Ngaba ngamanye amaxesha uziva ngathi ulahlekelwa lulawulo lomzimba wakho kancinci kancinci? Awulingani xa uhamba, yonke into icotha kakhulu, ilizwi lakho libonakala lingcangcazela... Nangona ezi zizinto eziqhelekileyo ezenzeka njengoko ukhula, ngamanye amaxesha zinokuba luphawu lwemeko esingathethi kakhulu ngayo, kodwa kubalulekile ukuba uqaphele. Namhlanje sithetha ngesifo senkqubo yemithambo-luvo esingaqhelekanga kodwa esibi kakhulu: iMultiple System Atrophy, okanye i-MSA.
Ngamafutshane, yintoni iMultiple System Atrophy (MSA)?
I-Multiple System Atrophy (MSA) sisifo esichaphazela inkqubo yethu yemithambo-luvo. Sichaphazela iinkqubo zomzimba wethu ngokuzenzekelayo, umzekelo, ukulawula iintshukumo kunye nokugcina ibhalansi . Sisifo esingaqhelekanga.
Into ebuhlungu kukuba akukabikho nyango lupheleleyo lwesi sifo okwangoku. Kodwa ungakhathazeki, ngonyango olufanelekileyo kunye notshintsho oluncinci kwindlela esiphila ngayo , ezi mpawu zinokulawulwa kwaye ubomi bunokwenziwa lula.
Zithini iimpawu ze-MSA?
Iimpawu zesi sifo zihlala ziqala ukubonakala phakathi kweminyaka engama-50 nama-60 ubudala. Abanye abantu bayabhidanisa ezi zifo zimbini kuba iimpawu zokuqala zifana kancinci nezo zesifo sikaParkinson .
| Iimpawu zokuqala eziphambili | |
|---|---|
| Iingxaki zokunyakaza | Ukuhamba kancinci komzimba, ukuqina kwemisipha, kunye nokungcangcazela. |
| Ibhalansi | Ukulahlekelwa yibhalansi kunye nokungakwazi ukuhamba kakuhle xa uhamba okanye usebenza. |
| Ubunzima bokuthetha | Izinto ezifana nelizwi eliqhaqhazelayo kunye nokungacaci kwamagama. |
| Iingxaki zoxinzelelo lwegazi | Ukuquleka okanye isiyezi, ingakumbi xa umi ngequbuliso emva kokuhlala phantsi. |
| Iingxaki zenkqubo yomchamo | Isidingo sokuchama ngequbuliso okanye ukungakwazi ukukhupha yonke into kwisinyi. |
Ukongeza koku, ezinye iziphumo zinokwenzeka.
Ukongeza kwezi mpawu ziphambili, nezinye iinkqubo ezisisiseko emzimbeni zinokuchaphazeleka.
- Ukuncipha kokubila , iinyembezi , kunye nokuqunjelwa.
- Ukuqhinwa okanye ukungakwazi ukulawula ukuhamba kwamathumbu .
- Ukungasebenzi kakuhle kwe-Erectile (ED).
- Ukuyeka ukuphefumla ngexesha lokulala (sleep apnea) okanye ukwenza izinto ngendlela engaqhelekanga xa ulele, njengokukhwaza okanye ukujika iingalo nemilenze yakho.
- Ukuphefumla.
- Izandla neenyawo ezibandayo okanye ezitshintshileyo umbala.
- Ubunzima bokulawula iimvakalelo, ixhala, okanye ukudakumba.
Kukho iintlobo ezimbini eziphambili zesifo se-MSA.
Ngokusekelwe kwiimpawu zakho eziphambili, ugqirha wakho uya kugqiba ukuba loluphi uhlobo lwe-MSA onayo.
| Uhlobo lwe-MSA | Iimpawu eziphambili |
|---|---|
| Uhlobo lweParkinsonian (MSA-P) | Olu lolona hlobo luqhelekileyo. Iimpawu eziphambili zifana kakhulu nesifo sikaParkinson. Ukuqina kwemisipha, ukuhamba kancinci, ukungcangcazela, kunye neengxaki zokulinganisela zezona ziphambili. |
| Uhlobo lweCerebellar (MSA-C) | Uphawu oluphambili kukulahlekelwa kukulungelelanisa kunye nokulinganisela. Kunokubangela ubunzima bokuthetha, ukuginya, kunye nokungaboni kakuhle. |
Indlela yokuxilonga esi sifo?
I-MSA inokuba nzima ukuyifumanisa ekuqaleni. Isizathu soku kukuba, njengoko besitshilo ngaphambili, iimpawu zayo zifana kakhulu nesifo sikaParkinson. Ngoko ke, kuya kufuneka ubone ugqirha wezifo zengqondo .
Ugqirha wakho uza kukuxilonga, athethe ngeempawu zakho, aze ajonge utshintsho kwingqondo yakho nakwinkqubo yakho yemithambo-luvo. Ukuqinisekisa ukuba une-MSA okanye i-Parkinson's, banokwenza olu vavanyo lulandelayo:
- Uvavanyo lokuzimela: Uvavanyo olukhethekileyo olujonga ukusebenza kwenkqubo yemithambo-luvo.
- I-MRI scan: Ukubona ukuba kukho naluphi na utshintsho engqondweni.
- Ukulinganiswa koxinzelelo lwegazi: Uxinzelelo lwegazi lulinganiswa xa uhleli naxa umi.
- Uvavanyo lwe-ECG: Ukujonga imiqondiso yombane yentliziyo.
- Uvavanyo lokubila: Ukuvavanya indlela umzimba obila ngayo.
Yintoni ebangela i-MSA?
Ngamafutshane, umntu one-MSA uqokelela iproteni ekhethekileyo kwiiseli ezixhasa iiseli zemithambo-luvo engqondweni. Oku kubangela ukuba iindawo zengqondo kunye nomqolo ziphele kancinci kancinci okanye zife. Iingcali zithi isizathu esichanekileyo sale meko asikaziwa.
Iingxaki ezinokwenzeka ngenxa yesifo
Kwabaninzi, iimpawu zinokuba ziingxaki ezinkulu kwiminyaka embalwa, ngoko ke kubalulekile ukuba uzazi ezi zinto.
- Ubunzima bokwenza imisebenzi yemihla ngemihla.
- Ubunzima bokuphefumla, ingakumbi iimeko ezifana ne-'Sleep apnea'.
- Ukuwa rhoqo.
- Ubunzima bokuhamba buya bukhula kancinci kancinci, nto leyo ebangela ukuba umntu asebenzise isitulo esinamavili aze ekugqibeleni angakwazi ukuphuma ebhedini.
- Ukukhubazeka kwemisipha yelizwi.
- Ukungakwazi ukuginya ukutya.
- Izifo zemiphunga ezifana ne-pneumonia.
- Usulelo lomchamo.
- Amahlwili egazi.
Ubude bexesha umntu anokuphila ngalo nesi sifo buyahluka kumntu nomntu. Abanye abantu banokuphila iminyaka eli-15 nangaphezulu. Ukufa kudla ngokubangelwa ziingxaki zokuphefumla.
Indlela yokunyanga nokulawula
Ekubeni kungekho nyango luthile lwe-MSA, injongo ephambili yonyango kukulawula iimpawu nokwenza ubomi bube mnandi kangangoko.
Amayeza kunye nonyango lwezonyango
- Amayeza anjenge-levodopa, esetyenziselwa ukunyanga isifo sikaParkinson, ngamanye amaxesha anokunceda ukulawula ukungcangcazela, ukuqina, kunye nokuhamba kancinci.
- Ugqirha angakunika amayeza anjenge-`droxidopa`, `fludrocortisone`, okanye `midodrine` ukulawula uxinzelelo lwegazi.
- Ngamanye amaxesha kunokufuneka i-pacemaker ukulawula isantya sentliziyo.
- Amayeza anjenge-mirabegron okanye i-oxybutynin anokunceda ekulawuleni umchamo. Ngamanye amaxesha i-catheter inokufuneka ukukunceda ukhuphe umchamo.
- Kukho namayeza okunceda ukungasebenzi kakuhle ngokwesondo.
Iindlela zonyango
- Unyango lomzimba kunye nokuzilolonga kunokugcina izihlunu zomelele kwaye ziguquguquka.
- Unyango lomsebenzi lunokukunceda ufunde indlela yokwenza imisebenzi yemihla ngemihla ngokulula.
- Unyango lokuthetha lunceda kwiingxaki zokuhamba nokuthetha.
Izinto onokuzenza ekhaya
Ezi zinto zinokukunceda wenze ubomi bakho bube lula kancinci, kodwa ungalibali ukuthetha nogqirha wakho ngaphambi kokuba wenze nantoni na.
- Ukuze wonyuse uxinzelelo lwegazi, yongeza ityuwa encinci ekutyeni kwakho kwaye usele amanzi amaninzi.
- Ukunxiba iikawusi ezikhethekileyo zokucinezela ukuze kuncediswe ekujikelezeni kwegazi.
- Kuphephe ukuvuka ngequbuliso xa uhleli okanye ulele. Sukuma kancinci.
- Ukugcina intloko yebhedi iphakanyisiwe kancinci xa ulele.
- Yitya ukutya okunefayibha eninzi, imifuno, kunye neziqhamo xa unesicaphucaphu.
- Kuphephe ukugqithisela umzimba kakhulu.
- Shukumisa kangangoko unako ukuze uthintele ukuqhekeka kwegazi.
Umyalezo Wokuya Ekhaya
- I-Multiple System Atrophy (MSA) sisifo esibi nesiqhubekayo esichaphazela inkqubo yemithambo-luvo.
- Ngenxa yokuba iimpawu zokuqala zifana nesifo sikaParkinson, kubalulekile ukubonana nogqirha wezifo zengqondo ukuze afumanise esi sifo ngokuchanekileyo.
- Nangona kungekho nyango lupheleleyo lwesi sifo, amayeza, unyango, kunye notshintsho kwindlela yokuphila kunokulawula iimpawu kwaye kwenze ubomi bube lula.
- Ukuba wena okanye umntu omaziyo unale mpawu, musani ukoyika kwaye funa ingcebiso kagqirha ngokukhawuleza. Inkxaso nothando lwamalungu osapho lubaluleke kakhulu kwisigulana ngeli xesha.
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