Ðe kpe siawo tɔgbe le wò ŋkuwo mea? Mina míasrɔ̃ nu tso Optic Disc Drusen ŋu!

Èbia ɖokuiwò kpɔ be, "Oo, nye ŋkuwo le nyuiea?" Ɣeaɖewoɣi la, nu suesuesuewo ate ŋu adzɔ le míaƒe ŋkuwo me siwo ŋu míenya nu tsoe gɔ̃ hã o. Nu mawo dometɔ ɖekae nye nɔnɔme aɖe si woyɔna be Optic Disc Drusen, si ŋu míaƒo nu tsoe egbea. Mègatsi dzi o, míaƒo nu tso esia ŋu bɔbɔe.

Nukae nye Optic Disc Drusen?

Kpuie ko la, Optic Disc Drusen nye calcium kple protein siwo me ami le suesuesue siwo ƒoa ƒu ɖe ŋku ƒe disk alo ŋku ƒe lãkusi ƒe ta me . Bu wo abe kpe suesuesuewo ene. Nya "drusen" tso Germanygbe me nya si gɔmee nye "kpe" me ŋutɔŋutɔ. Esiawo ate ŋu alolo vie, alo asẽ ɖe edzi le ɣeyiɣi aɖe megbe.

Ŋku ƒe lãmeka ƒe ke, alo nusi míeyɔna hã be ``Ŋku ƒe Disk'', nye wò ŋku ƒe lãkusi ƒe ŋgɔgbekpa ŋutɔŋutɔ. Lãmetsi siae tsɔa nusi nèkpɔna yia ahɔhɔ̃a me.

Drusen siawo ateŋu adzɔ ɣeaɖewoɣi le ŋku ɖeka ko me (`Unilateral`). Ke hã, zi geɖe (anɔ abe 75%) la, wokpɔa wo le ŋku eveawo me (`Bilateral`) . Le go aɖewo me la, nusiawo ate ŋu ana ame ƒe ŋkuwo nabu vie.

Aleke gbegbee nɔnɔme sia bɔe? Amekae le afɔku me wu?

Wobu akɔnta be ameawo ƒe 1% va ɖo 2% ate ŋu anye amesiwo ŋu optic disc drusen le. Nyatakaka aɖewo gblɔ be alesi wòbɔe nye 1.8% va ɖo 2.4%. Nɔnɔmea ate ŋu agblẽ nu le ame sia ame ŋu, eɖanye ŋutsu alo nyɔnue wònye o. Gake wokpɔe be ebɔ vie le yevuwo me ne wotsɔe sɔ kple to bubu me tɔwo.

Aleke nàwɔ anya ne nusiawo le asiwò? Nukawoe nye dzesiawo?

Zi geɖe la, dzesi aɖeke menɔa amesiwo ŋu optic disc drusen le ŋu o . Ɣeaɖewoɣi la, ne èyi ɖado ŋkumekpɔ edziedzi ko hafi wò ŋkudɔdala ava ke ɖe wo ŋu.

Ke hã, ame aɖewo ate ŋu akpɔ dzesiwo. Esiawo dometɔ aɖewoe nye:

• Nukpɔkpɔ ƒe gbɔdzɔgbɔdzɔ: Esia fia be wò nukpɔkpɔ ƒe akpa bliboa (nukpɔkpɔ le titina kple gota gome siaa) ƒe akpa aɖewo medzena o. Ame aɖewo gɔ̃ hã ate ŋu axɔ ŋkuʋuʋu gã aɖe . Tsɔe be èle ŋku lém ɖe ŋgɔ tẽ eye kasia wò ŋku bu ame aɖe si gbɔna tso axadzi.
• Nukpɔkpɔ ate ŋu azu ɣie alo azu blukɔ hena ɣeyiɣi kpui aɖe.
• Nukpɔkpɔ le gota gome ƒe bu vivivi.
• Teƒe ɣi alo ɣi siwo le wò ŋku ƒe lãkusi (`Optic Disc`) ƒe gɔme .Ne ɖɔkta le ŋku lém ɖe wò ŋkuwo ŋu la, woate ŋu ade dzesii be ƒuƒuwo le wo ŋu . Drusen aɖewo dzena (`visible optic disc drusen`), gake ɖewo ateŋu anye "ɣla" (`buried optic disc drusen`). Wo kpɔkpɔ sesẽna bɔbɔe.

Bu eŋu kpɔ, zi geɖe la, Samantha sena le eɖokui me be yemete ŋu le nu kpɔm nyuie o ne nane le ʋuʋum le yeƒe ŋkume. Gbã la, eŋe aɖaba ƒu edzi, gake esi wòyi ŋkudɔdala gbɔ vɔ megbe hafi wòkpɔe be optic disc drusen le ŋku eveawo ŋu.

Nukatae optic disc drusen dzɔna?

Drusen dzɔna to protein siwo me ami le kple nu bubuwo ƒe ƒuƒoƒo me. Gake dzɔdzɔmeŋutinunyalawo menya nusita tututu nu siawo ƒoa ƒu heƒoa ƒu ɖo haɖe o . Le go aɖewo me la, woate ŋu anyi eƒe dome . Esia fia be ne dɔléle sia le ame aɖe ŋu le wò ƒomea me la, anɔ eme be wò hã nàxɔe.

Aleke ɖɔktawo dea dzesi esiae? Dodokpɔ kawoe wowɔna?

Zi geɖe la, wò ŋkudɔdala ate ŋu akpɔ drusen siawo le ŋkumekpɔkpɔ edziedzi me. Emegbe woate ŋu awɔ dodokpɔwo abe esiawo ene atsɔ aɖo kpe edzi be:

• Nukpɔkpɔ ƒe dodokpɔ: Esia léa ŋku ɖe wò nukpɔkpɔ ƒe didime ŋu kple nenye be teƒe aɖewo li siwo màte ŋu akpɔ o.
• Optical Coherence Tomography (OCT): Esia nye mɔ̃ɖaŋununya deŋgɔ ƒe fotoɖeɖe . Ele abe ŋkua ƒe akpa si le eme ƒe fotoɖeɖe kple ŋkuléle ɖe eŋu ƒuƒoƒo ɖesiaɖe ene. Ate ŋu afia afisi drusen le kple eƒe lolome.
• Ultrasound : Esia hã nye scan si wowɔna tsɔ léa ŋku ɖe ŋkua me. Eɖea vi ŋutɔ le drusen si woɖi la didi me.
• CT scan (`CT - computed tomography scan`): Ɣeaɖewoɣi la, woateŋu awɔ scan sia hã, vevietɔ be woadi calcium ƒe agbɔsɔsɔ si le eme.
• Fluorescein angiography: Esia zãa fotoɖemɔ̃ tɔxɛ aɖe kple amadede si me keklẽŋusẽ le tsɔ ɖea ŋkua ƒe megbe ƒe akpa si le eme. Esia wɔnɛ be woate ŋu akpɔ ʋukawo ƒe nɔnɔme.
• Fundus autofluorescence: Esia hã nye mɔnu si dzi woato aɖe ŋku ƒe akpa si le eme ƒe foto. Gake esia mehiã be woado amadede aɖe o. Wozãa amadede aɖe si woyɔna be ``Lipofuscin'' si le míaƒe ŋutilã me (si ƒoa ƒu ne míele tsitsim alo le atikewɔwɔ ƒe nɔnɔme aɖewo me) tsɔ wɔa dodokpɔ sia.

Ðe atike aɖe li na esia? Aleke wokpɔa edzii?

Ne optic disc drusen le ŋuwò la, ɖewohĩ màhiã be woawɔ atike na wò alo akpɔ egbɔ etɔxɛe o . Fifia womewɔ amekoko alo atike aɖeke na dɔléle sia o. Gake mègatsi dzi o, mehiã be ame akpa gãtɔ natsi dzi ɖe eŋu o.

Ne Optic Disc Drusen le asinye la, nukae wòle be makpɔ mɔ na?

Zi geɖe la , nyagblɔɖi na amesi ŋu optic disc drusen le la nyo ŋutɔ . Gake dɔnɔ aɖewo ate ŋu akpɔ nu le gotagome vie . Emae nye nu vevitɔ si ate ŋu adzɔ.

Ƒã ŋutɔ hafi drusen siawo ate ŋu ahe kuxiwo vɛ. Kuxi siawo siwo mebɔ o dometɔ aɖewoe nye:

• Choroidal neovascular membranes (CNVM): Esiawo nye ʋuka yeye siwo mesɔ o siwo dzɔna le ŋkua me. Woate ŋu aʋu ʋu, si ate ŋu ana be ame ƒe ŋkuwo nagate ŋu akpɔ nu le titina o. Ne edzɔ alea la, ate ŋu ahiã be woatsɔ laser awɔ dɔe be ʋua natɔ te.
• Anterior ischemic optic neuropathy (AION): Esia nye ɣeyiɣi si me ʋu si yia ŋkume ƒe lãmeka me dzi ɖe kpɔtɔ, si gblẽa nu le lãmekaa ŋu.
• Retinal vascular occlusions: Ʋuka siwo le ŋku ƒe ŋkume ƒe xexe.

Esiawo nye nudzɔdzɔ siwo mebɔ kura o, eyata mègatsi dzodzodzoe madzemadzee o.

Ðe nɔnɔme sia nye afɔkua?

Ne ède dzesi tɔtrɔ aɖewo le wò nukpɔkpɔ me hã la, zi geɖe la, Optic Disc Drusen menye nɔnɔme si me afɔku le o . Gake woate ŋu atsɔ wo asɔ kple atikewɔwɔ me nɔnɔme bubuwo. Esia tae atikewɔlawo ƒe aɖaŋuɖoɖo kple dodokpɔ edziedzi le vevie ɖo.

Ðe mɔ aɖe li si dzi woato axe mɔ na nusiawo be woagadzɔ oa?

Nublanuitɔe la, mɔ aɖeke meli si dzi woato axe mɔ ɖe optic disc drusen ƒe wɔwɔ nu fifia o .

Ɣekaɣie wòle be makpɔ ɖɔkta?

Ele vevie ŋutɔ be woado wò ŋkuwo kpɔ le ɣeyiɣi aɖewo me (nukpɔkpɔ dodokpɔ edziedzi). Azɔ hã, ne ède dzesi tɔtrɔ aɖewo le wò ŋkume , yi ɖɔkta gbɔ enumake. Mègaŋe aɖaba ƒu naneke dzi o, nenye be enye nu sue aɖe gɔ̃ hã.

Vovototo kae le Optic Disc Drusen kple ŋkudɔ bubuwo dome?

Drusen ate ŋu aɖi ŋku ƒe dɔléle bubuwo, eyata ele vevie be nànya vovototo si le wo dome.

Mele be woatɔtɔe kple Papilledema o!

Ame aɖewo hã yɔa optic disc drusen be "pseudopapilledema." "Aʋatso" gɔmee nye alakpa, si fia be menye nu ŋutɔŋutɔe wònye o.

Papilledema ƒe ʋuʋuEsiae nye esime nyaƒoɖeamenu si le wò tagbɔ me (intracranial pressure) nana ŋkume ƒe lãkusia vuvu. Esia nye atikewɔwɔ kpata.

Optic disc drusen hã ate ŋu ana optic nerve ke nadze abe ɖe wòvuvu ene, gake menye vuvu ŋutɔŋutɔe wònye o. Esia tae woyɔnɛ be `Pseudopapilledema`.

Glaucoma kple Ŋku ƒe Disk Drusen

Glucoma kple optic disc drusen siaa ate ŋu ahe kuxiwo vɛ na wò ŋku ƒe dɔwɔwɔ. Ɣeaɖewoɣi la, nɔnɔme eveawo siaa ate ŋu adzɔ ɖekae. Eyata ele be wò ɖɔkta nate ŋu ade vovototo nɔnɔme eveawo dome . Glaucoma nye ŋkudɔ sesẽ aɖe si hiã be woadae.

Ðe kadodo aɖe le Retinitis Pigmentosa domea?

Amesiwo ŋu dɔléle aɖe si woyɔna be retinitis pigmentosa (RP) le la ate ŋu axɔ optic disc drusen wu amehawo katã. Afɔku sia lolo ŋutɔ le amesiwo ŋu RP ƒomevi aɖewo le kple amesiwo ŋu dɔléle aɖe si woyɔna be Usher ƒe dɔléle le gome .

Ðe Noonan ƒe dɔlélea hã kpɔa ŋusẽ ɖe edzia?

Noonan ƒe dɔlélea nye domenyiŋusẽfianu ƒe dɔléle. Amesiwo ŋu dɔléle sia le ate ŋu akpɔ kuxiwo le ŋku ƒe ŋkumeʋuʋu ƒe tsitsi ŋu. Eyata ate ŋu axɔ optic disc drusen hã na amesi ŋu Noonan ƒe dɔlélea le.

Kpuie ko la, nu siwo dzi wòle be míaɖo ŋkui

Enyo, eyata míeƒo nu geɖe tso Optic Disc Drusen ŋu. Le nyataƒoƒo me la, nu vevi siwo dzi wòle be nàɖo ŋkui dometɔ aɖewoe nye esi:

• Optic disc drusen nye calcium kple protein siwo me ami le siwo dzɔna le ŋku ƒe lãkusi si le ŋkua me ƒe gɔme.
• Ame geɖe mekpɔa dzesi aɖeke o.
• Zi geɖe la, afɔku menɔa nɔnɔme sia me o , gake le go siwo mebɔ o me la, ŋku ƒe tɔtrɔ alo kuxi aɖewo ate ŋu ado mo ɖa.
• Fifia la, atike alo atike tɔxɛ aɖeke meli na esia o.
• Nu vevitɔe nye be nàdo wò ŋkuwo kpɔ edziedzi eye nàdi atikewɔlawo ƒe aɖaŋuɖoɖo enumake ne ède dzesi tɔtrɔ aɖewo le wò ŋkumekpɔkpɔ me.

Ðo ŋku edzi be wò ŋkuwoe nye nunɔamesi vevitɔ kekeake si le asiwò. Eya ta, wò agbanɔamedzie wònye be nàlé be na wo nyuie. Mègabu ŋku ƒe kuxi aɖeke nu tsɛe le susu aɖeke ta o.

Ne èdi be yeanya nu geɖe tso esia ŋu la, ƒo nu kple wò ŋkudɔdala. Ate ŋu agblɔ nya bubuwo na wò.