He kanaka anei ʻoe me Hemophilia A? A i ʻole he maʻi kēia i loaʻa i kekahi o kou ʻohana? Inā pēlā, ua ʻike paha ʻoe i ke koʻikoʻi o ka kaohi ʻana i ke kahe koko ke hiki mai. I kēia lā e kamaʻilio mākou e pili ana i ka lāʻau pale koʻikoʻi i hoʻohana ʻia no kēia kumu, ʻo ia ka lāʻau pale Antihemophilic Factor (AHF) a i ʻole Factor VIII. E kamaʻilio wale kākou e pili ana i ke ʻano o ia mea, pehea e hoʻohana ʻia ai, a me nā mea e makaʻala ai.
He aha kēia lāʻau lapaʻau i kapa ʻia ʻo Factor VIII?
I ka ʻōlelo maʻalahi, ʻaʻohe a liʻiliʻi paha ka Factor VIII o ka poʻe me ka hemophilia A, kahi protein e pono ai no ke kāpili ʻana o ke koko. No laila, hiki i kahi ʻeha liʻiliʻi ke hoʻoulu i ke kahe koko nui. Hana kēia lāʻau pale ma ka hāʻawi ʻana i ke kino me kēlā Factor VIII nele.
Hoʻohana nui ʻia kēia no:
- No ka pale ʻana a i ʻole kaohi ʻana i ke kahe koko i nā maʻi me ka hemophilia A.
- Inā ʻoe e hana ʻia ana i ke ʻoki kino, e kaohi i kekahi kahe koko e hiki mai ana i kēlā manawa.
- I kekahi mau hihia, hoʻohana ʻia kekahi mau ʻano o kēia lāʻau lapaʻau e mālama i kahi maʻi kahe koko ʻē aʻe i kapa ʻia ʻo ka maʻi von Willebrand.
Hiki ke loaʻa kēia lāʻau lapaʻau ma lalo o nā inoa inoa like ʻole e like me Advate, Kogenate, Humate-P, XYNTHA, a pēlā aku. ʻOiai ke inoa āu e loaʻa ai, aia i loko ka Factor VIII like.
Nā mea āu e haʻi aku ai i kāu kauka ma mua o ka lawe ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui loa e kūkākūkā pono i kēia mau mea me kāu kauka.
- Nā maʻi ʻaleka: E hōʻoia e haʻi mai iā mākou inā ua loaʻa iā ʻoe kahi maʻi ʻaleka i nā protein kanaka a holoholona paha (e like me ka pipi, hamster, ʻiole, puaʻa), nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, nā mea hoʻomalu, a i ʻole nā mea hoʻoluʻu.
- Hāpai: Inā hāpai ʻoe a i ʻole e hoʻāʻo ana e hāpai, e hoʻomaopopo i kāu kauka.
- Inā he makuahine hānai ʻoe: Inā he makuahine hānai ʻoe, pono ʻoe e haʻi i kēlā.
Ma muli o kēia ʻike, e hoʻoholo ke kauka i ka lāʻau lapaʻau kūpono a palekana loa nāu. No laila, mai hūnā i kekahi mea.
Pehea e pono ai iaʻu ke hoʻohana i kēia lāʻau lapaʻau?
He inikini kēia i loko o kahi aa koko . Hāʻawi pinepine ʻia kēia e kekahi loea lapaʻau i aʻo ʻia ma kahi haukapila a i ʻole ke keʻena lapaʻau. Eia nō naʻe, ua aʻo ʻia kekahi mau maʻi pehea e hāʻawi ai i kēia inikini ma ka home. Inā hāʻawi ʻia kēia inikini iā ʻoe ma ka home, pono ʻoe e hahai pololei i nā kuhikuhi . Inā kānalua ʻoe pehea e hoʻohuihui ai i ka lāʻau lapaʻau a i ʻole e inikini i ka inikini, e nīnau hou i kāu kauka.
I ka manawa hea e hāʻawi ʻia ai i nā keiki liʻiliʻi?
Hiki ke hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki o kēlā me kēia makahiki, e like me ka mea e pono ai. Eia nō naʻe, pono ia i ka mālama kūikawā. No laila, inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i kāu keiki, e kamaʻilio me kāu kauka lapaʻau e pili ana i ia mea a e kiʻi i ka ʻōlelo aʻo.
He aha kāu e hana ai inā lawe nui ʻoe i ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe hewa ʻoe i ka nui o kēia lāʻau lapaʻau, e kelepona koke aku i ke Kikowaena ʻIke ʻAi ʻona Lahui ma ka Halemai Lahui ma Colombo . A i ʻole e hele i ka ʻOihana Pilikia (ETU) o ka haukapila kokoke loa. Mai hoʻonele i ka manawa.
Nā kiko kūikawā e makaʻala ai
- E lawe i kahi kāleka ID: Inā he hemophilia kou, he mea nui loa ka lawe ʻana i kahi kāleka ID me ʻoe i nā manawa a pau. Hiki iā ia ke hoʻopakele i kou ola i kahi pilikia. Pono e hoʻokomo i ke kāleka kou inoa, ka inoa a me ka nui o ka lāʻau lapaʻau āu e lawe nei, ka inoa a me ka helu kelepona o kāu kauka, a me ka ʻike o kekahi mea hiki iā ʻoe ke hoʻokaʻaʻike aku inā he pilikia.
- Kumu o ka lāʻau lapaʻau: Hana ʻia kekahi o kēia mau lāʻau lapaʻau mai ka plasma koko kanaka. He liʻiliʻi loa ka pilikia o ka hoʻoili ʻana i nā maʻi a i ʻole nā bacteria mai kēia mau mea. Eia nō naʻe, ua hana nui ʻia kēia mau huahana a pau e pepehi i ka hapa nui o nā maʻi a me nā bacteria. Inā he mau nīnau kāu e pili ana i kēia, mai kānalua e kamaʻilio me kāu kauka.
- Mai kaʻana like i ka lāʻau lapaʻau: Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me kekahi.
Nā hopena ʻaoʻao hiki ke loaʻa o kēia lāʻau lapaʻau
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke loaʻa kekahi mau hopena ʻaoʻao. He mea nui e ʻike i ke ʻano o lākou a me ka mea e hana ai inā loaʻa.
| Hopena ʻaoʻao | Ka wehewehe a me nā mea e hana ai |
|---|---|
| Inā loaʻa kēia mau hōʻailona, e hoʻomaopopo koke i kāu kauka. | |
| Nā hopena maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, lehelehe a i ʻole ke alelo, paʻakikī ke hanu. |
| ʻEha umauma | ʻEha umauma me ka puʻuwai wikiwiki a i ʻole ka puʻuwai kūpono ʻole. |
| Pōʻino a me ka nawaliwali | Ka poniuniu koke, ka ʻike maka pohihihi, a i ʻole ka manaʻo o ka nāwaliwali. |
| ʻO ke kuni a me nā hōʻailona e like me ke anu | Nā hōʻailona e like me ke kuni, ke anu a me ka haʻalulu. |
| Ka mae ʻana o nā lālā | Ka mae a i ʻole ka nalowale o ka ʻike ma nā lima a i ʻole nā wāwae. |
| Melemele o nā maka a i ʻole ka ʻili | Melemele o nā keʻokeʻo o nā maka a i ʻole ka ʻili. |
| Inā hoʻomau kēia mau mea a lilo paha i mea hoʻopilikia, e haʻi i kāu kauka. | |
| ʻEha poʻo, nausea, luaʻi | ʻEha iki ke poʻo, ka nausea, a i ʻole ka luaʻi ʻana. |
| ʻIke pōwehiwehi | ʻIke pōwehiwehi iki. |
Pehea e mālama ai i ka lāʻau lapaʻau?
Inā hoʻohana ʻia ma ka home, he mea nui loa e mālama pono i ka lāʻau lapaʻau.
- E mālama ʻia mai nā keiki aku.
- Pono e mālama ʻia ka hapa nui o nā huahana i loko o ka pahu hau ma kahi mahana ma waena o 2 a me 8 kekelē Celsius (2-8 °C). Mai mālama i loko o ka pahu hau.
- E hoʻolei aku i kekahi lāʻau lapaʻau i hala i kona lā palena pau me ka hoʻohana ʻole ʻana.
- Ke hui ʻia ka wai no ka lāʻau pale, pono e hoʻohana ʻia i loko o 1 a 3 mau hola. E hoʻolei i kekahi wai i koe.
Inā he mau ʻōlelo kūikawā e pili ana i ka huahana āu e loaʻa ai, e hahai pololei iā lākou.
Leka Lawe-Home
- He lāʻau lapaʻau koʻikoʻi loa ka Factor VIII e hoʻihoʻi i ka factor clotting koko i nele i ke kino o nā maʻi hemophilia A a kaohi i ke kahe ʻana o ke koko.
- E haʻi i kāu kauka e pili ana i kāu mau maʻi allergies a me ka ʻike olakino ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau.
- E hahai pono i nā kuhikuhi no ka hoʻohana ʻana a me ka mālama ʻana i ka lāʻau lapaʻau. Inā kānalua, e nīnau hou.
- E lawe mau i kahi kāleka ID e hōʻoia ana he hemophiliac ʻoe.
- Inā loaʻa iā ʻoe kahi hopena koʻikoʻi e like me ka maʻi ʻaleka koʻikoʻi, ka ʻeha o ka umauma, a i ʻole ka paʻakikī o ka hanu ʻana, e ʻimi koke i ke kōkua lapaʻau.
- No kāu hoʻohana ponoʻī wale nō kēia lāʻau lapaʻau. Mai kaʻana like me nā poʻe ʻē aʻe.
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