Ingaba umthambo wakho womqolo ubambeke ndaweni ithile? Masifunde ngentambo yomqolo ebotshelelweyo.

Ngaba wena okanye umntwana wakho nikhe naphawula ukungakhululeki, iintlungu, okanye utshintsho emqolo okanye kwindlela enihamba ngayo? Ngamanye amaxesha usenokuba uqaphele iqhuma elincinci okanye iqhuma eluswini ezantsi komqolo wakho. Esinye sezizathu zezi zinto sinokuba yimeko ebizwa ngokuba yi-'tethered spinal cord' . Eli gama lisenokuvakala lisoyikisa kancinci, kodwa ukuba uyazi oku, iingxaki ezininzi zinokusonjululwa. Namhlanje, siza kuthetha ngale nto ngendlela elula onokuyiqonda.

Yintoni 'intambo yomqolo ebotshelelweyo'?

Ngamafutshane, intambo yethu yomqolo , intambo yemithambo-luvo ephambili edlula kumqolo wethu, kufuneka ihambe ngokukhululekileyo ngaphakathi komqolo. Njengocingo olungaphakathi kwityhubhu. Nangona kunjalo, kule meko 'yomthambo womqolo obotshelelweyo', umthambo womqolo unamathele ngendlela engaqhelekanga eludongeni lwangaphakathi lomqolo okanye kwezinye izicwili.

Khawuthelekelele, ubopha intambo kwenye indawo uze uyitsale kwenye. Emva koko intambo iyatsala, akunjalo? Yiloo nto eyenzekayo apha. Xa intambo yomqolo icinezelwa ngolu hlobo, xa sinyuka okanye senza imisebenzi yethu yemihla ngemihla, intambo yomqolo iqala ukutsala. Oku kutsalwa kungonakalisa intambo yomqolo kwaye kuphazamise ukuhamba kwegazi kwimithambo-luvo ehamba kuyo . Oku kukwabizwa ngokuba yi-`(Tethered Cord Syndrome)` okanye `(Tethered Spinal Cord Syndrome)`.

Yintoni intambo yethu yomqolo?

Ukuze ukuqonde kakuhle oku, kufuneka ube nombono omncinci ngentambo yomqolo. Intambo yomqolo sisiqwenga esityebileyo sezicubu esihamba ukusuka kwisiseko sentloko yethu ukuya embindini womqolo wethu. Iimpawu zemithambo-luvo ezinxulumene nayo yonke into emzimbeni wethu, njengokushukuma kunye nokuziva, zihamba kule ntambo yomqolo. Ngamanye amazwi, ifana neziko lolawulo lomzimba wethu.

Yintoni umahluko phakathi kwe-'Tethered Spinal Cord' kunye ne-'Spina Bifida'?

Usenokuba ukhe weva ngemeko ebizwa ngokuba yi-'Spina Bifida'. Le yimeko ekhoyo xa uzalwa. Abantwana abane-'Spina Bifida' basenokuba nemeko 'yokunamathelana koMgogodla' xa bezalwa.

I-Myelomeningocele luhlobo olubi lwe-spina bifida. Oku kwenzeka xa isiphelo esisezantsi somgogodla womntwana kunye nenxalenye yomqolo ingakhuli kakuhle ngexesha lokukhulelwa. Emva koko, xa umntwana ezalwa , umqolo unokuvezwa kwaye unamathele eluswini.

Kukwakho neentlobo ze-spina bifida ezingabalulekanga kangako. Umzekelo, imeko ebizwa ngokuba yi-"Spina Bifida Occulta". Kule meko, intambo yomgogodla inokuba inamathele ngendlela engaqhelekanga eludongeni lomjelo womgogodla ngenxa yezicubu ezinamafutha (i-lipoma) okanye i-filum etyebileyo (ibhendi yezicubu) ekupheleni kwentambo yomgogodla.

Abantwana abane-spina bifida badla ngotyando kwasebuntwaneni ukuze kukhutshwe intambo. Nangona kunjalo, ngamanye amaxesha izicwili zesilonda zinokwakheka kuloo ndawo emva kotyando kwaye intambo inokunamathela kwakhona kumqolo.Njengoko abantwana bekhula, oku kunokubangela ukuba umqolo woluleke, nto leyo ekhokelela kwimeko ebizwa ngokuba yi-'tethered spinal cord syndrome'.

Eyona nto ibalulekileyo kukuqonda ukuba nokuba imeko ebizwa ngokuba yi-'Spina Bifida' ayibonakali ngokucacileyo, imeko 'ye-Tethered Spinal Cord' inokubakho.

Ngubani ochaphazeleka kakhulu yile meko?

I-Tethered Spinal Cord Syndrome yimeko ebonakala kakhulu kubantu abane-open spina bifida. Ezinye iingcali ziqikelela ukuba malunga nomnye kubantwana ababini abane-myelomeningocele baya kuba ne-tethered spinal cord syndrome. Nangona kunjalo, njengoko bekutshiwo ngaphambili, inokwenzeka ngaphandle kwe-spina bifida ecacileyo.

Zithini iimpawu 'zomthambo womqolo obotshelelweyo'?

Iimpawu zale meko zinokwahluka kakhulu kumntu nomntu. Abanye abantwana babonisa iimpawu xa bezalwa. Ngokuqhelekileyo, ezi mpawu zibonakala njengoko abantwana bekhula. Amaxesha amaninzi, abanye abantu basenokungabi nazo iimpawu besebancinci kwaye banokuba neempawu kamva ebomini, njengoko bengakhange baxilongwe ngaphambili.

Bobabini abantwana kunye nabantu abadala banokufumana ezi mpawu zilandelayo ezinxulumene nale meko:

• Ubunzima bokuhamba: Ufanele ukhathazeke ukuba umntwana uhamba ngendlela engaqhelekanga, ingakumbi xa eqala ukuhamba, okanye ukuba kukho utshintsho kwindlela yakhe yokuhamba.
• Utshintsho lolusu kumqolo ongezantsi: Ungabona i -dimple encinci kumqolo ongezantsi, ngaphezulu nje kweempundu. Okanye, ungabona ukukhula kweenwele okungaqhelekanga kuloo ndawo. Ungabona neethumba ezingengobungozi, amabala esikhumba anombala omdaka , okanye iimpawu zokuzalwa ezibizwa ngokuba yi-hemangiomas. Ngamanye amaxesha, ungabona nokukhula okuncinci okufana nee-mole kulusu (iithegi zesikhumba / ii-acrochordons) .
• Ukuba ndindisholo okanye ukuphelelwa yimvakalelo emilenzeni okanye emqolo: Ukuba uhlala uziva ngathi imilenze yakho iyaphelelwa yimvakalelo, okanye ukuba uziva ngathi imilenze yakho iyaphelelwa yimvakalelo, yiqwalasele loo nto.
• Intlungu ebuhlungu emlenzeni okanye emqolo: Le ntlungu idla ngokusasazeka iye kwi-rectum okanye kwindawo yesini.
• I-Scoliosis: Ukuba umqolo ubonakala ngathi ugobile kwicala elinye.
• Iingxaki zokulawula umchamo kunye namathumbu: Iingxaki ezinje ngokuchama rhoqo, ubunzima bokugcina umchamo, okanye ubunzima bokulawula ukuhamba kwamathumbu.
• Ii-cysts ezizaliswe lulwelo kwi-spinal cord (Syringomyelia): Oku kunokubonwa kuphela nge-scan.
• Ukuwohloka kwemisipha: Ingakumbi ukuba izihlunu ezisemilenzeni zibonakala zibuthathaka kwaye zincinci.

Ukuba unenye okanye ngaphezulu kwezi mpawu, kungcono ukufuna ingcebiso kagqirha.

Zithini izizathu ze-'Tethered Spinal Cord Syndrome'?

Le meko inokuba yinto yokuzalwa (ekhoyo ekuzalweni) okanye ifunyanwe kamva ebomini.

Izizathu zokuzalwa:

• Ukuqina okungaqhelekanga kwezicubu ukusuka esiphelweni somqolo ukuya kwithambo lomsila (Sacrum) (Filum Terminale) yeyona nto ixhaphakileyo.
• Imeko ye-Spine Bifida.

Izizathu ezifunyenweyo:

• Izicwili zesikhumba emva kotyando lomqolo.
• Iintsholongwane.
• Ukulimala komqolo okuqatha.
• Iithumba.

Abanye abaphandi bakholelwa ukuba izinto ezibangela imfuza nazo zinokudlala indima kwiimeko ezifana ne-spina bifida. Nangona kufunyenwe unxibelelwano phakathi kwe-myelomeningocele kunye ne-genes, unxibelelwano olucacileyo phakathi kwe-tethered cord syndrome kunye ne-genes alukaqinisekiswa.

Ungayibona njani 'intambo yomqolo ebotshelelweyo'?

Le meko idla ngokuchongwa yingcali yezifo zengqondo . Iza kukuhlola wena okanye umntwana wakho ize ikubuze ngeempawu zakho. Ukongeza, uvavanyo olulandelayo lwemifanekiso luya kwenziwa rhoqo:

• Iskeni ye-MRI (Magnetic Resonance Imaging): Olu lolona vavanyo luqhelekileyo olusetyenziswayo ukufumanisa le meko. Lusebenzisa iimagnethi kunye namaza erediyo ukuze lubone ngokucacileyo umqolo, imithambo-luvo, kunye nezicubu ezingqongileyo.
• I-Myelogram: Kule nto, kufakwa idayi ekhethekileyo kwisingxobo esigquma umthambo womqolo (i-thecal sac). Emva koko kuthathwa i-X-ray ukuze kubonwe ukuba umthambo womqolo ucinezelwe ngumthambo womqolo.
• Iskeni ye-CT (Computed Tomography): Ikhompyutha ekhethekileyo kunye ne-X-ray zisetyenziselwa ukujonga ngaphakathi emzimbeni. Ngamanye amaxesha i-CT scan yenziwa emva kwe-myelogram ukubona indlela idayi ehamba ngayo kwi-spinal cord.
• I-ultrasound scan: Oku kusebenzisa amaza esandi asebenza rhoqo ukujonga ngaphakathi emzimbeni. Kudla ngokusetyenziswa ukubona indlela intambo yomgogodla ehamba ngayo ngaphakathi kwikholamu yomqolo kwiintsana ezincinci kakhulu .

Iphathwa njani intambo yomqolo ebotshelelweyo?

Unyango oluphambili lwale meko lutyando. Uhlobo lotyando oluqhutywayo luxhomekeke kwizinto ezininzi, umzekelo:

• Ubukhulu be-`(Filum Terminale)` yakho.
• Apho intambo yomqolo icinezelwe khona.
• Ngaba ungumntu omdala okanye ungumntwana?

Olu tyando ludla ngokwenziwaUgqirha wezifo zengqondo ngugqirha ogxile kutyando lobuchopho nolomnqonqo. Uqala enze umsikelo omncinci emqolo ongezantsi. Emva koko, besebenzisa izixhobo zotyando, basusa ngononophelo izicubu zesilonda baze bakhulule umnqonqo kumqolo.

Kwenzeka ntoni emva kotyando 'lokuxhuzula umqolo'?

Emva kotyando, wena okanye umntwana wakho ningaqhubeka nemisebenzi eqhelekileyo nelula emva koko. Nangona kunjalo, imisebenzi enzima, efana nokuphakamisa izinto ezinzima, kufuneka iphetshwe kangangeeveki ezintandathu ukuya kwezisibhozo, okanye ngaphezulu, njengoko kuyalelwe ngugqirha wakho. Kufuneka unike inxeba ixesha lokuba liphilise ngokufanelekileyo.

Abanye abantu banokufuna unyango lomzimba okanye unyango lomsebenzi emva kotyando ukuze baphinde bafumane amandla okusebenza alahlekileyo. Olu tyando lwenzelwe ukunqanda umonakalo ongakumbi kwimithambo-luvo. Nangona kunjalo, lusenokungakwazi ukulungisa ngokupheleleyo umonakalo wemithambo-luvo osele ukho. Ke ngoko, abanye abantu banokuqhubeka nokuba buthathaka kwemisipha okanye iingxaki zokuhamba emva konyango.

Ngaba le meko ingathintelwa?

Ngelishwa, akukho ndlela yokuthintela intambo yomqolo ebotshelelweyo. Nangona kunjalo, ukuba ufumana unyango kwangethuba, ungaziguqula iimpawu. Ngoko ke, ukuba ukrokrela ukuba wena okanye umntwana wakho unezinye zezi mpawu, bonana nogqirha ngokukhawuleza.

Injani imeko yomqolo ebotshelelweyo?

Ngonyango, uninzi lwabantu lunokuphila ubomi obuqhelekileyo. Isantya ofumana ngaso unyango lomqolo obotshelelweyo simisela amathuba akho okuchacha ngokupheleleyo. Ezinye iimpawu, ezinje ngobunzima bokulawula intshukumo, ukuba ndindisholo, okanye ubuthathaka, zisenokungapheli ngokupheleleyo, ingakumbi ukuba utyando lwenziwa kamva ebomini.

Ngaba mna okanye umntwana wam kuya kufuneka ndityandwe ngaphezu kwesinye?

Kubantu abaninzi , utyando olunye lwanele ukunyanga intambo yomqolo ebotshelelweyo. Nangona kunjalo, malunga nomntwana omnye kwabahlanu unokufuna utyando olungaphezulu kolunye. Iimpawu zentambo yomqolo ezibotshelelweyo zihlala ziba mandundu okanye ziphinde zibuye ngexesha lokukhula ngokukhawuleza (ukukhula ngokukhawuleza). Ngamaxesha anjalo, utyando olunye lunokufuneka emva kokuba umntwana ekhule kakhulu. Abantwana abaphakathi kweminyaka esi-7 neli-12 basengozini enkulu yokufuna olunye utyando.

Ndingayibuza yiphi imibuzo ugqirha wam?

Ukuba wena okanye umntwana wakho unesifo 'somthambo womqolo obotshelelweyo', okanye ukuba ucinga ukuba unokuba naso, kulungile ukubuza ugqirha wakho le mibuzo:

• Iimpawu zokuqala 'zomthambo womqolo obotshelelweyo'Intoni?
• Zeziphi iimvavanyo ezenziwayo ukuze kufunyaniswe esi sifo?
• Ziziphi iindlela zonyango zoku?
• Zingaphi iimpawu ezinokuthi ziphinde zivele emva konyango?

Ngaba kunokwenzeka ukuba umntu aphile ubomi obuqhelekileyo xa enengxaki 'yokuxinwa komqolo'?

Ewe. Abantu abaninzi abafumana unyango kwangethuba lomqolo obotshelelweyo banokuphila ubomi obuqhelekileyo kwaye baphile ubomi obuqhelekileyo.

Intambo yomqolo ebotshelelweyo kukudibana okungaqhelekanga kwentambo yomqolo kwikholamu yomqolo. Kuqhelekile ukuba noloyiko xa wena okanye umntwana wakho nifumanisa ukuba ninayo le meko, kodwa unyango lwangethuba lunokunceda ekunciphiseni iimpawu kwaye luze lunyange. Le meko inxulumene kakhulu ne-spina bifida, isiphene sokuzalwa apho intambo yomqolo okanye umqolo ungakhuli kakuhle. Kwakhona, abantwana abaninzi abaye benza utyando lwe-myelomeningocele kamva baba nentambo yomqolo ebotshelelweyo. Ukuba wena okanye umntwana wakho nibona naziphi na kwezi mpawu, funani uncedo lwezonyango ngokukhawuleza.

Izinto ezibalulekileyo ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

Kulungile, ngoko ke mandishwankathele ezinye zezona ngongoma zibalulekileyo koko sithethe ngako:

• Intambo yomgogodla ebotshelelweyo yimeko apho intambo yomgogodla ibanjwa kwaye yolulwe emgogodleni.
• Oku kungabakho xa umntu ezalwa okanye kukhule kamva ebomini . Abantwana abane-spina bifida basengozini enkulu.
• Iimpawu ziyahluka: iintlungu zomqolo nemilenze, ukungaziva, ubunzima bokuhamba, utshintsho lolusu, kunye neengxaki zokulawula isinyi/amathumbu.
• I- MRI scan ibalulekile ekuxilongweni.
• Unyango oluphambili lutyando. Oku kuthintela ukonakala kwemithambo-luvo.
• Okukhona ufumana unyango ngokukhawuleza, kokukhona amathuba akho okuphila ngcono. Ezinye iimpawu zisenokuqhubeka.
• Ungakhathazeki! Ngonyango olufanelekileyo, ungaphila ubomi obuqhelekileyo.
• Ukuba wena okanye umntwana wakho unezinye zezi mpawu, musa ukuchitha ixesha niye kubona ugqirha.

Ndiyathemba ukuba olu lwazi luluncedo kuwe. Hlala usempilweni!

Umqolo , umqolo, i-spina bifida, izifo zemithambo-luvo, utyando, impilo yomntwana, iintlungu zomqolo