Yintoni iSneddon Syndrome? Ngaba unamabala anje eluswini lwakho? Masithethe!

Ngaba wakha waphawula ukuba abanye abantu banamabala amfusa eluswini lwabo, ingakumbi kumalungu abo, ngendlela efana nenethi? Ngamanye amaxesha bakhalaza ngokuba nesiyezi kunye nentloko ebuhlungu. Namhlanje siza kuthetha ngesimo esingaqhelekanga esineempawu ezifanayo, kodwa akukho mntu uthetha kakhulu ngaso. Oku kubizwa ngokuba yiSneddon Syndrome.

Yintoni iSneddon Syndrome? Ngamafutshane...

Ngamafutshane, iSneddon Syndrome sisifo esichaphazela imithambo yegazi emincinci nephakathi emzimbeni wakho. Cinga ngale mithambo yegazi njengemibhobho ethwala amanzi. Kwesi sifo, umaleko ogudileyo weeseli ngaphakathi kwemithambo yegazi yakho, ngokwezonyango obizwa ngokuba yi-endothelium, ukhula ngokukhawuleza nangaphezulu kunokuba kufanele. Kwenzeka ntoni emva koko? Ezi seli zongezelelweyo zinciphisa indawo ngaphakathi kwemithambo yegazi, njengokuba xa uthuli lubhajwe kumbhobho, kuba nzima ukuba amanzi ahambe. Oku kubangela ukuba ukuhamba kwegazi kuthintelwe.

Le yimeko ekufuneka ijongwe okwethutyana, njengoko inokuba mandundu ngokuhamba kwexesha. Abantu abanale meko basengozini enkulu yokuqhekeka kwegazi. Banokuba neengxaki zesikhumba kunye neengxaki zemithambo-luvo. Ngamanye amaxesha ibizwa ngokuba yiSneddon-Champion syndrome. Elinye igama yi-livedo reticularis racemosa. Le meko inokubangela istroke kunye nokuhlaselwa kwe-ischemic okuhamba kancinci (ii-TIA) kwabanye abantu.

Ixhaphake kangakanani le meko? Ngubani oxhaphake kakhulu phakathi kwabo?

Enyanisweni, iSneddon Syndrome sisifo esingaqhelekanga kakhulu. Ngokwezibalo, kuqikelelwa ukuba ngabantu abane kuphela kwisigidi abasifumanayo minyaka le. Oko kuthetha ukuba umntu omnye kumawaka amabini anesiqingatha.

Ngaphezu koko, le meko ixhaphake kakhulu kwabasetyhini kunakwamadoda. Malunga nama-80% abantu abaneSneddon syndrome ngabafazi. Badla ngokufunyaniswa benale meko xa bemalunga neminyaka engama-40 ubudala.

Zithini iimpawu zoku? Uzibona njani?

Umntu oneSneddon Syndrome unokufumana iimpawu ezahlukeneyo. Nangona kunjalo, azibonakali zonke ezi mpawu ngaxeshanye. Ezinye iimpawu zinokubonakala kwiminyaka emva kokuba iingxaki zemithambo-luvo ziqalile. Okanye abanye abantu banokufumana iingxaki zamehlo okanye iintloko ezibuhlungu okokuqala. Nazi ezinye zeempawu:

• Ipateni efana ne-mesh eluswini:Olu luphawu lokuqala olubonwa ngabantu abaninzi. Ulusu luba namabala abomvu-mfusa, afana neentlanzi okanye iipateni kwezinye iinyoka. Oku akubuhlungu. Ukuba la mabala abonakala ezingalweni nasemilenzeni yakho, abonakala emakhazeni, aze anyamalale xa ufudumala, kuthiwa yi-livedo reticularis. Nangona kunjalo, ukuba le patheni ibonakala esifubeni sakho, esiswini, okanye ezimpundu, kwaye ayinyamalali nokuba ufudumala, ibizwa ngokuba yi-livedo racemosa.
• Intloko ebuhlungu: Iintloko ezibuhlungu ezihlala zikho, ngamanye amaxesha zinokubakho rhoqo.
• Ukudinwa: Ukuziva ngathi ujikeleza.
• Istroke kunye neTIA: Njengoko bekutshiwo ngaphambili, ezi zezinye zezona zinzima kakhulu.
• Utshintsho kwindlela oziphethe ngayo nendlela ocinga ngayo: Kunokubakho utshintsho kubuntu bakho, kwindlela ocinga ngayo, kunye nokukwazi kwakho ukukhumbula.
• Iingxaki zezintso: Oku akuvamile kangako, kodwa abanye abantu banokuba neengxaki zezintso.

Eyona nto ibalulekileyo kukuba ukuba unenye okanye ezimbini kwezi mpawu, ingakumbi ukuba unentloko ebuhlungu kunye nesiyezi kunye nepateni yolusu efana ne-mesh, ngokuqinisekileyo kuya kufuneka ubone ugqirha ukuze akunike ingcebiso.

Kutheni iSneddon Syndrome isenzeka? Yintoni unobangela?

Oku kuyinto oogqirha abasakwaziyo ukuyifumanisa. Unobangela ochanekileyo weSneddon Syndrome awukafunyanwa. Yiyo loo nto ibizwa ngokuba yi-idiopathic, oko kuthetha ukuba unobangela awaziwa. Nangona kunjalo, ekubeni esi sifo sibonwe sisebenza kwezinye iintsapho, kurhanelwa ukuba kusenokuba kukho icandelo lemfuza .

Kwakhona, kwezinye iimeko, i-Sneddon syndrome inokwenzeka kunye nezinye iimeko ze-autoimmune . Isifo se-autoimmune sisifo nje apho amasosha omzimba wethu ahlasela iiseli zomzimba wethu. Ukuba une-Sneddon syndrome, inokunxulunyaniswa nenye yezi meko zilandelayo:

• I-Lupus
• Isifo se-Antiphospholipid
• Isifo sikaBehçet
• Isifo sezicubu ezidityanisiweyo

Ifunyaniswa njani le nto? Zeziphi iimvavanyo ezenziwayo?

Ukuba ugqirha wakho ukrokrela ukuba uneSneddon Syndrome ngokusekelwe kwiimpawu zakho, uya kuyalela iimvavanyo ezahlukeneyo. Ezi mvavanyo ziya kukhangela:

• Igazi lakho: Jonga iimpawu zesifo sokuzikhusela komzimba kunye neengxaki zokujiya kwegazi.
• Intliziyo yakho: Jonga indlela igazi elihamba ngayo entliziyweni yakho nakwimithambo yegazi.
• Ingqondo yakho:Jonga ukuba akukho monakalo engqondweni. Isenokuba ibangelwa sistroke.
• Ulusu lwakho: Kuthathwa iqhekeza elincinci lesikhumba lize lihlolwe (i-skin biopsy) ukuze kubonwe ukuba kukho naluphi na utshintsho olubonakalayo kwiseli yesi sifo.

Olu vavanyo lungabandakanya uvavanyo olukhethekileyo lokufota . Umzekelo:

• Iiskeni ze-MRI (i-magnetic resonance imaging - iiskeni ze-MRI)
• Iskeni ye-CT `(i-computed tomography - iiskeni ze-CT)`
• Ii-Angiograms (i-X-ray ekhethekileyo yokujonga imeko yemithambo yegazi)

Oogqirha banokuqinisekisa ngokuchanekileyo esi sifo kuphela emva kokwenza zonke ezi vavanyo.

Inyangwa njani? (Unyango) Ziziphi iindlela onokuzisebenzisa?

Eyona ndlela ilungileyo yokunyanga iSneddon Syndrome ayikaqondwa ngokupheleleyo. Esinye isizathu soku kukuba bambalwa kakhulu abantu abanale meko kangangokuba kunzima ukufumana abantu abaneleyo bokuqhuba uvavanyo olukhulu lwezonyango.

Nangona kunjalo, kukho iindlela ezahlukeneyo zonyango ngokuxhomekeke kwiimpawu zesifo. Umzekelo, ugqirha wakho unokukunika amayeza afana nala:

• Amayeza okulwa nokugabha kwegazi okanye awokulwa neeplatelet: La mayeza athintela ukugabha kwegazi kwaye ancede ukuhamba kwegazi.
• IiVasodilators: Umzekelo, i-nifedipine. Ezi zandisa imithambo yegazi kwaye zonyusa ukuhamba kwegazi. Oku kudla ngokunceda ekunciphiseni iimpawu zolusu.
• Izithinteli ze-enzyme eziguqula i-Angiotensin (i-ACE inhibitors): Ezi zinceda ekumiseni ukukhula okungaqhelekanga kwezo seli ze-endothelial ezikhankanyiweyo ngaphambili.

Kubalulekile: Ukuba une-Sneddon syndrome, kufuneka ukuphephe ngokupheleleyo ukutshaya nokusebenzisa iipilisi zokulawula ukuzalwa ezine-estrogen. Ezi zingenza imeko ibe mandundu.

Ngaba ikho indlela yokuthintela esi sifo?

Ngelishwa, ngokusekelwe kulwazi lwangoku, akukho ndlela yokuthintela iSneddon Syndrome. Ngenxa yokuba unobangela ochanekileyo awaziwa, kunzima ukutsho indlela yokuyithintela.

Kuza kwenzeka ntoni ukuba le meko iyaqhubeka? (Ingqikelelo) Yintoni esinokuyilindela kwixesha elizayo?

Kwiimeko ezininzi, iSneddon Syndrome ibangela utshintsho kwinkqubo yemithambo-luvo. Umzekelo , ukulahlekelwa yinkumbulo kunye nobunzima bokuthetha kunokukhula kancinci kancinci ngokuhamba kwexesha. Kwezinye iimeko, abantu abaneSneddon Syndrome banokufunyaniswa ukuba bane-dementia kwangethuba. Yiyo loo nto kubalulekile ukuba uqaphele ezi mpawu.

Ngaba ikho indlela yokunyanga ngokupheleleyo?

Ngokweenkcukacha zonyango zangoku, iSneddon Syndrome"Unyango" olupheleleyo alukafunyanwa. Unyango lujolise ekulawuleni iimpawu kunye nokuzama ukuthintela ukuba isifo singabi mandundu.

Ufanele ufune nini ingcebiso kagqirha?

Ukuba uneempawu zeSneddon Syndrome, ezifana nephethini yesikhumba efana ne-mesh, intloko ebuhlungu, kunye nesiyezi, bona ugqirha ngokukhawuleza. Musa ukulibazisa, ingakumbi ukuba unezinye iimpawu kunye namabala esikhumba.

Ukuba sele ufunyenwe une-Sneddon syndrome, ukuba ubonakalisa iimpawu ezintsha, okanye ukuba uvakalelwa kukuba iimpawu zakho ziya zisiba mandundu, yazisa ugqirha wakho ngoko nangoko.

Kwakhona, ukuba ufumana naziphi na iimpawu zestroke, ungalibazisi. Fowunela u-911 ngoko nangoko (eSri Lanka, ngo-1990 Suwaseriya Ambulance Service) okanye uye kwisebe likaxakeka lesibhedlele elikufutshane. Iimpawu zestroke zingabandakanya:

• Intloko ebuhlungu kakhulu ngequbuliso.
• Iingxaki zokubona (ezifana nokulahlekelwa ngumbono kwelinye iliso, ukufiphala kwamehlo omabini).
• Ukuba ndindisholo okanye ubuthathaka kwelinye okanye omabini amacala omzimba.
• Ubunzima bokuhamba.
• Ubunzima bokuthetha okanye ukuqonda oko kuthethwa ngabanye abantu.

Okokugqibela, izinto ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Sneddon Syndrome yimeko engaqhelekanga kwaye enokuba yingozi. Nangona kunjalo, ukuba ufunyaniswe unale meko, landela imiyalelo kagqirha wakho ngononophelo. Thatha amayeza akho ngexesha, gcina amadinga akho okulandela, kwaye ungaphoswa ziishedyuli zovavanyo.

Ungazinceda ngokwamkela indlela yokuphila enempilo yentliziyo. Oko kuthetha ukutya ukutya okunesondlo, ukuzilolonga, nokuphepha ukutshaya kunye nolawulo lokuzala olune-estrogen. Ezi zinto zinokunceda kakhulu ekulawuleni imeko yakho. Ungakhathazeki, ungaphila nale meko ngonyango olufanelekileyo kunye notshintsho kwindlela ophila ngayo.

Isifo sikaSneddon , isifo semithambo yegazi, amabala esikhumba, isifo sohlangothi, i-neuropathy, i-livedo reticularis, amahlwili egazi