So w’akyi anaa w’asen mu yɛ wo yaw? (Akisikuru a Ɛyɛ Ankylosing) .

So ɛtɔ mmere bi a wote yaw anaa wo ho yɛ den wɔ w’akyi ase, w’asen, ne w’asen (kyerɛ sɛ, w’asen atifi) a ɛyɛ nwonwa? Titiriw bere a wosɔre anɔpa no. Ebia eyi nyɛ akyi yaw a ɛyɛ mmerɛw ara kwa. Ɛnnɛ yɛrebɛka ntini mu yareɛ bi a ɛkyɛ a wɔfrɛ no Ankylosing Spondylitis a ɛda saa nsɛnkyerɛnneɛ yi adi ho asɛm. Mma ɛnhaw wo, yɛbɛka eyi ho asɛm tiawa.

Dɛn ne eyi (Ankylosing Spondylitis)?

Sɛ yɛbɛka no tiawa a, Ankylosing Spondylitis yɛ ntini mu yare bi a ɛka w’akyi berɛmo mu nkwaa . Ɛtɔ mmere bi a nnuruyɛfo nso frɛ no Axial Spondyloarthritis. Ɛka w’akyi berɛmo no fã a ɛwɔ fam, nkwaa a w’asen nnompe (pelvis) hyia no titiriw. Yɛfrɛ saa nkwaa yi (Sacroiliac nkwaa) .

Susuw ho hwɛ, sacroiliac nkwaa no ne baabi a dompe a ɛyɛ ahinanan a ɛwɔ w’akyi berɛmo (sacrum) awiei ne w’asen dompe (ilium) atifi ne akyi no hyia. Eyinom te sɛ bridge atitiriw abien a ɛka w’akyi berɛmo ne w’asen fã bom no. Nokwarem no, eyinom yɛ wo nipadua mu nkwaa akɛse no bi. Wɔde saa nkwaa yi di dwuma bere biara a wobɛtu, bere biara a wobɛma w’asen akɔ anim ne akyi. Enti sɛ wo ne wɔn wɔ ɔhaw bi a, wote nka dɛn?

Afei nso, ɛwom sɛ ɛnyɛ obiara de, nanso wɔ nnipa binom fam no, Ankylosing Spondylitis betumi aka nkwaa afoforo nso. Nhwɛsoɔ:

• Wo mmati so
• Pa
• Nkotodwe

Saa tebea yi betumi ama obi ate ɛyaw, ne ho ayɛ no den, na ɛtɔ mmere bi a yafunu mu sɛnkyerɛnne ahorow . Sɛ w’akyi yaw, titiriw sɛ ɛreyɛ kɛse na ɛma ɛyɛ den sɛ wobɛyɛ da biara da dwumadi ahorow a, ɛho hia sɛ wokɔ oduruyɛfo nkyɛn kɔhwehwɛ afotu.

Dɛn ne Ankylosing Spondylitis ho sɛnkyerɛnne ahorow?

Nsɛnkyerɛnne no betumi ayɛ soronko wɔ onipa biara ho. Nanso, sɛnkyerɛnne a ɛtaa ba ne akyi berɛmo mu yaw . Eyi fi ɔfe anaa Sacroiliitis a ɛwɔ sacroiliac nkwaa no mu.

Ɛtɔ mmere bi a, ɛyaw yi betumi atrɛw akɔ mmeae afoforo, sɛ nhwɛso no:

• Ɛyaw a ɛba asen mu nkwaa mu
• Ɛyaw a ɛba akyi berɛmo mu
• Kɔn mu yaw
• Nnipa binom nso betumi ate yafunu mu yaw.

Nea ɛka ho no, ebia sɛnkyerɛnne afoforo pii wɔ hɔ:

• Asen nkwaa ne n’akyi ase a ɛyɛ den anaasɛ entumi nkɔ baabiara yiye . Eyi da adi titiriw bere a wudi kan sɔre anɔpa, anaa bere a woagyina hɔ akyɛ wɔ tebea koro no ara mu akyi no.
• Ɔbrɛ a wɔte nka bere nyinaa (Ɔbrɛ) . Te sɛ nea nipadua no nni nkwa.
• Ebia ɛbɛyɛ den ama nnipa binom sɛ wɔbɛhome (dyspnea) .
• Aduan ho akɔnnɔ a ɛyera anaasɛ ne mu duru a ɛso tew a ntease biara nnim .
• Ebia nnipa binom benya akisikuru .
• Honam ani akisikuru .
• Anisoadehu mu haw ahorow nso betumi aba.

Dɛn nti na eyi (Ankylosing Spondylitis) ba?

Ankylosing Spondylitis yɛ yare a nipadua no tumi ko tia nyarewa . Sɛ yɛbɛka no tiawa a, yɛn nipadua no wɔ asraafo dɔm bi a wɔko tia atamfo, a wɔfrɛ no nipadua mu tumi a ɛko tia nyarewa. Eyi yɛ nea wɔde bɛbɔ yɛn ho ban afi nyarewa ho. Nanso wɔ saa yare a nipadua no tumi ko tia nyarewa yi mu no, yɛn ankasa asraafo di mfomso tow hyɛ yɛn ankasa nkwammoaa pa so. Ɛte sɛ nea yɛretow ahyɛ yɛn ankasa fie so.

Wonnya nhuu nea ɛde Ankylosing Spondylitis ba ankasa. Nanso, nhwehwɛmu ada no adi sɛ awosu mu nsakrae pɔtee pii ne yare no wɔ abusuabɔ a emu yɛ den. Saa awosu mu nsakrae yi yɛ nsakrae nketenkete a ɛba yɛn DNA mu bere a yɛn nkwammoaa mu apaapae, a ɛkyerɛ sɛ wɔhyehyɛ nkwammoaa foforo no.

Awosu mu nkwaadɔm a wɔayɛ no foforo bɛboro 60 na wosusuw sɛ ɛne yare no wɔ abusuabɔ. Nhwɛso titiriw biako ne HLA-B27 awosu mu abɔde . Wɔahu sɛ aborɔfo a wɔwɔ Ankylosing Spondylitis no mu bɛboro 90% wɔ saa HLA-B27 awosu mu abɔde a wɔayɛ no foforo yi.

Henanom na wɔwɔ asiane kɛse mu sɛ wobenya saa yare yi?

Obiara betumi anya saa yare yi, nanso akuw bi na ɛda adi sɛ wobenya bi.

• Nnipa a wonnii mfeɛ aduanan : Nnipa bɛboro 80% na wɔhunu sɛ wɔwɔ Ankylosing Spondylitis bere a wɔadi mfeɛ aduasa.
• Ɛda adi sɛ mmarima benya eyi.
• Sɛ obi wɔ w’abusua mu, titiriw w’awofo, wɔ Ankylosing Spondylitis a, wo nso wowɔ asiane mu sɛ wubenya bi.

Afei nso, nnipa a wɔwɔ nyarewa afoforo bi no taa nya Ankylosing Spondylitis. Nhwɛsoɔ:

• (Crohn yare) (tebea bi a ɛma aduan mu yɛ hyew) .
• Ulcerative colitis (yare a ɛma obi ho hyehye no wɔ dwensɔtwaa kɛse no mu) .
• (Psoriasis) (honam ani yare) .

Dɛn ne nsɛnnennen a ebetumi afi Ankylosing Spondylitis mu aba?

Nnipa a wɔwɔ Ankylosing Spondylitis no wɔ asiane kɛse mu sɛ wɔn akyi berɛmo bebubu efisɛ bere kɔ so no, nnompe a ɛwɔ akyi berɛmo no mu no betumi ayɛ mmerɛw.

Nsɛnnennen afoforo nso betumi aba:

• Fused vertebrae : Eyi ma ɛyɛ den sɛ wobɛkotow anaasɛ wobɛdannan akyi berɛmo no, na ɛmma ɛnyɛ yiye sɛ wobɛma akyi berɛmo no ayɛ tẽẽ.
• (Kyphosis) : Eyi kyerɛ sɛ akyi berɛmo no kotow akɔ n’anim, na ɛma ɛyɛ te sɛ nea obi rehuruhuruw.
• Nnompe mu yare : Nnompe yɛ mmerɛw na ɛnyɛ den sɛ ebebubu.
• Aniwa ne aniwa mu haw : Sɛ nhwɛso no , uveitis (aniwa no mu fã a ɛyɛ hyew) anaa hann a ɛyɛ mmerɛw betumi aba.
• Koma mu yare : (Aortitis) .Tebea horow te sɛ (ntini akɛse a ɛyɛ hyew), (Arrhythmia) (koma a ɛbɔ daa) ne (Cardiomyopathy) (koma ntini a ɛyɛ mmerɛw).
• Ntini a ɛsɛe .

Saa nsɛnnennen yi mma obiara so, nanso sɛ wɔanhyɛ yare no so yiye a, asiane a ɛwɔ hɔ sɛ ɛbɛba no yɛ kɛse.

Ɔkwan bɛn so na nnuruyɛfo hu Ankylosing Spondylitis?

Oduruyɛfo bedi kan ahu tebea yi denam nipadua mu nhwehwɛmu a ɔbɛyɛ so . Wɔbɛhwehwɛ wo nipadua mu na wɔne wo akasa afa wo sɛnkyerɛnne ahorow ho. Ɛho hia sɛ woka bere a edi kan a wufii ase tee ɛyaw anaa sɛnkyerɛnne afoforo, bere a wote nka kɛse wɔ da no mu, ne sɛ ebia wɔsɛe kɛse wɔ dwumadi biara mu ho asɛm kyerɛ wo duruyɛfo.

Ebia ɛho behia nso sɛ wokɔ akisikuru ho oduruyɛfo, oduruyɛfo a ne ho akokwaw wɔ ntini mu yare ne nyarewa a ɛtete saa mu .

Nhwehwɛmu bɛn na wɔde hu Ankylosing Spondylitis?

Nhwehwɛmu biako biara nni hɔ a ebetumi akyerɛ sɛ yare yi wɔ hɔ. Oduruyɛfo no bɛba awiei bere a wayɛ nhwehwɛmu pii akyi nkutoo.

• X-ray a wɔde yɛ sacroiliac nkwaa ne akyi berɛmo : Eyinom hwɛ sɛ ebia ntini mu yare ho sɛnkyerɛnne bi wɔ hɔ anaa.
• (Magnetic Resonance Imaging - MRI) : Eyi tumi hu nsɛm pii sen X-ray. Etumi hu nsakrae a ɛnyɛ anifere mpo wɔ nkwaa no mu.
• Mogya mu nhwehwɛmu : Wubetumi ayɛ mogya mu nhwehwɛmu ahwɛ sɛ wowɔ mutated gene (HLA-B27) a yɛadi kan aka ho asɛm no anaa. Nanso, ɛnyɛ obiara a ɔwɔ saa awosu mu abɔde yi na obenya Ankylosing Spondylitis, na wɔn a wonni saa awosu yi mpo betumi anya bi. Enti eyi yɛ ade biako pɛ.

Ɔkwan bɛn so na wɔsa Ankylosing Spondylitis?

Wo duruyɛfo bɛkamfo ayaresa ahorow a ebetumi aboa ma woadi wo sɛnkyerɛnne ahorow so na atew nkɛntɛnso a yare no nya wɔ wo da biara da asetra so no akyerɛ wo.

Ayaresa a wɔtaa de sa Ankylosing Spondylitis ne:

• Apɔw-mu-teɛteɛ : Apɔw-mu-teɛteɛ a wobɛyɛ no daa betumi aboa ma nkwaa a ɛyɛ den no so atew na ama yare no agyae. Wɔ nnipa pii fam no, ɛyaw no mu yɛ den bere a wɔnyɛ hwee no. Apɔw-mu-teɛteɛ ho ɔyaresafo betumi ahyɛ nyansa sɛ wɔmfa ntrɛwmu ne apɔw-mu-teɛteɛ pɔtee bi a ɛhyɛ ntini a ɛboa w’akyi ne w’akyi berɛmo no mu den.
• Nnuru a ɛnyɛ steroid a ɛko tia ɔyare mmoawa (NSAIDs) : Nnuru a wɔtɔn te sɛ ibuprofen ne naproxen betumi aboa ma ɛyaw ne ɔfe so atew. Nanso, ɛyɛ papa sɛ wo ne oduruyɛfo bɛkasa ansa na woanom nnuru yi bɛboro nnafua 10.
• Biologic disease-modifying anti-rheumatic drugs (DMARDs) : Eyinom yɛ nnuru a wɔkyerɛw ma obi a ɛtew ɔfe ne ɛyaw so. Wobetumi nso asiw yare no ano (Ankylosing Spondylitis) na anyɛ kɛse.
• (Nnuru a wɔfrɛ no corticosteroids) .: Eyinom nso yɛ nnuru a ekum ɔyare mmoawa a oduruyɛfo kyerɛw ma. Ɛtɔ mmere bi a, wobetumi de cortisone aduru ama nkwaa a ayɛ basaa no tẽẽ.
• Oprehyɛn : Wɔntaa nhia oprehyɛn wɔ ankylosing spondylitis ho. Mpɛn pii no, nnuruyɛfo kamfo kyerɛ sɛ wɔnyɛ oprehyɛn mma nnipa a wɔwɔ yare no ho sɛnkyerɛnne a emu yɛ den a wɔnyɛɛ ayaresa afoforo ho hwee.

Ɛrenkyɛ na me ho atɔ me?

Sɛ wufi ase sa yare wie a, nkakrankakra wo ho bɛtɔ wo. Ebia wo yare no ho sɛnkyerɛnne no renkɔ koraa, nanso bere a wunya ayaresa a ɛyɛ adwuma ma wo no, wo sɛnkyerɛnne no so bɛtew na w’asetra ayɛ mmerɛw. Apɔw-mu-teɛteɛ ne nipadua mu ayaresa yɛ nneɛma a egye bere ansa na wɔayɛ adwuma. Afei nso, bere a egye ansa na aduru biara atumi ayɛ adwuma no gu ahorow. Enti bisa wo duruyɛfo bere tenten a wubetumi ahwɛ kwan sɛ wubehu nkɔso ho asɛm.

Dɛn na ɛsɛ sɛ obi a ɔwɔ Ankylosing Spondylitis hwɛ kwan?

Ankylosing Spondylitis yɛ tebea a enni sabea a ɛtra hɔ kyɛ . Ebia ɛsɛ sɛ wudi wo yare no ho sɛnkyerɛnne ho dwuma bere tenten, ebia w’asetra nyinaa. Ebia nnipa binom benya bere a yare no ho sɛnkyerɛnne kakraa bi anaasɛ ɛnyɛ den (remissions). Nanso, sɛ woannya sɛnkyerɛnne biara bere tiaa bi mpo a, wobetumi asan aba bio.

Nea ɛho hia ne sɛ, wonni aduru biara a wɔde sa Ankylosing Spondylitis anaa ntini mu yare foforo biara. Nanso ɛno nkyerɛ sɛ ɛsɛ sɛ wotra ase wɔ ɛyaw mu.

Wo ne wo duruyɛfo nkasa pefee fa sɛnea wote nka, sɛnea wo sɛnkyerɛnne ahorow renya wo da biara da dwumadi ahorow, ne sɛnea woreyɛ nneɛma a w’ani gye ho no ho.

Ɔkwan bɛn so na ɛsɛ sɛ mehwɛ me ho?

Wɔ wo Ankylosing Spondylitis ayaresa nhyehyɛe a wubedi akyi no, nneɛma pii wɔ hɔ a w’ankasa wubetumi ayɛ de atew ɔfe a ɛwɔ wo nipadua mu no so na ama nhyɛso a ɛba wo nkwaa so no so atew:

• Di aduan pa ne apɔw-mu-teɛteɛ nhyehyɛe a ɛfata wo akyi.
• To nsa a wonom ano hye.
• Sɛ wonom sigaret a, gyae. Eyi betumi ama ɔfe no ayɛ kɛse.

Bere bɛn na ɛsɛ sɛ mekɔ me duruyɛfo nkyɛn?

Sɛ wunya yare no ho sɛnkyerɛnne foforo anaa sɛ wo yare no mu yɛ den a, kɔ oduruyɛfo nkyɛn. Afei nso, sɛ ɛte sɛ nea w’ayaresa no ntumi nni wo yare no ho sɛnkyerɛnne so yiye sɛnea na ɛte kan no a, ka kyerɛ wo duruyɛfo.

Sɛ wuhu sɛnkyerɛnne ahorow a edidi so yi mu biara a, kɔ oduruyɛfo nkyɛn ntɛm ara:

• Koko mu yaw
• Ɔhome a ɛyɛ den
• Anisoadehu mu haw ahorow
• Akyi yaw a emu yɛ den anaa nkwaa mu yaw foforo
• Sɛ w’akyi berɛmo te nka sɛ ɛyɛ den soronko na entumi nkotow a
• Sɛ wo mu duru so retew a ntease biara nnim a

Nsɛm bɛn na ɛsɛ sɛ mibisa me duruyɛfo?

Nsɛm bi a wubetumi abisa wo duruyɛfo:

• So mewɔ Ankylosing Spondylitis anaa ntini mu yare foforo?
• So ebehia sɛ wɔyɛ me awosu mu nhwehwɛmu?
• Ayaresa bɛn na ebetumi aboa ma madi me yare no ho sɛnkyerɛnne ahorow so?
• So mehia nipadua mu ayaresa?

Nea etwa to no, nneɛma a ɛsɛ sɛ yɛkae

Ntini mu yare biara a wobɛtra ase no betumi ayɛ den. Sɛ wowɔ Ankylosing Spondylitis a, ebetumi ayɛ yaw ankasa wɔ w’afurum mu. Ɛyaw, akisikuru, ne sɛnkyerɛnne afoforo no betumi asɛe wo da biara da asetra. Nanso asɛmpa no ne sɛ Ankylosing Spondylitis yɛ tebea a wotumi di ho dwuma.

Wo duruyɛfo betumi aboa wo ma woanya ayaresa ahorow a ebetumi aboa ma wɔatew nkɛntɛnso a Ankylosing Spondylitis ho sɛnkyerɛnne ahorow no nya wɔ wo da biara da asetra so no so. Nsuro sɛ wubebisa nsɛm na woaka w’ayaresa ho asɛm. Wunim sɛnea wote nka no yiye. Enti ka w’adwene kyerɛ wo duruyɛfo.

` Akyi yaw, ankylosing spondylitis, ntini mu yare, nipadua mu ahoɔden a ɛko tia nyarewa, akyi berɛmo, ayaresa, HLA-B27