Uzizwa ukhathele kakhulu usuku lonke? Uvuka uzizwa ukhathele, futhi kungakhathaliseki ukuthi ulala kangakanani ebusuku, lokho kukhathala akupheli? Ngezinye izikhathi ungase ucabange ukuthi lokhu kumane nje kukhathala ngenxa yokusebenza ngokweqile. Kodwa kuyinkimbinkimbi kakhulu kunalokho, futhi kungaba yisimo sempilo okufanele sisinake nakanjani. Namuhla sizokhuluma ngalolu hlobo lokukhathala okuqhubekayo, okwaziwa ngokwezokwelapha ngokuthi 'i-Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Ngezinye izikhathi kubizwa ngokuthi 'i-Systemic Exertion Intolerance Disease (SEID)'.
Kalula nje, lesi yisimo lapho ibhethri lomzimba wakho lingashaji kahle. Lokhu kukwenza ukhathale kakhulu ukuba uqhube imisebenzi yakho yansuku zonke. Ngezinye izikhathi, ngisho nokwenza into elula njengokuya esitolo, ukwenza umsebenzi omncane wasekhaya, noma ukubhala incwadi kungenza izimpawu zakho zibe zimbi kakhulu. Lesi simo singahlala isikhathi esingangezinyanga eziyisithupha, noma ngisho neminyaka. Into ebaluleke kakhulu ukuthi lokhu kukhathala akupheli, kungakhathaliseki ukuthi uthola ukuphumula okungakanani nokulala kahle.
Udokotela angakusiza ukuthi uhlole lesi simo futhi ulawule izimpawu zakho, kodwa kumele aqale akuhlole njengesifo.
Yiziphi izimpawu eziyinhloko zalesi simo?
Uma une-ME/CFS, nakanjani unalezi zimpawu ezintathu "eziyinhloko". Ake sibheke ukuthi ziyini.
| Uphawu oluyinhloko | Ukuchaza kalula... |
|---|---|
| Ukukhathala okungabekezeleleki | Ukuzizwa ukhathele kakhulu izinyanga ezingaphezu kweziyisithupha, okwenza kube nzima ukwenza ngisho nemisebenzi yansuku zonke eyisisekelo. Lolu ushintsho olukhulu uma luqhathaniswa nalokho owakwenza empilweni yakho yangaphambilini. |
| Ubuhlungu Obungapheli Ngemva Kokuzivocavoca (PEM) | Lesi yisici esivelele kakhulu salesi sifo. Ngisho nangemva komsebenzi omncane kakhulu womzimba noma wengqondo (isib. ukuhamba ibanga elifushane, ukufunda incwadi), izimpawu ziba zimbi kakhulu amahora noma izinsuku. |
| Ukulala okungaqabulisi | Ngisho noma ulala kahle ebusuku, usazizwa ungenampilo uma uvuka ekuseni. Uzizwa ukhathele, njengokungathi ubulokhu uphapheme ubusuku bonke. |
Kuyini i-Post-Exertional Malaise (PEM)?
Kubalulekile ukuchaza lokhu kakhudlwana. Cabanga ngokwenza umsebenzi olula ovame ukuwenza, njengokuhlanza indlu. Umuntu ophilile angase azizwe ekhathele kancane, kodwa kuzophela ngemva kwesikhashana. Kodwa-ke, umuntu one-ME/CFS, ngemva kokwenza lowo msebenzi olula, mhlawumbe emahoreni angu-12-48 kamuva, angase abhekane nezimpawu ezinjengobuhlungu obukhulu bomzimba, ikhanda elibuhlungu, ubunzima bokugxilisa ingqondo, umphimbo obuhlungu, kanye nokukhathala okukhulu . Lesi simo singase sithathe izinsuku, ngisho namasonto.
Ezinye izici ezidingekayo ukuze kutholakale isifo
Ngaphezu kwezimpawu ezintathu eziyinhloko okukhulunywe ngazo ngenhla, ukuze udokotela akwazi ukuxilonga i-ME/CFS ngokunembile, kumele okungenani ube nesinye sezimpawu ezimbili ezingezansi.
- Izinkinga Zokuqonda:
Abantu abaningi bakubiza lokhu ngokuthi “inkungu yobuchopho.” Kusho ukuthi unenkinga yokugxila, awukwazi ukugxila, unenkinga yokuthola amagama, awukwazi ukukhumbula izinto ezintsha, futhi ijubane lakho lokucabanga liyehla. Kufana nokuthi ikhanda lakho limbozwe inkungu.
- Izimpawu ziya ziba zimbi kakhulu lapho umile noma uhleli (ukungabekezelelani kwe-Orthostatic):
Okwenzekayo kulesi simo ukuthi izimpawu ziba zimbi kakhulu uma ume noma uhlala uqonde isikhashana. Uzizwa unesiyezi, umbono wakho uba mnyama, uzizwa ubuthakathaka, umbono wakho uba lufifi, futhi ungase uzizwe sengathi unezinto ezintantayo phambi kwamehlo akho. Yingakho uvame ukuzizwa sengathi uzoquleka.
Kufanele simbone nini udokotela?
Uma unesinye noma ngaphezulu sezimpawu okukhulunywe ngazo kulesi sihloko, ikakhulukazi uma ukukhathala sekuqhubeke izinyanga, sicela ungacabangi nje ukuthi ukukhathala nje. Lokhu kuyinto okufanele ukhulume ngayo nodokotela wakho.
Ngezinye izikhathi lezi zimpawu zingabangelwa ezinye izimo zezokwelapha, njengezinkinga ze-thyroid, i-anemia, kanye nokucindezeleka. Ngakho-ke, kubaluleke kakhulu ukuthola imbangela yangempela yalezi zimpawu. Udokotela kuphela ongenza lokho.
Uma uya kudokotela wakho, qiniseka ukuthi uchaza konke mayelana nezimpawu zakho, okuhlanganisa nosuku ezaqala ngalo, lapho zaba zimbi kakhulu (i-PEM), kanye nezindlela zakho zokulala. Uma kudingeka, zibhale phansi encwadini yokubhala. Lokhu kuzosiza udokotela ukuthi aqonde isimo sakho.
Ungabuza udokotela wakho ngesipiliyoni sakhe sokwelapha i-ME/CFS. Njengoba lesi kuyisimo esiyinkimbinkimbi, ungase ufune ukucela ukudluliselwa komunye udokotela ochwepheshe kule ndawo. Ungesabi ukukhuluma ngakho.
Umlayezo Wokuya Nawe Ekhaya
- I-Chronic Fatigue Syndrome (ME/CFS) ayikona nje ukuzizwa ukhathele. Yisimo sempilo esibi, sesikhathi eside esingathinta kakhulu impilo yakho yansuku zonke.
- Izimpawu ezintathu eziyinhloko ukukhathala ngokweqile okuhlala izinyanga ezingaphezu kweziyisithupha, ukuba zimbi kwezimpawu ngemva kokusebenza okuncane (i-PEM), kanye nokulala okungaqabulisi.
- Ngaphezu kwalokho, ubunzima bokukhumbula nokucabanga (inkungu yobuchopho) noma izimpawu eziya ziba zimbi lapho umile (ukungabekezelelani kwamalunga omzimba) kuvamile.
- Uma unalezi zimpawu, ungazinaki. Qiniseka ukuthi ubona udokotela wakho ukuze uthole ukuxilongwa okufanele kanye nesiqondiso.
- Kunezindlela ezahlukene zokuphatha lesi simo. Ngakho ungalilahli ithemba. Isinyathelo sokuqala nesibaluleke kakhulu ukufuna iseluleko sezokwelapha.
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