Ngamanye amaxesha sifumana izifo ezithile ngenxa yezizathu zemfuza. 'I-Cystinuria' yenye yezi meko. Ngenxa yesi sizathu, usenokuba unesifo samatye ezintso rhoqo. Ngoko ke, iyeza elikhethekileyo elinikwa ngoogqirha ukunqanda ukwakheka kwamatye ezintso yi-'Tiopronin'. Makhe sithethe ngale mayeza ngokweenkcukacha namhlanje.
Yintoni iTiopronin?
Ngamafutshane, i-tiopronin liyeza elibopha ikhemikhali emzimbeni wakho ebizwa ngokuba yi-cystine. Amatye ezintso akheka xa le cystine iqokelelana emzimbeni womntu one-cystinuria. Ngoko ke eli yeza lisebenza ngokuthintela ukuqokelelana kwe-cystine nokunciphisa umngcipheko wamatye ezintso. Oku kudla ngokucetyiswa ngoogqirha xa ezinye iindlela zonyango zingasebenzi.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza
Ngaphambi kokuba ugqirha wakho akunike eli yeza, kubaluleke kakhulu ukukunika inkcazo epheleleyo yemeko yakho yempilo. Ngokukodwa, kufuneka ubaxelele ngoku kulandelayo:
- Ukuba unayo nayiphi na enye ingxaki enxulumene nezintso.
- Ukuba ukhe waba ne-allergy kwi-Tiopronin okanye naliphi na elinye iyeza, ukutya, okanye idayi ngaphambili.
- Ukuba uzama ukukhulelwa okanye sele ukhulelwe.
- Ukuba ungumama oncancisayo.
Ngokusekelwe kolu lwazi, ugqirha uya kugqiba ukuba eli yeza lifanelekile na kuwe okanye akunjalo.
Ndingayisebenzisa njani le mithi?
Iziphumo ezilungileyo zingafumaneka ngokusebenzisa eli yeza ngokuchanekileyo.
Eli yeza lifanele lithathwe ngamanzi. Kungcono ukulithatha ngexesha elifanayo yonke imihla, kanye njengoko ugqirha wakho ekuyalele. Qhubeka ulithatha de ugqirha wakho akuxelele ukuba uyeke.
Eyona nto ibalulekileyo ngale nto kukuba umele uyithathe le pilisi ungenanto esiswini. Oko kuthetha ukuba umele uyithathe ubuncinane iyure ngaphambi kokutya, okanye iiyure ezimbini emva kokutya. Kulapho ke iyeza liza kutsalwa kakuhle emzimbeni.
Ngaba eli yeza lifanele linikwe abantwana?
Ukuba unika abantwana eli yeza, thetha nogqirha wakho ngalo. Ngamanye amaxesha, nokuba unikwe abantwana, kukho izinto ezikhethekileyo ekufuneka zenziwe.
Ungenza ntoni ukuba uthatha amayeza amaninzi kakhulu?
Ukuba ucinga ukuba ngempazamo uthathe eli yeza elingaphezulu kunelo limiselweyo, musa ukulibazisa . Yiya kwiSebe lezeMpilo eziNgxamisekileyo (ETU) lesibhedlele esikufutshane ngoko nangoko. Okanye utsalele umnxeba iZiko loLwazi lweeTyhefu leSizwe kwiSibhedlele sikaZwelonke saseColombo ukuze ufumane ingcebiso.
Kuthekani ukuba ndiphoswa lidosi leyeza?
Ukuba ulibele ukuthatha idosi, yithathe kwangoko xa ukhumbula. Nangona kunjalo, ukuba sele kuza kufuneka uthathe idosi yakho elandelayo, yitsibe idosi oyiphosileyo uze uthathe idosi yakho elandelayo ngexesha elicwangcisiweyo. Ungaze uthathe idosi ephindwe kabini.
Zeziphi izinto ekufuneka uzilumkele xa usebenzisa eli yeza?
Ngelixa usebenzisa eli yeza, kufuneka ubonane nogqirha wakho rhoqo ukuze ajonge imeko yakho. Kusenokufuneka wenze uvavanyo lwegazi nomchamo ukuze ubone ukuba iyeza liyasebenza na kwaye kukho naziphi na iziphumo ebezingalindelekanga.
Kwakhona, ungacelwa ukuba ulandele ukutya okukhethekileyo. Ngoko ke thetha nogqirha wakho malunga nokutya kunye neevithamini omele uzithathe. Eyona nto ibalulekileyo yokuthintela amatye kwizintso kukusela amanzi amaninzi. Buza ugqirha wakho ukuba usele amanzi angakanani ngosuku, kwaye uqiniseke ukuba usela loo manzi.
Okubaluleke kakhulu: Ukuba ungumama oncancisayo, kuphephe ukuncancisa umntwana wakho ngokupheleleyo ngelixa usebenzisa la mayeza. Thetha nogqirha wakho ngale nto.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengayo nayiphi na iyeza, iTiopronin inokubangela ezinye iziphumo ebezingalindelekanga. Nangona kunjalo, ayinguye wonke umntu ozifumanayo. Ezinye ziyingozi kakhulu, ngoko ke kubalulekile ukuba uzazi.
| Iziphumo ebezingalindelekanga zeTiopronin | |
|---|---|
| Iziphumo ebezingalindelekanga ekufuneka uzixele kugqirha wakho ngoko nangoko | |
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe okanye ulwimi. |
| Utshintsho kumchamo | Umchamo omnyama, ubunzima bokuchama, okanye utshintsho kubungakanani bomchamo owuvelisayo. |
| Ezinye iimpawu emzimbeni | Umkhuhlane, iintlungu zamalungu, izilonda zomlomo, ukudumba kwamaqatha, iinyawo okanye izandla, ukudumba kwamadlala kunye nentlungu. |
| Iimpendulo ezinzulu zesikhumba | Ulusu lubomvu, lunamadyungudyungu, luxobuka (nangaphakathi emlonyeni). |
| Iimpawu zeeseli ezibomvu zegazi ezisezantsi (i-Anemia) | Ukuziva udiniwe okanye udiniwe ngendlela engaqhelekanga, uphelelwa ngamandla, ubunzima bokuphefumla. |
| Ukopha okungaqhelekanga | Ukugruzuka emzimbeni wonke okanye ukopha nokuba kukwenzakala okuncinci. |
| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha ukuba ziyaqhubeka okanye ziyakhathaza | |
| Iingxaki zenkqubo yokugaya ukutya | Urhudo, isicaphucaphu, ukuhlanza, ukungakhululeki esiswini. |
| Ezinye izinto ezincinci | Utshintsho kwincasa yokutya, ukudinwa, ukushwabana okanye ukuncitshiswa kwesikhumba. |
Ufanele uwagcine njani amayeza akho?
- Qiniseka ukuba eli yeza uligcina kude nabantwana .
- Kungcono ukuyigcina kubushushu begumbi (phakathi kwe-15 kunye ne-30 degrees Celsius).
- Gcina iyeza kwibhotile yokuqala ebelifikile kuyo.
- Lahla amayeza aphelelwe lixesha ngaphandle kokuwasebenzisa.
Umyalezo Wokuya Ekhaya
- Soloko usela iipilisi zeTiopronin ungenanto esiswini. Oko kuthetha iyure enye ngaphambi okanye iiyure ezimbini emva kokutya.
- Sela amanzi amaninzi imihla ngemihla, njengoko ugqirha wakho ekucebisa. Oku kubalulekile ukuthintela amatye ezintso.
- Ungaze uphoswe ziintlanganiso zikagqirha wakho kunye novavanyo olucwangcisiweyo.
- Ukuba ufumana naziphi na iziphumo ebezingalindelekanga okanye uthatha amayeza amaninzi, funa ingcebiso kagqirha ngoko nangoko .
- Ukuba unemibuzo okanye iinkxalabo malunga nale mithi, thetha nogqirha wakho ngayo ngokukhululekileyo.
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