Ingabe umgogodla wengane yakho uyinqaba? Ake sixoxe nge-Spine Bifida ngokuningiliziwe!

Uma kufika umntwana omusha kuleli zwe, isifiso esikhulu sabo bonke omama nobaba ukuba nengane enempilo. Kodwa ngezinye izikhathi, izingane zingazalwa zinezinkinga ezincane zempilo esingazicabangi nhlobo. Namuhla, sizokhuluma ngesimo esikhethekile esenzeka emgogodleni, okungukuthi, emhlane, wezingane ezithile lapho zizalwa. Odokotela babiza lokhu ngokuthi i-Spine Bifida . Nakuba leli gama lingavamile, kubaluleke kakhulu ukuqaphela lokhu.

Iyini ngempela i-Spina Bifida?

Kalula nje, i-Spine Bifida iyisici se-neural tube . Manje ungase uzibuze ukuthi iyini i-neural tube. Cabanga ngakho, phakathi namasonto ambalwa okuqala okukhulelwa komntwana, ubuchopho bomntwana kanye ne-spinal cord kuqala ukukhula kusuka epayipini elincane eligeleza emgogodleni. Lokhu kubizwa ngokuthi i-neural tube . Uma leli payipi lingavaleki kahle, kwakheka igebe elincane, noma ukuvuleka, emgogodleni. Yilokho esikubiza ngokuthi i-spina bifida. Leli gebe lingathinta amathambo omgogodla, intambo yomgogodla, kanye nemizwa exhumanisa nawo. Kwezinye izimo ezinzima, isikhwama esigcwele uketshezi singaphuma kulesi sikhala.

Ingabe zikhona izinhlobo ze-Spina Bifida?

Yebo, kunezinhlobo ezintathu eziyinhloko zalesi simo. Ngayinye ihlukile kwenye.

1. I-Meningocele: Lesi yisikhwama esigcwele uketshezi oluphuma embotsheni yomgogodla. Kodwa-ke, lesi sikhwama asinawo umgogodla. Lolu uhlobo olungavamile kakhulu lwe-spina bifida.

2. I-Myelomeningocele: Lolu uhlobo olunzima kakhulu noluvame kakhulu lwe-spina bifida. Kulesi simo, isikhwama esigcwele uketshezi esiphuma emngxunyeni siqukethe ingxenye yomgogodla kanye nengxenye yemizwa. Lokhu kwandisa ingozi yokuba umntwana abe nezinkinga ezahlukahlukene.

3. I-Spine Bifida Occulta: Lolu uhlobo olulula kakhulu noluvame kakhulu lwalesi simo. Lapha, yize kukhona isikhala esincane emgogodleni, akukho sac ebonakalayo. Esikhathini esiningi, laba bantu abanazo izimpawu. Ngezinye izikhathi kutholakala ngengozi lapho kuthathwa i-X-ray yomgogodla ngesinye isizathu.

Ziyini izimpawu zalesi simo?

Izimpawu zingahluka kumuntu nomuntu. Ziya ngokuthi isikhala somgogodla sikhulu kangakanani, ukuthi sitholakala kuphi, nokuthi hlobo luni lwe-spina bifida. Ezinye izimpawu ezivamile zifaka:

• Ukuhlungu obusemhlane.
• Ubuthakathaka, ukuba ndikindiki, noma ukulahlekelwa umuzwa emilenzeni.
• Izinkinga ngokusebenza kwamathumbu kanye nesinye (isib. ukungakwazi ukuzibamba).
• Ezinye izingane zingase zibone ibala lesikhumba elingajwayelekile, uboya obuncane, noma iqhubu elincane lapho kukhona khona igebe (ikakhulukazi ezimweni ze-Spina Bifida Occulta).

Umuntu onesifo esincane kakhulu angase akwazi ukuphila ngaphandle kokubonisa izimpawu.

Kungani lokhu kwenzeka? Yiziphi izinto ezibangela ingozi?

Imbangela eqondile ye-spina bifida ayaziwa okwamanje , kodwa odokotela bakholelwa ukuthi ibangelwa inhlanganisela yezakhi zofuzo kanye nezici zemvelo. Lokhu kusho ukuthi ithubhu yemizwa ingase ingakhuli kahle ngesikhathi sokuqala kokukhula esibelethweni sikamama.

Kuye kwatholakala ezinye izinto eziyingozi. Uma ulindele umntwana, kuhle ukuqaphela lezi:

• Ukuntuleka kwe-Folic Acid: Ukungatholi i-folic acid eyanele, i-vitamin ebalulekile ekukhulelweni okunempilo, kuyisici esikhulu esiyingozi.
• Imithi ethile: Izinto ezifana neminye imithi yokuvimbela ukuquleka esetshenziswa ezimweni ezifana nesifo sokuwa.
• Izimo zempilo kamama: Umama unezimo ezifana nesifo sikashukela noma ukukhuluphala ngokweqile .
• Ukushisa okuphezulu noma ukushisa komzimba ngesikhathi sokukhulelwa kwasekuqaleni: Lokhu kungabangelwa izinto ezifana nokusebenzisa njalo ama-hot tub.
• Umlando womndeni: Uma othile emndenini enalesi simo, noma uma ingane yangaphambilini yayine-neural tube defect, ingozi iphakeme kancane.

Ungakhuluma nodokotela wakho ngalezi zici eziyingozi bese uthola iseluleko osidingayo ukuze ukhulelwe kahle.

Yiziphi ezinye izinkinga ezingabangelwa yilokhu?

Kungaba nezinkinga ezahlukahlukene, ikakhulukazi ezimweni ezinzima njenge-myelomeningocele. Lezi zifaka:

• Ubunzima bokuhamba: Ezinye izingane zingase zibe nobunzima bokuhamba, noma zingase zingakwazi nhlobo ukuhamba.
• I-Hydrocephalus: Lesi yisimo lapho ikhanda likhula khona ngenxa yokuqongelela koketshezi lomgogodla ngaphakathi kobuchopho. Lokhu kungadinga ukuhlinzwa ukuze kususwe uketshezi oluningi bese kufakwa i-shunt.
• Izinkinga zokufunda: Izinto ezifana namakhono okunyakaza , inkumbulo, kanye nokuxazulula izinkinga zingase zithinteke.
• Ukukhubazeka: Imilenze ingase ikhubazeke ngokuphelele.
• I-Scoliosis: Umgogodla ungase ugobe uye ohlangothini olulodwa.
• Intambo yomgogodla eboshiwe: Lokhu kwenzeka lapho intambo yomgogodla inamathele ngaphakathi komgogodla. Ngokuvamile, kufanele ikhululeke. Lokhu kudinga nokuhlinzwa.

Ukuphila nezinkinga zomzimba ezinjengalezi kungabangela nokucindezeleka kwengqondo njengoba ingane ikhula. Ngakho-ke, kubaluleke kakhulu ukufuna usizo kumeluleki wezempilo yengqondo noma ukujoyina iqembu lokusekela abazali abanezingane ezifanayo.

I-Spina Bifida ibathinta kanjani abantu abadala?

Abantu abadala abane-spina bifida babhekene nezinkinga ezihlukile kunezingane. Isibonelo:

• Inqubo yokuguga esheshayo (ukwehla kwamandla emisipha, ukwehla kokuguquguquka, ukwehla kwamandla omzimba, ukwehla kwamakhono okuzwa).
• Kungenzeka ukuthi intambo yomgogodla eboshiwe iphinde ivele.
• Ukuqunjelwa noma ubuhlungu besisu.
• Izinkinga zamathambo (isib. i-osteoporosis , ukuqala kwasekuqaleni kwesifo samathambo , ukwanda kobuhlungu emhlane).
• Ukulahlekelwa umuzwa wesikhumba, ukujikeleza kwegazi okungekuhle, ukungakwazi ukujuluka, ukuphuka kalula, kanye nokuphola kwenxeba okulibazisekile.
• Ukungezwani komzimba ne-latex: Ukungezwani komzimba ne-latex.
• Umfutho wegazi ophezulu.
• I-apnea yokulala ( i-apnea yokulala evimbelayo kanye ne -apnea yokulala ephakathi ).
• Ukukhuluphala ngokweqile.

Nakuba abesifazane abane-spina bifida bengakhulelwa, ukukhulelwa kungaba nzima, ngakho-ke kubalulekile ukulandela iseluleko sikadokotela wakho.

Odokotela bakuthola kanjani lesi simo?

Ezimweni eziningi, lesi simo singatholakala ngesikhathi sokukhulelwa (ukuxilongwa kwangaphambi kokubeletha) . Ukuhlolwa okusetshenziselwa lokhu yilokhu:

• Ukuhlolwa kwegazi kwe-Alpha-fetoprotein (AFP): Lokhu ukuhlolwa okwenziwa egazini likamama.
• I-Amniocentesis: Ukuhlolwa okuthatha isampula yoketshezi lwe-amniotic oluzungeze umntwana.
• Ukuskena nge-ultrasound: Lokhu kungahlola noma yikuphi ukukhubazeka emgogodleni wengane.

Uma ingane yakho itholakala inesifo esifana ne-myelomeningocele, odokotela bangase batuse ukuhlinzwa ngokuhlinzwa ukuze kuvinjelwe umonakalo owengeziwe endaweni eyonakele yomgogodla wengane yakho.

Ngisho nangemva kokuzalwa komntwana, lesi simo singatholakala ngokusekelwe ezimpawu. Ukuhlolwa kwezithombe ezifana ne -CT scan , i-MRI , noma i-ultrasound nakho kungenziwa ukuhlola umgogodla kanye nentambo yomgogodla.

Ngezinye izikhathi, izimo ezincane njenge-spina bifida occulta zingase zingabonakali izimpawu futhi zingase zingatholakali kuze kube yilapho umuntu esemdala. Ngokuvamile zitholakala ngengozi ngesikhathi sokuhlolwa komgogodla ngesinye isizathu.

Yiziphi izindlela zokwelapha?

I-Spine Bifida ayikwazi ukwelapheka ngokuphelele.Kodwa-ke, kunezindlela eziningi zokwelapha ezingasiza ukulawula izimpawu futhi zisize ingane iphile impilo evamile.

• Ukuhlinzwa: Ukuhlinzwa kwenziwa ukuze kuvalwe imbobo emgogodleni. Ezimweni ezimbi kakhulu, njenge-myelomeningocele, lokhu kuhlinzwa kwenziwa ngesikhathi sokukhulelwa kwamanye amazwe. Kodwa-ke, kuvame ukwenziwa zingakapheli izinsuku ezimbalwa kusukela ekuzalweni komntwana. Isikhwama esiphumayo siyasuswa, imbobo iyavalwa, bese inxeba liyathungwa. Ukuhlinzwa kwenziwa futhi esimweni esibizwa ngokuthi intambo yomgogodla eboshiwe .
• Imithi: Imithi inikezwa izinkinga zomchamo kanye namathumbu, ubuhlungu, nezinye izimpawu.
• Ukwelashwa ngokomzimba kanye nokwelashwa ngokomsebenzi: Lokhu kusiza ekuthuthukiseni ukuhamba kwengane, amandla, kanye nekhono lokwenza imisebenzi yansuku zonke ngokuzimela.

Ithimba lezokwelapha lizokwakha uhlelo lokwelapha oluhambisana nezidingo zengane.

Ingabe ingane ene-Spine Bifida ingahamba?

Indlela lesi simo esithinta ngayo ukuhamba iyahlukahluka kuye ngokuthi i-stenosis yomgogodla ikuphi (iphezulu noma iphansi) kanye nobunzima besimo. Uma i-stenosis iphakeme, njengaseduze nentamo, mancane amathuba okuthi uhambe wedwa. Kodwa-ke, uma i-stenosis iphansi, njengaseduze kwezinqe, ungase ukwazi ukuhamba ngokusekelwa okuthile (isb., ama-braces, i-walker ). Ezimweni ezincane, ukuhamba kungase kungathinteki nhlobo.

Amadivayisi okuhamba, njengezihlalo zabakhubazekile kanye nezihlalo zokuhamba ngezinyawo, angabasiza ukuthi benze imisebenzi yansuku zonke ngokukhululeka nangokuzimela. Ithimba lezokwelapha lingakusiza ukuthi ukhethe la madivayisi futhi likufundise ukuthi ungawasebenzisa kanjani ngokuphephile.

Yini okufanele ngiyilindele njengomzali?

Ingane ngayinye ihlukile. Lokhu kuyiqiniso ikakhulukazi enganeni ene-Spina Bifida. Khumbula lezi zinto njengoba ingane yakho ikhula:

• Ukulimala: Ukuklwebheka okuncane noma ukuphuka kungase kungezwakali ezingxenyeni zomzimba wengane ezithintekile. Ngakho-ke, kubalulekile ukuhlola umzimba wengane njalo ukuze kutholakale ukuthi ayinazo yini izingozi.
• Ukuhamba: Ingane yakho ingase idinge usizo lokuhamba ngokuphepha. Izinto ezifana nesihlalo sabakhubazekile noma inqola yokuhamba zingayisiza ukuthi izimele kakhudlwana.
• Ukuqeqeshwa kwendlu yangasese: Ingane yakho ingase ingabi nomuzwa wokuthi kufanele ichame noma ikhulule. Lokhu kungenza ukuqeqeshwa kwendlu yangasese kube nzima. Ungacela iseluleko kodokotela ukuze uvimbele ukumanzisa izingubo ngokungadingekile nokuthuthukisa ukuzethemba kwengane yakho.

Uma ingane yakho ine-spina bifida, khuluma nethimba labo lezokwelapha ngakho konke lokhu. Bangaphendula imibuzo yakho futhi bakuxhumanise nezinsiza ozidingayo.

Ingabe i-Spine Bifida ingavinjelwa?

Nakuba kungenakuvinjelwa ngokuphelele, kunezindlela eziningana zokunciphisa ingozi yokuba ingane ibe ne-spina bifida:

• Ukuthola i-folic acid eyanele: Lena yinto ebaluleke kakhulu. Uma uhlela ukukhulelwa, kufanele uqale ukuthatha iphilisi le-folic acid nsuku zonke okungenani inyanga ngaphambi kokuba ukhulelwe. Kubaluleke kakhulu futhi ukuqhubeka nokuyithatha ezinyangeni ezintathu zokuqala zokukhulelwa. Buza udokotela wakho ukuthi udinga malini.
• Ukugwema ama-hot tub noma ama-sauna: Gwema ukushisa umzimba wakho ngesikhathi sokukhulelwa.
• Ukulawula izimo ezifana nesifo sikashukela: Uma unesifo sikashukela, silawule kahle ngaphambi kokuba ukhulelwe.
• Ukukhuluma nodokotela wakho ngemithi yakho: Uma uthatha noma yimiphi imithi, khuluma nodokotela wakho ngaphambi kokuba ukhulelwe. Bangase bakwazi ukukunikeza enye indlela ephephile.

Ngingayitholaphi eminye imininingwane ngalokhu?

Njengakwezinye izimo eziningi, ukuba nolwazi oluphelele nge-Spine Bifida nokuxhumana namaqembu okusekela endawo kuyindlela engcono kakhulu yokuphatha lesi simo nokuvimbela ezinye izinkinga. Ungabuza udokotela wakho ngalezi zindawo.

Okokugcina, khumbula lezi zinto (Umyalezo Wokuya Ekhaya)

Uma uthola ukuthi ingane yakho esanda kuzalwa ine-Spine Bifida, leso sikhathi esijabulisayo singaba yisikhathi esigcwele ukukhathazeka nokungaqiniseki. Ungase ube nemibuzo eminingi engqondweni yakho, futhi ungase ungazi ukuthi uzoqala kuphi.

Kodwa ungakhathazeki. Awuwedwa. Ithimba lakho lezokwelapha liyaqonda ukuthi lezi zindaba zingaba nzima kangakanani. Bazoba seceleni kwakho kanye nosana lwakho kuzo zonke izinyathelo zendlela, bekunikeza ukunakekelwa okudingayo.

Khumbula, ukutholakala kusenesikhathi kanye nokwelashwa okusheshayo kuhamba phambili ekusizeni ingane yakho ukuthi iphile impilo engcono. Fundisa abanye ngokubaluleka kwe-folic acid. Ngaphezu kwakho konke, nikeza ingane yakho uthando oluningi kanye nokusekelwa.

I - spina bifida, ukukhubazeka komgogodla, ukukhubazeka kwe-neural tube, i-folic acid, ukukhubazeka kokuzalwa, i-myelomeningocele, impilo yengane