngelinye lamayeza anjalo. Lipilisi edibeneyo ebizwa ngokuba yi-ORKAMBI, edityaniswe namayeza amabini abizwa ngokuba yiLumacaftor kunye ne-Ivacaftor.
Loluphi uhlobo lonyango olu? Yintoni kanye kanye le nto iyenzayo?
Ngamafutshane, i-cystic fibrosis (CF) yimeko ebangelwa sisiphene kwiproteni emzimbeni wethu. Oku kubangela ukuba ulwelo olukwimiphunga yethu kunye namalungu omzimba, ingakumbi i-mucus, lube lukhuni kakhulu kwaye lunamathele. Cinga ngayo, ngesiqhelo i-mucus kwimiphunga yethu iyavuza kancinci, ngoko ke iphuma lula. Kodwa i-mucus kumntu one-CF ityebile ngokwenene, njengeglu. Le mucus ityebileyo inamathela emiphungeni, nto leyo ebangela ubunzima bokuphefumla, ukukhohlela, kunye nosulelo oluqhelekileyo.
I-Lumacaftor; Eli yeza libizwa ngokuba yi-Ivacaftor lisebenza ngokuya kwiproteni engalunganga endikhankanyileyo kwaye liyilungise ukuya kuthi ga kwinqanaba elithile. Kufana nokulungisa isango eliphukileyo. Xa le proteni iqala ukusebenza kakuhle, indlela ityuwa namanzi ahamba ngayo kwiiseli zomzimba iyalingana. Emva koko loo mucus ityebileyo, inamathelayo iba ncinci kancinci kwaye iqala ukuba lula ukuyisusa emiphungeni. Oku kunokulawula iimpawu ezininzi ze-CF.
Kodwa into enye ekufuneka uyikhumbule kukuba olu asilonyango lwe-cystic fibrosis (CF). Lunyango nje olunceda ukulawula iimpawu nokwenza ubomi bube lula.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uthathe amayeza
Ngaphambi kokuba uqalise eli yeza, kubaluleke kakhulu ukwazisa ugqirha wakho ngembali yakho epheleleyo yempilo. Kuba ezinye iimeko zifuna unonophelo olukhethekileyo xa usebenzisa eli yeza. Ukuba unenye yezi meko zilandelayo, qiniseka ukuba uxelele ugqirha wakho.
| Imeko yempilo okanye ithuba | Kutheni kufuneka uxelele ugqirha? |
|---|---|
| Isifo sesibindi | Eli yeza linokuchaphazela isibindi. Ukuba sele uneengxaki zesibindi, umthamo wakho unokufuneka ulungiswe okanye unokufuneka uhlolwe rhoqo. |
| Isifo sezintso | Kwakhona kuyimfuneko ukuxhalabela ukusebenza kwezintso. |
| Igazi elonyukayo | Eli yeza linokubangela ukuba uxinzelelo lwegazi lunyuke ngakumbi, ngoko ke kubalulekile ukuba ukwazi oko. |
| Ukuba ukhulelwe okanye uzama ukukhulelwa | Ngokuqinisekileyo kufuneka uthethe nogqirha wakho malunga nokhuseleko lwale mithi ngexesha lokukhulelwa. |
| Ukuba umntwana uncanciswa | Xoxa nogqirha wakho ukuba ingaba iyeza lidluliselwa ebantwaneni ngobisi lwebele kunye nemiphumo yalo. |
| Ukunganyamezelani kwamanye amayeza, ukutya, okanye idayi | Olu lwazi lubalulekile ukwazi ukuba ngaba une-allergy kweli yeza okanye nakweyiphi na izithako zalo. |
Ulisebenzisa njani eli yeza?
Le yeyona nxalenye ibalulekileyo. Ukuba awusebenzisi eli yeza ngokuchanekileyo, iziphumo zinokuncipha.
- Yithathe kunye nesidlo esinamafutha: Lo ngumthetho obaluleke kakhulu . Ukuze eli yeza lifunxwe ngokufanelekileyo ngumzimba, kufuneka lithathwe kunye nesidlo esinamafutha. Umzekelo, lithathe kunye nento efana namaqanda, ibhotolo, itshizi, amandongomane, i-avokhado. Ukuba uyinika umntwana omncinci, ungayinika kunye nobisi lwebele, ubisi oluyimpuphu okanye iimveliso zobisi ezinamafutha apheleleyo ezifana neyogathi, itshizi.
- Yithathe kanye njengoko ugqirha wakho ekuyalele: thatha idosi efanelekileyo, ngexesha elifanelekileyo. Qhubeka uyisebenzisa de ugqirha wakho akuxelele ukuba uyeke.
- Musa ukusela ijusi yegrapefruit: Kuphephe ukusela ijusi yegrapefruit okanye yegrapefruit ngelixa usebenzisa eli yeza.
- Xa inikwa abantwana: Eli yeza linokunikwa abantwana abaneminyaka engaphezu kwemithandathu ubudala. Nangona kunjalo, ugqirha wakho uya kukunika imiyalelo ekhethekileyo malunga noku.
Kuthekani ukuba ndithatha amayeza amaninzi kakhulu?
Ukuba ucinga ukuba uthathe amayeza angaphezu kwedosi emiselweyo, fowunela iZiko loLwazi lweePoisons kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko, okanye uye kwiSebe leNgxamiseko (ETU) lesibhedlele esikufutshane.
Kuthekani ukuba ndilibele idosi?
Ukuba ulibele ukuthatha idosi, yithathe kwangoko xa ukhumbula. Nangona kunjalo, ukuba kungaphantsi kweeyure ezi-6 ngaphambi kokuba uthathe idosi elandelayo, ungayithathi idosi oyiphosileyo. Yitsibe uze uthathe idosi elandelayo ngexesha elicwangcisiweyo. Ungaze uthathe iidosi ezimbini ngaxeshanye.
Amanye amayeza anokusebenza kunye nale mayeza
Le yinto ekufuneka uyilumkele kakhulu. I-ORKAMBI inokusebenzisana namanye amayeza amaninzi. Oku kuthetha ukuba ukuyithatha kunye namanye amayeza kunokutshintsha iziphumo ze-ORKAMBI, kutshintshe iziphumo zamanye amayeza, okanye kubangele iziphumo ebezingalindelekanga ezibi kakhulu.
Ngoko ke, kufuneka uxelele ugqirha wakho malunga nawo onke amayeza owasebenzisayo (amayeza ezinye izifo, iivithamini, amayeza esintu, amayeza e-Ayurvedic, izongezo zokutya).
Apha ngezantsi kukho amayeza ambalwa anokusebenzisana nala mayeza. Olu luhlu aluphelelanga.
| Musa ukuthatha eli yeza kunye nalo naliphi na elinye iyeza. | |
|---|---|
| I-Artemether, i-lumefantrine | I-Ranolazine |
| I-Lurasidone | Amanye amayeza anikwa i-HIV kunye neentsholongwane zeHepatitis C |
| Nceda wazise ugqirha wakho kuba oku kusenokuchaphazela amayeza akho. | |
| Amanye amayeza okubulala iintsholongwane (umz. iClarithromycin, iErythromycin) | Amayeza okulwa nefungus (umz. iFluconazole, iKetoconazole) |
| Amayeza okuxhuzula (ukufa) (umz. iCarbamazepine, iPhenytoin) | Amayeza okudakumba okanye ukuxhalaba |
| Izinto ezithintela amasosha omzimba (umz. iCyclosporine, iTacrolimus) | Iintlobo zee-steroids (umz. i-Prednisone) |
| Iipilisi zokulawula ukuzala (ii-hormone ze-estrogen/Progestin) | I-Warfarin (i-blood thinner) |
| Izithomalalisi zentlungu ezifana ne-ibuprofen | I-St. John's Wort (amayeza esintu) |
Ezinye izinto ekufuneka uziqwalasele xa usebenzisa iyeza
- Ukuhlolwa rhoqo kwezonyango: Ugqirha wakho uza kukuxelela ukuba uze ekliniki rhoqo. Yiya ngexesha elifanelekileyo kwaye wenze izinto ezifana novavanyo lwegazi. Ukuba iimpawu zakho azipheli, mxelele ngayo.
- Lumka emehlweni akho: Eli yeza linomngcipheko omncinci wokubangela i-cataracts, ingakumbi ebantwaneni. Ngoko ke, kufuneka uhlolwe amehlo akho ngugqirha wamehlo rhoqo ngexesha elinye ngelixa usela iyeza. Ukuba ubona naluphi na utshintsho emehlweni akho, xelela ugqirha wakho ngoko nangoko.
- Lumka ngolawulo lokuzala: Oku kubaluleke kakhulu ukuba usebenzisa iipilisi zolawulo lokuzala zehomoni. I-ORKAMBI ingenza zingasebenzi kakuhle. Ke ngoko, qiniseka ukuba uthetha nogqirha wakho malunga nokusebenzisa olunye uhlobo lolawulo lokuzala, njengekhondom okanye i-diaphragm .
Iziphumo ebezingalindelekanga ezinokubakho ngenxa yeyeza
Njengalo naliphi na iyeza, eli linokubangela iziphumo ebezingalindelekanga kwabanye abantu. Ezinye zinzima, ezinye zincinci.
| Iziphumo ebezingalindelekanga ezinzulu ekufuneka zixelwe kugqirha ngoko nangoko | |
|---|---|
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi okanye umqala. |
| Ubunzima bokuphefumla okanye iintlungu zesifuba | Ukuba unengxaki yokuphefumla okanye uziva isifuba sakho siqina. |
| Iimpawu zomonakalo wesibindi | Intlungu kwicala eliphezulu lasekunene lesisu, ukuphelelwa ngumdla wokutya, isicaphucaphu, indle ekhanyayo, umchamo otyheli okanye omdaka omnyama, ukutyheli kwamehlo okanye ulusu, kunye nokudinwa kakhulu. |
| Uxinzelelo lwegazi olunyukileyo | Ugqirha uza kuyijonga le nto. |
| Utshintsho kwindlela yokubona | Ukuba umbono wakho ubonakala ungacacanga. |
| Iziphumo ebezingalindelekanga ezingaqhelekanga, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
| Isisu esibuhlungu | Igesi |
| Urhudo | Isicaphucaphu |
| Intloko ebuhlungu | Ukudinwa |
| Imijikelo yokuya exesheni engaqhelekanga kubafazi | |
Uligcina kwaye ulilahla njani iyeza?
- Indawo yokugcina: Gcina iipilisi kude nokufikelela kwabantwana nezilwanyana zasekhaya . Gcina kubushushu begumbi (phakathi kwama-20-25 degrees Celsius). Musa ukusebenzisa amayeza aphelelwe lixesha.
- Ukulahlwa: Eyona ndlela ilungileyo yokulahla amayeza aphelelwe lixesha okanye angasafunekiyo kukukhupha iipilisi kwisitya, uzixube nento efana nekofu esetyenzisiweyo, umhlaba, okanye inkunkuma yekati, uzifake kwibhegi evalwe kakuhle, uze uzilahle emgqomeni. Musa ukulahla amayeza kwindlu yangasese ngaphandle kokuba ugqirha wakho ekuxelele ukuba wenjenjalo.
Umyalezo Wokuya Ekhaya
- Soloko usela i-ORKAMBI (Lumacaftor; Ivacaftor) kunye nokutya okunamafutha njengebhotolo, itshizi, okanye amaqanda.
- Eli yeza lelakho kuphela. Musa ukwabelana ngalo nabanye abantu.
- Yazisa ugqirha wakho ngazo zonke ezinye iziyobisi, iivithamini, kunye namayeza esintu owasebenzisayo.
- Funa uncedo lwezonyango ngokukhawuleza ukuba ufumana iziphumo ebezingalindelekanga ezinzulu ezifana nokutshintsha kombono, ubunzima bokuphefumla, okanye intlungu kwicala eliphezulu lasekunene lesisu sakho.
- Gcina imihla yakho ecwangcisiweyo yekliniki kunye novavanyo kunye nogqirha wakho.
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