Ngamanye amaxesha, ezinye zezifo abantwana bethu abagula zizo zinzima kakhulu. Kwaye amayeza abawanikwayo nawo akhethekile. Namhlanje siza kuthetha ngelinye lamayeza akhethekileyo. Eli yeza libizwa ngokuba yi-Odevixibat, elinikwa abanye abantwana ukunyanga ukurhawuzelela kolusu okubangelwa sisifo sesibindi esingaqhelekanga. Ukuba umntwana wakho unikwe eli yeza ngugqirha, eli nqaku liza kuba libaluleke kakhulu kuwe.
Luhlobo luni lonyango i-Odevixibat?
Ngamafutshane, i-Odevixibat liyeza elinikwa ukulawula ukurhawuzelelwa okugqithisileyo okubangelwa yingxaki yesibindi somntwana wakho. Laziwa ngegama lemarike iBylvay.
Ngokwezonyango, eli lilungu lodidi lwamayeza abizwa ngokuba yi-ileal bile acid transporter (IBAT) inhibitors . Oku kuthetha ukuba eli yeza lilawula ukuphinda kufunxwe kwee-bile acids emathunjini ethu emzimbeni.
Eli yeza lisetyenziswa kakhulu ukulawula ukurhawuzelela kwizigulana ezinemeko ebizwa ngokuba yiProgressive Familyal Intrahepatic Cholestasis (PFIC) . I-PFIC yimeko engaqhelekanga yemfuza ephazamisa ukuhamba kwenyongo kwiiseli zesibindi. Oku kubangela ukuba inyongo iqokelele emzimbeni, nto leyo ebangela ukurhawuzelela okunganyamezelekiyo. I-Odevixibat isebenza ngokulawula unobangela wokurhawuzelela.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uqale amayeza
Ngaphambi kokuba usebenzise eli yeza, kubalulekile ukunika ugqirha wakho inkcazo epheleleyo ngemeko yakho okanye yomntwana wakho. Qiniseka ukuba ukhankanya oku kulandelayo ngokukodwa:
- Ukunqongophala kweevithamini: Ukuba ugqirha ukuxelele ukuba unezinga eliphantsi leevithamini A, D, E, okanye K egazini lakho, mxelele.
- Ukukhulelwa: Ukuba ukhulelwe, okanye uceba ukuba nomntwana kungekudala, kufuneka uxelele ugqirha wakho.
- Ukuba ungumama oncancisayo: Ukuba ungumama oncancisayo, qiniseka ukuba uyamxelela umongikazi.
Ukuthetha nogqirha ngaphandle kokufihla olu hlobo lolwazi kubaluleke kakhulu kukhuseleko lwakho nolomntwana wakho.
Indlela echanekileyo yokusebenzisa iyeza
Ukuze ufumane okuninzi kweli yeza, kubaluleke kakhulu ukulisebenzisa ngokuchanekileyo. Thatha idosi echanekileyo, ngexesha elifanelekileyo, njengoko ugqirha wakho ekuyalele.
| Ingcebiso | Indlela yokwenza oko |
|---|---|
| Ukuthatha amayeza | Sela ngexesha elifanayo yonke imihla, neglasi yamanzi entle. Kungcono ukusela kunye nesidlo. |
| Ukuginya i-capsule | Ginya ikhaphu yonke . Musa ukuyiqhekeza, ukuyityumza, okanye ukuyihlafuna nangasiphi na isizathu. |
| Ukuba kunzima ukuginya | Ukuba unengxaki yokuginya ikhapsuli, yivule ngononophelo, xuba umgubo ongaphakathi kunye neepuni ezimbini zokutya okutyebileyo okufana neyogathi okanye isosi yeapile, uze uginye ngokukhawuleza ngaphandle kokuhlafuna. Ungaze udibanise eli yeza nolwelo (amanzi, ubisi, ijusi). |
| Kunye namanye amayeza | Ukuba uthatha amayeza okwehlisa i-cholesterol (ii-bile acid binding resins) ezifana neCholestyramine, iColesevelam, okanye iColestipol, zithathe iiyure ezi-4 ngaphambi okanye iiyure ezi-4 emva kokuthatha i-Odevixibat. |
Ubanika nini abantwana eli yeza?
Oogqirha bacebisa eli yeza kubantwana abancinci njengeenyanga ezi-3 kwiimeko ezithile ezikhethekileyo. Nangona kunjalo, kukho izinto ekufuneka uzilumkele. Ngoko ke, xa unika umntwana wakho eli yeza, landela imiyalelo kagqirha ngokuchanekileyo.
Ungenza ntoni ukuba uthatha amayeza amaninzi kakhulu?
Ukuba ucinga ukuba wena okanye umntwana wakho nisele kakhulu eli yeza, musa ukulibazisa.
Fowunela iZiko loLwazi lweTyhefu leSizwe kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko. Okanye uye kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
Kuthekani ukuba ndiphoswa lidosi leyeza?
Ukuba ulibele ukuthatha idosi, yithathe kwangoko xa ukhumbula. Nangona kunjalo, ukuba sele kusondele ixesha lokusebenzisa idosi yakho elandelayo, yitsibe idosi oyiphosileyo uze uthathe idosi elandelayo ngexesha elicwangcisiweyo.Ungaze uthathe idosi ephindwe kabini ukuze ubuyisele idosi elibalekileyo.
Ezinye izinto ezinokusebenzisana nale mithi
Amanye amayeza anokusebenzisana ne-Odevixibat, ingakumbi, njengoko besitshilo ngaphambili, kunye namayeza akudidi lwe-bile acid binding resins .
- I-Cholestyramine
- I-Colesevelam
- I-Colestipol
Olu luhlu aluphelelanga. Kungoko ke, kubaluleke kakhulu ukuxelela ugqirha wakho malunga nawo onke amayeza owasebenzisayo (kuquka amayeza ezinye izifo, iivithamini, kunye namayeza esintu).
Izinto ekufuneka uzilumkele xa usebenzisa amayeza
- Ukuhlolwa rhoqo: Qiniseka ukuba uya kuvavanyo olucwangcisiweyo lukagqirha wakho kuwe okanye kumntwana wakho. Thetha nogqirha wakho malunga nokuba iimpawu zakho ziya zisiba ngcono okanye zimbi na.
- Iivithamini: Kubalulekile ukuqinisekisa ukuba ufumana iivithamini ozidingayo (ingakumbi iivithamini ezinyibilikayo kumafutha u-A, u-D, u-E, kunye no-K) ngelixa usebenzisa eli yeza. Thetha nogqirha wakho malunga nokutya okutyayo kunye nazo naziphi na izongezo ozithathayo.
- Uvavanyo lwegazi: Ngexesha lonyango, ugqirha wakho unokuyalela umsebenzi wegazi ukuze ahlole izinto ezifana nokusebenza kwesibindi sakho. Musa ukuzityeshela.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengalo naliphi na iyeza, i-Odevixibat inokubangela ezinye iziphumo ebezingalindelekanga. Ezinye zezi zinokuba yingozi, ngoko ke kubalulekile ukuba uzazi.
| Uhlobo lwesiphumo esibi | Iimpawu |
|---|---|
| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha ngoko nangoko | |
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela okukhulu, ukudumba kobuso, imilebe okanye ulwimi. |
| Iimpawu zokulimala kwesibindi | Umchamo otyheli okanye omdaka omnyama, uzive udiniwe, umkhuhlane, ukungabi namdla wokutya, iintlungu kwicala eliphezulu lasekunene lesisu, kunye nokutyheli kwamehlo okanye ulusu (i-jaundice). |
| Urhudo | Urhudo oluqhubekayo. |
| Izinto omele uzixelele ugqirha wakho ukuba ziyaqhubeka okanye ziyakukhathaza | |
| Isisu esibuhlungu | Intlungu yesisu ngokubanzi. |
| Ukuhlanza | Ukuhlanza. |
Ufanele uwagcine njani amayeza akho?
- Gcina kude nabantwana kunye nezilwanyana zasekhaya .
- Gcina kubushushu begumbi (phakathi kwama-20 nama-25 degrees Celsius) , kwindawo eyomileyo.
- Musa ukusebenzisa amayeza aphelelwe lixesha. Walahle.
Ungayisusa njani imithi engasetyenziswanga?
Akuyongcinga ilungileyo ukulahla amayeza aphelelwe lixesha okanye angafunekiyo enkunkuma okanye endlwini yangasese. Cela ingcebiso kugqirha wakho. Ukuba bathi kulungile ukulahla amayeza enkunkuma, khupha amayeza ebhotileni, uwaxube nento efana namagqabi eti asetyenzisiweyo, intlama yekofu, okanye umhlaba, uze uwafake ebhegini evalwe kakuhle.
Umyalezo Wokuya Ekhaya
- I-Odevixibat liyeza elimiselwe ukurhawuzelelwa okubangelwa yimeko ethile yesibindi ebizwa ngokuba yi-PFIC kwaye kufuneka lisetyenziswe kuphela ngokwengcebiso kagqirha.
- Ginya ikhapsuli yonke. Musa ukuyityumza okanye ukuyihlafuna. Yixube nokutya okuqinileyo kuphela ukuba unengxaki yokuginya.
- Xelela ugqirha wakho ngazo zonke ezinye iziyobisi ozisebenzisayo kunye neemeko zakho zempilo.
- Ukuba ubona naziphi na iziphumo ebezingalindelekanga ezinzulu, ezinje ngeempawu zokunganyamezelani okanye iimpawu zokonakala kwesibindi (ukutyheli kwamehlo, umchamo omnyama), yazisa ugqirha wakho ngoko nangoko.
- Ukuba usela kakhulu, yiya kwiZiko loLwazi lweTyhefu leSizwe okanye kwi-ETU ngoko nangoko.
- Ukuba unemibuzo malunga nale mithi, qiniseka ukuba uthethe nogqirha wakho.
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