Ua nalowale koke anei kou lohe a ke manaʻo nei ʻoe ua poniuniu? Hiki paha i kēia ke AIED (Autoimmune Inner Ear Disease)?

E noʻonoʻo i ka nalowale koke ʻana o ka lohe ma kekahi pepeiao... a laila, ma hope o kekahi mau pule a i ʻole mau mahina, e nalowale ana ka lohe ma kekahi pepeiao. I ka manawa like, manaʻo ʻoe ua poniuniu ʻoe, a puka mai kahi leo kani mau mai loko mai o kou pepeiao... Inā hana ʻia kekahi mea e like me kēia, e makaʻu loa kekahi, ʻeā? I kēia lā e kamaʻilio mākou e pili ana i kahi kūlana e hoʻoulu ai i kēia mau hōʻailona, ​​​​he mea kakaikahi iki ia, akā he mea nui loa ia e ʻike. ʻO ia ka Autoimmune Inner Ear Disease, a i ʻole AIED no ka pōkole.

I ka ʻōlelo maʻalahi, he aha ka AIED?

I mea e hoʻomaopopo ai i kēia, e kamaʻilio mua kākou e pili ana i ka ʻōnaehana pale o ko kākou kino. He ʻōnaehana pale ko ko kākou kino. Ua like ia me kahi pūʻali koa e pale ana i kahi ʻāina. ʻO ke kuleana nui o nā koa (nā cell immune) o kēia pūʻali koa, ʻo ia ka ʻimi, hopu, a luku i nā ʻenemi e like me nā germs, viruses, a me nā bacteria e komo i loko o ko kākou kino.

Akā, i kekahi manawa hele hewa iki ko kākou pūʻali koa ponoʻī. Hoʻomaka lākou e hoʻouka i kekahi o ko kākou mau pūnaewele olakino a maikaʻi, me ka manaʻo he "ʻenemi" lākou. ʻO kēia ka mea a kākou e kapa nei he kūlana 'autoimmune' .

No laila, ʻo ia ka mea e hana ʻia ma kēia maʻi i kapa ʻia ʻo AIED. Kuhi hewa kā mākou ʻōnaehana pale i nā hunaola palupalu i loko o ko mākou pepeiao i loko no nā ʻenemi a hoʻouka a hōʻino iā lākou. He ʻano laha ʻole kēia. ʻAʻole i hiki i ka 1% o ka poʻe me ka nalowale o ka lohe ke loaʻa kēia ʻano. He mea maʻamau ia i nā wahine waena.

He aha nā hōʻailona nui o kēia?

Ma muli o ka maʻamau o nā hōʻailona o AIED, hiki ke huikau ʻia me nā kūlana ʻē aʻe i kekahi manawa. Akā he mea nui e makaʻala i kēia mau hōʻailona.

Pilina me nā maʻi autoimmune ʻē aʻe

He mea nui loa nō hoʻi kēia. Ma kahi o 30% o ka poʻe me AIED e loaʻa paha i kahi maʻi autoimmune ʻē aʻe e hoʻopilikia ai i ke kino holoʻokoʻa. Eia kekahi laʻana:

• ʻO ka ʻāʻī rheumatoid
• Lupus
• ʻO ka ʻeha koko
• ʻO ka maʻi ʻōpū ulcerative
• ʻO ka maʻi maka maloʻo (Sjogren's Syndrome)

ʻO ke ʻano kēia, ʻaʻole wale ka pepeiao e hoʻouka nei ka ʻōnaehana pale maʻi, akā, ʻo nā ʻāpana ʻē aʻe o ke kino.

Pehea ʻoe e ʻike ai i kēia maʻi?

I ka ʻoiaʻiʻo, hiki ke paʻakikī iki ka ʻike ʻana i ka AIED, ʻoiai hiki ke ʻike ʻia nā hōʻailona i ʻōlelo ʻia ma luna nei i nā kūlana maʻamau ʻē aʻe, e like me nā maʻi pepeiao. I nā hihia he nui, ʻaʻole paha e kānalua ʻia a hiki i ka hoʻomaka ʻana o ka nalowale o ka lohe ma kekahi pepeiao a laha i kekahi pepeiao.

E hana kāu kauka i kēia mau mea e ʻike ai i ka maʻi:

1. E nīnau lākou iā ʻoe i nā nīnau: E nīnau lākou iā ʻoe i nā kikoʻī he nui, e like me kou mōʻaukala olakino, inā paha ua loaʻa i kekahi o kou ʻohana kēia maʻi, a pehea i hoʻomaka ai kāu mau hōʻailona.

2. Hana i kahi hoʻokolokolo kino: Nānā pono ʻia nā pepeiao, ka ihu, a me ka ʻāʻī.

3. Hoʻāʻo Lohe: E hana ʻia kahi hoʻāʻo kūikawā e ʻike ai i ka maikaʻi o kou lohe ʻana.

4. Hoʻāʻo Kaulike: Hiki i kēia ke nānā i ka maikaʻi o ke kamaʻilio ʻana o kou pepeiao i loko me kou lolo.

5. Nā Hoʻāʻo Koko (Hana Koko):ʻAʻohe hoʻāʻo koko e hiki ke hōʻoia pono i ka AIED, akā hiki i kēia mau hoʻāʻo ke hāʻawi iā ʻoe i kahi manaʻo inā ʻoe e ʻike nei i kahi hopena autoimmune.

I ka hapanui o nā hihia, ʻoiai inā ʻaʻole hiki ke hōʻoia 100% ʻia ka hōʻailona, ​​hiki i ke kauka ke hoʻoholo e hoʻomaka i ka lāʻau lapaʻau ma muli o nā hōʻailona a me nā hopena hoʻāʻo. ʻO kēia no ka mea inā hoʻopaneʻe ʻia ka lāʻau lapaʻau, ʻaʻole paha e hoʻihoʻi ʻia ka pōʻino i ka pepeiao. No kekahi poʻe, ua hōʻoia wale ʻia ua AIED kēia ke emi nā hōʻailona ma hope o ka hoʻomaka ʻana o ka lāʻau lapaʻau.

He aha kāu e hana ai no ka mālama ʻana?

ʻO ka pahuhopu nui o ka mālama ʻana i ka AIED, ʻo ia ke kaohi i ka hana hewa o ka ʻōnaehana pale a pale i ka hōʻino hou ʻana i ka pepeiao o loko.

• Nā Steroid: Hiki i kāu kauka ke hāʻawi mua iā ʻoe i kahi lāʻau lapaʻau anti-inflammatory e like me nā steroid. Ua hōʻike ʻia kēia mau mea he pono no ka AIED. Eia nō naʻe, hiki iā lākou ke loaʻa nā hopena ʻaoʻao, no laila ʻaʻole pono e hoʻohana ʻia no nā pule he nui.
• Nā lāʻau lapaʻau immunosuppressant: Ma hope o ka hoʻōki ʻana i nā steroids, hiki ke hāʻawi ʻia nā lāʻau lapaʻau ʻē aʻe e "hōʻoluʻolu" i kāu ʻōnaehana pale (e like me Azathioprine, Methotrexate) i ka wā lōʻihi.
• Nā Mea Kōkua Hoʻolohe: Inā ua nalowale kou lohe, hiki iā ʻoe ke hoʻohana i kahi mea kōkua hoʻolohe e hoʻoponopono ai.
• Hoʻokomo Cochlear: I nā hihia o ka nalowale nui o ka lohe, hiki i kāu kauka ke ʻōlelo aku i kahi hoʻokomo cochlear. He mea uila liʻiliʻi kēia i hoʻokomo ʻia ma lalo o ka ʻili ma hope o ka pepeiao. Hoʻoulu ia i nā aʻalolo i loko o ka pepeiao o loko e hoʻololi i ke kani i mau hōʻailona a hoʻouna iā lākou i ka lolo.

I ka holomua ʻana o ka ʻepekema lapaʻau, hiki nō paha ke puka mai nā lāʻau lapaʻau ʻoi aku ka maikaʻi me nā hopena ʻaoʻao liʻiliʻi a me nā lāʻau lapaʻau hou e like me ka gene therapy no AIED i ka wā e hiki mai ana.