Ingabe ubhekene namabala abomvu, ngezinye izikhathi ayindilinga entanyeni yakho, esifubeni, emhlane, noma ezingalweni? Ingabe anamabala, anamabala, futhi omile? Abantu abaningi bakhathazekile ngalesi simo. Kuvamile ukuzibuza ukuthi ngabe yisimo sesikhumba esivamile noma into engathi sína kakhulu. Namuhla, sizokhuluma nge-Subacute Cutaneous Lupus Erythematosus, noma i-SCLE ngamafuphi, uhlobo lwe-lupus oluthinta isikhumba kuphela. Uma usukwazi ngokugcwele lokhu, kuzoba lula kakhulu kuwe ukubhekana nalesi simo.
Kalula nje, iyini i-SCLE?
Kulungile, ake sikubeke kalula lokhu. I-SCLE yisimo esiseqenjini lezifo ezibizwa ngokuthi i-lupus, futhi sithinta kakhulu isikhumba. I-Lupus yisifo esenzeka ngenxa yenkinga ngesimiso somzimba wethu sokuzivikela. Ngokuvamile, isimiso sethu sokuzivikela silwa namagciwane abangela izifo. Kodwa esimweni esifana ne-lupus, lesi simiso siqala ngephutha ukuhlasela amangqamuzana ethu aphilile.
I-SCLE uhlobo lwe-lupus oluthinta isikhumba. Odokotela bayibiza ngokuthi i-Cutaneous Lupus Erythematosus (CLE). Igama elithi "Subacute" libhekisela ohlotsheni lokuvuvukala okubonakala ku-biopsy yesikhumba, okuyingcezu encane yesikhumba ethathwe futhi yahlolwa.
Okubalulekile, cishe ingxenye yabantu abane-SCLE nabo banesifo se-lupus esivame kakhulu, i-Systemic Lupus Erythematosus, noma i-SLE . I-SLE yisimo esingathinta hhayi isikhumba kuphela, kodwa nezitho zangaphakathi njengezinso, inhliziyo, nobuchopho. Ngakho-ke kubalulekile ukukhuluma nodokotela uma unezimpawu ze-SCLE.
Indlela lesi sifo esithinta ngayo wonke umuntu ingahluka, ngakho kungaba nzima kancane ukusithola. Into ebaluleke kakhulu ukuthola udokotela okulalelayo futhi akutholele ukwelashwa okufanele.
Yiziphi izinhlobo eziyinhloko ze-SCLE?
I-SCLE ingabonakala ngezindlela ezimbili eziyinhloko. Zombili lezi zibukeka zihlukile kancane. Ake sibone ukuthi ziyini.
| Uhlobo lwe-SCLE | Ukubukeka kanye nezici |
|---|---|
| I-Annular SCLE | Lolu hlobo lwesimo sesikhumba lubangela ukuthi kuvele ama-plaque abomvu, anama-scaly, ayindilinga, noma amise okwendandatho esikhumbeni. La ma-patches avame ukubonakala ezindaweni ezivezwe elangeni. Ngemva kokuba la ma-patches epholile, isikhumba kulezo zindawo singase sibe mhloshana kancane. Odokotela bakubiza lokhu ngokuthi i-hypopigmentation . |
| I-Papulosquamous SCLE | Lolu hlobo lokuqubuka kwesikhumba lubonakala ngokuhlanganiswa kwama-papules amancane kanye nokubukeka okunezibazi. Uma uqala ukukubona, kungase kufane ne-eczema noma i-psoriasis. Lolu hlobo lubuye lube lubi kakhulu ngenxa yokukhanya kwelanga . |
Ziyini izimpawu ze-SCLE?
Uphawu oluyinhloko lwe-SCLE ukuqubuka kwesikhumba. Lokhu kuvame ukubonakala ezingxenyeni zomzimba wakho ezivame ukuchayeka elangeni, njengentamo, isifuba, umhlane, kanye nezingalo.
Lo monakalo ungaba kanje:
- Amabala abomvu, amise okwendandatho, ayisiyingi. Ngezinye izikhathi lawa macala angaxhumana futhi abukeke njengephethini enkulu.
- Isikhumba esibomvu, esinamaqhubu, esomile, esinamaqhubu. Lokhu kuvame ukubukeka njenge-psoriasis.
Ingxenye engcono kakhulu ukuthi, la mabala ngokuvamile awalunywa noma awashiyi izibazi . Kodwa-ke, ukushintsha kombala wesikhumba kungase kuhlale ngemva kokuba amabala epholile.
Yiziphi izici ezibangela ukuthuthukiswa kwe-SCLE?
Kunzima ukukhomba imbangela eyodwa ye-SCLE. Kuyinkinga eyinkimbinkimbi. Abacwaningi bakholelwa ukuthi kunezici eziningana ezihlanganayo ukuze ziyibangele.
- Izici zofuzo: Lokhu kusho ukuthi kungase kube nokuxhumana kofuzo. Uma othile emndenini wakho ene-lupus, nawe ungase ube sengozini.
- Izici zemvelo: Okubaluleke kakhulu kulezi imisebe ye-ultraviolet , okuyilanga. Ngaphezu kwalokho, kukholelwa ukuthi izici ezifana nokusetshenziswa kukagwayi kanye nezibulala-zinambuzane nazo zingaba nomthelela.
- Imithi ethile: Cishe ingxenye yesithathu yabantu abane-SCLE iba nale nkinga ngemva kokuthatha imithi ethile. Lokhu kubizwa ngokuthi "i-Drug-induced SCLE."
| Eminye imithi engabangela i-SCLE |
|---|
| Imithi yokulwa nesikhunta |
| Eminye imithi yokulwa nokuquleka |
| Eminye imithi yokucindezela kwegazi, isibonelo i-ACE inhibitors |
| Imithi yokwelapha ngamakhemikhali |
| Eminye imithi esetshenziswa ukwelapha i-gastritis (i-Proton pump inhibitors - ama-PPI) |
| Eminye imithi esetshenziswa ukwelapha izifo ezifana nesifo samathambo (izivimbeli ze-tumor necrosis factor) |
Ubani osengozini enkulu yokuthola i-SCLE?
- Kwenzeka kaningi kwabesifazane kunakwabesilisa.
- Kuvame ukubonakala kubantu abaneminyaka ephakathi kuka-40 no-60 .
- Nakuba kuvame kakhulu kubantu abamhlophe, lesi simo singavela kubantu banoma yiluphi uhlanga.
Ukuxilongwa nokwelashwa kwalesi sifo
Uma unalezi zimpawu, into yokuqala okufanele uyenze ukubonana nodokotela. Ungathunyelwa kudokotela wesikhumba noma kudokotela wamathambo.
Ungasithola kanjani lesi sifo?
Udokotela uzohlola isikhumba sakho bese ekubuza ngezimpawu zakho. Bangenza izivivinyo ezilandelayo ukuqinisekisa ukuxilongwa:
- Ukuhlolwa kwesikhumba: Lokhu kuhilela ukuthatha isampula encane kakhulu yesikhumba esivela ku-mole esikhumbeni sakho ngaphansi kwe-anesthesia bese uyihlola ngaphansi kwe-microscope. Lokhu kungasiza ekunqumeni ukuthi i-mole ibangelwa yi-SCLE noma esinye isimo sesikhumba.
- Ukuhlolwa kwegazi: Kungenziwa ukuhlolwa kwegazi okuningana.
- Inani legazi eliphelele (i-CBC)
- Isilinganiso se-Sed (ESR) kanye ne-C-reactive protein (CRP) - Lokhu kuhlola ukuvuvukala emzimbeni.
- Ukuhlolwa kwe-antinuclear antibody (ANA): Lokhu ukuhlolwa okubaluleke kakhulu ekuxilongeni i-lupus.
- Ukuhlolwa kokusebenza kwezinso kanye nesibindi
- Ukuhlolwa komchamo
Iphathwa kanjani i-SCLE?
Into ebaluleke kakhulu neyinombolo yokuqala ekwelapheni i-SCLE ukuvikelwa elangeni , njengoba ukukhanya kwelanga kuyisici esiyinhloko esenza lesi sifo sibe sibi kakhulu.
Ngaphezu kwalokho, udokotela wakho angase ancome imithi yokwelapha esetshenziswa ngaphandle kwemithi noma ephuzwayo kuye ngokuthi izimpawu zakho zibucayi kangakanani.
| Uhlobo lokwelashwa | Izibonelo (kuphela ngomuthi kadokotela) |
|---|---|
| Ama-steroid angaphandle | I-Hydrocortisone, i-Triamcinolone, i-Clobetasol |
| Amanye ama-cream esikhumba asetshenziswa endaweni ethintekile (ama-Topical calcineurin inhibitors) | I-Tacrolimus, i-Pimecrolimus |
| Imithi yokulwa nomalaleveva ngomlomo | I-Hydroxychloroquine, i-Chloroquine |
| Imithi yokuvimbela amasosha omzimba ngomlomo | I-Methotrexate, i-Azathioprine |
| Ezinye izinhlobo zemithi | I-Dapsone, ama-Retinoids, ama-antibodies e-Monoclonal (IVIG, i-Rituximab) |
Isexwayiso: Ungasebenzisi noma yimuphi wale mithi ngaphandle kweseluleko sezokwelapha. Udokotela wakho kuphela onganquma ukwelashwa okungcono kakhulu kuwe.
Ungaphila kanjani ne-SCLE?
I-SCLE iyisifo esihlala isikhathi eside (esingamahlalakhona). Lokhu kusho ukuthi izimpawu zinganda ngezinye izikhathi futhi zinciphe ngezinye izikhathi. Kodwa-ke, ingalawulwa kahle futhi ungaphila impilo evamile.
Ukuvikelwa kwelanga kuyinto yokuqala!
Lena yinto ebaluleke kakhulu ongayenza.
- Sebenzisa isithako sokuvikela ilanga esine-SPF engu-50 noma ngaphezulu nsuku zonke uma uphuma elangeni . Lokhu kuyadingeka, ngisho nasezinsukwini ezinamafu.
- Gwema ilanga elinamandla phakathi kuka-10 ekuseni no-4 ntambama.
- Uma uphuma elangeni, gqoka izingubo ezivikela ilanga, njengesigqoko esibanzi kanye nezingubo ezinemikhono emide.
- Yeka ukusebenzisa imibhede yokushiswa kwesikhumba ngokuphelele.
Ukuzinakekela kahle nakho kuyikhambi!
- Qonda lesi sifo: Funda ngalesi sifo emithonjeni ethembekile bese uzifundisa. Lokhu kuzokunikeza ukuqonda okungcono ngalokho okwenzekayo emzimbeni wakho.
- Thola udokotela omethembayo: Kungase kudingeke ukuthi ubonane nodokotela njalo, ngakho qhubeka nokufuna ukwelashwa kudokotela okulalelayo futhi okuqondayo.
- Yakha uhlelo lokusekela: Ukukhuluma nabantu abasesimweni esifanayo nokwabelana ngolwazi lwakho kuzokunika amandla amakhulu engqondo.
- Zinakekele: Yidla ukudla okunempilo, uvivinye umzimba, ulale kahle, futhi ulawule ukucindezeleka. Lezi zinto zizokusiza kakhulu ekulawuleni lesi sifo.
Njengoba une-SCLE futhi udinga ukuzivikela elangeni kakhulu, ungase ube nokuntuleka kwe-vitamin D. Kungumqondo omuhle ukukhuluma nodokotela wakho ngalokhu bese uthatha isithasiselo se-vitamin D uma kudingeka.
Umlayezo Wokuya Nawe Ekhaya
- I-SCLE yisimo esithinta isikhumba esinesifo se-lupus impilo yonke.
- Uphawu oluyinhloko ukubonakala kwamabala abomvu, amise okwendandatho, noma anamabala esikhumbeni abekwe elangeni.
- Ukuvikelwa elangeni kuyisinyathelo esibaluleke kakhulu nesihamba phambili ekulawuleni lesi sifo.
- La mabala ngokuvamile awalunyi noma awabangeli izibazi, kodwa angashiya umbala wesikhumba ushintsha.
- Uma unalezi zimpawu, ungesabi futhi ubone udokotela ngokushesha okukhulu. Ngokwelashwa nokuphathwa okufanele, ungaphila impilo evamile.
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