Ungacinga uvuka kusasa ngenye imini ube neempawu ezifana nokungaziva kwelinye icala lomzimba wakho kunye nokungaboni kakuhle, uze emva kweentsuku okanye iiveki ezimbalwa, konke oko kuphele ngokupheleleyo. Emva koko awunangxaki kangangeenyanga, mhlawumbi neminyaka. Yonke into ibuyela esiqhelweni. Emva koko ngequbuliso uba nezinye iimpawu, mhlawumbi nobunzima bokuhamba. Sithetha ngemeko eneempawu ezifika zize ziphele ngolu hlobo. Le yinto esiyibiza ngokuba yi-RRMS kunyango.
Kalula nje, yintoni i-RRMS?
I-RRMS sisifinyezo segama elithi `Relapsing-Remitting Multiple Sclerosis`. Olu lolona hlobo luqhelekileyo lwe-`Multiple Sclerosis` (MS). Enyanisweni, malunga nabantu abayi-80-85 kwabayi-100 abane-MS banolu hlobo lwe-`RRMS`.
Kulungile, ngoku makhe sijonge intsingiselo yale gama.
- Ukubuyela umva: Oku kubhekisa kwixesha apho iimpawu zibonakala ngequbuliso okanye ziba mandundu. Abanye abantu bakubiza oku ngokuthi 'kukuqhambuka'. Eli xesha linokuhlala ukusuka kwiintsuku ezimbalwa ukuya kwiiveki ezimbalwa.
- Ukuyeka: Oku kubhekisa kwixesha apho iimpawu ziphela kancinci kancinci uze ubuyele esiqhelweni, nokuba ngokupheleleyo okanye ngokuyinxenye. Usenokuba ungenazo iimpawu ngeli xesha.
Ngamafutshane, i-RRMS yimeko etshintshatshintsha phakathi kwamaxesha okuqhambuka kweempawu kunye namaxesha okukhululeka kweempawu.
I-MS yimeko yokuzikhusela komzimba apho inkqubo yomzimba wethu yokuzikhusela, inkqubo esikhusela kwizifo, ihlasela ngempazamo inkqubo yethu yemithambo-luvo ephakathi. Kubalulekile ukuba wena nogqirha wakho nichonge ngokuchanekileyo uhlobo lwesifo, i-RRMS, kuba yileyo ndlela eninokuchonga ngayo unyango olufanelekileyo kuwe.
Ziziphi iimpawu eziqhelekileyo ezibonakala kwi-RRMS?
Ezi mpawu azibonakali kumntu wonke ngendlela efanayo. Zinokwahluka kakhulu kumntu nomntu. Ngamanye amaxesha uninzi lwezi mpawu lunokwenzeka kunye. Enye okanye ezingaphezulu kwezi zinokuvela xa umntu ephinda abuye.
| Uphawu | Ingcaciso elula |
|---|---|
| Utshintsho kwindlela yokubona | Izinto ezifana nokubona okufipheleyo, ukubona kabini, ukungakwazi ukwahlula imibala, kunye nentlungu xa ushukumisa iliso. |
| Ubungqindilili okanye ukulahleka kwemvakalelo | Ukuziva ngathi uziva ngathi awusenanto okanye awunayo imvakalelo ezandleni, ezinyaweni, ebusweni, okanye kwezinye iindawo zomzimba. |
| Ukuqina okujikeleze isifuba okanye isisu | Kuvakala ngathi kukho umntu okugoba ngokuqinileyo esifubeni okanye esiswini sakho. Abanye abantu bakubiza oku ngokuthi "yi-MS hug." |
| Ukudinwa | Ukuziva udiniwe kakhulu, unganyamezeleki, okungaphezulu kakhulu kunesiqhelo. Oku kudinwa kusenokuncipha nokuba sele ulele kamnandi ebusuku. |
| Iingxaki zomchamo kunye namathumbu | Iingxaki ezinje ngobunzima bokuqala ukuchama, ukungxamiseka komchamo (ukungxamiseka komchamo), kunye nokungakwazi ukulawula umchamo. |
| Ukuziva ngathi uthuswe ngumbane. | Uvakalelo lombane oluhamba ngomqolo xa intamo igobile phambili. (Uphawu lukaLhermitte) |
| Ubunzima bokuhamba kunye neengxaki zokulinganisela | Ukukhubeka xa uhamba, ukulahlekelwa yibhalansi, ubunzima bokuhamba ngenxa yobuthathaka bemisipha. |
| Ubuthathaka okanye ukuqina kwemisipha | Ukuncipha kwamandla emisipha okanye ukuqina okungaqhelekanga (ukuxinana). |
| Iingxaki zokucinga kunye nenkumbulo | Ubunzima bokugxila, ukulahlekelwa yinkumbulo, ubunzima bokufumana amagama, njl. Oku kukwabizwa ngokuba yi-"brain fog". |
Nangona abanye abantu befumana iimpawu zabo ezipheleleyo, abanye banokufumana ezinye iimpawu eziseleyo. Kwiimeko ezinjalo, i-physiotherapy, amayeza, okanye i-injections ezifana neBotox®, njengoko ugqirha wakho eyalele, zinokukunceda ukulawula iimpawu zakho.
Ngaba kukho izinto ezibangela ukuba iimpawu zibe zimbi ngakumbi?
Ewe, ezinye izinto zinokubangela ukuba iimpawu zakho zibuye okanye zibe mandundu. Kodwa ezi 'zibangela' azichaphazeli wonke umntu ngokufanayo. Oko kuchaphazela umntu omnye kusenokungachaphazeli omnye.
Nazi ezinye zezinto ezibangela oku:
- Uxinzelelo: Uxinzelelo olugqithisileyo lunokuba yimbangela enkulu yeempawu.
- Ubushushu: Ubushushu obuphezulu, umkhuhlane, okanye nokubanda kakhulu kwabanye abantu kunokwenza iimpawu zibe zimbi ngakumbi.
- Izifo: Nokuba zizifo ezincinci, ezifana nomkhuhlane oqhelekileyo okanye usulelo lomchamo, zinokubangela ukuba iimpawu ze-MS ezindala ziphinde zivele.
- Ukusetyenziswa kweemveliso zecuba: Ukutshaya kunokukhawulezisa ukuqhubela phambili kwesi sifo kwaye kubangele iimpawu ezibi ngakumbi.
- Ukunqongophala kweVithamin D: Uphando lufumanise ukuba amanqanaba aphantsi eVithamin D ayachaphazela nesifo se-MS kunye neempawu zaso.
Kutheni le nto ibangela le MS? Yintoni unobangela?
Enyanisweni, unobangela we-MS awukafunyanwa okwangoku , kodwa uphando lufumanise ukuba zininzi izinto ezinokubangela loo nto.
Cinga nje ngemithambo-luvo yethu njengeentambo zombane. Ezi ntambo zijikelezwe sisigqubuthelo esikhuselayo, njenge-'insulation'. Le siyibiza ngokuba yi -'myelin' . Esi sigqubuthelo se-myelin sivumela imiyalezo ukuba ihambe ngokukhawuleza nangokuchanekileyo ngemithambo-luvo.
Kwi-MS, inkqubo yethu yokuzikhusela, amajoni asikhusela kwizifo, ahlasela ngempazamo le sheath ye-myelin. Olu hlaselo lonakalisa isheath ye-myelin. Emva koko ukudluliselwa kwemiyalezo yemithambo-luvo kuyaphazamiseka. Kanye njengokuba 'ukufakwa' kwentambo konakele, 'kuyafinyeza'. Kulapho ke iimpawu ebesithethe ngazo ngaphambili zibonakala khona.
Kukholelwa ukuba izinto ezingqongileyo, kuquka utyekelo lwemfuza kunye nosulelo lweentsholongwane ezifana ne-Epstein-Barr virus, zinokubangela ukuba inkqubo yomzimba yokuzikhusela ihlasele ngempazamo ngale ndlela.
Ifunyanwa njani i-RRMS?
Ukuchonga i-MS kunokuba nzima, kuba akukho vavanyo lunye olunokuqinisekisa ukuxilongwa. Ugqirha wakho uza kuhlalutya iimpawu zakho, imbali yezonyango, uvavanyo lomzimba, kunye neziphumo zezinye iimvavanyo ezininzi ukuze afumane ukuxilongwa.
Iimvavanyo ezihlala zenziwa koku zezi:
- Iskeni se-MRI: Iskeni se-MRI (Magnetic Resonance Imaging) sobuchopho kunye nomgogodla sinokuchonga iindawo ezinomonakalo (izilonda) kwi-myelin sheath.
- Ukubhaqwa Kweentlungu Zeempundu: Oku kuquka ukufaka inaliti encinci kakhulu kumjelo womqolo kunye nokuthatha inani elincinci lolwelo lwe-cerebrospinal ukujonga ubukho beeproteni ezithile kwi-MS, ezifana nee-oligoclonal bands.
- Uvavanyo lwegazi: Uvavanyo lwegazi lwenziwa ukuqinisekisa ukuba awunazo ezinye iimeko ezibangela iimpawu ezifana neze-MS.
- Uvavanyo lwe-OCT: ``Optical Coherence Tomography`` luvavanyo olungenazintlungu oluhlola umthambo we-optic ongasemva kweliso ukuze kubonwe ukuba wonakele na yi-MS.
Ziziphi iindlela zonyango ze-RRMS?
Nangona kungekho nyango lwe-RRMS okwangoku, okwangoku kukho unyango olusebenzayo kakhulu olunokukunceda ulawule esi sifo kwaye uphile ubomi obuqhelekileyo.
Iinjongo eziphambili zonyango zezi:
- Ukunciphisa inani lokubuyela umva.
- Ukunciphisa umonakalo kwinkqubo ye-nervous ephakathi.
- Ukulibazisa ukuqala kokukhubazeka okubangelwa sisifo.
Amayeza asetyenziswa koku abizwa ngokuba zii-disease-modifying therapies (DMTs) . La mayeza anokufunyanwa ngeendlela ezahlukeneyo.
- Iinaliti: Iinaliti ezifakwa phantsi kwesikhumba okanye kwisihlunu.
- Amayeza omlomo: Amayeza athathwa njengeepilisi imihla ngemihla okanye ngeentsuku ezimiselweyo.
- Ii-Infusions: Amayeza afakwa emzimbeni ngemithambo yegazi, njenge-saline. La mayeza anokunikwa kube kanye ngenyanga okanye rhoqo emva kweenyanga ezimbalwa.
Kubalulekile ukuqala unyango olufanelekileyo lwe-DMT ngokukhawuleza emva kokuba uxilongiwe, njengoko la mayeza anokuthintela umonakalo kwinkqubo yemithambo-luvo kwixesha elizayo. Thetha ngokukhululekileyo nogqirha wakho malunga nonyango olulungele wena kunye nemiphumo yalo.
Izinto onokuzibuza ugqirha wakho
Ngenxa yokuba i-RRMS yimeko yexesha elide, kuyinto eqhelekileyo ukuba nemibuzo emininzi engqondweni yakho. Xa usiya kugqirha wakho, bhala phantsi le mibuzo.
Ukuba ubonakalisa iimpawu ezintsha, ukuba iimpawu zakho ezikhoyo ziya zisiba mandundu, okanye ukuba ufumana iziphumo ebezingalindelekanga ezivela kunyango lwakho, thetha nogqirha wakho ngokukhawuleza.
Eminye imibuzo enokuba luncedo ukuyibuza ugqirha wakho:
- Luhlobo luni lwe-MS endinalo?
- Undicebisa ukuba ndinyangwe ngaluphi unyango? Ngoba?
- Zithini iziphumo ebezingalindelekanga zolo nyango?
- Ndenza ntoni xa iimpawu zam zisiba mandundu ngequbuliso (ukubuyela umva)?
- Ndingazichonga njani izinto ezibangela ukuba iimpawu zam zinyuke?
Ukuphila ne-RRMS kunokuba nzima. Kodwa khumbula, awuwedwa. Ngonyango olufanelekileyo, utshintsho lwendlela ophila ngayo, kunye nenkxaso evela kwiqela lakho lezonyango, ungaphila ubomi obuhle kakhulu nobukhutheleyo. Ukufuna uncedo kwingcali yezempilo yengqondo, ukuba kuyimfuneko, nako kunokuba luncedo kakhulu.
Umyalezo Wokuya Ekhaya
- I-RRMS lolona hlobo luqhelekileyo lwe-Multiple Sclerosis (MS).
- Apha, amaxesha okuqhambuka kweempawu (ukubuyela umva) kunye namaxesha okunciphisa iimpawu (ukukhululwa kwazo) ayatshintshana.
- Nangona ingenakunyangwa ngokupheleleyo, kukho unyango olusebenzayo kakhulu (ii-DMT) ezikhoyo namhlanje ukulawula esi sifo kakuhle nokunciphisa umonakalo kwinkqubo yemithambo-luvo.
- Ukuxilongwa kwangoko kunye nonyango kubalulekile ukuthintela iingxaki ezizayo.
- Soloko uthetha nogqirha wakho malunga neempawu zakho, unyango, okanye naziphi na iingxaki onokuba unazo.
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